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# ARCH National Respite Network & Resource Center

## Sitemaps

- [XML Sitemap](https://archrespite.org/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [Nevada State Plan for the Support of Family Caregivers: January 2022 to December 2024](https://archrespite.org/nevada-state-plan-for-the-support-of-family-caregivers-january-2022-to-december-2024/) - This State Plan was developed by the Nevada Lifespan Respite Care Coalition, with input from family caregivers, service providers, and state agencies, and various information gathering activities conducted by the Nevada Lifespan Respite Care Coalition (NLRCC) from October 2021 to December 2022. The recommendations outlined in this plan reflects the Nevada Lifespan Respite Care Coalition
- [Grant Opportunity for Serving Holocaust Survivors, Older Adults, and Family Caregivers](https://archrespite.org/grant-opportunity-for-serving-holocaust-survivors-older-adults-and-family-caregivers/) - Jewish Federations’ Center on Aging, Trauma, and Holocaust Survivor Care seeks applications from organizations across the United States to develop innovative, person-centered, trauma-informed (PCTI) services for Holocaust survivors, older adults with a history of trauma, and/or their family caregivers. Learn more, watch the recorded Informational Session, and apply through the Call for Applications webpage. Important
- [Maude's Awards](https://archrespite.org/maudes-awards/) - Maude’s Awards gives three annual $25,000 awards to organizations and up to five $5,000 awards to individuals excelling in one of four categories of care for persons living with dementia and care partners. IMPORTANT DATE: Applications close May 19, 2026 at 6 PM PT. There are four categories of awards, one of which is Supporting
- [🚨URGENT ACTION NEEDED: Deadline for House Members to Sign Appropriations Request Extended to March 23rd! Help Protect Lifespan Respite Care in FY 2027](https://archrespite.org/🚨urgent-action-needed-help-protect-lifespan-respite-care-in-fy-2027/) - Reps. Debbie Dingell (D-MI) and Brian Fitzpatrick (R-PA) are circulating a bipartisan “Dear Colleague” letter in the U.S. House of Representatives asking Members to support $20 million in FY 2027 funding for the Lifespan Respite Care Program. This bipartisan request to the House Appropriations Committee is critical to ensuring the Lifespan Respite Care Program continues
- [Lifespan Respite Reauthorization Act of 2025 Signed Into Law](https://archrespite.org/lifespan-respite-reauthorization-act-of-2025-signed-into-law/) - Thank Congress for Supporting Family Caregivers The U.S. House passed and the President signed a package of spending bills Tuesday to end the partial government shutdown. We are excited to report that the bill includes the Lifespan Respite Reauthorization Act that extends the program through FY 2030. As importantly, it clarifies the definition of eligible
- [Christopher and Dana Reeve Foundation Quality of Life Grants](https://archrespite.org/christopher-and-dana-reeve-foundation-quality-of-life-grants/) - Proposals Due March 12, 2026 The Christopher & Dana Reeve Foundation Quality of Life grants program offers a tiered grants strategy awarding Direct Effect (Tier 1) grants from $5,000 up to $24,999 to support a wide array of programs and activities. In addition, we have created Priority Impact grants (Tiers 2, 3 & 4) with
- [StARS Dementia Care Innovation Grants](https://archrespite.org/dementia-care-innovation-grants/) - StARS State Alzheimer's Research Support Center Important Dates: Letter of Intent Due Date: March 12, 2026 by 5 PM ET Full Proposal Due Date (for applicants whose LOI is accepted): May 21, 2026 by 5 PM ET Anticipated Project Dates: September 1, 2026 – August 31, 2027 The StARS Center supports projects that advance the
- [Center for Dementia Respite Innovation Grants  from the Alzheimer's Association](https://archrespite.org/center-for-dementia-respite-innovation-grantsalzheimers-association/) - Important Dates Application Deadline: March 30th at 11:59 PM ET Informational webinar: Feb. 18, 2026 at 1 p.m. ET Letter of Intent deadline: March 2, 2026 at 11:59 p.m. ET There are 11 million Americans providing unpaid care for people living with dementia. Currently the United States has just one adult day care center or home
- [AmeriCorps Seniors RSVP Funding Opportunity](https://archrespite.org/americorps-seniors-rsvp-funding-opportunity/) - Application Deadline: Thursday, March 26, at 5:00 p.m. Established in 1971 and now one of the largest senior volunteer programs in the nation, AmeriCorps Seniors RSVP engages people ages 55 and older in a diverse range of volunteer activities. AmeriCorps Seniors RSVP volunteers choose how, where, and how often they want to serve, with commitments
- [2026 AARP Community Challenge](https://archrespite.org/2026-aarp-community-challenge/) - Application Deadline: March 4, 2026, 5 pm ET | 2 pm PT In 2026, the AARP Community Challenge is a grant program to make communities more livable for people of all ages with tangible improvements that jump-start long-term change. AARP will accept applications across three distinct grant opportunities: Flagship Grants Capacity-Building Microgrants Demonstration Grants Many
- [Thank Congress for Supporting Family Caregivers](https://archrespite.org/thank-congress-for-supporting-family-caregivers/) - The House has passed the Consolidated Appropriations Act, 2026, which would fund the Department of Health and Human Services through September 30, 2026. The Senate is expected to vote on the bill next week. Thanks to your advocacy, the Lifespan Respite Care Program will receive $11 million in FY 2026—a $1 million increase over FY
- [Eleven Respite Services Retain Recognition as Innovative and Exemplary](https://archrespite.org/eleven-respite-services-retain-recognition-as-innovative-and-exemplary/) - Washington, D.C., January 16, 2026—The ARCH National Respite Network and Resource Center is pleased to announce that 11 long-standing respite services from across the country were renewed for an additional five years of recognition as Innovative and Exemplary Respite Services. All of these programs were initially recognized for this highest level of distinction in 2019,
- [Community Care Corps Grant Opportunity](https://archrespite.org/community-care-corps-grant-opportunity/) - IMPORTANT DATES Optional informational webinar – January 14, 2026 at 4:00 pm ET. On that date, join here. Applications due – February 26, 2026 at 5:00 pm ET Community Care Corps encourages organizations across the country to apply for 18-month grants ($30,000–$200,000) to develop and scale innovative volunteer programs that provide nonmedical assistance to older adults, adults age 18 and older with disabilities
- [Community Heart & Soul Planning, Technical Assistance, and Seed Grant Program](https://archrespite.org/community-heart-soul-planning-technical-assistance-and-seed-grant-program/) - Community Heart & Soul is a community development process that engages residents in identifying what matters most to the community and how to build lasting change. Activities and objectives are determined by communities, and projects have included volunteerism, healthcare access, social programs, transportation, broadband, and emergency preparedness, among others. Seed grants are offered to qualifying
- [RRF Foundation for Aging](https://archrespite.org/rrf-foundation-for-aging-2/) - Important DatesLetter of Inquiry (required) Due: February 5, 2026. Selected Applicants will be invited to submit a full proposal. The foundation invites applications for its grantmaking program, which aims to improve the quality of life for older people. One priority area for the RRF is: Caregiving: Ensuring that all care partners are informed, well-trained, and
- [Urge your Representative and Senators to Cosponsor the Lifespan Respite Care Reauthorization Act of 2025 (S. 830/H.R. 2560)](https://archrespite.org/urge-your-representative-and-senators-to-cosponsor-the-lifespan-respite-care-reauthorization-act-of-2025-s-830-h-r-2560/) - Members of Congress should cosponsor the Lifespan Respite Reauthorization Act and Urge Swift Passage before the End of the Year! Thank you for your continued advocacy for the Lifespan Respite Care Program. Family caregivers urgently need our support. The Older Americans Act must be reauthorized, Medicaid protections require constant vigilance, and caregivers need meaningful financial
- [Introduction of Senate Lifespan Respite Reauthorization Act](https://archrespite.org/introduction-of-senate-lifespan-respite-reauthorization-act/) - We are very excited to share that today Senators Susan Collins (R-ME) and Tammy Baldwin (D-WI) introduced the Lifespan Respite Care Reauthorization Act in the Senate. The National Respite Coalition organized a letter of support from 39 national organizations. Watch Sen. Collins Floor Statement, read her floor statement, and the press release. Next week, the
- [Parkinson's Foundation Community Grants](https://archrespite.org/parkinsons-foundation-community-grants/) - Information Webinar:Tuesday, December 2, 2025 | 3:00 - 4:00 PM ET Register for Webinar Applications Due: Friday, January 30, 2026 The Parkinson’s Foundation funds community grants that further the health, wellness and education of people with Parkinson's disease (PD) across the U.S. The Foundation funds programs that are impactful, sustainable, scalable and measurable. Programs may
- [The State Of Family Caregiving](https://archrespite.org/the-state-of-family-caregiving/) - Research conducted by the Columbia University Mailman School of Public Health and sponsored by Otsuka America Pharmaceutical, Inc. Nearly half of America’s states are on the brink of a caregiving emergency. The latest installment of this Otsuka-sponsored caregiver research series introduces a new scorecard to assess the urgency of local caregiving needs and collects recommendations
- [Caregiving in the U.S. 2025: Caring Across States ](https://archrespite.org/caregiving-in-the-u-s-2025-caring-across-states/) - National Alliance for Caregiving and AARP, October 2025 Released just in time for National Family Caregivers Month, a new companion report to Caregiving in the U.S. 2025—Caring Across States—offers valuable insights to help raise awareness about family caregiver needs in your state. The report presents state-level data on the number of family caregivers and highlights significant
- [Social Connection Grant Opportunity](https://archrespite.org/social-connection-grant-opportunity/) - USAging’s Strengthening Social Connection in Communities (SSCC) is seeking applicants for 12-month seed grants, not exceeding $35,000 each, for up to 10 organizations within the Aging Network. Two grantees must be located in western New York, specifically in one of the following counties: Allegany, Cattaraugus, Chautauqua, Erie, Genesee, Niagara, Orleans or Wyoming. Organizations can submit a proposal in one
- [Walmart Spark Good Local Grants](https://archrespite.org/walmart-spark-good-local-grants/) - Grants ranging from $250 to $5000 are designed to support local organizations that meet the unique needs of the communities where Walmart U.S. stores, Sam’s Clubs and Distribution Centers operate. Grants are awarded through an open application process to eligible organizations serving the same service area that the facility they are requesting funding from serves.
- [Five Respite Services Retain Recognition as Innovative and Exemplary](https://archrespite.org/five-respite-services-retain-recognition-as-innovative-and-exemplary/) - Washington, D.C., October 20, 2025 —The ARCH National Respite Network and Resource Center is pleased to announce that 5 respite services from across the country were renewed for an additional three years of recognition as Innovative and Exemplary Respite Services. All of these programs were previously recognized for this highest level of distinction in 2022.
- [(Archived) Anne Arundel County Department of Aging and Disabilities Respite Care Referral Program  ](https://archrespite.org/anne-arundel-county-department-of-aging-and-disabilities-respite-care-referral-program/) - This program was archived in 2023 because they did not respond to their 3-year Innovative and Exemplary Respite Services review. (Archived) Operating since 1986 in Glen Burnie, MD, this program provides a lower-cost alternative to out-of-home care that allows frail older adults, and adults with disabilities, to remain in their homes. The Respite Care Referral
- [(Archived) Family to Family Adult Care](https://archrespite.org/family-to-family-adult-care/) - This program has been archived because they did not respond to their 3-year Innovative and Exemplary Respite Services review. Rising Star: (Archived) The Family to Family Adult Care Service in Memphis, Tennessee, has experienced remarkable growth from 10 to 80 plus families during its initial three years. Serving persons with physical disabilities, behavioral and mental
- [(Archived) Music Therapy Respite Program Cleveland Clinic Lou Ruvo Center for Brain Health](https://archrespite.org/music-therapy-respite-program-cleveland-clinic-lou-ruvo-center-for-brain-health/) - This program has been archived because they did not respond to a request for information at their 3-year Innovative and Exemplary Respite Services review. Rising Star: (Archived) The Music Therapy Respite Program at the Cleveland Clinic Lou Ruvo Center for Brain Health in Las Vegas has elevated an established therapy approach among aging populations by
- [(Archived) Central Minnesota Elder Network, Respite Care Program](https://archrespite.org/central-minnesota-elder-network-respite-care-program/) - This program was archived in 2023. They did not respond to a request for information during their three-year Innovative and Exemplary Respite Services review. Central Minnesota Elder Network, Respite Care Program, a rural program, has been in existence for 15 years with the overriding goal of providing caregiver support while enriching the lives of care receivers.
- [(Archived) The ALS Association Saint Louis Chapter, Caregiver Relief Program](https://archrespite.org/the-als-association-saint-louis-chapter-caregiver-relief-program/) - This program was archived in 2024. They did not respond to request for information during their three-year Innovative and Exemplary Respite Services review. The ALS Association Saint Louis Regional Chapter initiated their Caregiver Relief Program 11 years ago. The ALS Association was formed to support persons with ALS so they could remain in their homes throughout the disease process
- [(Archived) LUK (Let us Know) Hourly Respite Program](https://archrespite.org/archived-luk-let-us-know-hourly-respite-program/) - This program was archived in 2025 because they did not respond to a request for information at their 3-year Innovative and Exemploary Respite Services review. (archived). LUK (Let us Know) Hourly Respite Program, established in 2004, provides respite services to caregivers of children birth to 18-years with emotional and/or behavioral disturbances in a center-based setting,
- [Consumer Directed Respite: Decades of Experience from the Family Caregiver Alliance and California Caregiver Resource Centers](https://archrespite.org/consumer-directed-respite-decades-of-experience-from-the-family-caregiver-alliance-and-california-caregiver-resource-centers/) - Respite Voucher Learning Collaborative Kathy Kelly, Executive Director, and Christina Irving, Clinical Services Director at the Family Caregiver Alliance in San Francisco provided an overview of long-running consumer-directed respite services offered by California’s Caregiver Resource Centers, including the Family Caregiver Alliance, and the program's impact on family caregivers. They discuss how the program works, challenges and advantages, and how
- [Senate Appropriations Committee Takes Action on FY 2026 Funding](https://archrespite.org/senate-appropriations-committee-takes-action-on-fy-2026-funding/) - Now it's time to visit with House Members in their home districts this month. Schedule a meeting today! Thank you for your continued advocacy for funding for the Lifespan Respite Care Program and the National Family Caregiver Support Program, OAA Title III-E (NFCSP). Yesterday, the Senate Appropriations Committee approved the FY 2026 Labor, HHS, and
- [Senate Appropriations Committee to Consider FY 2026 Funding Bill This Week!!!](https://archrespite.org/senate-appropriations-committee-to-consider-fy-2026-funding-bill-this-week/) - ACTION NEEDED NOW to ENSURE FY 2026 FUNDING for VITAL FAMILY CAREGIVER PROGRAMS Medicaid Advocacy Continues Thank you for your unrelenting advocacy to save Medicaid. Last week, advocates led by Caring Across Generations and many others held a powerful 60 hour vigil on Capitol Hill to protect Medicaid in recognition of the program's 60th Anniversary.
- [ACTION NEEDED NOW to ENSURE FY 2026 FUNDING for VITAL FAMILY CAREGIVER PROGRAMS](https://archrespite.org/action-needed-now-to-ensure-fy-2026-funding-for-vital-family-caregiver-programs/) - Thank you for your unrelenting advocacy to save Medicaid and SNAP in the recently enacted Budget Reconciliation bill. We may not have won that battle, and the effects will be devastating for so many of the families we serve, but we have to keep organizing and making our voices heard. The fight is not over!
- [Take this Concrete Step to Save Lifespan Respite!](https://archrespite.org/take-this-concrete-step-to-save-lifespan-respite-2/) - Urge your U.S. Representative to Sign Congressional Letter Requesting Funding for Lifespan Respite in FY 2026! Deadline for Members to Sign on is Thursday, May 22 at 12:00 PM ET Rep. Debbie Dingell (D-MI) and Rep. Brian Fitzpatrick (R-PA) are circulating a Dear Colleague letter in the U.S. House of Representatives asking Members to sign on to a letter to the
- [Take Urgent Action TODAY](https://archrespite.org/take-urgent-action-today/) - Senate Set to Consider Billions in Cuts to Medicaid and SNAP this Week The Senate could vote on the budget reconciliation bill this weekend or earlier. After passing the House, the Senate is expected to take up the Budget Reconciliation bill and vote on catastrophic cuts to Medicaid and food assistance (SNAP) this week. If
- [Federal Health Grants Shrink, Memory Cafes Help Dementia Patients and Their Caregivers](https://archrespite.org/14115-2/) - Lydia McFarlane, WVIA June 10, 2025 Rob Kennedy mingled with about a dozen other people in a community space in Clarks Summit, Pennsylvania. The room, decorated with an under-the-sea theme, had a balloon arch decked out with streamers meant to look like jellyfish and a cloud of clear balloons mimicking ocean bubbles. Kennedy comes to
- [Deadline Extended to June 9 for Sign on Opportunity for National, State and Local Organizations](https://archrespite.org/deadline-extended-to-june-9-for-sign-on-opportunity-for-national-state-and-local-organizations/) - Letter Requesting FY 26 Funding Increases for the Lifespan Respite Care Program and the National Family Caregiver Support Program 📣 Deadline for Sign-ons has been extended to Tuesday, June 10, 2025 The National Respite Coalition invites national, state and local organizations or coalitions to sign onto a letter to Congressional appropriators requesting funding increases in FY
- [America's Unseen Workforce](https://archrespite.org/americas-unseen-workforce/) - Research conducted by the Columbia University Mailman School of Public Health and sponsored by Otsuka America Pharmaceutical. Approximately 45 million family caregivers in the United States are providing an estimated $873.5 billion in free labor each year, according to the results of a study by the Columbia University Mailman School of Public Health sponsored by
- [Role Reversal: Millions of Kids Are Caregivers for Elders. Why Their Numbers Might Grow.](https://archrespite.org/role-reversal-millions-of-kids-are-caregivers-for-elders-why-their-numbers-might-grow/) - Leah Fabel and Oona Zenda Illustration by Oona Zenda June 2, 2025 ST. PAUL, Minn. — High school senior Joshua Yang understands sacrifice. When he was midway through 10th grade, his mom survived a terrible car crash. But her body developed tremors, and she lost mobility. After countless appointments, doctors diagnosed her with Parkinson’s disease,
- [Sign-On Opportunity for National, State and Local Organizations](https://archrespite.org/sign-on-opportunity-for-national-state-and-local-organizations/) - Letter Requesting FY 26 Funding Increases for the Lifespan Respite Care Program and the National Family Caregiver Support Program Deadline for Sign-ons is Friday, May 30, 2025. The National Respite Coalition invites national, state, and local organizations or coalitions to sign onto a letter to Congressional appropriators requesting funding increases in FY 2026 for the
- [UPDATE Take Urgent Action Now: House Set to Consider Billions in Cuts to Medicaid and SNAP This Week](https://archrespite.org/take-urgent-action-now-house-set-to-consider-billions-in-cuts-to-medicaid/) - QUICK READ The full House could vote on the budget reconciliation bill as early as Thursday of this week. Late Sunday night, the House Budget Committee passed the budget reconciliation package that includes more than $700 billion in Medicaid cuts and $300 billion in cuts to the Supplemental Nutrition Assistance Program (SNAP). The next step is
- [Take Action Now: House Committee Set to Consider Billions in Cuts to Medicaid](https://archrespite.org/take-action-now-house-committee-set-to-consider-billions-in-cuts-to-medicaid/) - Quick Read Next week, the House Energy and Commerce Committee will markup its part of the Republican reconciliation bill that proposes to cut Medicaid by hundreds of billions of dollars. These massive cuts put children and adults with disabilities and older adults at risk of losing coverage for critical home and community-based services (HCBS). If
- [Save Medicaid, SNAP, TANF and the Social Services Block Grant](https://archrespite.org/save-medicaid-snap-tanf-and-the-social-services-block-grant/) - The Budget Reconciliation process that is expected to include massive cuts to Medicaid, SNAP and TANF, and elimination of the Social Services Block Grant is underway in the Congress. All of these programs support the health and well-being of vulnerable children and their families, persons with disabilities, older adults, and their family and kinship caregivers.
- [Take this Concrete Step to Save Lifespan Respite! Urge your U.S. Representative to Sign Congressional Letter Requesting Funding for Lifespan Respite in FY 2026!](https://archrespite.org/house-member-request-letter/) - Rep. Debbie Dingell (D-MI) and Rep. Brian Fitzpatrick (R-PA) are circulating a Dear Colleague letter in the U.S. House of Representatives asking Members to sign on to a letter to the House Committee on Appropriations requesting $20 million for the Lifespan Respite Care Program in FY 2026. This bipartisan Congressional Member request is more important
- [Celebrating the 2025 National Lifespan Respite Conference](https://archrespite.org/celebrating-the-2025-national-lifespan-respite-conference/) - The 2025 National Lifespan Respite Conference was a huge success! With attendees from more than 35 states and Canada, we came together to successfully network, share our expertise, recognize innovation, amplify caregiver voices, renew our commitment to supporting caregivers, and find community and friendship in these unsettling times. Thank you to Alabama Lifespan Respite and UCP Huntsville for cohosting the event,
- [Protect Medicaid Call-In Day, Feb 25, 2025](https://archrespite.org/protect-medicaid-call-in-day-feb-25-2025/) - The House is expected to vote on the Budget Resolution on Tuesday, Feb 25, 2025, in the early evening. Make your voices heard and demand that your Representatives make NO CUTS to Medicaid. Medicaid cuts threaten the lives of people with disabilities, older adults and their family caregivers. TAKE ACTION on Tuesday, Feb 25 Call
- [Four Respite Services Selected as Innovative and Exemplary in National Search](https://archrespite.org/four-respite-services-selected-as-innovative-and-exemplary-in-national-search-2/) - Washington, D.C., February 3, 2025 —The ARCH National Respite Network and Resource Center is pleased to announce that four respite services from across the country were recognized with the highest level of distinction -- Innovative and Exemplary. Each respite service met a stringent set of criteria and all have outstanding programs that address the needs
- [ARCH Urges the National Institute on Disability, Independent Living and Rehabilitation Research to include research on respite and caregiving in Long-Range Plan](https://archrespite.org/arch-nidilrr-comments/) - On October 13, 2023, the ARCH National Respite Network and Resource Center provided recommendations to the National Institute on Disability, Independent Living and Rehabilitation Research (NIDILRR) to include research on respite and caregiving in its Draft 2024-2028 Long-Range Plan that establishes future research priorities. Given that at least 60-75 percent of adults with developmental disabilities
- [House Scraps Bipartisan Agreement on Continuing Resolution. Lifespan Respite Care and Older Americans Act Reauthorizations are at risk!](https://archrespite.org/house-scraps-bipartisan-agreement-on-continuing-resolution-lifespan-respite-care-and-older-americans-act-reauthorizations-are-at-risk/) - Urgent action needed to keep these important provisions from being dropped from the final bill! Yesterday, we wrote to you with great excitement that bipartisan House and Senate leadership released final legislative language for the must-pass Continuing Resolution that included Senate Lifespan Respite Reauthorization language that extends the program for five years through FY 2029
- [House and Senate Bipartisan Agreement on Continuing Resolution includes Lifespan Respite Care and Older Americans Act Reauthorizations!](https://archrespite.org/house-and-senate-bipartisan-agreement-on-continuing-resolution-includes-lifespan-respite-care-and-older-americans-act-reauthorizations/) - Action needed today to get it over the finish line! Last night, bipartisan House and Senate leadership released final legislative language for the must-pass Continuing Resolution. The National Respite Coalition is thrilled to report that the Senate Lifespan Respite Reauthorization language that extends the program for five years through FY 2029 and expands eligibility to
- [Three Respite Services Retain Recognition as Innovative and Exemplary](https://archrespite.org/three-respite-services-retain-recognition-as-innovative-and-exemplary/) - Washington, D.C., December 13, 2024—The ARCH National Respite Network and Resource Center is pleased to announce that 3 respite services from across the country were renewed for an additional three years of recognition as Innovative and Exemplary Respite Services. All of these programs were previously recognized for this highest level of distinction in 2021. Following
- [Urge Congress to Pass the Lifespan Respite Care Program Reauthorization Act (S. 4325) Immediately! Only two weeks remain in this legislative session!!](https://archrespite.org/urge-congress-to-pass-the-lifespan-respite-care-program-reauthorization-act-s-4325-immediately-only-two-weeks-remain-in-this-legislative-session/) - The good news is that the Senate passed the Older Americans Act Reauthorization bill this week and it was sent to the House for final passage, but urgent action is still needed on the Lifespan Respite Care Program Reauthorization bill!! The National Respite Coalition is urging you to speak up on behalf of the Lifespan
- [Urge Congress to Pass the Lifespan Respite Care Program Reauthorization Act (S. 4325) and the Older Americans Act Reauthorization Act (S. 4776) in the Lame Duck Session](https://archrespite.org/give-thanks-to-family-caregivers-as-we-celebrate-thanksgiving-and-honor-family-caregivers-by-taking-action-during-national-family-caregivers-month/) - Give Thanks to Family Caregivers as we Celebrate Thanksgiving and Honor Family Caregivers by Taking Action During National Family Caregivers Month During Thanksgiving week we give thanks to the nation's family caregivers for serving as the linchpin for our long-term services and supports system. In addition to giving thanks, November is also National Family Caregivers
- [Caregiver Nation Summit Provides an Opportunity for Collective Action to Support Family Caregivers](https://archrespite.org/caregiver-nation-summit-provides-an-opportunity-for-collective-action-to-support-family-caregivers/) - Protecting and advancing proven federal programs that support family caregivers are more important than ever. The National Alliance for Caregiving and their partners, with support from the John A. Hartford Foundation and many others, are convening the Caregiver Nation Summit in Washington, DC, on Nov 20 & 21. This is more than just a conference.
- [ARCH Awards Evaluation Mini-grants to four outstanding Innovative and Exemplary Respite Services](https://archrespite.org/arch-awards-evaluation-mini-grants-to-four-outstanding-innovative-and-exemplary-respite-services/) - Each year since 2019, ARCH has been seeking and selecting respite services that meet a stringent set of criteria for innovation and excellence. The purpose of the ARCH Innovative and Exemplary Services Initiative is to establish a registry of programs and services to help advance our collective understanding of what respite best practices mean. This year, four
- [National Strategy to Support Family Caregivers Progress and Impact Report 2024](https://archrespite.org/national-strategy-to-support-family-caregivers-progress-and-impact-report-2024/) - State and Community Actions Produced by the National Academy for State Health Policy with support from the John A Hartford Foundation. The newly released 2024 Progress & Impact Report on the National Strategy to Support Family Caregivers highlights actions by state and local governments, philanthropies, and communities that are making a real difference for the
- [Your Immediate Action is Needed!!  Swift Senate Action Needed on Lifespan Respite Care Program Reauthorization (S. 4325)](https://archrespite.org/your-immediate-action-is-needed-swift-senate-action-needed-on-lifespan-respite-care-program-reauthorization-s-4325/) - Given the few legislative days left in this Congress, the National Respite Coalition is urging you to contact your Senators and urge that they bring the Senate Lifespan Respite Care Reauthorization Act (S. 4325) to the floor for a vote as quickly as possible. We need your help this week, but action is especially critical
- [Senate HELP Committee Approves Lifespan Respite Care Program Reauthorization Bill](https://archrespite.org/senate-help-committee-approves-lifespan-respite-care-program-reauthorization-bill/) - Urge your Senators to Support S. 4325! On May 23, 2024, the U.S. Senate Committee on Health, Education, Labor & Pensions approved S. 4325, the Lifespan Respite Care Program Reauthorization Act of 2024, introduced by Sen. Susan Collins (R-ME) and Sen. Tammy Baldwin (D-WI). The bill reauthorizes the program for another five years for $50
- [Biden-Harris Administration Announces Medicare Dementia Care Model - Learn More!](https://archrespite.org/10444-2/)
- [Four Respite Services Selected as Innovative and Exemplary in National Search](https://archrespite.org/four-respite-services-selected-as-innovative-and-exemplary-in-national-search/) - Washington, D.C., February 15, 2024 —The ARCH National Respite Network and Resource Center is pleased to announce that four respite services from across the country were recognized with the highest level of distinction -- Innovative and Exemplary. Each respite service met a stringent set of criteria and all have outstanding programs that address the needs
- [Respite for ME Grants First Year Evaluation Report](https://archrespite.org/respite-for-me-grants-first-year-evaluation-report/) - Kimberly Snow and Jayne Foley, Catherine Cutler Institute, December 2023 The 2021 Maine Jobs & Recovery Plan proposed by Governor Mills and approved by the State Legislature, established the Respite for ME Grants pilot program to expand eligibility for respite services beyond existing respite programs. The pilot also provided flexibility in the type of services
- [Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences](https://archrespite.org/reducing-the-impact-of-dementia-in-america-a-decadal-survey-of-the-behavioral-and-social-sciences/) - The National Institute on Aging of the U.S. Department of Health and Human Services requested that the National Academies of Sciences, Engineering, and Medicine conduct a consensus study to produce a decadal survey of research in the social and behavioral sciences with the potential to mitigate the negative impacts of Alzheimer’s disease and related dementias
- [Facing Financial Ruin as Costs Soar for Elder Care](https://archrespite.org/11047-2/) - Facing Financial Ruin as Costs Soar for Elder Care Reed Abelson, The New York Times and Jordan Rau, KFF Health News November 14, 2023 Margaret Newcomb, 69, a retired French teacher, is desperately trying to protect her retirement savings by caring for her 82-year-old husband, who has severe dementia, at home in Seattle. She used
- [Trials of Caring for Their Aging Parents](https://archrespite.org/trials-of-caring-for-their-aging-parents/) - Adult Children Discuss the Trials of Caring for Their Aging Parents Reed Abelson, The New York Times and Jordan Rau, KFF Health News November 14, 2023 “It is emotionally and physically draining.” Natasha Lazartes 39, Brooklyn, New YorkTherapist I am 39 years old. I had to care for my father, who passed from cancer in
- [What Long-Term Care Looks Like Around the World](https://archrespite.org/what-long-term-care-looks-like-around-the-world/) - What Long-Term Care Looks Like Around the World Jordan Rau, KFF Health News November 14, 2023 Around the world, wealthy countries are struggling to afford long-term care for rapidly aging populations. Most spend more than the United States through government funding or insurance that individuals are legally required to obtain. Some protect individuals from exhausting
- [ARCH Provides Feedback on AHRQ's Technical Brief Protocol for the Evidence Map on Home and Community Based Services (HCBS) project.](https://archrespite.org/arch-provides-feedback-on-ahrqs-technical-brief-protocol-for-the-evidence-map-on-home-and-community-based-services-hcbs-project/) - Select members of the ARCH Committee for Advancement of Respite Research joined ARCH in submitting recommendations to the Agency for Healthcare Research and Quality (AHRQ) on their Technical Brief Protocol for the Evidence Map on Home and Community Based Services (HCBS) project. Highlights of ARCH Recommendations Recognize the important role of family caregivers and encourage
- [A New Medicare Proposal Would Cover Training for Family Caregivers](https://archrespite.org/10550-2/) - Judith Graham August 18, 2023 Even with extensive caregiving experience, Patti LaFleur was unprepared for the crisis that hit in April 2021, when her mother, Linda LaTurner, fell out of a chair and broke her hip. LaTurner, 71, had been diagnosed with early-onset dementia seven years before. For two years, she’d been living with LaFleur,
- [Seven Respite Services Retain Recognition as Innovative and Exemplary](https://archrespite.org/seven-respite-services-retain-recognition-as-innovative-and-exemplary/) - Washington, D.C., November 13, 2023—The ARCH National Respite Network and Resource Center is pleased to announce that 7 respite services from across the country were renewed for an additional three years of recognition as Innovative and Exemplary Respite Services. All of these programs were previously recognized for this highest level of distinction in 2020. Following
- [ARCH Joins USAging to Strengthen Infrastructure Supporting Family Caregivers](https://archrespite.org/arch-joins-usaging-to-strengthen-infrastructure-supporting-family-caregivers/) - USAging will expand and enhance the capacity of the Aging Network to support family caregivers with funding it has received from the U.S. Administration for Community Living (ACL). Building upon the roadmap established by the 2022 National Strategy to Support Family Caregivers, the four-year cooperative agreement will enable USAging to launch the Innovations in Family
- [New Website Provides Clear Strategies to Support Family Caregivers](https://archrespite.org/new-website-provides-clear-strategies-to-support-family-caregivers/) - SupportCaregiving.org offers resources to help guide implementation of the National Strategy to Support Family Caregivers A coalition of groups including the National Academy for State Health Policy (NASHP), the National Alliance for Caregiving, and The John A. Hartford Foundation is proud to announce the launch of SupportCaregiving.org, a new site that supports the implementation of
- [Does the Senior Companion Respite<br>Service Matter for the Health and<br>Well-being of Caregivers?](https://archrespite.org/does-the-senior-companion-respiteservice-matter-for-the-health-andwell-being-of-caregivers/) - In 2014 the Corporation for National and Community Service (CNCS) launched an evaluation to assess the impact of the Senior Companion Program (SCP) respite services on beneficiaries and participants to inform policy discussion and strengthen the SCP respite service program. The evaluation included a baseline and one follow-up of caregivers who sought SCP respite service
- [TAKE ACTION on FY 2024 Appropriations During the August Congressional Recess](https://archrespite.org/take-action-on-fy-2024-appropriations-during-the-august-congressional-recess/) - You have the power and the voice! Background: Congress has a limited window to pass critical FY 2024 appropriations bills before the September 30th deadline. However, there are major disagreements between the House and Senate on funding levels, jeopardizing the future of essential programs. The Situation: In May, Congress agreed to cap FY 2024 domestic
- [Outcome Evaluation of the National Family Caregiver Support Program](https://archrespite.org/outcome-evaluation-of-the-national-family-caregiver-support-program/) - The Administration for Community Living (ACL) released the Outcome Evaluation of the National Family Caregiver Support Program (NFCSP) on December 6, 2018. Key Respite FindingsOne key finding regarding respite was that, on average, NFCSP caregivers who received 4 or more hours of respite care per week had a decrease in self-reported burden over time, while the comparison
- [Short breaks for carers: a scoping review](https://archrespite.org/short-breaks-for-carers-a-scoping-review/) - Prepared by Diane Seddon and Louise Prendergast, Wales Centre for Ageing and Dementia Research, School of Health Sciences, Bangor University and funded by Shared Care Scotland Shared Care Scotland, working alongside the UK Short Breaks Research & Practice Development Group, commissioned Bangor University to map and summarise all the research undertaken into short breaks. The
- [Lifespan Respite Funding](https://archrespite.org/lifespan-respite-funding/) - On July 29th, the House passed H.R. 4502, the "minibus" FY 2022 appropriation package to fund the Departments of Labor, Health and Human Services, Education, Agriculture, Energy, Interior, Veterans Affairs, Transportation, and Housing and Urban Development. Highlights of the House bill include $14.2 million for the Lifespan Respite Care Program, $250 for the National Family Caregiver Support Program, $23.5
- [FY 2023 OMNIBUS APPROPRIATIONS BILL RELEASED](https://archrespite.org/8696-2/) - In December, the Senate and House Appropriations Committees released the Consolidated Appropriations Act, 2023 consisting of all 12 fiscal year 2023 appropriations bills. This government funding package also includes emergency supplemental funding to respond to the devastation that recent natural disasters and extreme weather events have left behind and emergency resources to support the Ukrainian
- [White House Executive Order on Increasing Access to High-Quality Care and Supporting Caregivers](https://archrespite.org/white-house-executive-order-on-increasing-access-to-high-quality-care-and-supporting-caregivers/) - In April, the White House issued an Executive Order that puts in place more than 50 executive branch actions across multiple agencies to support family caregivers and direct care workers and improve the overall care infrastructure. The actions would increase compensation and improve job quality for family caregivers and care workers; make care more accessible
- [New from NASHP: Emerging Respite Care Strategies in Medicaid Home and Community-Based Services Waivers for Older Adults, Adults with Physical Disabilities, and their Family Caregivers](https://archrespite.org/emerging-respite-care-strategies-in-medicaid-home-and-community-based-services-waivers-for-older-adults-adults-with-physical-disabilities-and-their-family-caregivers/) - by Kimberly Hodges, Ella Taggart, Neva Kaye, Wendy Fox-Grage, National Academy for State Health Policy, May 2023 Respite care is one of the most desired caregiver services and a key component of the 2022 National Strategy to Support Family Caregivers. Although most states offer respite through Medicaid, varied program policies and payment rates among states
- [Nevada Lifespan Respite Care Coalition Successfully Advocates for Legislation Implementing Caregiver Assessment Pilot](https://archrespite.org/nevada-lifespan-respite-care-coalition-successfully-advocates-for-legislation-implementing-caregiver-assessment-pilot/) - On May 30, the Governor of Nevada singed AB100 into state law. This accomplishment was led by advocacy efforts of the Nevada Lifespan Respite Care Coalition. The bill requires the NV Department of Health and Human Services to: (1) develop evidence-based and culturally sensitive assessments to be administered to family caregivers for persons with disabilities
- [Supporting social connection for people living with dementia: lessons from the findings of the TRIO study](https://archrespite.org/supporting-social-connection-for-people-living-with-dementia-lessons-from-the-findings-of-the-trio-study/) - Prendergast, L.M., Toms, G., Seddon, D., Jones, C., Anthony, B.F. and Edwards, R.T. (2023). Working with Older People, Vol. No. ahead-of-print. The purpose of this paper is to share the learning concerning how services and the paid carers working in them can support people living with dementia (PLWD) and their unpaid carers to overcome social isolation.
- [The Senior Companion Program Plus (SCP Plus): Examining the Preliminary Effectiveness of a Lay Provider Program to Support African American Alzheimer’s Disease and Related Dementias (ADRD) Caregivers.](https://archrespite.org/the-senior-companion-program-plus-scp-plus-examining-the-preliminary-effectiveness-of-a-lay-provider-program-to-support-african-american-alzheimers-disease-and-related-dementias-adrd-car/) - Xu, L.; Fields, N.L.; Williams, I.C.; Gaugler, J.E.; Kunz-Lomelin, A.; Cipher, D.J.; Feinhals, G. Int. J. Environ. Res. Public Health 2023, 20, 5380. A culturally informed, peer-led, lay provider model, the Senior Companion Program (SCP) Plus, was implemented to decrease caregiving burden/stress and improve coping skills and social support for African American ADRD caregivers. The authors found
- [Impact: Engaging Communities Underrepresented in Disability Research](https://archrespite.org/impact-engaging-communities-underrepresented-in-disability-research/) - ICI’s Research and Training Center on Community Living (RTC-CL), University of Minnesota, Spring 2023 This special issue of Impact highlights critical disability research questions derived from a State of the Science meeting at RTC-CL. The issue is introduced by Tawara Goode, director of the Georgetown University National Center on Cultural Competence and the Georgetown University Center for
- [Take Action on Proposed House Budget](https://archrespite.org/take-action-on-proposed-house-budget/) - House of Representatives leadership is demanding significant cuts to programs important to people with disabilities, older adults and their family caregivers in exchange for lifting the debt ceiling for one year, holding the full faith and credit of the country hostage while demanding cuts to programs important to American families. House Speaker McCarthy introduced legislation
- [Ten House Members from both parties send Appropriations Request for $20 million for Lifespan Respite Care Program in FY 2024](https://archrespite.org/ten-house-members-from-both-parties-send-appropriations-request-for-20-million-for-lifespan-respite-care-program-in-fy-2024/) - Urge Your Members of Congress to Support $20 million in the FY 2024 Funding Bill. Visit them in their district offices this week during the Congressional recess to deliver the message! The National Respite Coalition worked with House champions, Rep. Debbie Dingell (D-MI) and Rep. Brian Fitzpatrick (R-PA) to secure signatures from House Members on
- [Urge your U.S. Representative to Sign Congressional Letter Requesting $20 million for Lifespan Respite in FY 2024!<br>Immediate Action is Needed!!<br>Deadline for Members to Sign is Wednesday, March 22, 2023](https://archrespite.org/urge-your-u-s-representative-to-sign-congressional-letter-requesting-20-million-for-lifespan-respite-in-fy-2024immediate-action-is-neededdeadline-for-members-to-sign-is-wednesday-march/) - Lifespan Respite Care Program champions, Representatives Debbie Dingell (D-MI) and Rep. Brian Fitzpatrick (R-PA), are circulating a Dear Colleague Letter in the House asking Members to sign on to the letter requesting $20 million for the Lifespan Respite Care Program in FY 2024. This is a doubling of current funding for the program, and more
- [Valuing the Invaluable 2023 Update: Strengthening Supports for Family Caregivers](https://archrespite.org/valuing-the-invaluable-2023-update-strengthening-supports-for-family-caregivers/) - by Susan C. Reinhard, Selena Caldera, Ari Houser, Rita B. Choula, AARP Public Policy Institute, March 8, 2023 The update from AARP Public Policy Institute, Valuing the Invaluable 2023 Update: Strengthening Supports for Family Caregivers, estimated that the economic value of family caregivers' unpaid contributions rose to $600 billion in 2021 from $470 billion in
- [New Resource from South Carolina Respite Coalition](https://archrespite.org/new-resource-from-south-carolina-respite-coalition/) - South Carolina: In an effort to engage the medical community in sharing information with caregivers about respite and other supports, the South Carolina Respite Coalition produced this video, A Physician’s Perspective on using respite to prevent Caregiver Stress Syndrome. Watch the Video
- [The United States Should Recognize and Support Caregiving Youth](https://archrespite.org/the-united-states-should-recognize-and-support-caregiving-youth/) - Emma Armstrong-Carter, Catherine Johnson, Julia Belkowitz, Connie Siskowski, Elizabeth Olson, Social Policy Report, First published: 12 July 2021 Vol.34, Issue 2, p. 1-24 Over 5.4 million U.S. children and adolescents 17 and under are family caregivers, This policy report describes the care they provide, and highlights the increasing prevalence, global challenges, and uneven successes in
- [A University-Wide Survey of Caregiving Students in the US: Individual Differences and Associations with Emotional and Academic Adjustment](https://archrespite.org/a-university-wide-survey-of-caregiving-students-in-the-us-individual-differences-and-associations-with-emotional-and-academic-adjustment/) - The United States does not track or support students in higher education who are caregivers. This study presents results from one of the first university-wide surveys of caregiving undergraduate and graduate students in the US to date. The study tested the viability of identifying caregiving students on university campuses, identified the demographics of caregiving students,
- [VA Expands Program of Comprehensive Assistance for Family Caregivers to Veterans of All Service Eras](https://archrespite.org/va-expands-program-of-comprehensive-assistance-for-family-caregivers-to-veterans-of-all-service-eras/) - The U.S. Department of Veterans Affairs (VA) is expanding the Program of Comprehensive Assistance for Family Caregivers (PCAFC) to include eligible Veterans and their family caregivers of all eras. VA’s PCAFC provides resources, education, respite, caregiver support, a financial stipend, health insurance (if eligible), and additional benefits to Family Caregivers of eligible Veterans. Learn more
- [HHS Offers States Flexibility to Better Address Medicaid Enrollees’ Needs](https://archrespite.org/hhs-offers-states-flexibility-to-better-address-medicaid-enrollees-needs/) - Centers for Medicare & Medicaid Services, January, 4, 2023 In early January, the Centers for Medicare & Medicaid Services released guidance for states to address health-related social needs for people with Medicaid coverage through the use of ‘in lieu of services and settings’ in Medicaid managed care. "This option will help states offer alternative benefits
- [Recruiting, Selecting, and Retaining Direct Service Workers to Provide Self-directed Home and Community-Based Services](https://archrespite.org/recruiting-selecting-and-retaining-direct-service-workers-to-provide-self-directed-home-and-community-based-services/) - from the The Centers for Medicare & Medicaid Services The Centers for Medicare & Medicaid Services (CMS) released an online training course and a series of resources that offer strategies and information on self-direction, strengthening the direct service workforce (DSW) in rural areas, and strategies emerging from CMS’ 2021 DSW State Medicaid Learning Collaborative. Each
- [First-ever National Strategy on Family Caregiving Released by the U.S. Department of Health and Human Services](https://archrespite.org/first-ever-national-strategy-on-family-caregiving-released-by-the-u-s-department-of-health-and-human-services/) - The U.S. Department of Health and Human Services (HHS) released a broad national strategy that provides the roadmap needed for federal, state, and local governments, as well as businesses and communities, to better support family caregivers. The 2022 National Strategy to Support Family Caregivers identifies hundreds of actions that federal agencies will take to prioritize
- [RRF Foundation for Aging](https://archrespite.org/rrf-foundation-for-aging/) - This ongoing funding opportunity from the RRF Foundation supports projects that have a significant focus on older adults ages 65 and over. The types of grants they fund include: Advocacy: Achieve enduring social change around issues that affect older Americans Direct Service: Improve availability and quality of community-based and residential long-term services and supports Professional
- [Daily sleep, well-being, and adult day services use among dementia care dyads](https://archrespite.org/daily-sleep-well-being-and-adult-day-services-use-among-dementia-care-dyads/) - The purpose of this study was to examine the effects of Adult Day Services (ADS) use on sleep quality for people with dementia and their caregivers. The authors found that regular ADS use may promote better sleep patterns, protect against the detrimental effects of sleep disturbances among dementia care dyads, and improve their wellbeing. Read
- [National Respite Coalition Alert:   House Committee Approves FY 2023 Funding Bill with $14.2 million for the Lifespan Respite Care Program and increases for NFCSP](https://archrespite.org/national-respite-coalition-alert-house-committee-approves-fy-2023-funding-bill-with-14-2-million-for-the-lifespan-respite-care-program-and-increases-for-nfcsp/) - On Thursday, June 30, the House Appropriations Committee approved the FY 2023 Labor-HHS- Education and Related Agencies Appropriations bill on a 32 to 24 vote. The bill includes $14.2 million for the Lifespan Respite Care Program, the amount requested by the President and $6.1 million more than the FY 2022 level. Eighteen Members of the U.S. House
- [Building the Research Pipeline: Home and Community-Based Services and the Dual-Eligible Population](https://archrespite.org/building-the-research-pipeline-home-and-community-based-services-and-the-dual-eligible-population/) - In mid-January, hundreds of researchers convened to discuss how to bolster the quantity and quality of research around dual-eligible individuals and home-and community-based services. With dual-eligible individuals among the hardest hit by COVID-19, the need for more research has become an urgent priority. Hosted by the National Institute on Disability, Independent Living, and Rehabilitation Research at
- [Taking a Break: Daily Respite Effects of Adult Day Services as Objective and Subjective Time Away From Caregiving](https://archrespite.org/taking-a-break-daily-respite-effects-of-adult-day-services-as-objective-and-subjective-time-away-from-caregiving/) - This study investigated how objective and subjective breaks from caregiving were associated with caregivers’ daily emotional health. Caregivers reported an average of 7.12 respite hours on Adult Days Services (ADS) days and 1.74 respite hours on non-ADS days. Having more objective respite was associated with higher positive affect, whereas more subjective respite was associated with
- [Cost-effectiveness of an in-home respite care program to support informal caregivers of persons with dementia: A model-based analysis](https://archrespite.org/cost-effectiveness-of-an-in-home-respite-care-program-to-support-informal-caregivers-of-persons-with-dementia-a-model-based-analysis/) - A previous comparative analysis of a respite intervention, in which caregivers were given a break from caregiving for at least five days while a trained professional cared for the person with dementia in their own homes, found that after 6 months, the caregiver's desire to institutionalize the person in their care decreased. In this current
- [Advancing Respite Research - Findings from the Respite Research Summit](https://archrespite.org/findings-from-the-respite-research-summit/) - On September 29 and 30, 2020, ARCH convened the virtual Respite Research Summit with more than 130 national and international participants. The Summit was a capstone event to an initiative by the ARCH National Respite Network and Resource Center to advance a respite research agenda developed by an Expert Panel. The purpose of the Summit was to
- [New York Sustainability Summit](https://archrespite.org/new-york-sustainability-summit/) - The New York State Caregiving and Respite Coalition hosted a virtual Sustainability Summit in October. The purposes of the Summit were to strengthen state and community partnerships to sustain New York’s Lifespan Respite activities; develop strategies to maximize use of existing respite resources; identify and leverage new respite funds; engage in sustainability planning; and generate
- [Urge your U.S. House Member to Sign Congressional Dear Colleague Letter for FY 2022 Lifespan Respite Funding](https://archrespite.org/urge-your-u-s-house-member-to-sign-congressional-dear-colleague-letter-for-fy-2022-lifespan-respite-funding/) - Representatives Jim Langevin (D-RI) and Brian Fitzpatrick (R-PA) are circulating a Dear Colleague letter to all Members in the U.S. House of Representatives urging them to sign onto a letter to the House Appropriations Committee requesting $14.2 million for the Lifespan Respite Care Program in the FY 2022 Labor, HHS, and Education Appropriations bill. This amount reflect the President's
- [15 House Members Send Congressional Letter Urging a Doubling in Funding for Lifespan Respite in FY 22](https://archrespite.org/15-house-members-send-congressional-letter-urging-a-doubling-in-funding-for-lifespan-respite-in-fy-22/) - On April 28, 15 Members of the House of Representatives from both parties sent a letter to the Labor-HHS-Education Appropriations Committee requesting $14.2 million for the Lifespan Respite Care Program in FY 2022. This amount reflects the President's budget recommendation to double funding for the program in the coming fiscal year. The letter was spearheaded
- [Fiscal Year 2022 Appropriations Update](https://archrespite.org/fiscal-year-2022-appropriations-update/) - On June 21, the National Respite Coalition sent a letter from 52 national organizations to House and Senate Appropriations Committee requesting $14. 2 million for the Lifespan Respite Care Program in FY 2022. On May 19, the House Labor, Health and Human Services, and Education Appropriations Subcommittee held a public hearing on the FY 2022 appropriations bill
- [House Committee Approves FY 2022 Funding Bill with $14.2 million for the Lifespan Respite Care Program and increases for NFCSP ](https://archrespite.org/house-committee-approves-fy-2022-funding-bill-with-14-2-million-for-the-lifespan-respite-care-program-and-increases-for-nfcsp/) - Today, July 15, the House Labor-HHS-Education Appropriations Committee approved the FY 2022 appropriations bill for programs in its jurisdiction. The bill includes $14.2 million for the Lifespan Respite Care Program, the amount requested by the President and double the amount appropriated in FY 2021. The National Respite Coalition had previously sent a letter from 52 national
- [Advancing Home and Community-Based Services Through Budget Reconciliation](https://archrespite.org/advancing-home-and-community-based-services-through-budget-reconciliation/) - Congress is finalizing budget top level numbers that will give Congressional committees direction on creating the final budget reconciliation package. Budget reconciliation requires a simple majority in the Senate for final passage, unlike most other legislation which requires 60 votes. However, all 50 Democratic Senators will be needed for passage, as there is no Republican
- [Research Recommendations included in the RAISE Family Caregiving and the Supporting Grandparents Raising Grandchildren (SGRG) Advisory Councils' Reports to Congress](https://archrespite.org/research-recommendations-included-in-the-raise-family-caregiving-and-the-supporting-grandparents-raising-grandchildren-sgrg-advisory-councils-reports-to-congress/) - The RAISE Act Family Caregiving Advisory Council recently released its recommendations in an initial report to Congress. The report includes family caregiving policy opportunities, diverse family caregiving stories from across the country, and 26 recommendations to better support family caregivers. The RAISE Advisory Council will develop a National Strategy to Support Family Caregivers to coordinate federal, state, local
- [Implications of the COVID-19 Pandemic on Adult Day Services and the Families They Serve](https://archrespite.org/implications-of-the-covid-19-pandemic-on-adult-day-services-and-the-families-they-serve/) - To assess the impact of the pandemic on Adult Day Services (ADS), a twenty-item survey was used to examine services provided, staffing, finances, and plans to reopen. Twenty-two sites participating in the Adult Day Service Plus study, which is a randomized controlled trial testing the provision of caregiver support onsite at ADS, were queried. According
- [Does Adult Day Service Use Improve Well-Being of Black Caregivers of People Living With Dementia?](https://archrespite.org/does-adult-day-service-use-improve-well-being-of-black-caregivers-of-people-living-with-dementia/) - This study examined the association between the use of ADS and depressive symptoms among Black dementia caregivers. The authors found that Black dementia caregivers who utilized ADS had lower depressive symptoms compared to those who did not utilize ADS. ADS may be a critical HCBS that can provide relief to Black caregivers. Read the Abstract
- [Caregiver Respite: An Essential Component of Home-and Community-Based Long-Term Care](https://archrespite.org/caregiver-respite-an-essential-component-of-home-and-community-based-long-term-care/) - During the pandemic, flexibilities in formal respite services and creative informal strategies emerged to ensure meaningful breaks for family caregivers. In this letter, Dr. Utz, who is a member of the ARCH Committee for Advancement of Respite Research, provides justification for making evaluation of the effectiveness, usability, and feasibility of these new forms of respite
- [Caregiver Quality of Life: How to Measure It and Why](https://archrespite.org/caregiver-quality-of-life-how-to-measure-it-and-why/) - The authors review the concept of caregiver quality of life (QOL) and offer recommendations for choosing and implementing a screening workflow. They suggest that "further research is needed to guide development and standardization of supportive pathways for providers and clinical services based on QOL scores, such as recommended scoring thresholds for stepped care interventions." Read the
- [A Group Respite Pilot Project for Children with Special Needs](https://archrespite.org/a-group-respite-pilot-project-for-children-with-special-needs/) - Being a caregiver for a family member or loved one with special needs is difficult. This pilot project documents the enthusiasm expressed by parents of children for accessible respite care and its potential for positive impact on these families. A group respite care program has spawned an inter-professional opportunity to collaborate and coordinate the care
- [Time for Living and Caring (TLC): A Virtual Coach to Maximize the Benefit of Respite Time Use](https://archrespite.org/time-for-living-and-caring-tlc-a-virtual-coach-to-maximize-the-benefit-of-respite-time-use/) - Prior research demonstrated that caregivers who used respite to do what they had most desired, needed, or had planned to do had the highest satisfaction with their time-use and reported the most positive wellbeing over time. Dr. Rebecca Utz, University of Utah, described the development of an intervention, Time for Living and Caring (TLC), designed to
- [Is Dementia-Specific Caregiving Compared With Non-Dementia Caregiving Associated With Physical Difficulty Among Caregivers for Community-Dwelling Adults?](https://archrespite.org/is-dementia-specific-caregiving-compared-with-non-dementia-caregiving-associated-with-physical-difficulty-among-caregivers-for-community-dwelling-adults/) - The purpose of this study was to identify whether dementia caregiving is associated with physical difficulty among informal caregivers. Authors recommended that "Future studies should identify strategies to mitigate the physical demands on dementia caregivers. Early monitoring of caregivers’ self-rated health, depressive symptoms, and pain may identify those more likely to experience physical difficulty." Read
- [$2.1 Million to Study Extended Family Caregivers of People with Dementia](https://archrespite.org/2-1-million-to-study-extended-family-caregivers-of-people-with-dementia/) - The National Institute on Aging awarded a grant to two faculty members, Karen Roberto and Tina Savla, at Virginia Tech's Center for Gerontology to examine the role of extended family caregivers and their service use, needs, and challenges. This new study, named CareEx, will focus on family caregivers not usually studied, including grandchildren, siblings, nieces
- [Identifying Research Priorities in Adult Day Centers to Support Evidence-Based Care of Vulnerable Older Adults](https://archrespite.org/identifying-research-priorities-in-adult-day-centers-to-support-evidence-based-care-of-vulnerable-older-adults/) - The National Adult Day Services Association (NADSA) created a multistakeholder work group to identify priority areas for research to enhance the quality of services offered in Adult Day Centers (ADCs) and the delivery of evidence-based practices to clients. This article presents the workgroup’s findings and key research priorities, and is intended as a practical guide
- [Community-Based Long-Term Services and Supports: Are the Needs of Older Adults and Their Caregivers Being Met?](https://archrespite.org/community-based-long-term-services-and-supports-are-the-needs-of-older-adults-and-their-caregivers-being-met/) - The goal of this study was to assess the adverse consequences of unmet long-term services and supports (LTSS) needs, to identify if and how caregiving characteristics are associated with adverse consequences, and if such factors differ among older adults with and without dementia. The authors, analyzing the 2017 National Health and Aging Trends Study (NHATS) and National
- [Supporting Grandparents Raising Grandchildren (SGRG) Act Initial Report to Congress](https://archrespite.org/supporting-grandparents-raising-grandchildren-sgrg-act-initial-report-to-congress/) - U.S. Department of Health and Human Services, Administration for Community Living, Advisory Council to Support Grandparents Raising Grandchildren, 2021 The Advisory Council to Support Grandparents Raising Grandchildren's initial report to Congress is a culmination of a two-year, multi-faceted effort that gathered information from kin and grandparent caregivers of children across the country. It provides an overview of

## Pages

- [Home](https://archrespite.org/) - What is Respite? Respite is planned or emergency care provided to a child or adult with special needs in order to provide temporary relief to family caregivers. What does ARCH do? We work to ensure quality respite care is available to all who need it. Provide Training and Assistance to Lifespan Respite Grantees The ARCH ARCH Helps Caregivers Rest and Recharge through Respite Care We assist and promote the development of quality respite and crisis care programs, help families locate respite and crisis care services, and serve as a strong voice for respite in all forums.
- [Resource Library](https://archrespite.org/resource-library/) - Share on Facebook Share on Linkedin Share on Email Share on Print If you are looking for published research articles and other publications focused on respite research and evaluation, see also Findings and Updates and ARCH Annotated Bibliography. Many more tools shared by states and local programs on a variety of topics, including respite vouchers,
- [State Lifespan Respite Tools & Examples by Category](https://archrespite.org/ta-center-for-respite/state-lifespan-respite-tools-examples-by-category/) - Share on Facebook Share on Linkedin Share on Email Share on Print Shared State Tools State Lifespan Respite grantees and state respite coalitions frequently share the tools, reports and resources they have developed through their Lifespan Respite grants.* State examples of shared state resources can be found in categories below. National resources may be provided
- [Respite Facts and Talking Points](https://archrespite.org/policy/respite-facts-and-talking-points/) - Share on Facebook Share on Linkedin Share on Email Share on Print Understanding the Contributions of Family Caregivers of Adults 59 Million Family caregivers of adults in the US 50 Billion Hours of unpaid care are given each year $1 Trillion Estimated economic value of their unpaid contributions per year Source: Houser, Ari, Selena Caldera,
- [National Respite Coalition Policy Actions](https://archrespite.org/policy/national-respite-coalition-policy-actions/) - Share on Facebook Share on Linkedin Share on Email Share on Print The National Respite Coalition, the policy division of the ARCH National Respite Network and Resource Center, advocates for legislation and administrative change at the federal level to increase funding for respite care, ensure easy access to and flexibility in services, promote person and
- [Learning Collaboratives](https://archrespite.org/ta-center-for-respite/learning-collaboratives/) - Share on Facebook Share on Linkedin Share on Email Share on Print ARCH facilitates Learning Collaboratives that are open to Lifespan Respite Grantees, State Respite Coalition members, and other partners. The recent collaboratives focused on the following topics Performance Measurement, Respite Vouchers, Sustainability Planning, Volunteer and Faith-based Respite Services, and Implementing the National Strategy to
- [Lifespan Respite Orientation VIdeo](https://archrespite.org/orientation-video/)
- [Sustainability Tools](https://archrespite.org/ta-center-for-respite/sustainability-tools/) - Share on Facebook Share on Linkedin Share on Email Share on Print The following tools, resources, webinars and funding guides are provided to assist Lifespan Respite grantees and their partners in sustaining their Lifespan Respite grant and State Respite Coalition activities. The resources should be useful to others in the respite network as well.
- [Annotated Bibliography of Respite and Crisis Care Services](https://archrespite.org/research/annotated-bibliography-of-respite-and-crisis-care-services/) - Share on Facebook Share on Linkedin Share on Email Share on Print ARCH prepared its first Annotated Bibliography of Respite and Crisis Care in 2002 and has periodically updated it since then. Two compilations are available -- the 2002 Second Edition annotating research published before 2002, and the 2020 5th Edition, which includes studies published
- [Policy & Advocacy](https://archrespite.org/policy/) - The National Respite Coalition (NRC) is the Policy Division of the ARCH National Respite Network. The mission of the NRC is to secure quality, accessible, planned and crisis respite services for all families and caregivers in need of such services in order to strengthen and stabilize families, and enhance child and adult safety. The Coalition works to achieve these goals by preserving and promoting respite in policy and programs at the national, state, and local levels.
- [National Respite Coalition](https://archrespite.org/policy/mission-history-of-the-national-respite-coalition/) - Share on Facebook Share on Linkedin Share on Email Share on Print The Mission of the ARCH National Respite Network is to secure quality, accessible, planned and crisis respite services for all families and caregivers in need of such services in order to strengthen and stabilize families, and enhance child and adult safety.The National Respite
- [2024 Respite Research Summit Proceedings](https://archrespite.org/research/respite-research-summit-proceedings/) - 2024 Respite Research Summit Proceedings Share on Facebook Share on Linkedin Share on Email Share on Print This virtual summit was held October 28, 29, and 30, 2024. Overview Thank you to presenters and attendees for making the 2024 Respite Research Summit a huge success! ARCH and the Committee for Advancement of Respite Research (CARR) hosted its
- [Committee for Advancement of Respite Research Publications](https://archrespite.org/research/carr-publications/) - Committee for Advancement of Respite Research Publications Share on Facebook Share on Linkedin Share on Email Share on Print The purpose of the Committee for Advancement of Respite Research (CARR) is to advise ARCH on the execution of its respite research initiative and help advance a respite research agenda that supports activities and innovations to
- [Lifespan Respite Grantee and Partner Learning Symposiums](https://archrespite.org/ta-center-for-respite/lifespan-respite-grantee-partner-learning-symposiums/) - Share on Facebook Share on Linkedin Share on Email Share on Print Learning Symposiums Most years, the in-person Lifespan Respite Grantee and Partner Learning Symposiums are held in conjunction with the National Lifespan Respite Conference. The day-long Symposiums provide an opportunity for peer-to-peer exchange and learning among current and former Lifespan Respite grantees and their
- [2026 Virtual Learning Symposium: Bring, Brag, and Borrow](https://archrespite.org/learning-symposium-virtualbbb-2026/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print September 13, 2022 AGENDA Learning Symposium Recordings Opening Session 2022 Lifespan Respite Grantee and Partner Learning Symposium In this opening session, Lori Stalbaum presents Lifespan Respite Care program updates from the Administration for Community Living. Play Video
- [Research](https://archrespite.org/research/) - Share on Facebook Share on Linkedin Share on Email Share on Print A focus of ARCH since 2013 has been to collect, synthesize, disseminate and stimulate research to improve respite practice and sustainability. The Expert Panel on Respite Research, convened by ARCH in collaboration with the Administration for Community Living, was key to helping advance
- [Innovative and Exemplary Respite Services](https://archrespite.org/provider-resources/innovative-and-exemplary-respite-services/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print 2024 Innovative and Exemplary Respite Services Application The application period for 2024 recognition has now closed. Please consider applying next year! The purpose of the Innovative and Exemplary Services initiative is to establish a registry of programs
- [Respite Voucher Programs](https://archrespite.org/ta-center-for-respite/respite-voucher-programs/) - Share on Facebook Share on Linkedin Share on Email Share on Print What are Respite Voucher Programs? Respite Voucher Programs, also known as stipend, grant, or reimbursement programs, make funds available through self-direction to help family caregivers pay for respite care. Such programs empower family caregivers by giving them control in selecting, hiring, and if
- [ARCH Products and Publications](https://archrespite.org/resource-library/arch-products-and-publications/) - Share on Facebook Share on Linkedin Share on Email Share on Print
- [Podcasts](https://archrespite.org/resource-library/podcasts/) - Share on Facebook Share on Linkedin Share on Email Share on Print
- [Contact](https://archrespite.org/contact/) - Share on Facebook Share on Linkedin Share on Email Share on Print Subscribe Receive respite news from ARCH on the latest research, funding opportunities, events, reports, and more. Subscribe Connect ARCH National Respite Network ARCH is Access to Respite Care and Help Mailing Address: 4220 NC-55, Suite 330 Durham, NC 27713 Phone: 703.256.2084 Contact Us
- [About](https://archrespite.org/about/) - Share on Facebook Share on Linkedin Share on Email Share on Print The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs in the United States; to help families locate respite and crisis care services in their communities; and to
- [News & Updates](https://archrespite.org/news/) - Share on Facebook Share on Linkedin Share on Email Share on Print Miss important news about respite and caregiver support? See past editions of ARCH Quick News Update. VIEW ARCH NEWSLETTERS SUBSCRIBE
- [News & Events](https://archrespite.org/news-events/) - Share on Facebook Share on Linkedin Share on Email Share on Print
- [Recommendations for Future Research](https://archrespite.org/research/recommendations-for-future-research/) - Share on Facebook Share on Linkedin Share on Email Share on Print From the Expert Panel on Respite Research The Panel's foundational work, including crafting a proposed respite definition and research framework, guided the development of specific and practical recommendations in the following six categories:Read more about the Expert Panel 1. Address foundational methodological concerns
- [Legislative Alerts](https://archrespite.org/policy/legislative-alerts/) - Share on Facebook Share on Linkedin Share on Email Share on Print The National Respite Coalition, the policy division of the ARCH National Respite Network and Resource Center, advocates for legislation and administrative change at the federal level to increase funding for respite care, ensure easy access to and flexibility in services, promote person and
- [Resources for Caregivers](https://archrespite.org/caregiver-resources/) - ARCH provides information about respite care for family caregivers. Learn about types of respite care, find respite providers, discover how to get help paying for respite care and how to make the most of your respite time.
- [State Lifespan Respite Summits](https://archrespite.org/ta-center-for-respite/state-lifespan-respite-summits/) - Share on Facebook Share on Linkedin Share on Email Share on Print Highlights of Past Summits States host Lifespan Respite Summits to build or strengthen state respite coalitions and partnerships, identify gaps in services and strategies to overcome barriers, engage new collaborators in Lifespan Respite systems, work on sustainability or strategic planning, and to renew
- [Performance Measurement](https://archrespite.org/ta-center-for-respite/performance-measurement/) - Share on Facebook Share on Linkedin Share on Email Share on Print Demonstrating the efficient and effective use of resources is a hallmark of sound publicly-funded programs. This can be accomplished through the development of well thought-out performance metrics and strategies for collecting meaningful data. Such data can provide confidence that expended resources are yielding
- [Program Evaluation](https://archrespite.org/provider-resources/program-evaluation/) - Share on Facebook Share on Linkedin Share on Email Share on Print Performance Measurement ARCH has developed and curated a broad, comprehensive library of performance measurement resources to help respite programs, Lifespan Respite grantees and others engage in meaningful data collection and documentation of respite outcomes. The purposes of performance measurement are to ensure continuous
- [Respite Providers and Organizations](https://archrespite.org/provider-resources/) - Respite providers and programs may list their services on the National Respite Locator. Information is also provided on how to become a respite provider. Find respite provider training resources, innovative and exemplary respite services that model best practices, evaluation information and more.
- [Lifespan Respite](https://archrespite.org/ta-center-for-respite/) - Share on Facebook Share on Linkedin Share on Email Share on Print Share this page: Meeting the Respite Needs of the Nation's Family Caregivers Lifespan Respite is defined in the Lifespan Respite Care Act as "coordinated systems of community-based respite for family caregivers of children or adults regardless of special need."Since the Lifespan Respite Care
- [Findings & Updates](https://archrespite.org/research/findings-updates/) - Research Findings & Updates Share on Facebook Share on Linkedin Share on Email Share on Print
- [Events and Webinars](https://archrespite.org/news-events/upcoming-webinars/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print ARCH and Partner Webinars and Conferences Check back often. Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Share this page:
- [Financing Strategies Matrix](https://archrespite.org/financing-strategies-matrix/) - Financing Strategies for Lifespan Respite Grantees, State Respite Coalitions, and Provider Agencies Ensuring Sustainability in Respite Services and Systems Sustaining respite services, programs, and systems requires a thoughtful, multi-faceted, and often concurrent set of actions. Long-term success depends on proactive planning and strategic execution as well as ongoing monitoring and plan adaptations. These action steps
- [Apply for State Lifespan Respite Voucher Programs](https://archrespite.org/ta-center-for-respite/respite-voucher-programs/apply-for-state-lifespan-respite-voucher-programs/) - Share on Facebook Share on Linkedin Share on Email Share on Print Note: Not all of the voucher programs listed on the map receive funds from the Federal Lifespan Respite Care Program that allow broad eligibility. Of those that currently do not receive federal Lifespan Respite Care Program funds, Connecticut (Alzheimer's only), Nebraska, South Dakota,
- [Archived Innovative and Exemplary Respite Services](https://archrespite.org/archived-innovative-and-exemplary-respite-services/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print ARCH recognition as an Innovative and Exemplary Respite service, or as a Rising Star, was not renewed for these programs at their three-year review. They may not have submitted the required information for the review, the service
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- [(no title)](https://archrespite.org/no-title-2/) - Please find state sustainability plans, logic models for sustainability planning and other written sustainability materials that states have chosen to share with their peers across states. Massachusetts Massachusetts Lifespan Respite Coalition Sustainability Logic Model Nebraska Respite Sustainability Plans Respite Across the Lifespan Nebraska Lifespan Respite SFY 2017 Sustainability Plan Northern Region Respite Network Central Region
- [Medicaid Waivers](https://archrespite.org/resource-library/medicaid-waivers/) - Share on Facebook Share on Linkedin Share on Email Share on Print Choose a State to find Medicaid Waivers that cover Respite Care The information on this page is currently being updated. For the most current information, visit State Waivers on Medicaid.gov. Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Hawaii
- [Webinars](https://archrespite.org/webinars/) - Share on Facebook Share on Linkedin Share on Email Share on Print
- [Sign up for ARCH News](https://archrespite.org/about/subscribe/) - Share on Facebook Share on Linkedin Share on Email Share on Print Please subscribe to the ARCH email list to receive timely and informative respite news in the monthly ARCH Quick News Update. You will also receive notices of new ARCH products, upcoming webinars, policy or research updates. See past issues.
- [ARCH Team](https://archrespite.org/about/arch-team/) - Jill Kagan, MPH ARCH Program DirectorARCH Focus: Oversees all ARCH activities and product development; Lifespan Respite grant activities and best practices; coalition building; respite policy; administration of Lifespan Respite grantee and partner Learning Collaboratives; respite provider core competencies and training; National Lifespan Respite Conference and Lifespan Respite Grantee and Partner Learning Symposium. Susan Janko Summers,
- [Presentations & Webinars](https://archrespite.org/ta-center-for-respite/presentations-webinars/) - Share on Facebook Share on Linkedin Share on Email Share on Print Webinar: Time for Living and Caring – An approach to planning respite time to maximize caregiver benefit Rebecca Utz, PhD and Catharine Sparks, MSc, from the University of Utah described the results from a five-year National Institute on Aging (NIA) funded study to
- [2025 Conference Program](https://archrespite.org/2025-conference-program/)
- [Cultural and Linguistic Competence in Respite Services](https://archrespite.org/provider-resources/cultural-and-linguistic-competence/)
- [Whova Conference Program 2025 Alabama](https://archrespite.org/whova-conference-program-2025-alabama/) - Loading... Powered By Whova Event planning tools
- [Learning Symposium 2025](https://archrespite.org/learning-symposium-2025/)
- [Virtual 2024 Lifespan Respite Grantee and Partner Learning Symposium](https://archrespite.org/learning-symposium-virtualbbb-2024/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print September 13, 2022 AGENDA Learning Symposium Recordings Opening Session 2022 Lifespan Respite Grantee and Partner Learning Symposium In this opening session, Lori Stalbaum presents Lifespan Respite Care program updates from the Administration for Community Living. Play Video
- [2025 Virtual Learning Symposium: Bring, Brag, and Borrow](https://archrespite.org/learning-symposium-virtualbbb-2025/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print September 13, 2022 AGENDA Learning Symposium Recordings Opening Session 2022 Lifespan Respite Grantee and Partner Learning Symposium In this opening session, Lori Stalbaum presents Lifespan Respite Care program updates from the Administration for Community Living. Play Video
- [Sponsorship Information](https://archrespite.org/2025-national-lifespan-respite-conference/sponsorship-information/) - National Lifespan Respite Conference Sponsorship Information Welcome Sponsors and Exhibitors! We invite you to showcase your services and products that benefit family caregivers and those who assist them at the only national conference that focuses on respite care. Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print The National
- [2025 Conference Sponsors](https://archrespite.org/2025-conference-sponsors/)
- [2024 Conference Sponsors](https://archrespite.org/conference-sponsors/)
- [Keynote Speakers](https://archrespite.org/2025-nlrc-keynote-speakers/)
- [Conference Registration](https://archrespite.org/conference-registration-2025/)
- [Innovative and Exemplary Respite Services Evaluation Initiative](https://archrespite.org/i-and-e-data-briefs-2024/)
- [Respite Research Summit Presentations](https://archrespite.org/news-events/2024-resepite-research-summit/speaker-presentations/)
- [2025 National Lifespan Respite Conference](https://archrespite.org/2025-national-lifespan-respite-conference/)
- [Conference Recordings](https://archrespite.org/2024-plenary-session-recordings/)
- [2024 ARCH Respite Research Summit](https://archrespite.org/news-events/2024-resepite-research-summit/)
- [Respite Research Summit Speakers](https://archrespite.org/news-events/2024-resepite-research-summit/summit-speakers/)
- [2025 Call for Presentations](https://archrespite.org/2025-national-lifespan-respite-conference/2025-call-for-presentations/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Call for Presentations VIEW & DOWNLOAD Deadline for Abstract Proposal Submissions: Extended to October 30, 2023 Please read the instructions for completing the online application. The New York State Caregiving and Respite Coalition and the New York
- [2025 National Lifespan Respite Conference Tracks](https://archrespite.org/2025-conference-tracks/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Call for Presentations VIEW & DOWNLOAD Deadline for Abstract Proposal Submissions: Extended to October 30, 2023 Please read the instructions for completing the online application. The New York State Caregiving and Respite Coalition and the New York
- [2020 Respite Research Summit](https://archrespite.org/research/respite-research-summit/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print The virtual summit was held September 29 and 30, 2020. Overview A focus of the ARCH National Respite Network and Resource Center is to collect, synthesize, disseminate and stimulate research to improve respite practice and sustainability. The
- [2024 National Lifespan Respite Conference](https://archrespite.org/news-events/national-respite-conference/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Hilton Albany 40 Lodge Street Albany, New York, 12207 The National Lifespan Respite Conference will be held May 21-23, 2024 at the Hilton Albany in Albany, New York. ARCH is pleased to cohost this important event with
- [State Respite Coalition and Lifespan Respite Contacts](https://archrespite.org/ta-center-for-respite/state-respite-coalition-contacts/) - State Respite Coalition & Lifespan Respite Grantee Contacts SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print What are State Respite Coalitions and how do they differ from Lifespan Respite Programs? Most State Respite Coalitions are grassroots membership organizations composed of state and local, public and
- [Planning for Respite](https://archrespite.org/caregiver-resources/planning-for-respite/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print It is most important for caregivers to plan ahead for using respite care. For respite to be most beneficial, you should consider respite services much earlier than you think you will need them. Respite will be most
- [How to Choose a Respite Provider](https://archrespite.org/caregiver-resources/how-to-choose-a-respite-provider/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print before admission to determine the person'srange of abilities and needs;✔ Provide an active program that meets the daily social, recreational, and rehabilitative (where allowed) needs of the person in care;✔ Develop an individualized and person andfamily-centered treatment
- [Keynote Speakers](https://archrespite.org/2024-nlrc-keynote-speakers/)
- [Learning Symposium 2024](https://archrespite.org/learning-symposium-2024/)
- [Learning Symposium 2022](https://archrespite.org/ta-center-for-respite/lifespan-respite-grantee-partner-learning-symposiums/learning-symposium-2022/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print September 13, 2022 AGENDA Learning Symposium Recordings Opening Session 2022 Lifespan Respite Grantee and Partner Learning Symposium In this opening session, Lori Stalbaum presents Lifespan Respite Care program updates from the Administration for Community Living. Play Video
- [Conference Program](https://archrespite.org/conference_program_2024/)
- [Seeking Research Study Participants](https://archrespite.org/seeking-research-study-participants/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Read More Share on Facebook Share on Twitter Share on Pinterest Share on Email Share on Print Share this page:
- [Funding Opportunities](https://archrespite.org/news/funding-opportunities/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print ARCH is pleased to share funding opportunities from the private sector and select government agencies. Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Share this page:
- [Select Best Practices in Lifespan Respite Care Programs](https://archrespite.org/ta-center-for-respite/grantee-activities-and-key-accomplishment/select-best-practices-in-lifespan-respite-webinars/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Share this page:
- [Grantee Activities and Key Accomplishments](https://archrespite.org/ta-center-for-respite/grantee-activities-and-key-accomplishment/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Key Accomplishments of Lifespan Respite Program Grantees The Lifespan Respite Care Program was authorized by Congress in 2006 under Title XXIX of the Public Health Service Act (42 U.S.C 201). Lifespan Respite Care programs are coordinated systems
- [ARCH Respite Research Initiative](https://archrespite.org/research/respite-research-consortium/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print ARCH Respite Research Initiative ARCH has advanced efforts to enhance the respite evidence base to assist with sustainability, promote continuous quality improvement, and help grantees and others translate research into best practices. Through the Respite Research Initiative,
- [How to Pay for Respite](https://archrespite.org/caregiver-resources/how-to-pay-for-respite/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print A range of possible state and federal funding as well as private sources may be available to help you pay for respite and they are described below. If you have a State Lifespan Respite Program or State Respite Coalition
- [Find a Respite Provider](https://archrespite.org/caregiver-resources/respitelocator/) - The ARCH National Respite Locator lets you search for respite care in your community. Find information about how to choose a respite provider or adult day care program.
- [Legislative Action on Lifespan Respite](https://archrespite.org/policy/legislative-action-on-lifespan-respite/) - Legislative History of Lifespan Respite Care Program Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Lifespan Respite Care Program Reauthorization Act of 2020 (H.R. 8906) Became Law on January 5, 2021. Public Law No: 116-324. HR 8906, introduced by Rep. Jim Langevin in the House
- [ARCH Advisory Committee](https://archrespite.org/about/arch-advisory-committee/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print ARCH Advisory Committee to the Lifespan Respite Technical Assistance and Resource Center Committee Members, 2020-2025 Meetings, 2020-2025 Meetings, 2015-2020 Committee Members, 2020-2025 State Lifespan Respite Representatives Mississippi James Davis Home & Community Based Coordinator Division of Aging
- [Volunteer and Faith-Based Respite](https://archrespite.org/provider-resources/volunteer-and-faith-based-respite/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Volunteer Respite Manual: Creating Valuable Options for Family Caregivers Drawing on the experience in volunteer services among ARCH network members, ARCH's recognized Innovative and Exemplary respite services, and Lifespan Respite grantees and their partners, this step-by-step manual
- [Provider Training Resources](https://archrespite.org/provider-resources/provider-training-resources/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Respite Provider Training and Credentialing Resources We are in the midst of a direct care workforce crisis. Despite the worker shortage, well-trained respite providers are and will continue to be a valuable resource. The purpose of this
- [Lifespan Respite 101](https://archrespite.org/ta-center-for-respite/lifespan-respite-101/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Lifespan Respite is defined in the Lifespan Respite Care Act as "coordinated systems of community-based respite for family caregivers of children or adults regardless of special need." Learn more about the Lifespan Respite Care Program, view past
- [Respite Provider Portal](https://archrespite.org/provider-resources/respite-provider-portal/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print This page is for Respite Providers. If you are looking for a respite service or program, please visit Find a Respite Provider. National Respite Locator Service - Provider Portal The National Respite Locator Service (NRLS) helps parents,
- [How Do I Get Paid to be a Family Caregiver?](https://archrespite.org/caregiver-resources/how-do-i-get-paid-to-be-a-family-caregiver/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print ARCH is frequently asked if payment is available for family caregivers. There may be help for you, but resources are limited, may not exist in your state at all, and eligibility is restrictive. Toward the end of
- [Advocacy Tips](https://archrespite.org/policy/advocacy-tips/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print The National Respite Coalition, the policy division of the ARCH National Respite Network and Resource Center, advocates for legislation and administrative change at the federal level to increase funding for respite care, ensure easy access to and
- [ARCH Mission & History](https://archrespite.org/about/arch-mission-history/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print ARCH Mission: The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs in the United States; to help families locate respite and
- [How to Become a Respite Provider](https://archrespite.org/provider-resources/how-to-become-a-respite-provider/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print ARCH does not hire, train or credential respite providers, but the following information and resources from ARCH may help guide you as you start up a new respite service or plan to become an independent respite provider
- [Respite Care During COVID-19](https://archrespite.org/provider-resources/respite-care-during-covid-19/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Providing and Receiving Respite Care Safely During the COVID-19 Pandemic Providing and Receiving Respite Care Safely During the COVID-19 Pandemic Voluntary National Guidelines for Respite Care Agencies, Providers, Family Caregivers, and Respite Care Recipients UPDATED WITH GUIDANCE
- [Conversations on Caregiving: Exploring Respite Care Innovations](https://archrespite.org/provider-resources/caring-conversations-exploring-respite-care-innovations/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print This Conversations on Caregiving podcast series highlights the work of individual Innovative and Exemplary respite programs and services across the nation. ARCH has recognized Innovative and Exemplary respite programs and services annually since 2019. Innovative and Exemplary
- [Learning Symposium 2021](https://archrespite.org/ta-center-for-respite/lifespan-respite-grantee-partner-learning-symposiums/learning-symposium-2021/) - SHARETHIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print July 14-15, 2021 AGENDA Learning Symposium Recordings DAY 1 Welcome Remarks of Alison Barkoff, Acting Administrator and Assistant Secretary for Aging. Administration for Community Living begins at approx 10:38. Bring, Brag and Borrow begins at approx 57:36. DAY
- [Learning Symposium 2017](https://archrespite.org/ta-center-for-respite/lifespan-respite-grantee-partner-learning-symposiums/learning-symposium-2017/) - Learning Symposium 2017 SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print October 11, 2017, Huntsville, AL Agenda Learning Symposium Recordings Bring, Brag and Borrow Sessions In the opening Bring, Brag and Borrow session, each state Lifespan Respite grantee or partner (one from each state) provided a
- [Learning Symposium 2019](https://archrespite.org/ta-center-for-respite/lifespan-respite-grantee-partner-learning-symposiums/learning-symposium-2019/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print April 30, 2019, Buffalo, NY Agenda Learning Symposium Recording In some parts of the video, the sound quality is poor. You may need to turn up the volume on your computer speakers. We apologize for the
- [Learning Symposium 2020](https://archrespite.org/ta-center-for-respite/lifespan-respite-grantee-partner-learning-symposiums/learning-symposium-2020/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print June 16-17, 2020 Agenda Learning Symposium Recordings DAY 1 On day 1, Lori Stalbaum from the Adminsitration for Community Living provided a Lifespan Respite Update; States presented highlights from their Lifespan Respite grant or coalition activities
- [Search](https://archrespite.org/search/) - Site Search Start a New Search: Search Search the Resource Library: Share on Facebook Share on Twitter Share on Pinterest Share on Email Share on Print Share this page:
- [Respite and Caregiving COVID-19 Resources for Providers](https://archrespite.org/provider-resources/respite-and-caregiving-covid-19-resources-for-providers/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print More COVID-19 Resources ARCH Voluntary National Respite Guidelines During COVID-19 Pandemic for providing and using respite safely. Updated with COVID-19 Guidance on Vaccinations. See also respite provider and family decision guides. View and download in Spanish. Webinar: Release
- [Respite and COVID Resources for Caregivers](https://archrespite.org/caregiver-resources/respite-and-covid-resources-for-caregivers/) - SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print COVID-19 Family Decision Guide to Use Respite Worksheet Receiving Respite Care Safely During the COVID-19 Pandemic (also in Spanish) COVID-19/Emergency Preparedness Resource Guide For Kinship Families and Grandfamilies More Resources: COVID Resources in Spanish Advisory Council to
- [Fact Sheets for Family Caregivers](https://archrespite.org/caregiver-resources/fact-sheets-for-family-caregivers/) - Fact Sheets for Family Caregivers SHARE THIS PAGE: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Nine Steps to Respite Care for Family Caregivers These fact sheets are a guide for getting the respite care you deserve. By reading the one most relevant to your caregiving situation, you
- [Types of Respite](https://archrespite.org/caregiver-resources/types-of-respite/) - Something better
- [Become an ARCH Member](https://archrespite.org/about/become-an-arch-member/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Membership Benefits Your membership helps us to secure increased funding annually for the implementation of the Lifespan Respite Care Program and other programs that support family caregivers and those they care for; enables our work with federal agencies to
- [Privacy Policy](https://archrespite.org/privacy-policy/) - Share this page: Share on Facebook Share on Twitter Share on Linkedin Share on Email Share on Print Introduction ARCH National Respite Network and Resource Center provides a website with sub-domains resources: https://archrespite.org ("The Website") https://arch.wildapricot.org ("sub-domain") arch.gnosis (URL coming soon for NRLS ("sub-domain") The Website and sub-domains allow our clients and other users to view respite
- [Site Map](https://archrespite.org/site-map/) - Caregivers Find a Respite Provider Planning for Respite Types of Respite How to Choose a Respite Provider How to Pay for Respite How Do I Get Paid to be a Family Caregiver? Fact Sheets for Family Caregivers Respite and COVID Resources for Caregivers Respite Providers Provider Training Resources Program Evaluation How to Become a Respite
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## Resources

- [9 Pasos para El Relevo de Descanso para abuelos y familia extendida](https://archrespite.org/library/9-pasos-para-el-relevo-de-descanso-para-abuelos-y-familia-extendida/) - Un Camino para obtener el descanso que usted merece Si usted es un abuelo u otro pariente que cuida de sus nietos, sobrinas, sobrinos u otros niños de la familia, usted es considerado “grandfamily – familia de abuelos”. La relación entre los abuelos y sus nietos suele ser una muy especial. Para un número de
- [Nevada State Plan for the Support of Family Caregivers: January 2022 to December 2024](https://archrespite.org/library/nevada-state-plan-for-the-support-of-family-caregivers-january-2022-to-december-2024/) - Developed by the Nevada Lifespan Respite Care Coalition This State Plan was developed by the Nevada Lifespan Respite Care Coalition, with input from family caregivers, service providers, and state agencies, and various information gathering activities conducted by the Nevada Lifespan Respite Care Coalition (NLRCC) from October 2021 to December 2022. The recommendations outlined in this
- [Measuring Systems Change and Consumer Outcomes](https://archrespite.org/library/measuring-systems-change-and-consumer-outcomes/) - Recommendations for Developing Performance Metrics for State Lifespan Respite Programs. The guide provides a roadmap with tools and step-by-step suggestions for developing a performance measurement plan that will reflect the unique goals, activities and approaches undertaken by State Lifespan Respite grantees and their partners. It defines and provides examples of performance targets and suggestions for
- [Measuring Systems Change: A Brief Guide](https://archrespite.org/library/measuring-systems-change-a-brief-guide/) - Prepared by Administration for Community Living, Office of Performance and Evaluation, ACL Data Council, 2021 This brief provides an introduction to measuring systems change, including how systems and systems change are defined and how they can be operationalized, as well as how to approach their evaluation. The brief also includes selected examples from ACL evaluations
- [Nine Steps to Respite Care for Family Caregivers of Persons with Dementia, including Alzheimer's Disease](https://archrespite.org/library/nine-steps-to-respite-care-for-persons-with-dementia/) - Caregivers of family members with dementia including Alzheimer’s disease (D/AD) may face special challenges. Sometimes, individuals with dementia or Alzheimer’s disease have unique physical, emotional and behavioral conditions that require specialized care. For example, memory, decision-making abilities, and behavior associated with D/AD change over time. This results in changing roles within the family and the
- [Caregiver Assessment Resources](https://archrespite.org/library/caregiver-assessment-resources/) - National Overview of Caregiver Assessment and Relevance to Respite National Caregiver Support Collaborative The NCSC Checklist for Caregiver Assessments provides a self-guided roadmap for aging, tribal and kinship networks to advance the use of caregiver assessments in Older Americans Act (OAA) caregiver programs. The checklist aims to fully capture the range of caregivers’ needs, match caregivers to
- [State Lifespan Respite Grantee and Partner Orientation Guide](https://archrespite.org/library/state-lifespan-respite-grantee-and-partner-orientation-guide/) - CONGRATULATIONS on being a new Lifespan Respite Grantee or Partner! WELCOME to the Lifespan Respite Network. If you are a seasoned grantee or coalition partner, this resource will still be useful to you as a refresher or handy desk guide. As you may have already discovered, ARCH has a wealth of information that is available
- [Lifespan Respite Program Orientation Video](https://archrespite.org/library/lifespan-respite-program-orientation-video/) - This video orientation is designed to answer the Who, What, Why, Where and How of the Lifespan Respite Care Program for new, current, or prospective Lifespan Respite grantees, partners, and their staff and to introduce important ARCH resources that can inform program start-up, implementation, growth, and sustainability. It is accompanied by a Lifespan Respite Orientation
- [Advancing the Availability of Flexible and Accessible Respite Care for Family Caregivers](https://archrespite.org/library/advancing-the-availability-of-flexible-and-accessible-respite-care-for-family-caregivers/) - Developed by ARCH for USAging This Action Guide provides resources and replicable respite services to inform the Aging Network regarding respite services for the nation's family caregivers. Resources are grouped under the following action steps: 1. Explore resources to help caregivers find, plan and use respite 2. Explore innovative program examples and resources for informal
- [Building a Statewide Respite Coalition: Where Do We Begin?](https://archrespite.org/library/building-a-statewide-respite-coalition-where-do-we-begin/) - This guide is intended to assist those states or groups that are considering forming or restructuring coalitions by providing the tools necessary to begin building or to strengthen a state respite coalition. Although the focus is on respite coalitions in particular, the material can be used for building any coalition. Topics include: Getting started and
- [State Summaries of Lifespan Respite Grant Activities and Outcomes from Final Reports of FY 2020 Grantees](https://archrespite.org/library/state-summaries-of-lifespan-respite-grant-activities-and-outcomes-final-reports-fy-2020-grantees/) - State Summaries of Lifespan Respite Grant Activities and Outcomes from Final Reports of FY 2020 Grantees (updated January 2026) This report contains summaries of the final reports from FY 2020 State Lifespan Respite grantees in Alabama, Arizona, Idaho, Mississippi, Nevada, New York, North Carolina, Oklahoma, Rhode Island, South Carolina, Tennessee, Washington and Wisconsin. The projects’
- [Tools for Sustainability: Financing Strategies for Lifespan Respite Programs, State Respite Coalitions, and Provider Agencies](https://archrespite.org/library/tools-for-sustainability-financing-strategies-for-lifespan-respite-programs-and-state-respite-coalitions/) - This tool, Financing Strategies for Lifespan Respite Programs, State Respite Coalitions, and Provider Agencies, provides overarching strategies and proven practical approaches paired with real-world state and local examples that have been successfully implemented to sustain respite and caregiver support services. Read more and access the state and local examples on the ARCH website. These examples
- [Best Practices in Community Behavioral Health Respite Care for Children and Families](https://archrespite.org/library/best-practices-in-community-behavioral-health-respite-care-for-children-and-families/) - Developed by Ohio Children’s Alliance in collaboration with researchers at The Ohio State University College of Nursing Best Practices in Community Behavioral Health Respite Care for Children and Families provides a roadmap for expanding access to high-quality behavioral health respite care for children and families. It documents promising practices, highlights innovative state models, and offers
- [The ABCs of Respite](https://archrespite.org/library/the-abcs-of-respite/) - A Consumer Guide to Respite for Family Caregivers In this Consumer Guide, you can find insight on how to plan for respite, information about the types of respite available, and answers to the following questions: How do I find and pay for Respite? How do I choose a respite program or provider? How do I A Consumer Guide to Respite for Family Caregivers In this Consumer Guide, you can find insight on how to plan for respite, information about the types of respite available, and answers to the following questions: How do I find and pay for Respite? How do I choose a respite program or provider? How do I
- [Strengthening the Evidence for Respite - Findings and Recommendations from the Respite Research Summit, October 28-30, 2024](https://archrespite.org/library/strengthening-the-evidence-for-respite-findings-and-recommendations-from-the-respite-research-summit-october-28-30-2024/) - The Respite Research Summit hosted by the ARCH National Respite Network and Resource Center’s Lifespan Respite Technical Assistance Center (TARC) and the Committee for Advancement of Respite Research (CARR), and supported by the Administration for Community Living, was devoted to augmenting the research and evaluation capacity of community-based providers and state- and federal-level organizations with
- [DAY 3 Respite Research Summit: Overview of Engaging Family Caregivers and Communities in Respite Research to Address their Unmet Needs](https://archrespite.org/library/day-3-respite-research-summit-diversity-equity-inclusion-accessibility-in-respite-research/) - Presenter Kim Whitmore, PhD, RN, Marquette University College of Nursing PPT Slides
- [DAY 3 Respite Research Summit: Philanthropy’s Role in Advancing  a Respite Research Agenda that Addresses the Diverse Needs of Family Caregivers](https://archrespite.org/library/day-3-respite-research-summit-philanthropys-role-in-advancing-diversity-in-respite-research/) - Presenters Rani Snyder, MPA, Vice President, Program, The John A. Hartford Foundation PPT Slides Ken Genewick, MBA, Vice President of Programs, Health Foundation for Western and Central New York PPT Slides
- [DAY 3 Respite Research Summit: Presenting Respite Research that Engages Family Caregivers and Communities](https://archrespite.org/library/day-3-respite-research-summit-culturally-and-linguistically-competent-respite-research/) - Cultural and Contextual Adaptations of Adult Day Services: Enhancing Inclusivity and Relevance in Respite Care Lauren J. Parker, PhD, MPH, Associate Scientist, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD PPT Slides Understanding the Respite Care Experience of Latinx Families Of Children With Special Health Care Needs (CSHCN) Kim Whitmore, PhD, RN, Assistant Professor,
- [Opportunities for Innovation: Home Care Worker Cooperatives](https://archrespite.org/library/home-care-worker-cooperatives/) - We are in the midst of a labor force crisis in the supply of direct service workers. The home care industry experiences a 67% average annual turnover in workers. The number of workers needed to provide home care and respite is going to escalate over the next 2 decades, exacerbating the crisis. The shortage is
- [Evaluating carer support interventions: International perspectives](https://archrespite.org/library/evaluating-carer-support-interventions-international-perspectives/) - This panel discussion was hosted by Carers NSW Australia as part of the Carer Knowledge Exchange, Research Incubator 2025, Session 1 As part of the Carer Knowledge Exchange Research Incubator 2025, Connecting Research to Practice to Improve Outcomes for Carers, an international discussion panel was convened on the topic of evaluation on Tuesday 27 May
- [ARCH Presentation at the National Academies of Science, Engineering and Medicine Workshop: Strategies and Interventions to Strengthen Support for Family Caregiving and to Alleviate Caregiver Burden](https://archrespite.org/library/national-academies-of-science-engineering-and-medicine-strategies-and-interventions-to-strengthen-support-for-family-caregiving-and-to-alleviate-caregiver-burden-a-workshop/) - ARCH was honored to be represented by Dr. Kim Whitmore, ARCH consultant, at a National Academies of Science, Engineering, and Medicine workshop, held in Washington, D.C. in June 2025, to consider evidence-based interventions and strategies that effectively address the physical, mental, and financial challenges of caregiving. Dr. Whitmore presented on a panel Deep Dive on
- [Respite Found to Reduce Risk of Child Abuse and Neglect and Save Money](https://archrespite.org/library/respite-found-to-reduce-risk-of-child-abuse-and-neglect-and-save-money/) - Brief from the FRIENDS National Center for Community-based Child Abuse Prevention and the Alabama Department of Child Abuse and Neglect Prevention
- [State Summaries of Lifespan Respite Grant Activities and Outcomes, Grantee Final Reports, FY 2017 and FY 2018](https://archrespite.org/library/state-summaries-of-lifespan-respite-grant-activities-and-outcomes-final-reports-fy-2017-fy-2020-21/) - State Summaries of Lifespan Respite Grant Activities and Outcomes Final Reports, FY 2017 and FY 2018 Grantees This report contains summaries of the final reports from FY 2017 and FY 2018 State Lifespan Respite grantees. The projects’ outcomes, accomplishments, and successful partnerships are highlighted. Especially noteworthy are the flexibilities grantees introduced in respite voucher programs,
- [Medicaid Waivers for Respite Support](https://archrespite.org/library/medicaid-waivers-for-respite-support/) - This information is currently being updated. For the most recent information, please visit State Waivers List on Medicaid.gov. State-by-State Summaries of Medicaid Waiver Information Author: Kathy Mayfield-Smith, Research Associate Professor, Division of Medicaid Policy Research, Institute for Families in Society at the University of South Carolina This 2019 updated compilation includes information about state 1915(c) Home
- [Compendium of State Respite Coalition Fact Sheets](https://archrespite.org/library/compendium-of-fact-sheets-related-to-state-coalitions/) - This compendium of fact sheets, updated in 2017, provides a state-by-state look at state respite coalitions that are affiliated with the ARCH Network (See State Respite Coalitions). Each fact sheet contains the following information on each state respite coalition: Start-Up Process and Coalition History; Structure; Staff; Funding; Membership; Meetings and Communication; Major Activities; Available Documents
- [State Summaries of Lifespan Respite Grant Activities, Interim Report 2019](https://archrespite.org/library/state-summaries-of-lifespan-respite-grant-activities/) - State Summaries of Lifespan Respite Grant Activities, Interim Report 2019 In the summaries of state Lifespan Respite grant objectives, outcomes and activities since 2014 that are included in this compendium, you have an opportunity to discover the unique approaches states have taken to build state Lifespan Respite systems and deliver respite services to unserved populations
- [Part 1: The Foundation for Sustainability:  Empowering Leaders, Cultivating Partnerships, and Nurturing Mentorships](https://archrespite.org/library/part-one-of-the-webinar-series-on-sustaining-respite-the-foundation-for-sustainability-empowering-leaders-cultivating-partnerships-and-nurturing-mentorships/) - Part One of the Webinar Series on Sustaining Respite The Foundation for Sustainability: Empowering Leaders, Cultivating Partnerships, and Nurturing Mentorships This session offers guidance in forming and nurturing strong partnerships, the importance of shared leadership within and across organizations, and ways to mentor and support strong respite leaders over time. Presenter Talena Ford, Programs Administrator, Community
- [Part 2: The Evolution of Sustainability: Planning, Measuring, and Pivoting](https://archrespite.org/library/the-evolution-of-sustainability-planning-measuring-and-pivoting/) - Part Two of the Webinar Series on Sustaining Respite The Evolution of Sustainability: Planning, Measuring, and Pivoting This session offers practical guidance in respite systems planning — including who, when, where, how, and why; finding and working with a facilitator; and the importance of circling back and revising plans based on data that informs wise
- [Part 3: The Art of Sustainability: Developing and Maintaining Resources](https://archrespite.org/library/part-3-of-the-webinar-series-on-sustaining-respite-the-art-of-sustainability-developing-and-maintaining-resources/) - Part 3 of the Webinar Series on Sustaining Respite The Art of Sustainability: Developing and Maintaining Resources This session offers practical guidance in developing and diversifying resources from the ground up, ways to reduce risks and threats to sustainability, and strategies for securing funding and using it to build lasting respite infrastructure. Presenter Tracy Cieniewicz,
- [Arizona Family Caregiver Action Plan 2025-2028](https://archrespite.org/library/arizona-family-caregiver-action-plan-2025-2028/) - The Arizona Family Caregiver Action Plan (2025-2028) was written to address challenges facing family/informal caregivers. It was inspired by the RAISE Family Caregivers Act and the subsequent 2022 National Strategy to Support Family Caregivers. Initiated by the Arizona Caregiver Coalition, it is the work of a broad coalition of leaders representing dozens of organizations and
- [Sustaining Lifespan Respite and Strengthening Stakeholder Engagement](https://archrespite.org/library/sustaining-lifespan-respite-and-strengthening-stakeholder-engagement/) - How can we best sustain respite programs and services over time? Lifespan Respite Grantees and their partners consistently rank “providing funding sustainability training and assistance” as a top priority. Without exception, ARCH grantees identified “Funding Sustainability” as the area of highest need for training and technical assistance. In this presentation, findings were shared from a
- [Maximizing Respite Time and Reducing Caregiver Burden](https://archrespite.org/library/maximizing-respite-time-and-reducing-caregiver-burden/) - A Glimpse of North Carolina’s Efforts to Enhance Respite Time for Family Caregivers Presented by Alicia Blater, M.S., APR, Family Caregiver Support Program Consultant, Lifespan Respite Project Director, NC Division of Aging and Adult Services in a webinar Caregivers Supporting People with Dementia: New Research and Technology, as part of the 2015 ACL/CDC/NIA Webinar Series
- [Making Respite More Effective](https://archrespite.org/library/making-respite-more-effective/) - Dr. Dale Lund discusses practice and policy suggestions that might enhance caregivers' use of respite time and discusses how to measure outcomes related to respite time-use. In 2009, Dr. Dale Lund presented at the National Respite Conference in California on respite time-use suggesting that family caregivers' use of respite time was a determining factor in the
- [Making Respite Time More Effective - A Bilingual Planning Tool](https://archrespite.org/library/making-respite-more-effective-a-bilingual-planning-tools/) - To assess your own need for respite and to ensure that you are making the most of your respite time, there are tools to help! The North Carolina Lifespan Respite Project and the High Country Area Agency on Aging developed a planning tool for family caregivers, Making Respite Time More Effective (in English and Spanish),
- [Setting Goals to Maximize Your Respite Time](https://archrespite.org/library/setting-goals-to-maximize-your-respite-time/) - Developed by the North Carolina Lifespan Respite Project at the NC Division of Aging and Adult Services This tool was developed for use by family caregivers receiving respite from community and faith-based respite services that had received funding through the NC Lifespan Respite Mini-grant program. The purpose of the tool is to assist family caregivers
- [Take Another Break SC! Updated State Respite Plan](https://archrespite.org/library/take-another-break-sc-updated-state-respite-plan/) - In 2013 the Lieutenant Governor’s Office on Aging, in partnership with the South Carolina Respite Coalition and Family Connection of SC, published Take a Break SC! Sustaining South Carolina’s Family Caregivers through Respite. This updated report from the Lifespan Respite State Committee on Respite, Take Another Break SC! An Update on Sustaining South Carolina’s Family
- [The State Of Family Caregiving](https://archrespite.org/library/the-state-of-family-caregiving/) - Research conducted by the Columbia University Mailman School of Public Health and sponsored by Otsuka America Pharmaceutical, Inc. Nearly half of America’s states are on the brink of a caregiving emergency. The latest installment of this Otsuka-sponsored caregiver research series introduces a new scorecard to assess the urgency of local caregiving needs and collects recommendations
- [America's Unseen Workforce](https://archrespite.org/library/americas-unseen-workforce/) - Research conducted by the Columbia University Mailman School of Public Health and sponsored by Otsuka America Pharmaceutical, Inc. Approximately 45 million family caregivers in the United States are providing an estimated $873.5 billion in free labor each year, according to the results of a study by the Columbia University Mailman School of Public Health sponsored
- [Webinar: Time for Living and Caring - An approach to planning respite time to maximize caregiver benefit](https://archrespite.org/library/webinar-time-for-living-and-caring-an-approach-to-planning-respite-time-to-maximize-caregiver-benefit/) - Rebecca Utz, PhD and Catharine Sparks, MSc, from the University of Utah described the results from a five-year National Institute on Aging (NIA) funded study to develop and test a respite-focused intervention, Time for Living and Caring (TLC). TLC is an app that was designed to support caregivers by helping them plan for and make
- [Lisa's Story](https://archrespite.org/library/lisas-story/) - Developed by No Wrong Door Virginia and the Virginia Lifespan Respite Care program No Wrong Door Virginia and the VA Lifespan Respite program collaborated on a video telling a "backpack story" to increase awareness among family caregivers of available respite and other available services. A “backpack story” refers to a personal narrative highlighting an individual’s
- [National Respite Care Provider Training and Replication Toolkit](https://archrespite.org/library/national-respite-care-provider-training-and-replication-toolkit/) - Respite Provider Recruitment, Training, and Retention Project Executive Summary The Respite Provider Recruitment, Training and Retention Project was funded by the Administration for Community Living. Through this initiative, the ARCH National Respite Network and Resource Center (ARCH), in collaboration with the National Academy for State Health Policy (NASHP) and the Respite Care Association of Wisconsin
- [National Respite Care Provider Training Courses](https://archrespite.org/library/respite-care-provider-training-courses/) - The National Respite Care Provider TrainingTM (NRCPT), an entry-level competency-based respite provider training curriculum, developed as a collaboration between ARCH, the National Academy for State Health Policy, and the Respite Care Association of Wisconsin as part of the ARCH/National Academy for State Health Policy Respite Provider Recruitment and Training Initiative, is designed for people who
- [Lifespan Respite Best Practices: Lifespan Respite Services Program & Nebraska Lifespan Respite Network](https://archrespite.org/library/lifespan-respite-best-practices-lifespan-respite-services-program-nebraska-lifespan-respite-network/) - This presentation and discussion was made to the ARCH Respite Voucher Learning Collaborative on April 10, 2025. Lifespan Respite Best Practices Nebraska Lifespan Respite Services Program & Nebraska Lifespan Respite Network Hanna Quiring, Administrator, and Daniel Petersen, Program Coordinator, Division of Developmental Disabilities, Nebraska Department of Health and Human Services, shared the history of the
- [Transportation: The Missing Link in Family Caregiver Support](https://archrespite.org/library/transportation-the-missing-link-in-family-caregiver-support/) - Prepared by the National Aging and Disability Transportation Center in collaboration with ARCH This resource provides information for caregiver support professionals about typical community transportation options and associated support services that could be used to support family caregivers. There are also recommendations on forming partnerships with transportation providers to improve transportation options that are accessible
- [Empowering Lifespan Respite Care Program Leadership in Implementation of the National Strategy to Support Family Caregivers](https://archrespite.org/library/empowering-lifespan-respite-care-program-leadership-in-implementation-of-the-national-strategy-to-support-family-caregivers/) - Final Report of the Lifespan Respite Learning Collaborative on National Strategy Implementation A Learning Collaborative on Implementation of the National Strategy to Support Family Caregivers was convened by ARCH from February 2023 to September 2024. It focused on helping Lifespan Respite grantees and state respite coalitions assume leadership roles in their respective states to facilitate implementation
- [Respite Resources for Innovation and Sustainability](https://archrespite.org/library/respite-resources-for-innovation-and-sustainability/) - ARCH Presentation to the USAging Caregiver Champion Collaborative on September 25, 2024 The National Caregiver Champion Collaborative is a broad-based affinity group composed of Aging Network providers and partners who are responsible for the administration of caregiver services and supports. Convened by USAging, the collaborative serves as a learning and peer exchange forum for caregiving
- [Leading the Tourism Movement to Provide Respite Breaks in Scotland, UK](https://archrespite.org/library/leading-the-inclusive-tourism-movement-to-provide-respite-breaks-in-scotland-uk/) - ARCH hosted this webinar in collaboration with the BREAK Exchange. Kerry Donaghy, Respitality Manager at Shared Care Scotland, described how they have built and maintained a strong and positive relationship with the country’s tourism industry through a nine-year strong Respitality initiative in Scotland. The initiative has allowed them to offer short breaks through the hospitality,
- [RESPITE SERVICES: The Experiences and Recommendations of Service Providers and Racially, Ethnically, and Culturally Diverse Family Members](https://archrespite.org/library/respite-services-the-experiences-and-recommendations-of-service-providers-and-racially-ethnically-and-culturally-diverse-family-members/) - Prepared for ARCH by the Georgetown University National Center for Cultural Competence Recognizing that many ethnic, racial, and cultural groups face challenges accessing or achieving desired respite outcomes, ARCH collaborated with the Georgetown University National Center for Cultural Competence (NCCC) to learn more about the experiences of these caregivers and what they would recommend to
- [Finding Care at Medicare.gov](https://archrespite.org/library/finding-care-at-medicare-gov/) - Presentation by Holly Baier, Strategic Marketing Group, Office of Communications, Centers for Medicare & Medicaid Services to the CMS Caregiver Workgroup Medicare.gov has a streamlined, single user-friendly interface with quality, price, inspection & other data for each provider setting. This tool can be used to find and compare different types of Medicare providers (like physicians,
- [Webinar: An Introduction to the Cultural and Linguistic Competence Assessment for Respite Organizations (CLCARO) and Guide](https://archrespite.org/library/an-introduction-to-the-cultural-and-linguistic-competence-assessment-for-respite-organizations-clcaro-and-guide/) - The Cultural and Linguistic Competence Assessment for Respite Organizations (CLCARO) and Guide prepared for ARCH for use by respite organizations was developed by the Georgetown University National Center for Cultural Competence. This webinar provided an overview of the Cultural and Linguistic Competence Assessment for Respite Organizations (CLCARO) and Guide. The presentation provided the philosophy and
- [National Respite Guidelines](https://archrespite.org/library/national-respite-guidelines/) - Guiding Principles for Respite Models and Services The guidelines provide a summary of guiding principles addressing quality indicators for all respite models and services. They can act as a checklist for providers of respite to review as they address respite service delivery issues. The guidelines are intended to be used by respite provider programs, individual
- [Volunteer Respite Squad: Learn how to create your own Respite Volunteer Program](https://archrespite.org/library/volunteer-respite-squad-learn-how-to-create-your-own-respite-volunteer-program/) - Volunteer Respite Squad: Learn how to create your own Respite Volunteer Program Webinar hosted by the ARCH Volunteer and Faith-based Respite Learning Collaborative on Dec 12, 2024 The innovative Volunteer Respite Squad is run by Age Well, a large Area Agency on Aging in Vermont. The program won a 2021 USAging Recognition Award in the
- [ARCH List of Crisis Nurseries](https://archrespite.org/library/arch-list-of-crisis-nurseries/) - ARCH List of Crisis Nurseries is a list that is provided by ARCH for informational purposes only and is not all-inclusive. The fact that a program is or is not listed here does not represent an endorsement or lack of endorsement for any purpose.
- [Caregivers in the Workplace: Finding Balance for Your Employees](https://archrespite.org/library/caregiver-guide-for-businesses-from-the-new-york-office-for-the-aging/) - New York Resource Guide for Businesses, 2024 This guide, a product of a joint initiative of the New York State Office for the Aging and the Department of Labor, provides information to help employers better understand family caregiver needs and how to support them.
- [DAY 1 ARCH Respite Research Summit: Welcome and Opening Session: Value of Respite Model and Common Data Elements](https://archrespite.org/library/day-1-arch-respite-research-summit-welcome-and-opening-session-value-of-respite-model-and-common-data-elements/) - Welcome and Review of Agenda Jill Kagan, MPH, Director, ARCH National Respite Network and Resource Center Lori Stalbaum, Administration for Community Living, Administration on Aging, U.S. Department of Health and Human Services Kim Whitmore, PhD, RN, Assistant Professor, College of Nursing, Marquette University and ARCH Consultant PPT Slides Presentation of Committee for Advancement of Respite
- [DAY 2 Respite Research Summit: Emerging National, State, and Local Respite Services Evaluations](https://archrespite.org/library/day-2-respite-research-summit-emerging-national-state-and-local-respite-services-evaluations/) - Moderated by Kim Whitmore, PhD, RN, Marquette University Presenters Center for Dementia Respite Innovation: Overview and Evaluation Plan Rebecca Utz, PhD, Associate Dean of Research and Graduate Education and Professor, Department of Sociology, College of Social and Behavioral Science, University of Utah Joseph Gaugler, PhD, Director, Center for Health Aging & Innovation, Division of Health
- [Day 2 Respite Research Summit: Developing Research-Ready Respite Services - ARCH Innovative and Exemplary Respite Services Evaluation Grantees](https://archrespite.org/library/day-2-respite-research-summit-developing-research-ready-respite-services-arch-innovative-and-exemplary-respite-services-evaluation-grantees/) - Moderated by Susan Janko Summers, PhD, ARCH National Respite Network and Resource Center Presenters Elaine Whitford, Executive Director, Center for Volunteer Caregiving, Cary, NC Hyuntae Kim, MSW, Julianne Secrist, MSN, RN, and Jolynne Bartley, MPA, Claude Moore Precious Time, James Madison University, Harrisonburg, VA Amy Knapton Vega, MSW, Executive Director, Vanessa Behan, Spokane, WA PPT
- [Day 1 Respite Research Summit: National Initiatives that Align with the CARR’s Value of Respite Framework and Recommendations for Common Data Elements](https://archrespite.org/library/day-1-respite-research-summit-national-initiatives-that-align-with-the-carrs-value-of-respite-framework-and-recommendations-for-common-data-elements/) - Panel Presentations Moderated by Kim Whitmore, PhD, RN, Marquette University, ARCH Research Consultant Evaluation Plan for Guiding an Improved Dementia Experience (GUIDE) Model Lynn Miescier, PhD, MHA, Center for Medicare & Medicaid Innovation, Centers for Medicare & Medicaid Services PPT Slides Adult Day Services use of Common Data Elements William Zagorski, Board and Research, Chair,
- [Recommended Common Data Elements for Respite Research](https://archrespite.org/library/cde-white-paper/) - Recommended Common Data Elements for Respite Research A white paper by the ARCH Committee for Advancement of Respite Research (CARR) Purpose The purpose of this white paper is to provide recommendations for the use of common data elements for respite research that align with the Value of Respite Model, developed by the ARCH Committee for
- [Center for Volunteer Caregiving Evaluation Data Brief](https://archrespite.org/library/center-for-volunteer-caregiving-data-brief/) - The Center for Volunteer Caregiving in Cary, NC, was recognized by the ARCH National Respite Network and Resource Center as an Innovative and Exemplary Respite Service in 2022, and was part of an Innovative and Exemplary Respite Services Evaluation Initiative. Four evaluation grantees were selected to participate in the evaluation initiative, and over a 12-month
- [Claude Moore Precious Time Evaluation Data Brief](https://archrespite.org/library/claude-moore-precious-time-evaluation-data-brief/) - Claude Moore Precious Time at James Madison University in Harrisonburg, VA, was recognized by the ARCH National Respite Network and Resource Center as an Innovative and Exemplary Respite Service in 2019, and was part of an Innovative and Exemplary Respite Services Evaluation Initiative. Four evaluation grantees were selected to participate in the evaluation initiative, and
- [Vanessa Behan Evaluation Data Brief](https://archrespite.org/library/vanessa_behan_data_brief/) - Vanessa Behan, a crisis nursery in Spokane, WA, was recognized by the ARCH National Respite Network and Resource Center as an Innovative and Exemplary Respite Service in 2019, and was part of an Innovative and Exemplary Respite Services Evaluation Initiative. Four evaluation grantees were selected to participate in the evaluation initiative, and over a 12-month
- [New York Lifespan Respite Final Sustainability Plan Report, January 2022](https://archrespite.org/library/new-york-lifespan-respite-final-sustainability-plan-report-january-2022/) - New York Lifespan Respite Final Sustainability Plan Report, January 2022 The New York State Lifespan Respite Program Core Team includes the New York State Office for the Aging (NYSOFA), the Monroe County Office for the Aging (MCOFA), and the New York State Caregiving and Respite Coalition (NYSCRC), managed by Lifespan of Greater Rochester, Inc. To
- [Caregivers in Idaho](https://archrespite.org/library/caregivers-in-idaho/) - A Report from the Idaho Caregiver Task Force and the Idaho Caregiver Alliance, December, 2015 Supported with funds from AARP-Idaho and the Idaho Caregiver Alliance (sponsored by the Idaho Commission on Aging Lifespan Respite Grant) During the 2015 Idaho Legislative Session, HCR 24 was passed, calling for the formation of a Task Force to study
- [Take a Break SC! Sustaining South Carolina's Family Caregivers through Respite](https://archrespite.org/library/take-a-break-sc-sustaining-south-carolinas-family-caregivers-through-respite/) - This report from the SC Lifespan Respite State Advisory Committee was developed to guide the development of the state's coordinated lifespan respite system. In furtherance of the quest to coordinate and sustain lifespan respite in South Carolina, “Take a Break SC! Sustaining South Carolina’s Family Caregivers through Respite”, is a state plan to guide implementation
- [National Respite Care Provider Training Core Competencies](https://archrespite.org/library/respite-professional-core-competencies/) - The National Respite Care Provider TrainingTM Core Competencies were developed by an expert work group convened by ARCH that included representatives of state and national organizations and government agencies that represent children, adults, and the aging and have experience in workforce development. Many members of the expert work group also have personal experience as caregivers.
- [Cultural and Linguistic Competence Assessment for Respite Organizations](https://archrespite.org/library/cultural-and-linguistic-competence-assessment-for-respite-organizations/) - Cultural and Linguistic Competence Assessment for Respite Organizations was prepared for ARCH by the Georgetown University National Center for Cultural Competence Organizational self-assessment is a necessary, effective, and systematic way to plan for and incorporate cultural and linguistic competence. An assessment should address the attitudes, behaviors, policies, structures, and practices of an organization, including but not
- [Measuring the Value of Respite](https://archrespite.org/library/measuring-the-value-of-respite/) - A White Paper by the ARCH Committee for Advancement of Respite Research (CARR) Purpose The purpose of this white paper is to provide an in-depth description of the current challenges related to measuring the economic value of respite and to offer a new framework for research and evaluation. Value of Respite Model Key Points §
- [National Respite Care Provider Training Webinar: Lessons from the States](https://archrespite.org/library/nrcpt-webinar/) - Hosted by the National Academy for State Health Policy To recruit and train the respite workforce, ARCH National Respite Network and Resource Center, in partnership with the National Academy for State Health Policy (NASHP) and the Respite Care Association of Wisconsin, piloted a competency-based respite provider training and recruitment initiative in 10 states. This project
- [Student Respite Toolkit Flyer](https://archrespite.org/library/student-respite-toolkit/) - Toolkit was developed by Respite Care Association of Wisconsin in partnership with the Whitmore Research Team at Marquette University. The Student Respite Toolkit is a FREE online resource that provides comprehensive, step-by-step guidance to academic programs on how to establish partnerships with existing respite programs and develop their own respite programs. It will provide students unique experiential
- [Information Session for 2025 Innovative and Exemplary Respite Services Application](https://archrespite.org/library/information-session-for-2025-innovative-and-exemplary-respite-services-application/) - On September 4, 2024, ARCH held an information session for prospective applicants for recognition as an Innovative and Exemplary Respite Service. Please find the the presentation slides, chat transcript with links and the session recording. Deadline for Submission is October 8, 2024.
- [Respite for Individuals with Autism](https://archrespite.org/library/respite-for-individuals-with-autism/) - This issue brief provides a basic overview of useful information for respite providers who work with individuals and families affected by Autism. It is also meant to assist Lifespan Respite grantees and their collaborators by increasing their understanding of the unique needs of this population and their family caregivers. Such insight and direction will help
- [Webinar on Charting the LifeCourse Respite Tools](https://archrespite.org/library/webinar-on-charting-the-lifecourse-respite-tools/) - The aim of this webinar is to show you how to make the best use of the Charting the LifeCourse Respite Tools. Learn about this resource, Exploring Respite Opportunities and Options, from ARCH to enhance use of the tools. The Charting the LifeCourse Respite materials, developed by Missouri Family to Family in partnership with the
- [Webinar: Caregiver to Caregiver (C2C) Respite Network](https://archrespite.org/library/webinar-caregiver-to-caregiver-c2c-respite-network/) - Caregiver to Caregiver (C2C) Respite Network A community of caregiving rooted in shared experience The Caregiver to Caregiver (C2C) Respite Network was developed by a parent of a child with a disability. C2C is funded by American Rescue Plan Act funds though a special state respite initiative, and is a program of the Federation for Children
- [Respite Services for Kinship Caregivers](https://archrespite.org/library/respite-services-for-kinship-caregivers/) - Hosted by the Grandfamilies & Kinship Support Network Respite services and supports are significant needs of kinship/grandfamilies. Learn from several kinship programs that have developed respite services that are tailored to the unique circumstances of kinship/grandfamilies. Presenters: Rosalyn Alber, Kinship and Lifespan Respite Program Manager, Home & Community Services, Aging
- [State Innovations to Advance Respite Care – Policy Strategies Shared at the State-Federal Respite Summit](https://archrespite.org/library/state-innovations-to-advance-respite-care-policy-strategies-shared-at-the-state-federal-respite-summit/) - Prepared by the National Academy for State Health Policy In February 2024, the National Academy for State Health Policy (NASHP), as part of its Lifespan Respite Special Projects grant from the Administration for Community Living (ACL), hosted 16 state teams and federal officials from eight agencies in Washington, D.C., for a peer-to-peer learning exchange on
- [Raising the Bar  - Supporting Working Caregivers](https://archrespite.org/library/raising-the-bar-supporting-working-caregivers/) - Presented at the 2024 National Lifespan Respite Conference, Albany, NY, by the Wisconsin Family and Caregiver Support Alliance This interactive presentation briefly presented a study of Wisconsin employers and employed caregivers. Then attendees learned specific strategies some employers are using to raise the bar of benefits and support to attract and retain working caregivers. The
- [Including Diverse Communities in Respite Opportunities -- Lessons Learned from the Field](https://archrespite.org/library/including-diverse-communities-in-respite-opportunities-lessons-learned-from-the-field/) - Prepared for the 2024 National Lifespan Respite Conference by Lifespan Respite Washington. The Lifespan Respite Washington Program strives to expand services to diverse populations. We are assisting Tribal populations to create relevant respite programs for their communities, developing materials for family caregivers of future WA Cares beneficiaries and are learning from Kingship Navigators how to
- [Caregiving - A series by Real World Health Care, 2023](https://archrespite.org/library/caregiving-a-series-by-real-world-health-care-2023/) - Produced by the HealthWell Foundation Caregiving is a recently published series of articles that spotlights the organizations and efforts dedicated to making sure that those who care for loved ones are getting the support they need. An article, adatped from ARCH's Nine Steps to Respite Care for Family Caregivers of Persons with Dementia, including Alzheimer’s
- [ARCH Evaluation Form for Crisis Respite](https://archrespite.org/library/arch-evaluation-form-for-crisis-respite/) - From Evaluating and Reporting Outcomes: a Guide for Respite and Crisis Care Program Managers, ARCH National Respite Network and Resource Center Pre-Post Retrospective Survey for assessing the outcomes of crisis respite services.
- [Webinar:  “It’s like a weight lifted off your shoulder”: A qualitative study of adult carers taking a break](https://archrespite.org/library/webinar-its-like-a-weight-lifted-off-your-shoulder-a-qualitative-study-of-adult-carers-taking-a-break/) - “It’s like a weight lifted off your shoulder” A qualitative study of adult carers taking a break Without sufficient support, informal carers are at risk of poor health and a breakdown in the care they provide, with consequences for the carer and the cared-for-person. Respite care is used to support carers to have a
- [Using the Finance Project Sustainability Tools](https://archrespite.org/library/intro-to-sustainability-planning-tools/) - Learning Collaborative leaders from the Exemplar States* who participated in the ARCH Sustainability TA Project shared their experiences in using the Finance Project Toolkit and provided an introduction to Logic Modeling and Sustainability Planning. State Case Study Presentations NEBRASKA, Sharon Johnson, Nebraska Lifespan Respite Network PENNSYLVANIA, MaryJo Alimena Caruso, Pennsylvania Respite Coalition MASSACHUSETTS, Amy Nazaire,
- [New York State Lifespan Respite Final Sustainability Plan Report](https://archrespite.org/library/new-york-state-lifespan-respite-final-sustainability-plan-report/) - The June 24, 2022, Sustainability Learning Collaborative featured Deana Prest and Abbey Derepentigny from the NY State Office for the Aging. They presented the New York State Caregiving and Respite Coalition's Lifespan Respite Final Sustainability Plan Report.
- [Strategic and Sustainability Planning](https://archrespite.org/library/strategic-and-sustainability-planning-2/) - Strategic and Sustainability Planning Presentation by LC members, Sarah Toevs, PhD, Director, Center for Study of Aging, Boise State University and Marilyn Sword, Coordinator, Idaho Caregiver Alliance. Discussion followed on the differences between strategic, sustainability and business plans, the impact of coalition structure on sustainability, and overcoming age and disability agency silos to ensure sustainability.
- [2024 Information Session for Innovative and Exemplary Respite Services Application Process](https://archrespite.org/library/2024-information-session-for-ie-application/) - On September 5, 2023, ARCH held an information session for prospective applicants for recognition as an Innovative and Exemplary Respite Service. Please find the recording, the presentation slides, and CHAT Transcript with important links here.
- [Creating Dementia-Friendly Congregations to Support African American Families](https://archrespite.org/library/creating-dementia-friendly-congregations-to-support-african-american-families/) - Creating Dementia-Friendly Congregations to Support African American Families The ARCH Volunteer and Faith-based Respite Learning Collaborative held a webinar to learn more about the Alter program. Alter is the first of its kind and is a substantial piece of the puzzle in responding to the needs of African American family caregivers and people living with dementia
- [Innovative and Exemplary Respite Services](https://archrespite.org/library/innovative-and-exemplary-respite-services/) - This webinar featured three respite programs previously recognized by ARCH as Innovative and Exemplary. Each year for the past three years, the ARCH National Respite Network and Resource Center has invited respite programs across the Nation to apply for recognition as an Innovative and Exemplary Respite Service. Applications are currently open for program recognition in
- [Volunteer Respite Manual: Creating Valuable Options for Family Caregivers](https://archrespite.org/library/volunteer-respite-manual/) - Drawing on the experience in volunteer services among ARCH network members, ARCH’s recognized Innovative and Exemplary respite services, and Lifespan Respite grantees and their partners, this step-by-step manual will help national, state and community-based programs and faith-based initiatives assess needs, plan, and implement volunteer respite programs with special guidance on providing volunteer services during a
- [Taking Care: Resource Guide for Caregivers](https://archrespite.org/library/taking-care-resource-guide-for-caregivers/) - With support from the Virginia Lifespan Respite Care Program grant administered by the Virginia Department for Aging and Rehabilitation Services (DARS), the Virginia Caregiver Coalition (VCC) created Taking Care, a comprehensive Resource Guide for Caregivers.
- [Family Support 101: Understanding Policies that Support Family and Family Caregivers](https://archrespite.org/library/family-support-101-understanding-policies-that-support-family-and-family-caregivers/) - Hosted by the Association of University Centers on Disabilities for their trainees to learn about policies that support family and family caregivers. The participants learned: Overview and history of family support, Current needs of families and family caregivers and Policies and practices of Respite. Presenters: Sheli Reynolds is the key developer of the Charting the
- [LifeCourse Respite Tool - Integrated Support Star](https://archrespite.org/library/my-lifecourse-respite-portfolio/) - LifeCourse Respite Tool - Integrated Support Star This tool helps you think through and identify how and where to find respite opportunities and services. Completing the star will help you think about your own life and the supports and resources you have available in each of the star categories that could help make respite possible
- [Illinois Caregiver Survey Results](https://archrespite.org/library/illinois-caregiver-survey-results/) - The survey was conducted by the Illinois Respite Coalition in collaboration with the IL Lifespan Respite grantee to help inform the work of the IL Lifespan Respite Task Force. The graphs included in this report represent the responses from caregivers across the state of Illinois who were caring for individuals across the lifespan. The data
- [National Strategy to Support Family Caregivers: Steps States Can Take to Implement Respite Actions](https://archrespite.org/library/national-strategy-to-support-family-caregivers-steps-states-can-take-to-implement-the-respite-actions/) - ARCH presentation for the first meeting of the Illinois Lifespan Respite Task Force, December 12, 2023 In a virtual presentation at the first meeting of the Illinois Lifespan Respite Task Force, Jill Kagan, ARCH Director, provided background and an overview of the National Strategy to Support Family Caregivers, described the role of Lifespan Respite grantees
- [Family Respite Services: A Profile of Respite Support in Windsor, Ontario, Canada](https://archrespite.org/library/frs_windsor_ontario_canada/) - This webinar was cohosted by ARCH and the BREAK Exchange. Family Respite Services (FRS) in Windsor, Ontario, Canada, is a community organization that works with families caring for children with disabilities to provide a short break for parents and the child. Their goal is to help children with disabilities, including those with autism and mental
- [Respite Care: State Policy Resource Guide](https://archrespite.org/library/respite-care-state-policy-resource-guide/) - Prepared by the National Academy for State Health Policy in consultation With ARCH The ARCH National Respite Network and Resource Center created a Learning Collaborative of state administrators and their partners. In partnership with the National Academy for State Health Policy (NASHP), the Learning Collaborative created this roadmap for states that want to implement the
- [Charting the LifeCourse: Respite Guide](https://archrespite.org/library/charting-the-lifecourse-respite-guide/) - LifeCourse Respite Tool - Respite Guide The Respite Guide and accompanying toolkit are intended for anyone in a family or relationship that is providing the majority of care or support to a person who needs additional support, and are also referred to as “caregivers” or “carers” throughout this guide. It is focused on the topic
- [Environmental Scan - Resources for Culturally and Linguistically Competent Respite Research](https://archrespite.org/library/environmental-scan-resources-for-culturally-and-linguistically-competent-respite-research/) - Prepared by Dr. Kim Whitmore, Marquette University College of Nursing, with the ARCH Committee for Advancement of Respite Research An environmental scan was conducted by the ARCH Committee for Advancement of Respite Research (CARR) to identify resources for expanding culturally and linguistically competent and responsive research with diverse populations. The following is a list of
- [Crisis Nurseries: Respite for Children at Risk of Abuse and/or Neglect](https://archrespite.org/library/crisis-nursery-care-respite-for-children-at-risk-of-abuse-and-or-neglect/) - Crisis nurseries, also known as crisis or emergency care, provide temporary respite for families experiencing challenging life circumstances that place their children at risk for abuse and/or neglect. Created to provide immediate stress relief for parents and caregivers in times of crisis, the care provided by most nurseries can be accessed any time of the
- [VA Caregiver Support Program Caregiver Respite Tool: Exploring Your Goals](https://archrespite.org/library/va-caregiver-support-program-caregiver-respite-tool-exploring-your-goals/) - The U.S. Department of Veterans Affairs (VA) recognizes the importance of caregivers as partners in Veterans' care. VA has created this tool to help caregivers incorporate respite into their lives. Respite care allows you, as a caregiver, time away from your caregiving responsibilities. Finding time for yourself can be difficult and this tool is designed
- [State Policies to Strengthen the Direct Care Workforce](https://archrespite.org/library/state-policies-to-strengthen-the-direct-care-workforce/) - This presentation was made to the Lifespan Respite Grantee and Partner Learning Collaborative on Implementing the National Strategy to Support Family Caregivers. The focus of this presentation is on Strengthening the Direct Care Workforce to help improve respite capacity. Dr. Kezia Scales, Vice President of Research & Evaluation, with PHI, Quality Care through Quality Jobs, was the guest presenter. Dr.
- [Engaging with Spanish-speaking Populations in the ID Family Caregiver Navigator Program](https://archrespite.org/library/engaging-with-spanish-speaking-populations-in-the-id-family-caregiver-navigator-program/) - This presentation was made to the ARCH Lifespan Respite Grantee and Partner Learning Collaborative on Implementing the National Strategy to Support Family Caregivers. Presenters from the Idaho Family Caregiver Navigator and the Idaho Caregiving Alliance shared the steps they took to identify the needs of Spanish-speaking caregivers in the state, to identify partners to help
- [New York Caregiver Focus Group Report, 2021](https://archrespite.org/library/new-york-caregiver-focus-group-report-2021/) - Developed by the New York State Office for the Aging Utilizing a focus group model, NYSOFA and partners gathered input and recommendations from caregivers on ways to better serve their needs and connect them to services through enhancements and expansion of caregiver-directed respite service delivery models. This report is a summary of this input process,
- [Evaluating Respite: A Primer](https://archrespite.org/library/evaluating-respite-a-primer/) - Evaluating Respite: A Primer a presentation by Casandra Firman, ARCH Evaluation Consultant This presentation offers a primer on Respite Evaluation and answers the questions: Why evaluate? and What to Evaluate? and helps the listener find the right measurement tools.
- [Evolution of Dementia Carers' Needs for and Access to Short Breaks: A Research Study from Wales](https://archrespite.org/library/webinar-evolution-of-dementia-carers-needs-for-and-access-to-short-breaks-a-research-study-from-wales/) - This event was cohosted by ARCH and the BREAK Exchange International policy recognizes the importance of short breaks and respite for sustaining caregiving relationships. The necessity for short breaks to evolve in form and function is relevant for all caregiving relationships where degenerative chronic conditions are present. However, there is limited understanding of how unpaid
- [9 Pasos  para El Cuidado de Respiro para cuidadores familiares de niños y adultos con discapacidades intelectuales y del desarrollo](https://archrespite.org/library/9-pasos-para-el-cuidado-de-respiro-para-cuidadores-familiares-de-ninos-y-adultos-con-discapacidades-intelectuales-y-del-desarrollo/) - Un camino para obtener el descanso que se merece ¿Es usted un padre de familia que brinda apoyo a un niño o adulto con una discapacidad intelectual o del desarrollo? Puede participar en múltiples roles para apoyar la independencia y la calidad de vida general de su familiar y, a veces, ese rol incluye ser
- [Youth Volunteers Providing Respite for Children and Young Adults with Disabilities](https://archrespite.org/library/volunteer-respite-for-children-and-youth-with-disabilities/) - Youth Volunteers Providing Respite for Children and Young Adults with Disabilities Lessons from the Northern Nevada R.A.V.E. Family Foundation (Respite And Volunteer Experiences) We heard from Northern Nevada R.A.V.E. Family Foundation and their approach to providing respite for children and young adults with disabilities and special health care needs, siblings, and foster children, with significant
- [Webinar: Charting the LifeCourse Tools for Respite - Examples from State Lifespan Respite Care Programs](https://archrespite.org/library/charting-the-lifecourse-tools-for-respite-examples-from-state-lifespan-respite-care-programs/) - Charting the LifeCourse Tools for Respite: Examples from State Lifespan Respite Care Programs During this virtual presentation at the Charting the LifeCourse Showcase on April 13, 2022, an overview of the tools and the training used to educate the Lifespan Respite network on using the tools successfully with family caregivers was provided, including the importance
- [Minnesota Medicaid Home and Community-Based Waivers](https://archrespite.org/library/minnesota-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers and co-occurring Managed Care 1915(b) waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is
- [Lifespan Respite 101 Webinar: An historical look back](https://archrespite.org/library/lifespan-repsite-101-webinar/) - This 2010 webinar provides an historic look back at the start of the federal Lifespan Respite Care Program, including a review of Lifespan Respite legislation and best practices in the original State Lifespan Respite Programs in Nebraska, Oklahoma, and Oregon that laid the foundation for the federal effort and legislation.
- [Lifespan Respite: Who, What, When, Where and How?](https://archrespite.org/library/lifespan-respite-who-what-when-where-and-how/) - These PPT slides provide answers to the questions: What is respite? Why is it important? What are the barriers to accessing respite? What is Lifespan Respite and why do we need it? Most importantly, the presentation lays out who needs to be involved in planning for and implementing a Lifespan Respite Care Program, the state
- [Putting a dollar sign to it.](https://archrespite.org/library/cost-analysis-for-respite/) - The FRIENDS Cost Analysis Template Adapted for Respite This webinar explores why and how we conduct cost analysis. It will provide attendees with a simple, electronic tool designed to calculate the exact cost of providing respite. The presenters will demonstrate how to use the Respite Cost Analysis Template and will discuss how the template can
- [Short breaks for carers: a scoping review](https://archrespite.org/library/short-breaks-for-carers-a-scoping-review/) - Short breaks for carers: a scoping review Prepared by Diane Seddon and Louise Prendergast, Wales Centre for Ageing and Dementia Research, School of Health Sciences, Bangor University and funded by Shared Care Scotland Shared Care Scotland, working alongside the UK Short Breaks Research & Practice Development Group, commissioned Bangor University to map and summarise all
- [Outcome Evaluation of the National Family Caregiver Support Program](https://archrespite.org/library/outcome-evaluation-of-the-national-family-caregiver-support-program/) - Outcome Evaluation of the National Family Caregiver Support Program The Administration for Community Living (ACL) released the Outcome Evaluation of the National Family Caregiver Support Program (NFCSP) on December 6, 2018. Key Respite Findings One key finding regarding respite was that, on average, NFCSP caregivers who received 4 or more hours of respite care per week had
- [Financial Assistance for Family Caregivers](https://archrespite.org/library/financial-assistance-for-family-caregivers/) - Can I get paid to be a Family Caregiver? ARCH is frequently asked if payment is available for family caregivers. There may be help for you, but resources are limited, may not exist in your state at all, and eligibility is restrictive. This fact sheet will provide the resources to see if you might be
- [Sustainability Structure Comparisons for State Respite or Caregiving Coalitions](https://archrespite.org/library/sustainability-structure-comparisons-for-state-respite-or-caregiving-coalitions/) - Prepared by the Idaho Caregiver Alliance and adapted by ARCH When considering the sustainability of your respite or caregiving coalition, it is important to consider the pros and cons of how the coalition will be structured. The Idaho Caregiver Alliance prepared this worksheet to compare various models, including coalitions housed: within a state agency; within
- [Adult Day Services and Respite](https://archrespite.org/library/adult-day-services-and-respite/) - Adult Day Services and Respite Adult Day Services (ADS) provide a break (respite) to the caregiver while providing health related and therapeutic services and social activities for adults with a wide variety of care needs, including those with Alzheimer’s disease and related dementias, developmental, intellectual, physical and/or other cognitive disabilities and other conditions that increase
- [Respite and the Faith Community](https://archrespite.org/library/fact-sheet-respite-and-the-faith-community/) - Respite and the Faith Community The purpose of this fact sheet is to identify and provide information on how faith communities can provide or support respite services as well as offer guidance to respite programs on ways to partner with faith communities to expand the reach of their services. Resources and information include the benefits
- [Volunteer Respite: Roadmap to Resources](https://archrespite.org/library/volunteer-respite-valuable-resources-2/) - Volunteer Respite: Roadmap to Resources Prepared by the ARCH National Respite Network and Resource Center Explore information and resources for recruiting, screening, training, and retaining volunteers to provide respite services to caregiving families in various settings. Examples of volunteer respite programs, including ARCH-recognized Innovative and Exemplary Respite Services, are highlighted. For a more in-depth discussion
- [Identifying, Measuring and Reporting Outcomes in Lifespan Respite Programs](https://archrespite.org/library/identifying-measuring-and-reporting-outcomes-in-lifespan-respite-programs/) - Lifespan Respite Grantee and Partner Learning Symposium, Nashville, TN October 10, 2014 Presented By: Greg Link, ACL/AoA and Casandra Firman, ARCH Session Objectives: Review Lifespan Respite Program objectives Highlight evolution of proposed outcomes Review TA Guidance for developing performance and outcome measures Discussion View Measuring Systems Change and Consumer Outcomes: Recommendations for Developing Performance Metrics for
- [Successful State Approaches for Measuring Lifespan Respite Outcomes](https://archrespite.org/library/successful-state-approaches-for-measuring-lifespan-respite-outcomes/) - 2015 Lifespan Respite Grantee and Partner Learning Symposium, Washington, DC. Presented By: Emily Kearns, MA Lifespan Respite Coalition and Joyce Pohlman, TX Department of Aging and Disability Services
- [The Nuts and Bolts of Voucher Respite](https://archrespite.org/library/the-nuts-and-bolts-of-voucher-respite/) - The Nuts and Bolts of Voucher Respite A call of the Respite Voucher Learning Collaborative, May 16, 2018 In implementing a respite voucher program, States use a variety of delivery and reimbursement systems, target different populations, and define provider eligibility differently. This call will provide an opportunity for network members to discuss different approaches to
- [Practical Considerations When Starting a New Voucher Program and for Experienced Voucher Program Providers](https://archrespite.org/library/practical-considerations-when-starting-a-new-voucher-program-and-for-experienced-voucher-program-providers/) - Practical Considerations When Starting a New Voucher Program and for Experienced Voucher Program Providers A call of the Respite Voucher Learning Collaborative, September 20, 2018 Are you thinking about starting a voucher respite program? Are you a seasoned veteran in implementing a program, but still have questions? This call will explore the many issues you
- [Successful Coalitions: An Ongoing Process of Self-Assessment, July 19, 2017](https://archrespite.org/library/successful-coalitions-an-ongoing-process-of-self-assessment-july-19-2017/) - This call provided an opportunity for Lifespan Respite grantees and partners to share successes and challenges in engaging members in their state respite coalitions, in defining and redefining the coalition role in Lifespan Respite activities, in structuring the coalition, in sustaining coalition leadership, and in planning for the future. You are not alone if you
- [Conversations on Caregiving - Respite is a contact sport, not a spectator sport](https://archrespite.org/library/conversations-on-caring-exploring-respite-care-innovations/) - Podcast 2 - Respite is a contact sport, not a spectator sport. In this second podcast in the ARCH series, Conversations on Caregiving, Melissa Leisen and Christine McGrane introduce their college- and university-based pediatric respite programs in Virginia, and in Rhode Island. Melissa and Christine describe how these two programs were created, and
- [Conversations on Caregiving - Not free, but freely given](https://archrespite.org/library/conversations-in-caregiving-exploring-respite-care-innovations/) - Podcast 1 - Not free, but freely given. In this inaugural ARCH podcast in the ARCH series, Conversations on Caregiving, educator Mary Jo Alimena Caruso describes how she created a volunteer respite program for caregivers of children with disabilities. The program was notable in its ability to foster strong, caring, and lasting relationships
- [Conversations on Caregiving - Flooding the airways with kindness](https://archrespite.org/library/conversations-on-caregiving-exploring-respite-care-innovations/) - Podcast 3 - Flooding the airways with kindness. In this third podcast in the ARCH Series, Conversations on Caregiving, educator Sharon Leary talks about a multidisciplinary, undergraduate university-based respite program serving caregiving families of adults with Alzheimer’s and other memory related conditions. Sharon illuminates the many ways students benefit and grow personally and professionally
- [Support for Kinship Care: Child Welfare and Child Abuse Prevention Programs](https://archrespite.org/library/kinship-care-september-26-2018/) - Child Welfare and Public and Private Child Abuse Prevention Programs that Support Kinship Care Providers and other At-risk Families. How can respite and crisis care be a part of a family strengthening initiative? September 26, 2018 Call Description: Respite care and crisis nurseries have been shown to be part of effective strategies to strengthen families and
- [Using a SWOT for Strategic Planning and Measuring Outcomes](https://archrespite.org/library/using-a-swot-for-strategic-planning-and-measuring-outcomes/) - Using a SWOT for Strategic Planning and Measuring Outcomes Presentation by Julie Waters with the Alabama Department of Senior Services, and AL’s Lifespan Respite grantee manager. ARCH National Respite Network and Resource Center · Using a SWOT for Strategic Planning and Measuring Outcomes SWOT analysis is a strategic planning method used to research external and internal
- [Fundamentals of Developing and Implementing Voucher Respite (Part 2)](https://archrespite.org/library/fundamentals-of-developing-and-implementing-voucher-respite-part-2/) - Fundamentals of Developing and Implementing Voucher Respite (Part 2), March 11, 2015 Call Description Several grantees and partners described the basic considerations for developing a respite voucher program and the mechanics of implementation. They addressed the following issues: the process for developing the materials, including the application overcoming tax, legal and liability considerations deciding how
- [Training and Recruitment of Respite Providers and Volunteers – Examples from State Lifespan Respite Grantees and Partners](https://archrespite.org/library/training-and-recruitment-of-respite-providers-and-volunteers-examples-from-state-lifespan-respite-grantees-and-partners/) - ARCH National Respite Network and Resource Center · Provider Training 1 - 28 - 15 Call Description: Short presentations were made by Jim Schroeder, Respite Care Association of Wisconsin and Brandi Mason, Alabama Lifespan Respite Network. They described the respite provider/volunteer training curriculum they are using, the training format (e.g. online, in-person, etc), who is eligible to participate,
- [Using Technology to Implement and Sustain Lifespan Respite Activities](https://archrespite.org/library/using-technology-to-implement-and-sustain-lifespan-respite-activities/) - Using Technology to Implement and Sustain Lifespan Respite Activities, July 13, 2016 ARCH National Respite Network and Resource Center · Using Tech With NV And NE TeleCon 7 - 13 - 2016 Call Description: Most of us rely on technology – cell phones, websites, YouTube, internet registries and calendars, apps – to just get
- [Planning for Lifespan Respite Grant Activities: Beyond the First Three Years](https://archrespite.org/library/planning-for-lifespan-respite-grant-activities-beyond-the-first-three-years/) - Planning for Lifespan Respite Grant Activities: Beyond the First Three Years, January 30, 2013 Greg Link with the Administration for Community Living/Administration on Aging provided background on FY 2012 Lifespan Respite Integration and Sustainability grant program. Recipients of these 2012 grants shared information about their planned activities and progress to date. State presenters were: Java
- [Strategic Planning for Lifespan Respite: Why is it important and how is it done?](https://archrespite.org/library/9867/) - Strategic Planning for Lifespan Respite: Why is it important and how is it done? March 19, 2013 Pat Luchkowsky from the Ohio Respite Coalition and Jane Byrnes from the Ohio Department of Aging shared information on why they decided to undertake a strategic plan for their Lifespan Respite project, the process they engaged in to
- [Marketing Respite to Family Caregivers: Examples from State Lifespan Respite Initiatives](https://archrespite.org/library/marketing-respite-to-family-caregivers-examples-from-state-lifespan-respite-initiatives/) - Marketing Respite to Family Caregivers: Examples from State Lifespan Respite Initiatives, January 9, 2014 Call Description: Strategies for marketing respite to family caregivers was raised as an area of interest on the last Lifespan Respite Grantee/Partner call in November. This call focused on examples from states about marketing, education and public awareness campaigns that state lifespan
- [Linking Lifespan Respite to your State’s Long-term Services and Supports (LTSS) Initiatives](https://archrespite.org/library/linking-lifespan-respite-to-your-states-long-term-services-and-supports-ltss-initiatives/) - Linking Lifespan Respite to your State’s Long-term Services and Supports (LTSS) Initiatives, June 9, 2014 Call Description: Some state Lifespan Respite Programs have begun collaborating with their state Medicaid program to embed respite or family caregiver supports in new Medicaid Waivers, Money Follows the Person demos, the Balancing Incentives Program, Managed Care, state plan options such
- [Including Diverse Stakeholders in Lifespan Respite](https://archrespite.org/library/including-diverse-stakeholders-in-lifespan-respite/) - Including Diverse Stakeholders in Lifespan Respite, January 27, 2016 Call Description: Speakers discussed the special respite needs of the populations they serve and how respite helps families affected by MS and paralysis. Ms. Mauro discussed the resources that the Paralysis Resource Center has to offer to help you serve individuals with paralysis and their families
- [ARCH Respite Research Summit: Practice Research and Evaluation Panel](https://archrespite.org/library/practice-research-and-evaluation/) - Panel on Practice Research and Evaluation ARCH Respite Research Summit, September 30, 2020 moderated by Casandra Firman, MS, ARCH National Respite Network and Resource Center Expanding a Volunteer Respite Workforce to Provide Support to Caregivers in New York State Thomas V. Caprio, MD, MPH, MS, CMD, HMDC, FACP, AGSF, FAAHPM Professor of Medicine/Geriatrics, Psychiatry, Dentistry,
- [Measuring Impact: Evaluating Lessons from Massachusettes Lifespan Respite Coalition Programs](https://archrespite.org/library/measuring-impact-evaluating-lessons-from-massachusettes-lifespan-respite-coalition-programs/)
- [Caregiver Assessment Survey](https://archrespite.org/library/caregiver-survey/) - Assessment Tool from Nevada Lifespan Respite program for use by Rx Respite Pilot Voucher Program
- [Nebraska Family Caregiver Depression Screening](https://archrespite.org/library/nebraska-family-caregiver-screening/) - Developed by the Nebraska Department of Health and Human Services and the Lifespan Respite Subsidy Program Responses to these questions were collected by the State Lifespan Respite program as part of a statewide respite evaluation to gather information on health outcome data and impact on employment due to family caregiving responsibilities.
- [Montana Voucher Respite Satisfaction Survey Results](https://archrespite.org/library/montana-voucher-respite-satisfaction-survey-results/) - Prepared by the Montana Lifespan Respite Program The report represents results of ongoing data collection in 2019 of users of Montana's Lifespan Respite Voucher Program to assess how well the program worked and to plan for future respite services. Completing the Satisfaction Survey is required of all recipient of respite vouchers.
- [Nine Steps to Respite Care for Military and Veteran Caregivers](https://archrespite.org/library/nine-steps-to-respite-care-for-military-and-veteran-caregivers/) - Prepared for the Elizabeth Dole Foundation - Hidden Heroes and published here with their permission. Military and Veteran Caregivers may face special challenges. Sometimes, Veterans have unique physical, emotional and behavioral conditions that require specialized care. For example, younger Veterans may have traumatic brain injury, spinal cord injuries, amputations and post-traumatic stress disorder. Aging Veterans
- [Partnering with AmeriCorps Seniors to Support Respite and Workforce Development](https://archrespite.org/library/partnering-with-americorps-seniors-to-support-respite-and-workforce-development/) - Partnering with AmeriCorps Seniors to Support Respite and Workforce Development This meeting of the Volunteer and Faith-based Respite Learning Collaborative focused on the AmeriCorps Seniors – Senior Companion Program and how it can support Lifespan Respite grantees’ and other respite agencies’ efforts to increase access to respite and support workforce development. To find local AmeriCorps Seniors initiatives
- [The Role of Respite in the National Strategy to Support Family Caregivers](https://archrespite.org/library/the-role-of-respite-in-the-national-strategy-to-support-family-caregivers/) - An ARCH Policy to Practice Brief The 2022 National Strategy to Support Family Caregivers includes an abundance of important and relevant information and guidance to support caregivers. Given the breadth and complexity of the Strategy, the purpose of this brief is to establish the unique role that Lifespan Respite grantees and their partners can play
- [Supporting Family Caregivers: Nursing Students as Respite Providers Toolkit and Video](https://archrespite.org/library/supporting-family-caregivers-nursing-students-as-respite-providers-toolkit-2/) - To address a key need of caregivers, Rhode Island Office of Healthy Aging implemented a workforce development initiative through its Lifespan Respite grant to match student nurses with low to moderate income families who have no access to subsidized respite care. This model provides free respite care with an increased supply of volunteer respite providers
- [National/State Partnership to Launch a New Respite Provider Recruitment and Training Initiative](https://archrespite.org/library/hcbs-conf-respite-provider-recruitment-and-training-initiative/) - Video Presentation at the Home and Community-Based Services Conference, August 2022 With support from the Administration for Community Living, the National Academy for State Health Policy joined forces with the ARCH National Respite Network and Resource Center and the Respite Care Association of Wisconsin to develop and field test a competency-based online respite provider training,
- [Respite for Family Caregivers of Children and Adults with Intellectual and Developmental Disabilities (I/DD)](https://archrespite.org/library/respite-for-family-caregivers-of-children-and-adults-with-intellectual-and-developmental-disabilities-i-dd/) - This fact sheet provides a basic overview of useful information for respite providers who work with individuals and families caring for someone with I/DD. It is also meant to assist Lifespan Respite grantees and their collaborators by increasing their understanding of the unique needs of this population and their family caregivers. Useful information is also
- [Students as Respite Volunteers: A Creative Approach to Supporting Family Caregivers](https://archrespite.org/library/students-as-respite-volunteers-a-creative-approach-to-supporting-family-caregivers/) - Students as Respite Volunteers: A Creative Approach to Supporting Family Caregivers Using students from undergraduate and graduate nursing, social work, and other health care professional academic programs as volunteer respite providers is a growing approach among Lifespan Respite Care Programs and others to support family caregivers and address the direct care worker shortage. ARCH recently
- [Best Practices in Volunteer and Faith-based Respite](https://archrespite.org/library/best-practices-in-volunteer-and-faith-based-respite/) - At a meeting of the ARCH Volunteer and Faith-based Respite Learning Collaborative, two State Lifespan Respite grantee partners shared best practices in volunteer and faith-based respite activities. Elaine Whitford, Executive Director, The Center for Volunteer Caregiving, Cary, NC provided background and progress on NC Lifespan Respite Project’s Volunteer Respite Consortium. Kathy Mayfield Smith, Board President and Co-Founder,
- [Respite in the Faith Community 2022](https://archrespite.org/library/respite-in-the-faith-community-2022/) - At a meeting of the ARCH Volunteer and Faith-based Respite Learning Collaborative, we learned about approaches to recruiting faith-communities and a volunteer drop-in respite model in an Alabama faith-community. Doris Green with the New York State Caregiving and Respite Coalition presented on the Respite Revival held by the coalition last summer that brought faith communities in NY together
- [List of Resources for Volunteer and Faith-Based Respite](https://archrespite.org/library/list-of-resources-for-volunteer-and-faith-based-respite/) - Curated list of Volunteer and Faith-based Respite Resources available from ARCH National Respite Network and Resource Center, Lifespan Respite grantees and partners, national organizations and others. See also State Lifespan Respite Tools for additional Volunteer and Faith-based Respite resources shared by State Lifespan Respite grantees and partners.
- [Community Care Corps](https://archrespite.org/library/community-care-corps/) - Community Care Corps Caregiver Action Network staff presented an overview of the federally-funded Community Care Corps initiative, and shared recent outcomes from funded projects across the country. Nichole Goble, Director of Community Initiatives, Caregiver Action Network Derrick Goddard, Community Care Corps Director, Caregiver Action Network
- [Working While Caregiving](https://archrespite.org/library/working-while-caregiving/) - Jennifer Olsen, DrPH, MPH, Rosalynn Carter Institute for Caregivers Keynote Presentation at the 2022 National Lifespan Respite Conference, Madison, WI Dr. Jennifer Olsen, Chief Executive Officer at the Rosalynn Carter Institute for Caregivers (RCI), presented research findings from their recent white paper Invisible Overtime: What employers need to know about caregivers. RCI is working to provide specific solutions
- [State Strategies to Engage Employers, Conversation with Grace Whiting, National Alliance for Caregiving](https://archrespite.org/library/state-strategies-to-engage-employers-conversation-with-grace-whiting-national-alliance-for-caregiving/) - State Strategies to Engage Employers, Conversation with Grace Whiting, National Alliance for Caregiving, April 22, 2015 Call Description: Grace whiting shared updates on the National Alliance for Caregiving’s Champions Coalition Grantees to show how local communities are raising public awareness about the needs of working caregivers. This discussion flows from a previous ARCH webinar on Caregivers in
- [Opportunities from the Corporation for National and Community Service (CNCS) to Expand and Support Respite](https://archrespite.org/library/opportunities-from-the-corporation-for-national-and-community-service-cncs-to-expand-and-support-respite/) - Opportunities from the Corporation for National and Community Service (CNCS) to Expand and Support Respite, March 30, 2016 Call Description: The Corporation for National and Community Service (CNCS) is a federal agency that engages more than five million Americans in service through its AmeriCorps, Senior Corps, Social Innovation Fund, and Volunteer Generation Fund programs, and
- [The Fundamentals of Developing and Implementing Voucher Respite, Part 1](https://archrespite.org/library/the-fundamentals-of-developing-and-implementing-voucher-respite-part-1/) - The Fundamentals of Developing and Implementing Voucher Respite, Part 1, July 10, 2014 Call Description Some state lifespan respite grantees and/or state respite coalitions or other primary partners have implemented a one-time voucher program or have been delivering respite assistance via vouchers for some time. Other states are just beginning to explore the options for
- [Caregiving Resources from the National Institute on Aging](https://archrespite.org/library/caregiving-resources-from-the-national-institute-on-aging/) - Presentation by Stephanie Morrison, Office of Communications and Public Liaison, National Institute on Aging, April 19, 2023 For more information, email niaic@nia.nih.gov or call 800-222-2225 (English & Spanish) TTY: 800-222-4225. The NIA Information Center offers information and publications on health and aging for families, caregivers, and health professionals.
- [Sustaining Lifespan Respite Systems: Lessons Learned and Practical Applications with a Checklist for Success](https://archrespite.org/library/sustaining-lifespan-respite-systems-lessons-learned-and-practical-applications-with-a-checklist-for-success/) - Author: Susan Janko Summers, PhD, ARCH With technical assistance from ARCH and The Finance Project, eight Exemplar States chosen from among the Lifespan Respite grantees and partners, worked to develop comprehensive state sustainability plans for lifespan respite care. Through in-depth interviews conducted as part of an evaluation of The Finance Project ’s technical assistance efforts,
- [Tools for Collaboration: Building and Sustaining Partnerships for Lifespan Respite Care Programs](https://archrespite.org/library/tools-for-collaboration-building-and-sustaining-partnerships-for-lifespan-respite-care-programs-2/) - This fact sheet provides definitions of different levels of collaboration and answers the questions: Why is collaboration a priority area for the Lifespan Respite Care Program? and What does collaboration in Lifespan Respite Care Programs mean? Also provided are state examples of effective collaborations and partnerships to advance Lifespan Respite systems, and links to valuable tools and resources to
- [Self-Direction in Respite Voucher Programs: Path to Person and Family-Centered Care](https://archrespite.org/library/self-direction-in-respite-voucher-programs-path-to-person-and-family-centered-care/) - Virtual presentation for the Applied Self-Direction At Your Desk Conference, April 25, 2023 Respite care provides a break from caregiving for both the caregiver and the disabled individual and should be a meaningful experience for them and other family members. Respite Voucher Programs, frequently funded by state Lifespan Respite Care grants funded by the U.S.
- [State Respite Legislation - Advancing Respite for Family Caregivers](https://archrespite.org/library/state-respite-legislation-advancing-respite-for-family-caregivers/) - State Lifespan Respite grantees and their state coalition partners are exploring strategies to help sustain activities to expand and enhance respite resources and options for family caregivers, to increase capacity for providing respite services through respite provider training and recruitment and to improve access to and quality of available services. While state lifespan respite grantees
- [Looking Beyond Federal Funding: Examples of State Funding for Respite, July 18, 2018](https://archrespite.org/library/looking-beyond-federal-funding-examples-of-state-funding-for-respite-july-18-2018/) - Call Description: What do we know about state funding for respite? Here are a few examples of states that are successfully using state resources to support respite for families across the lifespan: Nebraska, Wisconsin and Texas have passed and funded State Lifespan Respite legislation. Ongoing advocacy is needed to maintain them. A few state respite coalitions
- [Advancing Respite Research - Findings from the Respite Research Summit](https://archrespite.org/library/advancing-respite-research-findings-from-the-respite-research-summit/) - On September 29 and 30, 2020, ARCH convened the virtual Respite Research Summit with more than 130 national and international participants. The Summit was a capstone event to an initiative by the ARCH National Respite Network and Resource Center to advance a respite research agenda developed by an Expert Panel. The purpose of the Summit was to
- [Timebanking for Respite: Communities Supporting Caregivers](https://archrespite.org/library/timebanking-for-respite-communities-supporting-caregivers/) - ARCH hosted this webinar with the BREAK Exchange. Timebanking is a time-based currency. Give one hour of service to another, and receive one time credit. You can use the credits in turn to receive services — or you can donate them to others. Designed to increase our individual and community well-being, Timebanking takes place through exchanges
- [News Article Example](https://archrespite.org/library/news-article-example/) - Sample format for a short news article about respite in the CareBreaks Toolkit Created by Rhode Island Office of Healthy Aging
- [Flyer About Ways to Support Caregivers in Your Community](https://archrespite.org/library/flyer-about-ways-to-support-caregivers-in-your-community/) - Flyer for CareBreaks Students as Respite Providers Toolkit. Created by the Rhode Island Office of Healthy Aging
- [Moving Respite Forward in New York State](https://archrespite.org/library/moving-respite-forward-in-new-york-state/) - This presentation was part of the Lifespan Respite Track at the 2021 Virtual International Short Break Conference cohosted by ARCH Presenters Deana Prest, New York Office for the Aging, Division of Policy, Planning, Program and Outcomes, NY, USA Abbey Lavazzo, New York Office for the Aging, Division of Policy, Planning, Program and Outcomes, NY, USA
- [Partnerships for Caregivers (and Respite Voucher Programs) in a No Wrong Door/ADRC Environment During a Pandemic](https://archrespite.org/library/partnerships-for-caregivers-and-respite-voucher-programs-in-a-no-wrong-door-adrc-environment-during-a-pandemic/) - This was a presentation in the Lifespan Respite Track of the 2021 Virtual International Short Break Conference Presenters Alicia Hess Blater, North Carolina Division of Aging and Adult Services, NC, USA Jessalyn Bridges, North Carolina Division of Aging and Adult Services, NC, USA We often hear, “I wish I had known about your service earlier”
- [Innovative Strategies for Working across State Programs Providing Respite Services in Massachusetts](https://archrespite.org/library/innovative-strategies-for-working-across-state-programs-providing-respite-services-in-massachusetts/) - This presentation was part of the Lifespan Respite Track at the 2021 Virtual International Short Break Association Conference cohosted by ARCH Presenters Leanne Winchester, Massachusetts Lifespan Respite Program and University of Massachusetts Medical School Commonwealth Medicine, MA, USA Amy Nazaire, Massachusetts Lifespan Respite Coalition and Massachusetts Department of Developmental Services, MA, USA Family caregivers provide
- [Advancing the Breakroom in South Carolina’s Faith Communities](https://archrespite.org/library/advancing-the-breakroom-in-south-carolinas-faith-communities/) - This presentation was part of a Lifespan Respite Track at the 2021 International Short Break Conference cohosted by ARCH Presenters Joe Ward, South Carolina Respite Coalition, SC, USA Kathy Mayfield-Smith, South Carolina Respite Coalition, SC, USA Nicholas Julian, South Carolina Respite Coalition, SC, USA South Carolina Respite Coalition’s initiative to engage with faith communities included
- [Creating Respite Where It Doesn’t Exist: A “Gap-Filling” Person-Centered Approach to Respite](https://archrespite.org/library/creating-respite-where-it-doesnt-exist-a-gap-filling-person-centered-approach-to-respite/) - This presentation was part of the Lifespan Respite Track at the 2021 Virtual International Short Break Conference cohosted by ARCH Presenters Jamie Ahumada, Nevada Aging and Disability Services Division, NV Cheryl Dinnell, Nevada Lifespan Respite Care Coalition, NV, Through a pilot program funded by the Administration for Community Living’s Lifespan Respite Care Program, the presenters
- [Virginia Lifespan Respite Voucher Program: Successes, Challenges, and Lessons Learned](https://archrespite.org/library/9269/) - This presentation was part of the Lifespan Respite Track at the 2021 Virtual International Short Break Conference cohosted by ARCH Presenters Nick Slentz, Virginia Department of Aging and Rehabilitative Services (DARS), VA, USA Liza White, Virginia Department of Aging and Rehabilitative Services (DARS), VA, USA The Virginia Lifespan Respite Voucher Program (VLRVP), supported by grants
- [Nevada Lifespan Respite Care Coalition 2020 Action Plan](https://archrespite.org/library/nevada-lifespan-respite-care-coalition-2020-action-plan/) - Nevada Lifespan Respite Care Coalition 2020 Action Plan. Goal: To Promote Awareness and Acceptance of Respite as a valued and normalized support.
- [Kansas Respite Provider Training Initiative](https://archrespite.org/library/kansas-respite-provider-training-initiative/) - The Kansas Respite Coalition worked to build a career pathway for direct care workers through the Community College System using Lifespan Respite Care Grant funds. While progress was made in developing critical partnerships and piloting the initial phases, it was never fully implemented. However, the coalition has shared documents and lessons learned. The Kansas Direct
- [Infographic: What’s the Key Ingredient for a Successful, Sustainable Coalition?](https://archrespite.org/library/infographic-whats-the-key-ingredient-for-a-successful-sustainable-coalition/) - Author: Casandra Firman, ARCH As Lifespan Respite grantees and their State Respite Coalition partners work to build diverse and meaningful partnerships for sustainability, ARCH developed this infographic to reflect lessons learned.
- [Alabama Lifespan Respite: Caregiver Wellness Initiative](https://archrespite.org/library/alabama-lifespan-respite-caregiver-wellness-initiative/) - ARCH cohosted this webinar with the BREAK Exchange Alabama Lifespan Respite (ALR) identified a lack of emotional and mental health supports for rural/underserved family caregivers as a growing problem prior to the Spring of 2020, but this deficiency was amplified in the wake of the pandemic. In response, ALR established the Caregiver Wellness Initiative through
- [Nine Steps to Respite for Grandfamilies](https://archrespite.org/library/nine-steps-to-respite-for-grandfamilies/) - If you are a grandparent or other relative caring for your grandchildren, nieces, nephews or other related children, you may be considered a “grandfamily.” The relationship between grandparents and grandchildren is often a very special one. For a growing number of grandparents, grandparenting really means full-time parenting for a second family. This factsheet is a
- [Supporting Working Caregivers through Employer Engagement](https://archrespite.org/library/supporting-working-caregivers-through-employer-engagement/) - General Session Panel at the 2022 National Lifespan Respite Conference in Madison, WI, 2022 Unprecedented numbers of family caregivers were forced to leave the labor force during the pandemic as they struggled to manage new or intensified caregiving duties, work, family responsibilities, and the resulting stress. A significant majority of family caregivers, at least 60
- [Tools for Employer Engagement in Respite and Caregiving Support](https://archrespite.org/library/tools-for-employer-engagement-in-respite-and-caregiving-support/) - In this presentation, participants learned about the Employed Caregiver Survey developed and supported by the University of Wisconsin Division of Extension. The importance of understanding the impacts of caregiving on both employees and employers; the benefits of understanding and supporting caregiving employees; and the purpose of the Employed Caregiver Survey as a tool to understand
- [Imagine Data, Reimagine Tantalizing Data](https://archrespite.org/library/imagine-data-reimagine-tantalizing-data/) - Presentation at the 2022 National Lifespan Respite Conference Imagine your data. Now, reimagine it presented in a form that tantalizes and engages. This session filled with hands-on learning experiences will help you discover ways to share data in succinct and meaningful ways. Telling concise and compelling stories with your program data is one of the
- [Introducing ARCH’s 2022 Innovative And Exemplary Respite Services: Successful Models For Replication](https://archrespite.org/library/introducing-archs-2022-innovative-and-exemplary-respite-services-successful-models-for-replication/) - Panel facilitated by Casandra Firman, ARCH, at the 2022 National Lifespan Respite Conference in Madison, WI, September 15, 2022. The slides provide an overview and purpose of ARCH's Innovative and Exemplary Respite initiative, and describe the selection criteria and process. During this session, Casandra Firman with the ARCH National Respite Network and Resource Center introduced
- [Advancing Respite by Building Bridges among Respite Researchers](https://archrespite.org/library/advancing-respite-by-building-bridges-among-respite-researchers/) - Advancing Respite by Building Bridges among Respite Researchers Presentation by Kim Whitmore, PhD, RN, Assistant Professor, Marquette University, and Research Consultant, on behalf of ARCH Dr. Kim Whitmore, facilitator of the ARCH Committee for Advancement of Respite Research (CARR), presented virtually at the 2nd Conference on Caregiving Research, Building Bridges: Advancing Family Caregiving Research Across
- [Nine Steps to Respite Care for Family Caregivers of Children and Adults with Intellectual and Developmental Disabilities (I/DD)](https://archrespite.org/library/nine-steps-to-respite-care-for-persons-with-idd/) - Are you a parent or family member providing support to a child or adult with an intellectual or developmental disability? You may engage in multiple roles in supporting the independence and overall quality of life of your family member and sometimes that role includes being a caregiver. Caregivers of children and adults with intellectual and
- [Transportation Access and Respite Care: Critical Information for Family Caregivers, Care Recipients, and Respite Providers](https://archrespite.org/library/transportation-access-and-respite-care/) - This fact sheet, prepared by ARCH and Easter Seals with Easterseals Transportation Group and Everline Consulting, LLC, provides strategies for identifying transportation options and eliminating transportation barriers related to the provision and receipt of respite care. It addresses the importance of transportation and how to help family caregivers, providers and Lifespan Respite programs identify community
- [Respite in the Faith Community](https://archrespite.org/library/respite-in-the-faith-community/) - The shortage of respite providers continues to be a significant barrier to respite access in many communities. At the same time, government funding for social services is shrinking. Turning to the private volunteer sector for assistance makes increasing sense. The faith-based community has a long history of supporting family caregivers through respite and can offer
- [Tools for Collaboration: Building and Sustaining Partnerships for Lifespan Respite](https://archrespite.org/library/tools-for-collaboration/) - At the heart of Lifespan Respite is the concept of collaboration. Throughout the Lifespan Respite Care Act, and in the federal program guidance, references are made to collaboration and coordination among various stakeholders at the federal, state and local levels. This webinar will explore the history, successes, and challenges of collaboration among state agencies, state
- [Introduction to a Framework for Sustainability Planning](https://archrespite.org/library/introduction-to-a-framework-for-sustainability-planning/) - The goal of the webinar is to introduce a comprehensive approach to sustainability planning for Lifespan Respite grantees and their partners. The interactive webinar presents a framework for sustainability planning that provides grantees with a process for working with their partners and other key leaders in the State to sustain Lifespan Respite programs. The 90 minute
- [Funding Sustainability for Lifespan Respite Programs, Part II: Examples from the States](https://archrespite.org/library/funding-sustainability-for-lifespan-respite-programs-part-ii-examples-from-the-states/) - Examples from the States As federal, state, and even private funding sources remain extremely limited, state Lifespan Respite grantees and their partners will have to work creatively to maximize and more efficiently identify and use available resources to ensure the viability of their Lifespan Respite systems once their Lifespan Respite grants are expended. Meaningful and
- [From Theory to Practice: Sustainability Tools for Lifespan Respite Grantees and Partners](https://archrespite.org/library/from-theory-to-practice-sustainability-tools/) - ARCH has collaborated with The Finance Project to bring a set of comprehensive tools to the Lifespan Respite grantees and their partners to help them plan for continuation of Lifespan Respite activities after federal funds have been expended. The webinar builds on the foundation established in the first two webinars, Framework for Sustainability Planning, May 2012, and Funding Sustainability for
- [Youth Caregivers-They need respite, too!](https://archrespite.org/library/youth-caregivers-need-respite-too/) - It is hard to even begin to imagine that children, who are also students, are thrust into the complexities imposed by caregiving responsibilities! They have no experience bank, and like many adults, they receive little education about the "how tos" of caregiving, yet more and more children are in this role...and they need respite too!
- [TimeBanking for Respite: An Innovative and Socially Just Approach to Supporting Family Caregivers](https://archrespite.org/library/timebanking-for-respite-2016/) - This webinar provided the historical backdrop and philosophy behind TimeBanking and began a discussion of how TimeBanks can be applied to the offering of respite care to family caregivers. Incorporated in 1995 by founder Edgar Cahn to create local economies that reward and value caring, reciprocity and a passion for justice, TimeBanksUSA combined a community-building
- [Assistive Technology Programs and Lifespan Respite: AT Resources for Family Caregivers and Respite Care Providers](https://archrespite.org/library/assistive-technology-programs-and-lifespan-respite/) - The 56 State and Territory Assistive Technology (AT) programs provide a multitude of resources and activities that can help family caregivers and respite care providers maintain or improve the functional abilities and independence of persons with disabilities, chronic health conditions and/or aging related issues through the use of technology. The result may be reduced stress
- [Building Pathways to Sustainability - Resources from the Aging and Disability Business Institute](https://archrespite.org/library/sustainability-resources-from-aging-and-disability-business-institute/) - As health care providers and payers increasingly recognize the importance of social and behavioral determinants of health for their members/patients and their caregivers, they are increasingly partnering with community-based organizations (CBOs) to provide services to address these issues. This webinar will talk about opportunities for partnering and contracting that can support your lifespan respite program,
- [The Veteran Directed Care Program: Supporting Veterans and their Family Caregivers in the Community](https://archrespite.org/library/veteran-directed-care-program/) - The Veteran Directed Care Program (VDC, formerly VD-HCBS) gives Veterans of all ages who are at a nursing home level of care the opportunity to live at home and direct their care and services. In VDC, Veterans are given a flexible budget for services that can be managed by the Veteran or the family caregiver.
- [Assuring Culturally Relevant Respite Services for the Asian American and Pacific Islander (AAPI) Aging Population and their Family Caregivers](https://archrespite.org/library/culturally-relevant-respite-services-for-asian-american-and-pacific-islander-aging-populations/) - This webinar provides an overview of the Asian American and Pacific Islander (AAPI) Aging population for Lifespan Respite grantees, their partners and other respite services providers. As the most diverse of all minority groups, AAPIs represent ethnicities with origins to more than 30 countries, and people that speak over 100 different languages. Each AAPI older
- [A Conversation with Experts on Cultural Diversity: Applications for Respite Services, March 29, 2017](https://archrespite.org/library/cultural-diversity-3-29-17/) - ARCH National Respite Network and Resource Center · A Conversation with Experts on Cultural Diversity: Applications for Respite Services Call Description: This call introduced lifespan respite grantees and partners to resources on cultural diversity. On this call, experts from National Consortium on Aging Resources for Seniors' Equity, a consortium of five national resource centers in
- [How U.S. Children’s Hospice Homes are fulfilling the unmet need for overnight respite](https://archrespite.org/library/childrens-hospice-homes-for-overnight-respite/) - ARCH co-hosted this event with the BREAK Exchange The #1 wish that all families with a child on a life-limited journey wants is a cure, next is some sleep. The U.K. Children’s Hospice Home model started almost 40 years ago with Helen House and has grown to over 54 homes today. A simple concept that
- [Evaluation of Shared Lives Day Support Services  An opportunity for a ‘short break’ for people living with dementia with wellbeing outcomes, Part 2](https://archrespite.org/library/evaluation-of-shared-lives-day-support-services/) - ARCH and the BREAK Exchange cohosted the webinar, Shared Lives Day Support Services: An opportunity for a ‘short break’ with wellbeing outcomes, Part 2 to learn more about the benefits of this innovative respite model in Wales for individuals with dementia and their caregivers. The webinar presented the social value created by TRIO, a community-based day support service for people
- [BREAK Exchange/ARCH Webinar: Preliminary Results of the Supporting Caregivers During the COVID-19 Pandemic Global Survey](https://archrespite.org/library/break-exchange-arch-webinar-preliminary-results-of-pandemic-global-survey/) - June 3, 2020 A total of 244 individuals from 17 different countries responded to the Supporting Caregivers During the COVID-19 Pandemic Survey. The purpose of the survey was to understand the global impact of the COVID-19 pandemic on respite care services and identify best practices for supporting caregivers during this time. The webinar was co-hosted
- [Volunteer Respite – Putting the Pieces Together: Implementation from Recruitment to Matching](https://archrespite.org/library/volunteer-respite-putting-the-pieces-together-implementation-from-recruitment-to-matching/) - Many statewide Lifespan Respite grantees and partners are interested in increasing the availability of and connecting family caregivers to volunteer respite providers. Learn how to support the development of evidence-based/evidence-informed statewide initiatives to increase the availability of trained volunteers provided by faith, community and grassroots groups through training and technical assistance, resources and funding. Identify
- [Wisconsin Caregivers in Crisis: Investing in our Future](https://archrespite.org/library/wisconsin-caregivers-in-crisis-investing-in-our-future/) - In February 2019, Governor Evers of Wisconsin signed an executive order to establish the Governor's Task Force on Caregiving in Wisconsin. The Respite Care Association of Wisconsin that helped champion the establishment of the Task Force attended the signing of the Executive Order. The Task Force on Caregiving was charged with analyzing strategies to attract and
- [Virginia Family Caregiver Stakeholder Workgroup: Recommendations for Improving Family Caregiver Support in Virginia 2018](https://archrespite.org/library/virginia-family-caregiver-stakeholder-workgroup-recommendations-for-improving-family-caregiver-support-in-virginia-2018/) - The Virginia Department for Aging and Rehabilitative Services (DARS) convened the Virginia Family Caregiver Stakeholder Workgroup beginning in July 2017 in response to requests from legislators and advocates to study and develop ways for the Commonwealth to encourage and support families and communities in assisting aging adults and individuals with disabilities. The purpose of this
- [North Dakota Family Caregiver Supports and Services Study, 2016](https://archrespite.org/library/north-dakota-family-caregiver-supports-and-services-study-2016/) - This study was solicited and funded by the North Dakota Legislative Management. As provided in Section 1 of 2015 House Bill No. 1279, the study was to develop a resource directory of services available to support family caregivers, to identify unmet needs, and prepare recommendations for legislative or administrative consideration. The study required input from stakeholders, including
- [New Mexico's State Plan for Family Caregivers](https://archrespite.org/library/new-mexicos-state-plan-for-family-caregivers/) - New Mexico’s Family Caregiver Task Force The Task Force was established by HJM 4 in 2014 to “create a state plan for addressing the challenges faced by family caregivers.” One of the seven main goals recommended by the task in its final report, New Mexico State Plan for Family Caregivers, was to ensure that family caregivers
- [Nebraska Respite Task Force Report](https://archrespite.org/library/nebraska-respite-task-force-report/) - The Munroe-Meyer Institute, through the Respite Across the Lifespan UCEDD program, was awarded a one-year opportunity grant from the Nebraska Planning Council on Developmental Disabilities. Funding for this project ran from Oct. 1, 2017, to Sept. 30, 2018. The main objective of this grant was to form a Respite Task Force made up of a
- [New Jersey Caregiver Task Force Report, 2022](https://archrespite.org/library/new-jersey-caregiver-task-force-report-2022/) - New Jersey Caregiver Task Force Chapter 166 of the Public Laws of 2018, created the New Jersey Caregiver Task Force. The purpose of the Task Force was to determine the availability of caregiver support services in the State, and provide recommendations for the improvement and expansion of such services. The Task Force’s final report was
- [Caregiver Support: Blueprint for Mississippi](https://archrespite.org/library/caregiver-support-blueprint-for-mississippi/) - Mississippi Caregiver Task Force A Caregiver Task force functioning under direction from the Mississippi Legislature through Senate Concurrent Resolution 561 developed recommendations to legislators on the direction that Mississippi should be taking in identifying and meeting the needs of the thousands of caregivers across the state. The report, Caregiver Support Blueprint for Mississippi, was presented
- [A Voice for Alabama Caregivers](https://archrespite.org/library/a-voice-for-alabama-caregivers/) - A report for public policy makers presented by the Alabama Caregiver Task Force. SJR-73 charged the Alabama Caregiver Task Force to study the issues of caregiving in Alabama and to identify policies, resources, and programs available for family caregivers. This task force was encouraged to suggest innovative and creative means to support family caregivers to
- [2016 Final Report of the Task Force on Family Caregiving and Long Term Supports](https://archrespite.org/library/2016-final-report-of-the-task-force-on-family-caregiving-and-long-term-supports/) - Maryland’s Task Force on Family Caregiving and Long-Term Supports was formed by SB 297, Ch 155 to “identify those policies, programs, and resources currently available to [caregivers], and also look for innovative and creative means to support [caregivers] as they provide in-home care and assistance ..." A final report was issued and authorization for the
- [Caregiver Support Blueprint for Delaware - A Report to the Delaware General Assembly](https://archrespite.org/library/caregiver-support-blueprint-for-delaware-a-report-to-the-delaware-general-assembly/) - The Delaware Family Caregiving Task Force was formed with the passage of House Concurrent Resolution 57 during the 2014 legislative session. The charge of the task force was to make findings and recommendations regarding the support needs of family caregivers who assist older people and people with disabilities. The Task Force presented the Caregiver Support Blueprint
- [Colorado Respite Care Task Force Report](https://archrespite.org/library/colorado-respite-care-task-force/) - Colorado Respite Care Task Force 2016 Report to: Members of the Senate Health and Human Services Committee Colorado General Assembly Members of The House Public Health Care And Human Services Committee Colorado General Assembly In accordance with HB 15-1233: Concerning the Creation of a Respite Care Task Force This work represents the long-term view of
- [Marketing Respite to Family Caregivers: Moving Beyond Awareness](https://archrespite.org/library/marketing-respite-to-family-caregivers-moving-beyond-awareness/) - Successful Lifespan Respite programs build public awareness and encourage family caregivers and others to action on behalf of respite. But before you book that billboard space, write that pharmacy bag ad, or record your radio PSA, it's important to be clear on who you want to reach, what you want them to do, and why
- [The BEHAVE Framework](https://archrespite.org/library/the-behave-framework/) - The Behavioral Framework for Developing Marketing Messages developed by the NC Lifespan Respite Project. Presented in an ARCH Webinar, Marketing Respite to Family Caregivers: Moving Beyond Awareness.
- [North Carolina Lifespan Respite Mini-Grantee QUARTERLY REPORTING FORM](https://archrespite.org/library/north-carolina-lifespan-respite-mini-grantee-quarterly-report/) - Reporting form developed by the NC Lifespan Respite Project for community-based mini-grantees to report on persons served and units of services provided with the grants; demographic information on those served; and qualitative information on on how grant objectives were met, the challenges that were encountered, and how the grant impacted family caregivers.
- [Tools for evaluating state level strategic alliances](https://archrespite.org/library/tools-for-evaluating-state-level-strategic-alliances/) - These tools were shared by the MA Lifespan Respite Coalition in a presentation at a meeting of the Lifespan Respite Grantee and Partner Performance Measurement Learning Collaborative and at the 2019 Lifespan Respite Grantee and Partner Learning Symposium. The tools include: Levels of Organizational Integration Rubric LOIR Template Utilizing Collaboration Theory. Citation: Utilizing Collaboration Theory
- [Respite Voucher Reimbursement Packet 2022](https://archrespite.org/library/respite-voucher-reimbursement-packet-2022/) - The Respite Voucher Reimbursement Packet was developed by the VA Department for Aging and Rehabilitative Services for use by the state's Lifespan Respite Care Program. The packet includes instructions for caregivers for using the voucher program, a Reimbursement Form and Procedures, Satisfaction Survey, Respite Care Association of Wisconsin Training Survey, W-9 Form, and valid proof
- [Caregiver Survey from Tennessee Respite Coalition](https://archrespite.org/library/caregiver-survey-from-tennessee-respite-coalition/) - Example of a caregiver survey from Tennessee Respite Coalition to measure the outcomes of respite care.
- [Watson Institute CareBreak - Impact of Respite Retrospective Outcome Survey](https://archrespite.org/library/watson-institute-carebreak-impact-of-respite-retrospective-outcome-survey/) - Developed by the Watson Institute CareBreak Volunteer Respite Program for children with disabilities A pre- and post retrospective survey for use with families matched with a volunteer for approximately 4-6 months to assess caregiver and family outcomes.
- [Watson Institute CareBreak Pre Service and Post Service Surveys](https://archrespite.org/library/watson-institute-carebreak-pre-service-and-post-service-surveys/) - Developed by the CareBreak Volunteer Respite Care Program for children with disabilities at the Watson Institute The Pre-Survey was administered immediately after match with volunteer respite provider and the Post-Survey was administered to families matched with a volunteer respite provider for approximately 4-6 months to assess the benefits to the caregiver and family.
- [Oklahoma Lifespan Respite Grant Program Pre and Post Respite Voucher Surveys](https://archrespite.org/library/oklahoma-lifespan-respite-grant-program-pre-and-post-respite-voucher-surveys/) - Developed by Sooner Success for the OK Lifespan Respite Care Grant Program These surveys administered before receiving respite through the voucher program and after receiving respite help assess the initial need for respite, the ways caregivers used their respite time, their satisfaction with services, and the benefits of respite to the family caregiver.
- [Respite for Foster Parents](https://archrespite.org/library/respite-for-foster-parents/) - Discusses value of respite services for maintaining and enhancing foster family placements. Offers unique program considerations, foster parent concerns, and tips for respite provider recruitment, screening, training, and retention.
- [Some General Principles of Charitable Nonprofit Fundraising](https://archrespite.org/library/some-general-principles-of-charitable-nonprofit-fundraising/) - Topics covered in this ARCH Fact Sheet include: Basic assumptions about charitable nonprofit organizations; the energy behind fundraising; types of fundraising; goals of fundraising; and planning for fundraising. A curated list of resources is also provided.
- [Poster: Asking for Help is a Sign of Strength](https://archrespite.org/library/poster-asking-for-help-is-a-sign-of-strength/) - Small Poster, 8½" by 11", glossy paper: "Asking for Help is a Sign of Strength" Order Online
- [Sticky Figures: Using a Needs Assessment](https://archrespite.org/library/sticky-figures-using-a-needs-assessment/) - A thorough examination of the process of developing, implementing, and documenting a needs assessment. Various data collecting methods are examined in detail. Written by David B. Langmeyer, evaluation consultant.
- [Cultural Responsiveness in Family Services](https://archrespite.org/library/cultural-responsiveness-in-family-services/) - ARCH Fact Sheet To fully achieve the goals of respite and crisis care and other family support services, it is essential that all aspects of program operations, staff development and training incorporate and support cultural responsiveness. The shift to cultural responsiveness and multicultural programming will require change, risk-taking, training, courage, and coordinating a variety of
- [Respite for Caregivers of Children with Serious Emotional Disturbance](https://archrespite.org/library/respite-for-caregivers-of-children-with-serious-emotional-disturbance/) - Finding respite services for a child with challenging behavioral issues can be difficult for families. This fact sheet discusses the definition and characteristics of emotional disturbance, issues for families, program considerations including the referral process, the matching of respite providers and families, training, and evaluation, as well as the need for state involvement in program
- [Emergency Respite: Help for Family Caregivers in Critical Times of Need](https://archrespite.org/library/emergency-respite-help-for-family-caregivers-in-critical-times-of-need/) - Fact Sheet from ARCH Technical Assistance Center for Lifespan Respite Respite is defined as temporary relief for the family caregiver. It is most beneficial if used as early in the caregiving experience as possible and as frequently and regularly as resources will allow. However, there are circumstances when an emergency arises and respite is needed
- [Exhale - The Family Caregiver Initiative](https://archrespite.org/library/exhale-the-family-caregiver-initiative/) - ARCH hosted this webinar with the BREAK Exchange. Exhale, the Family Caregiver Initiative, with support from the Health Foundation for Western and Central New York and the Ralph C. Wilson, Jr. Foundation, in collaboration with The Philanthropic Initiative, funds innovative collaborative projects that are reimagining and increasing respite opportunities for family caregivers of older adults. Respite,
- [Crisis Nurseries - Keeping Kids Safe and Families Together](https://archrespite.org/library/crisis-nurseries-keeping-kids-safe-and-families-together/) - ARCH hosted this webinar with the BREAK Exchange. Crisis Nurseries provide noncustodial crisis respite for families with young children who are addressing issues which may impact their child’s safety. In this webinar, learn more about the evolution of Crisis Nurseries, how they serve their unique communities, and what they do to provide a short term
- [ARCH Respite Research Summit: Roundtable Discussions](https://archrespite.org/library/arch-respite-research-summit-roundtable-discussions/) - Roundtable Discussions Facilitated by Kim Whitmore, Marquette University, College of Nursing; Casandra Firman, MS, Susan Janko Summers, PhD, and Ray Kirk, PhD, ARCH ARCH Respite Research Summit, September 30, 2020 In small groups, summit participants addressed Expert Panel Recommendations: 1) Individual, family and societal outcomes research; 2) cost-benefits and cost-effectiveness research; 3) systems change research
- [Support Family Caregivers](https://archrespite.org/library/support-family-caregivers/) - ARCH Joins National Caregiving Groups to Issue a Statement on Caregiving Support during COVID-19: "SUPPORT FAMILY CAREGIVERS." The ongoing COVID-19 pandemic has magnified what we’ve known all along – our institutions are not prepared to support family caregivers.
- [Receiving Respite Care Safely During the COVID-19 Pandemic (also in Spanish)](https://archrespite.org/library/receiving-respite-care-safely-during-the-covid-19-pandemic/) - Guidelines for Families The information and guidelines provided in this document are designed to assist you and your family with careful and thoughtful decision making to ensure respite care is received as safely as possible during the ongoing COVID-19 pandemic. A Community Advisory Board (CAB), comprised of family caregivers and respite care recipients, reviewed the contents
- [COVID-19 Family Decision Guide to Use Respite Worksheet](https://archrespite.org/library/covid-19-family-decision-guide-to-use-respite/) - This decision guide worksheet was developed for family caregivers and care recipients. Whenever possible, the decision to receive respite care should be made together as a family. Families must carefully consider all potential risks, benefits, and barriers before making an informed decision about whether to resume respite care services. It is important to remember that
- [RAISE Family Caregiving Advisory Council Final Recommendations](https://archrespite.org/library/family-caregiving-advisory-council-final-recommendations/) - On November 18, 2020, the RAISE Family Caregiving Advisory Council adopted twenty-six recommendations aimed at establishing a national approach to addressing the needs of family caregivers of all ages and circumstance. The following recommendations grew out of months of discussion, examination of relevant data and information and the input of family caregivers and stakeholders alike.
- [North Carolina Minigrant Sample Pre and Post Respite Caregiver Surveys](https://archrespite.org/library/north-carolina-minigrant-sample-pre-and-post-respite-caregiver-surveys/) - Developed by the North Carolina Lifespan Respite Project The NC Lifespan Respite Project implemented minigrants in 2013 to community and faith-based agencies across the state to provide respite services. These pre and post respite surveys were provided to grantees as a sample of the type of information that they were required to collect.
- [New York Mini-grant Post Respite Survey](https://archrespite.org/library/new-york-mini-grant-post-respite-survey/) - Developed by the New York State Caregiving and Respite Coalition The NY State Caregiving and Respite Coalition designed this survey for use by community and faith-based programs which had received mini grantees to provide respite care services. The survey was designed to be used by caregivers following their respite experience.
- [VA Respite Voucher Satisfaction Survey 2022](https://archrespite.org/library/as-part-of-the-virginia-lifespan-respite-voucher-program-caregivers-are-required-to-fill-out-this-brief-satisfaction-survey-and-submit-it-to-the-department-for-aging-and-rehabilitative-services-dars/) - As part of the Virginia Lifespan Respite Voucher Program, caregivers are required to fill out this brief Satisfaction Survey and submit it to the Department for Aging and Rehabilitative Services (DARS) along with the Reimbursement Form. This is the updated form for 2022.
- [Nebraska Lifespan Respite Network: Producing Positive Outcomes for Families, 2015-2017](https://archrespite.org/library/nebraska-lifespan-respite-network-producing-positive-outcomes-for-families-2015-2017-2/) - Final Evaluation Report from University of Nebraska Medical Center, Munroe-Meyer Institute (UNMC-MMI) and Nebraska Department of Health and Human Services The purpose of the evaluation of the Nebraska Lifespan Respite Program was to gather comprehensive information about respite services in Nebraska and how those services were both provided and received. Family caregiver outcomes related to
- [Health Benefits of Senior Corps](https://archrespite.org/library/health-benefits-of-senior-corps/) - Issue Brief Developed by the Corporation for National and Community Service Senior Companion Caregiver Study The Corporation for National and Community Service conducted the Senior Companion caregiver study to establish the impact of respite services on caregivers of Senior Companion clients. The study surveyed caregivers prior to the start of respite care and at a
- [Caregiving for Family and Friends — A Public Health Issue](https://archrespite.org/library/caregiving-for-family-and-friends-a-public-health-issue/) - Developed by the National Association of Chronic Disease Directors, Centers for Disease Control and Prevention The caregiving data presented in this brief were collected from community-dwelling adults 45 years of age and older in 2015-2017 through the Behavioral Risk Factor Surveillance System (BRFSS).4 Questions related to caregiving were administered as part of the Caregiver Optional
- [ARCH Annotated Bibliography of Respite and Crisis Care Studies, 6th Edition, 2022](https://archrespite.org/library/arch-annotated-bibliography-of-respite-and-crisis-care-studies-6th-edition-2022/) - The literature review for this updated bibliography adds summaries of 19 peer-reviewed journal articles. Articles were included from the time period 2020, where the 5th edition left off, through 2022. The summaries presented include a complete citation; the study’s aim or purpose; a summary of methods; a summary of key results; key study limitations as
- [A Research Agenda for Respite Care](https://archrespite.org/library/a-research-agenda-for-respite-care/) - Deliberations of an Expert Panel of Researchers, Advocates and Funders To understand the existing research base, and to make recommendations for how to structure and organize future research in ways that will improve understanding of respite care and maximize its benefits and resources, an Expert Panel on Respite Research3 (the Panel) composed of academics, researchers,
- [Benefits and Cost Savings Due to Respite](https://archrespite.org/library/benefits-and-cost-savings-due-to-respite/) - Fact Sheet Developed by the National Respite Coalition
- [Nebraska Lifespan Respite Subsidy 2015 Evaluation Report](https://archrespite.org/library/nebraska-lifespan-respite-subsidy-2015-evaluation-report/) - Developed by the NE Department of Health & Human Services Part of the overall Nebraska Lifespan Respite Services Program, the Lifespan Respite Subsidy Program provides funding for family caregivers to use for obtaining respite care services. The program provides a monthly subsidy to purchase respite care services. The evaluation process for 2014-15 year focused on
- [Nebraska Lifespan Respite Caregiver Survey](https://archrespite.org/library/nebraska-lifespan-respite-caregiver-survey/) - Developed by the University of Nebraska Medical Center for the NE Lifespan Respite Care Network The survey was designed for caregivers receiving NE Lifespan Respite Subsidy funds; with Supplemental Questions. The supplemental questions are used by the local Respite Network Coordinators for all initial and renewal clients at the time of eligibility determination notification. Calling
- [White Paper: Building Capacity and Coordinating Support for Family Caregivers and the Direct Service Workforce](https://archrespite.org/library/white-paper-building-capacity-and-coordinating-support-for-family-caregivers-and-the-direct-service-workforce/) - National Direct Service Workforce Resource Center, Center for Medicare & Medicaid Services Common goals and policy recommendations emerging from the CMS Leadership Summit on the direct service workforce and family caregivers. The CMS Leadership Summit was held September 16-17, 2010. Executive Summary: In the world of long-term services and supports policies and programs, caregiving tends
- [Evaluating and Reporting Outcomes: A Guide for Respite and Crisis Care Program Managers](https://archrespite.org/library/evaluating-and-reporting-outcomes-a-guide-for-respite-and-crisis-care-program-managers/) - Authored by Dr. Ray Kirk and revised by Casandra Firman, MS, ARCH. Planned and crisis respite programs across the United States have field tested tools for measuring program outcomes. Under contract with ARCH, the tools were developed by Dr. Ray Kirk of the University of North Carolina, and revised by Casandra Firman ARCH Outcome Evaluation
- [Public Awareness Guidebook](https://archrespite.org/library/public-awareness-guidebook/) - 24-page guidebook for crisis nurseries and respite care programs on strategies for increasing public awareness of the availability of services through press releases, and media public service announcements. Sample press releases, telephone contacts, and more; $5.00. Order Online
- [A Step-by-Step Guide to Successful Training](https://archrespite.org/library/a-step-by-step-guide-to-successful-training/) - A trained staff is essential for effective delivery of safe and quality services. This guidebook has been developed to help trainers create and implement interactive, quality training experiences. It contains ideas for visual aids and other props and guidance on how to evaluate the training. 41 pages; $10.00. Order Online
- [Securing a Stable Funding Base](https://archrespite.org/library/securing-a-stable-funding-base/) - While materials abound on this subject, none so succinctly lays out the issues related to funding. Making reference to the classics in the field of funding, this guide book simplifies the subject and offers suggestions for trainings. $10.00. Order Online
- [2018 Regional Caregiver Forums and Listening Sessions](https://archrespite.org/library/2018-regional-caregiver-forums-and-listening-sessions/) - Prepared by the New York State Office for the Aging (NYSOFA) In spring 2018, NYSOFA, AgingNY, New York State Caregiving and Respite Coalition (NYSCRC), and the New York State Kinship Navigator partnered to facilitate five regional caregiver forums. The purpose of the regional forums was to engage the general public, staff who administer and/or provide
- [Rhode Island State Plan for Family Caregivers](https://archrespite.org/library/rhode-island-state-plan-for-family-caregivers/) - Developed by the Family Caregiver Alliance of Rhode Island and the Rhode Island Office of Healthy Aging The plan was designed to serve as a guide for goals and strategies to strengthen partnership, organizational operations and program offerings for each of Rhode Island’s caregivers. Implementation of the plan began in July of 2021 and will
- [Mississippi Voucher Flyers 2022](https://archrespite.org/library/mississippi-voucher-flyers-2022/) - Developed by the Mississippi Department of Human Services and the Mississippi Family Caregiver Coalition Promotional flyers for the MS Lifespan Respite voucher program with links to the application for a Respite Care Voucher and for an Emergency Respite Voucher.
- [Providing Emergency Respite, Sept 13, 2017](https://archrespite.org/library/providing-emergency-respite-sept-13-2017/) - Call Description: One of the required uses of funds for a Lifespan Respite grant is providing planned and emergency respite. However, despite the demonstrated need for emergency respite in many states, providing it can present challenges given the immediacy of needs, the potentially high cost, the shortage of willing providers, and state regulations or respite
- [Evaluating Outcomes for Children and Families Receiving Crisis Nursery Services](https://archrespite.org/library/evaluating-outcomes-for-children-and-families-receiving-crisis-nursery-services/) - The ARCH National Respite Network and Resource Center conducted the Crisis Nursery Program evaluation to examine relationships between crisis respite care and (1) incidents of reported child abuse and (2) days of involuntary out-of-home placements. The evaluation also explored the differences in outcomes between crisis respite used as a secondary prevention service and as a
- [NV Respite Rx Voucher Respite Pre- and Post Survey](https://archrespite.org/library/respite-pre-survey/) - Developed by the NV Lifespan Respite Care Program grantee Nevada Respite Rx Voucher Pilot Program Pre- and Post-Respite Surveys for caregivers.
- [Practical Considerations When Starting a New Program and for Experienced Voucher Program Providers](https://archrespite.org/library/practical-considerations-when-starting-a-new-program-and-for-experienced-voucher-program-providers/) - Are you thinking about starting a voucher respite program? Are you a seasoned veteran in implementing a program, but still have questions? The Respite Voucher Learning Collaborative will provide peer leadership to explore the many issues you should consider before getting started as well as those that may have emerged for you in your current
- [Arizona AHCCCS Home and Community-Based Waivers](https://archrespite.org/library/arizona-ahcccs-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers/1115 Research and Demonstration Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [California Medi-Cal Home and Community-Based Waivers](https://archrespite.org/library/california-medi-cal-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. In California, the Medicaid program is known as Medi-Cal.
- [South Dakota Home and Community-Based Waivers](https://archrespite.org/library/south-dakota-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Alabama Medicaid Home and Community-Based Waivers](https://archrespite.org/library/alabama-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Alaska Medicaid Home and Community-Based Waivers](https://archrespite.org/library/alaska-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Arkansas Medicaid Home and Community-Based Waivers](https://archrespite.org/library/arkansas-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Colorado Medicaid Home and Community-Based Waivers](https://archrespite.org/library/colorado-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Connecticut Medicaid Home and Community-Based Waivers](https://archrespite.org/library/connecticut-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers and Concurrent 1915(b) Managed Care Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is
- [Delaware Medicaid Home and Community-Based Waivers](https://archrespite.org/library/delaware-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers/1115 Research and Demonstration Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [District of Columbia Medicaid Home and Community-Based Waivers](https://archrespite.org/library/district-of-columbia-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Florida Medicaid Home and Community-Based Waivers](https://archrespite.org/library/florida-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers and Concurrent 1915(b) Managed Care Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is
- [Georgia Medicaid Home and Community-Based Waivers](https://archrespite.org/library/georgia-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Hawaii Medicaid Home and Community-Based Waivers](https://archrespite.org/library/hawaii-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1115 and 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the
- [Iowa Medicaid Home and Community-Based Waivers](https://archrespite.org/library/iowa-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Kansas Medicaid Home and Community-Based Waivers](https://archrespite.org/library/5396/) - Home and Community-Based 1915(c) Waivers for Respite Support. Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Kentucky Medicaid Home and Community-Based Waivers](https://archrespite.org/library/kentucky-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Kentucky Medicaid Home and Community-Based Waivers](https://archrespite.org/library/kentucky-medicaid-home-and-community-based-waivers-2/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Louisiana Medicaid Home and Community-Based Waivers](https://archrespite.org/library/louisiana-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) and concurrent managed care 1915(b) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded
- [Maine Medicaid Home and Community-Based Waivers](https://archrespite.org/library/maine-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Maryland Medicaid Home and Community-Based Waivers](https://archrespite.org/library/5416/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Massachusetts Medicaid Home and Community-Based Waivers](https://archrespite.org/library/massachusetts-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Michigan Medicaid Home and Community-Based Waivers](https://archrespite.org/library/michigan-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support and concurrent Managed Care 1915(b) waivers Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is
- [Mississippi Medicaid Home and Community-Based Waivers](https://archrespite.org/library/mississippi-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Missouri Medicaid Home and Community-Based Waivers](https://archrespite.org/library/missouri-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Montana Medicaid Home and Community-Based Waivers](https://archrespite.org/library/montata-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Nebraska Medicaid Home and Community-Based Waivers](https://archrespite.org/library/nebraska-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Indiana Medicaid Home and Community-Based Waivers](https://archrespite.org/library/indiana-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Idaho Medicaid Home and Community-Based Waivers](https://archrespite.org/library/idaho-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Illinois Medicaid Home and Community-Based Waivers](https://archrespite.org/library/illinois-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers and Concurrent 1915(b) Managed Care Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is
- [Nevada Medicaid Home and Community-Based Waivers](https://archrespite.org/library/nevada-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [New Hampshire Medicaid Home and Community-Based Waivers](https://archrespite.org/library/new-hampshire-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [New Jersey Medicaid Home and Community-Based Waivers](https://archrespite.org/library/new-jersey-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support and 1115 Managed Long-Term Services and Supports Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid
- [New Mexico Medicaid Home and Community-Based Waivers](https://archrespite.org/library/new-mexico-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [New York Medicaid Home and Community-Based Waivers](https://archrespite.org/library/new-york-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support and 1115 Managed Long-Term Services and Supports Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid
- [North Dakota Medicaid Home and Community-Based Waivers](https://archrespite.org/library/north-dakota-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [North Carolina Medicaid Home and Community-Based Waivers](https://archrespite.org/library/north-carolina-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Ohio Medicaid Home and Community-Based Waivers](https://archrespite.org/library/ohio-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Oklahoma Medicaid Home and Community-Based Waivers](https://archrespite.org/library/oklahoma-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Oregon Medicaid Home and Community-Based Waivers](https://archrespite.org/library/oregon-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Pennsylvania Medicaid Home and Community-Based Waivers](https://archrespite.org/library/pennsylvania-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Rhode Island Medicaid Home and Community-Based Waivers](https://archrespite.org/library/rhode-island-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [South Carolina Medicaid Home and Community-Based Waivers](https://archrespite.org/library/south-carolina-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Tennessee Medicaid Home and Community-Based Waivers](https://archrespite.org/library/tennessee-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly by the federal and
- [Texas Medicaid Home and Community-Based Waivers](https://archrespite.org/library/texas-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Utah Medicaid Home and Community-Based Waivers](https://archrespite.org/library/utah-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Vermont Medicaid Home and Community-Based Waivers](https://archrespite.org/library/vermont-medicaid-home-and-community-based-waivers/) - Home and Community-Based 1915(c) Waivers/1115 Research and Demonstration Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Virginia Medicaid Home and Community-Based Waivers](https://archrespite.org/library/virginia-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Washington Medicaid Home and Community-Based Waivers](https://archrespite.org/library/washington-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [West Virginia Medicaid Home and Community-Based Waivers](https://archrespite.org/library/west-virginia-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Wisconsin Medicaid Home and Community-Based Waivers](https://archrespite.org/library/wisconsin-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Wyoming Medicaid Home and Community-Based Waivers](https://archrespite.org/library/wyoming-medicaid-home-and-community-based-waivers/) - Managed Care 1915(b) and/or Home and Community-Based 1915(c) Waivers for Respite Support Medicaid is a program in every state that pays for medical assistance for certain individuals and families with low incomes and resources. It is the largest source of funding for medical and health-related services for America’s poorest people. Because Medicaid is funded jointly
- [Respite - Fuel for the Caregiving Journey!](https://archrespite.org/library/respite-fuel-for-the-caregiving-journey/) - A TV Billboard (15-sec) to raise public awareness about respite. Developed in collaboration with the Kansas Respite Coalition and the ARCH Respite Messaging Workgroup.
- [Montana Lifespan Respite Voucher Program Satisfaction Survey](https://archrespite.org/library/montana-lifespan-respite-voucher-program-satisfaction-survey/) - Developed by the Montana Lifespan Respite Program To assess how well the program works for family caregivers, and to plan for future respite services, family caregivers are asked to complete this Satisfaction Survey following respite care use. The survey assesses satisfaction with the respite services received, and with the process of obtaining financial assistance for
- [2010 DLRCN Financial Assistance Survey Results](https://archrespite.org/library/2010-dlrcn-financial-assistance-survey-results/) - Developed by the Delaware Lifespan Respite Network This presentation provides results of the evaluation of the DE Lifespan Respite Network's financial assistance for respite service.
- [South Carolina Data Elements for Lifespan Respite Reporting](https://archrespite.org/library/south-carolina-data-elements-for-lifespan-respite-reporting/) - Developed by the South Carolina Lifespan Respite Project A list of data elements for measuring demographic, process data (unduplicated counts of caregivers and care receivers receiving respite by age, gender and disability/diagnosis, number of approved vouchers, respite hours, avg, amount paid per hour, etc.), satisfaction and outcome data resulting from respite care received.
- [Alabama Retrospective Pre and Post Test Survey Form](https://archrespite.org/library/alabama-retrospective-pre-and-post-test-survey-form/) - Developed by Alabama Lifespan Respite and UCP of Huntsville and the Tennessee Valley HEARTS (Health, Emergency, And Respite Treatment Service) provides home-based respite to caregivers of children birth to 19 years with intellectual, developmental, or physical disabilities, mental or behavioral health conditions, and chronic illness or special medical needs through a voucher service model. Beginning
- [Colorado Lifespan Respite Care Survey for Grants/Vouchers](https://archrespite.org/library/colorado-lifespan-respite-care-survey-for-grants-vouchers/) - Developed by Colorado Respite Coalition, a program of Easterseals Colorado. This survey is given to the family caregivers served by the Colorado Respite Coalition's respite grant or voucher funds. It can be accessed on Survey Monkey.
- [Delaware Lifespan Respite Network Financial Assistance Evaluation Form](https://archrespite.org/library/delaware-lifespan-respite-performance-measurement-tools/) - Developed by the Delaware Lifespan Respite Network This Financial Assistance Evaluation Form (Voucher Respite) was developed to measure satisfaction with the intake process and with the respite care provided. Questions were also asked about how respite time was spent, and to document caregiver outcomes.
- [Respite Care Information and Referral Service Evaluation Form](https://archrespite.org/library/respite-care-information-and-referral-service-evaluation-form-2/) - Developed by the Delaware Lifespan Respite Care Network
- [Delaware Lifespan Respite Care Network RespiteOnline Referral Service Evaluation Form](https://archrespite.org/library/delaware-lifespan-respite-care-network-respiteonline-referral-service-evaluation-form/) - Developed by the Delaware Lifespan Respite Care Network to evaluate satisfaction with the RespiteOnline Service.
- [Getting Creative with State Partnerships in Lifespan Respite, January 17, 2018](https://archrespite.org/library/getting-creative-with-state-partnerships-in-lifespan-respite-january-17-2018/) - During the teleconference, Linda Porter and Hilarie Hauptman from WA State discussed their collaborative work with eight Tribes on an innovative opportunity through a Tribal Respite Grant to develop culturally relevant respite services for Tribal kinship caregivers. They are implementing respite models in collaboration with newly funded Tribal Kinship Navigators. In addition, a collaborative relationship
- [Repositioning Respite within Consumer Directed Services Systems in the Australian Context](https://archrespite.org/library/repositioning-respite-within-consumer-directed-services-systems-in-the-australian-context/) - ARCH joined the BREAK Exchange in cohosting this webinar, Repositioning Respite within Consumer Directed Service Systems in the Australian Context, on April 28, 2021. Carers NSW Australia, the peak non-government organization for family and friend carers in the Australian state of New South Wales (NSW), conducts a biennial survey on carers, with the last survey
- [How to Pay for Respite](https://archrespite.org/library/how-to-pay-for-respite/) - Jill Kagan was interviewed on ECareDiary on how to pay for respite for family caregivers.
- [How to Find Respite for Caregivers](https://archrespite.org/library/how-to-find-respite-for-caregivers/) - Jill Kagan was interviewed on ECareDiary to share information on how to find respite care for family caregivers.
- [Crisis Respite Application for NE Lifespan Respite Subsidy](https://archrespite.org/library/crisis-respite-application/) - Application for Lifespan Respite Subsidy Program for emergency respite from Nebraska Department of Health and Human Services
- [Guidelines for ID Emergency Caregiver Respite Program](https://archrespite.org/library/guidance-for-emergency-caregiver-respite-program/) - From the Idaho Lifespan Respite Coalition
- [Idaho Emergency Respite - Request for Proposals](https://archrespite.org/library/emergency-respite-request-for-proposals/) - RFP example from Idaho Commission On Aging
- [South Carolina Emergency Respite Vouchers](https://archrespite.org/library/south-carolina-emergency-respite-vouchers/) - Prepared by the South Carolina Respite Coalition The Emergency Respite Voucher is available to family caregivers in need of emergency respite for obtaining primary care. Vouchers are available for up to $500 to eligible family caregivers. This document provides guidance for the program.
- [Lifespan Respite Grant: Caregiver Needs and Provider Survey Report](https://archrespite.org/library/lifespan-respite-grant-caregiver-needs-and-provider-survey-report/) - Prepared by the Aging Services and Office of Performance Outcomes and Accountability, Oklahoma Department of Human Services In 2013 the Oklahoma Department of Human Services received a grant from the Administration for Community Living to enhance the support available to people who care for others across the lifespan. Two separate surveys were conducted to address
- [Nevada Lifespan Respite Care Program Data on Caregivers 2012](https://archrespite.org/library/nevada-lifespan-respite-care-program-data-on-caregivers-2012/) - Report by Cheryl Dinnell, Coordinator, Nevada Lifespan Respite Care Program Data on caregivers in this report came from applications, assessments, pre- and post-respite surveys, and voucher claim forms. This information was collected and recorded by two voucher administrative programs funded under the Lifespan Respite Care Grant. The data represents the most comprehensive study of caregivers
- [Massachusetts Lifespan Respite Coalition: Respite Environmental Scan/Needs Assessment](https://archrespite.org/library/massachusetts-lifespan-respite-coalition-respite-environmental-scan-needs-assessment/) - The 2010 Lifespan Respite Care grant to Massachusetts called for the Massachusetts Lifespan Respite Coalition to accomplish several key tasks, including the completion of a written assessment on the state of respite services in Massachusetts. To that end, a series of information gathering activities were held in 2011 and 2012. With the assistance of the
- [Understanding Caregiver Needs in Maryland](https://archrespite.org/library/understanding-caregiver-needs-in-maryland/) - Prepared by the Maryland Caregivers Support Coordinating Council, Maryland Department of Human Resources The Maryland Caregivers Support Coordinating Council conducted a state‐wide survey in 2014‐2015 to understand the most important needs of caregivers in Maryland. More than 1,700 people from across the state responded. Key features of the survey include: Examined issues across the lifespan
- [Idaho Caregiver Needs and Respite Capacity Report](https://archrespite.org/library/idaho-caregiver-needs-and-respite-capacity-report/) - Prepared for the Idaho Caregiver Alliance in 2014 In 2014 the Idaho Caregiver Alliance (ICA) conducted a statewide assessment to describe the demographic characteristics and needs of primary caregivers and identify available respite services. The assessment provides a snapshot of caregivers and the individuals they care for, experiences associated with caregiving, and what role respite support
- [Designing and Implementing a Needs Assessment](https://archrespite.org/library/designing-and-implementing-a-needs-assessment/) - Presentation by Brian F. Geiger, EdD, FAAHE & Marcia R. O'Neal, PhD, University of Alabama at Birmingham, School of Education, College of Arts and Sciences and Center for Educational Accountability at the Lifespan Respite Grantee and Partner Meeting, Baltimore, MD, October 27, 2010. Presenters shared their process and tools for conducing a statewide needs assessment
- [Determining Provider Needs for Respite Training, Results of an Alabama Survey](https://archrespite.org/library/determining-provider-needs-for-respite-training-results-of-an-alabama-survey-2/) - Geiger, B. F., & O’Neal, M. R. (2014). Determining Provider Needs for Respite Training, Results of an Alabama Survey. SAGE Open, 4(4). Abstract The Alabama Lifespan Respite Resource Network™ enhances respite services for family caregivers. University evaluators conducted a statewide assessment of respite providers using multiple formats. The purpose was to determine met and unmet needs for
- [Respite Care in Delaware: The Delaware Lifespan Respite Information Network](https://archrespite.org/library/respite-care-in-delaware-the-delaware-lifespan-respite-information-network/) - Report to the Governor's Commission on Community-Based Alternatives for Individuals with Disabilities Prepared by Lisa Becker, MLS, Tracy Mann, MA, Tim Brooks, EdD, The University of Delaware Center for Disabilities Studies, in partnership with the Delaware Caregivers Support Coalition, December 31, 2007 The Commission on Community-Based Alternatives for Individuals with Disabilities awarded a contract to
- [2022 Arkansas Caregiver Feedback Preliminary Data Report and Survey Instrument](https://archrespite.org/library/2022-arkansas-caregiver-feedback-preliminary-data-report/) - Prepared by Sarah Schmidt and Naomi Sweeney, AR Lifespan Respite Program, AR DHS's Division of Provider Services and Quality Assurance (DPSQA) Abstract The last time Arkansas conducted a state specific survey on caregivers and respite care was in 2017. Since that time, caregiving responsibilities have increased in the state while respite supports have remained stagnant.
- [No Wrong Door and Lifespan Respite](https://archrespite.org/library/no-wrong-door-and-lifespan-respite/) - The Shared Vision of Connecting Individuals and Families to Services and Supporting Family Caregivers Accessing long-term services and supports (LTSS) at the community level for people with disabilities and older adults can be daunting. In response, states continue to refine their access system for all populations regardless of age, income or disability. The ADRC/No Wrong
- [Respite Benevolence Policy](https://archrespite.org/library/respite-benevolence-policy/) - Prepared by the South Carolina Respite Coalition and Family Connection of South Carolina In respite voucher programs administered by faith congregations, the congregation provides no direct services of respite care but helps pay the family or caregiver’s cost of hiring the provider of their choice. A benevolence fund is a great way to fund such
- [Caregivers in the Workplace: National Data and Successful Strategies to Engage Employers in Respite and Caregiver Supports](https://archrespite.org/library/caregivers-in-the-workplace/) - Developing an approach to engaging employers in respite and caregiving supports requires knowledge of the experiences of working caregivers as well as communication savvy to deliver the most effective message. This webinar will provide insight into both by providing: 1) new national data on working family caregivers and employer responses; and 2) the experiences of an
- [Engaging Employers in Lifespan Respite: Tools from ReACT](https://archrespite.org/library/engaging-employers-in-lifespan-respite-tools-from-react/) - ReACT (Respect A Caregiver's Time) is an employer-focused coalition dedicated to addressing the challenges faced by employee caregivers and reducing the impact on the companies that employ them. ReACT represents nearly 1 million employees through its membership of more than 40 companies and non-profit organizations. Melissa Gong Mitchell and Jordan Green, representatives from ReACT, shared
- [Creating a Strategic Financing Plan](https://archrespite.org/library/creating-a-strategic-financing-plan/) - Presenter: Cheri Hayes, President & CEO, The Finance Project The Finance Project conducted a webinar on Module III of The Finance Project’s Sustainability Planning Workbook: Creating a Strategic Financing Plan. Presenter Cheri Hayes, CEO, The Finance Project, provided an overview of the module, which will help Lifespan Respite leaders and coalition partners make reasonable fiscal
- [Grandfamilies and Relative Caregivers: Meeting their Respite Needs](https://archrespite.org/library/grandfamilies-and-relative-caregivers-meeting-their-respite-needs/) - The State of Grandfamilies in America: 2015 was recently released by Generations United, a national organization whose mission is “to improve the lives of children, youth, and older adults through intergenerational collaboration, public policies and programs for the enduring benefit of all.” The report identifies key state laws and policies specifically designed to address barriers
- [Respite Breakroom: A How-to-Guide for Faith & Community Organizations](https://archrespite.org/library/respite-breakroom-a-how-to-guide-for-faith-community-organizations/) - Developed by the South Carolina Respite Coalition and the SC Department on Aging. A Respite Breakroom is a faith- or community-based respite model designed to give a family caregiver a break from their caregiving responsibilities so they can rest, relax and recharge. It is a respite site, a physical space, staffed primarily by volunteers, where
- [North Carolina Lifespan Respite Mini-Grant Summary Report and Conference Presentation](https://archrespite.org/library/north-carolina-lifespan-respite-mini-grant-summary-report/) - Prepared by the North Carolina Lifespan Respite Project as a final report for the mini-grants initiative of 2012-2013 See also NC PPT Presentation, 2013 National Lifespan Respite Conference, Giving Your Communities the Freedom to Care: How a Little Money Can Go a Long Way. In March 2012, nine local and county agencies were awarded a
- [North Carolina Volunteer Caregiver Respite Consortium](https://archrespite.org/library/north-carolina-volunteer-caregiver-respite-consortium/) - Developed by the Center for Volunteer Caregiving in Cary, NC, as an initiative included in the State’s three-year Lifespan Respite Grant. The Center for Volunteer Caregiving has pledged ongoing support to administer and lead the consortium beyond 2023. With the support of the NC Division of Aging and Adult Services, this is an initiative to
- [Elevating the Needs of Family Caregivers: Why Respite Should Be a Concern to Employers](https://archrespite.org/library/elevating-the-needs-of-family-caregivers-why-respite-should-be-a-concern-to-employers/) - In this National Lifespan Respite Conference presentation, representatives from the MA and NE Lifespan Respite programs shared their employer engagement efforts to support family caregivers. Presenters from the NE Lifespan Respite Program presented the business case of why employers need to be educated on the needs of family caregivers. Specific strategies for Respite Networks to
- [Employee Survey Summary Report: Balancing Caregiving and Work Responsibilities](https://archrespite.org/library/employee-survey-summary-report-balancing-caregiving-and-work-responsibilities/) - Prepared by the Massachusetts Lifespan Respite Coalition EMC partnered with the Massachusetts Lifespan Respite Coalition (MLRC) in the fall of 2015 to develop an employee caregiver survey in an effort to determine how it might support their employees in balancing their caregiving and work responsibilities. The survey was distributed to employees by EMC’s HR department
- [Emergency Care Planning Training](https://archrespite.org/library/emergency-care-planning-training/) - Developed by Lutheran Social Services of Minnesota Caregiver Support & Respite Program Training includes Intake Forms, Tips for Creating an Emergency Care Plan, Sample Plans
- [Emergency Care Planning for Caregivers Flyer](https://archrespite.org/library/emergency-care-planning-for-caregivers-flyer/) - Developed by Lutheran Social Services of Minnesota Caregiver Support and Respite Program A flyer to help publicize emergency care planning services offered by LSS of Minnesota.
- [Providing Respite - Supporting People and Families Across the Lifespan](https://archrespite.org/library/providing-respite-supporting-people-and-families-across-the-lifespan/) - This respite booklet was made possible through a partnership with the New Jersey Department of Human Services and the New Jersey Lifespan Respite Coalition. It was developed by the the Boggs Center on Developmental Disabilities in collaboration with the New Jersey Lifespan Respite Program. This respite booklet provides information for individuals interested in respite and
- [Pathways to Respite](https://archrespite.org/library/pathways-to-respite/) - Developed by Informing Families, a resource of the Washington State Developmental Disabilities Council, in partnership with the Washington State Developmental Disabilities Administration, Aging & Long-Term Support Administration, and PAVE, which administers Lifespan Respite WA Who is this toolkit for? The information in this toolkit is for anyone who provides care and support to a family
- [9 Pasos Para el Cuidado De Respiro para cuidadores-familiares de personas con demencia, incluida la enfermedad de Alzheimer](https://archrespite.org/library/9-pasos-para-el-cuidado-de-respiro-para-cuidadores-familiares-de-personas-con-demencia-incluida-la-enfermedad-de-alzheimer/) - ¿Es usted el cuidador de un familiar con demencia, incluida la enfermedad de Alzheimer? Se le llama cuidador si ayuda o apoya a otra persona que lo necesita debido a condiciones médicas, físicas o mentales o limitaciones funcionales, ya sea que ayude a tiempo completo o cuando el tiempo lo permita. La persona que necesita
- [Increase in Caregiver Access to Respite](https://archrespite.org/library/increase-in-caregiver-access-to-respite/) - Prepared by ARCH as a sample measurement tool for Lifespan Respite grantees/partners. In an interview or focus group format, ask each key leader or stakeholder, “Have you documented an increase in caregiver access to respite that can be attributed to LR grantee efforts?” The comments section should be answers to follow-up questions: If the answer
- [Coordination/Collaboration Tracking Form](https://archrespite.org/library/coordination-collaboration-tracking-form/) - Prepared by ARCH as a sample measurement tool for Lifespan Respite grantees/partners.
- [Collaborators/Partners Fulfillment of Agreement Matrix](https://archrespite.org/library/collaborators-partners-fulfillment-of-agreement-matrix/) - Prepared by ARCH as a sample measurement tool for Lifespan Respite grantees/partners. In the far left hand column, list each agency the Lifespan Respite program collaborates with and has an MOU or other formal agreement in place. Add agencies as needed. Check one of the boxes to the right of the agency name to indicate
- [Increase in Caregiver Access to Respite (2)](https://archrespite.org/library/increase-in-caregiver-access-to-respite-2/) - Prepared by ARCH as a sample measurement tool for Lifespan Respite grantees/partners. List each agency being tracked in the left hand column. Include your own if applicable. How to count the number of caregivers who requested respite: Count caregivers who are on a waiting list for services. Count caregivers who requested services during the reporting
- [South Carolina Caregiver Survey Key Findings](https://archrespite.org/library/south-carolina-caregiver-survey-key-findings/) - In August 2020, the South Carolina Respite Coalition sent a survey to family caregivers and organizations serving family caregivers to get an idea of who South Carolina caregivers are and the impact of caregiving on their lives. The survey asked about the caregiver and care recipient, the impact of caregiving, the caregiver’s employment situation, use
- [ARCH Systems Change Outcome #1 Tracking Form](https://archrespite.org/library/arch-systems-change-outcome-1-tracking-form/) - Prepared by ARCH as a sample form for tracking Lifespan Respite grant goal achievements. This form is used to track and report on Outcome #1: Grantees achieve the goals identified in their proposal. Indicators of this outcome are: 1.1 By the end of the funding period, grantees will meet the goals identified in their proposal.
- [VA Respite Voucher Reimbursement Packet with Surveys](https://archrespite.org/library/va-respite-voucher-reimbursement-packet-with-surveys/) - This DARS Virginia Lifespan Respite Voucher Program packet includes: Voucher Form, Reimbursement Form, Satisfaction Survey, Training Survey, W-9 Form, Valid Proof of Payment. Forms must be completed by the family caregivers to receive respite care reimbursement.
- [VA Lifespan Respite Voucher Program Satisfaction Survey](https://archrespite.org/library/va-lifespan-respite-voucher-program-satisfaction-survey/) - As part of the Virginia Lifespan Respite Voucher Program, caregivers are required to fill out this brief Satisfaction Survey and submit it to the Department for Aging and Rehabilitative Services (DARS) along with the Reimbursement Form. Original Form. There is a later version of this for 2022.
- [Original State Lifespan Respite Programs](https://archrespite.org/library/original-state-lifespan-respite-programs/) - This fact sheet provides a quick look at the original Statewide Lifespan Respite Programs that inspired the enactment of the Federal Lifespan Respite Care Act and laid the foundation for the concept of coordinated statewide systems of respite care for family caregivers caring for anyone of any age and condition.
- [South Carolina Respite Coalition Caregiver Survey Findings](https://archrespite.org/library/6798/) - SOUTH CAROLINA RESPITE COALITION CAREGIVER SURVEY - KEY FINDINGS In August 2020, the South Carolina Respite Coalition sent a survey to family caregivers and organizations serving family caregivers to get an idea of who South Carolina caregivers are and the impact of caregiving on their lives. We asked for basic information about the caregiver and
- [Getting Started: What to Sustain and the Needed Resources](https://archrespite.org/library/getting-started-what-to-sustain-and-the-needed-resources/) - Adapted from the Finance Project Sustainability Project If you don't want to tackle the full Finance Sustainability Project Workbook and its five modules, it's too overwhelming currently, or you aren't sure you have the time, committed stakeholders, or resources to do so, a productive and much simpler way to begin is to figure out what
- [Getting Started: A Sustainability Self-Assessment](https://archrespite.org/library/getting-started-a-sustainability-self-assessment/) - Getting Started: A Sustainability Self-Assessment Sustaining initiatives such as Lifespan Respite programs, coalitions or networks depends on developing a clear, sensible, and convincing plan for marshalling the key resources that are necessary to continue (and often to expand) your work. However, in order to develop a sustainability plan detailing where you want to go, a
- [The 5 Ps of TV PSAs](https://archrespite.org/library/the-5-ps-of-tv-psas/) - by Bill Goodwill Editor’s note: This article appeared in the “Communicators Guide for Federal, State, Regional and Local Communicators” published by the Federal Communicators Network. It was updated in July 2019. When strategically planned and executed, Public Service Advertising campaigns can broaden the reach of your mass communications program, create greater credibility for your organization,
- [Replication Manual: Lifespan's Caregiver Respite Program](https://archrespite.org/library/replication-manual-lifespans-caregiver-respite-program/) - The intended audience for this replication manual may be governmental or nonprofit aging service providers seeking to fill a gap in services for family caregivers of older adults who provide 80% of all long-term care support in New York State. This manual is provided at no-cost thanks to the support of the Helen L. Morris
- [Easterseals Respite Services Registration Form - Little Warriors](https://archrespite.org/library/easterseals-respite-services-registration-form-little-warriors/) - A sample respite services registration form for Little Warriors, Easterseals volunteer respite program.
- [Easterseals Respite Services Registration Form](https://archrespite.org/library/respite-services-registration-form-from-easter-seals-2/) - Sample registration form for people with a disability or special needs in a volunteer respite program.
- [Summary Table of Federal Programs that Support Respite Care](https://archrespite.org/library/summary-table-of-federal-programs-that-support-respite-care/) - Information on federal programs that support respite. For more in-depth information, see Federal Funding Opportunities for Respite.
- [Federal Funding and Support Opportunities for Respite](https://archrespite.org/library/federal-funding-and-support-opportunities-for-respite/) - Building Blocks for Lifespan Respite Systems This guide provides information about each of the federal programs that provides or could potentially provide respite funding or support. It is meant to be used by state Lifespan Respite Care Programs and their partners as a sustainability tool to help identify the funding sources that could: serve as
- [Planning for Emergency Respite](https://archrespite.org/library/planning-for-emergency-respite/) - This information for family caregivers was adapted from the ARCH Fact Sheet, Emergency Respite: Help for Family Caregivers in Critical Times of Need as a quick reference guide to help advance planning for respite during a family emergency.
- [CENTER FOR EPIDEMIOLOGIC STUDIES DEPRESSION SCALE (CES-D SCALE)](https://archrespite.org/library/center-for-epidemiologic-studies-depression-scale-ces-d-scale/) - The CES-D is a valuable tool for identifying a group at-risk for depression and for studying the relationship between depressive symptoms and other variables. Previous research supports the use of the scale in epidemiologic research, in needs assessment studies conducted by or for health planners, and as a screening measure.
- [Conflict Tactics Scales](https://archrespite.org/library/conflict-tactics-scales/) - Parent report (i.e., self-administered) or direct parent assessment (i.e., administration in person or over the telephone) The CTS have been used to evaluate violence within families and intimate relationships. The CTS have been recognized as the standard survey tool for assessing domestic violence. The CTS meet the practical needs of family therapists, social workers, and
- [FAMILY CRISIS ORIENTED PERSONAL SCALES, F-COPES](https://archrespite.org/library/family-crisis-oriented-personal-scales-f-copes/) - Self-administered survey To identify problem solving and behavioral strategies used by families when faced with problems or crises. Can be used to as a pre-post test to measure change over time.
- [Health and Well-Being Index](https://archrespite.org/library/health-and-well-being-index/) - Parent self-report The Health and Well-Being Index (HWI) was designed for parents raising a child with a developmental delay or disability. It is a brief (five-item) survey that provides a broad measure of parents’ perceptions of their physical and emotional well-being (physical health; emotional & psychological health; coping with day-to-day demands; coping with rearing a
- [INDEX OF CLINICAL STRESS (ICS)](https://archrespite.org/library/index-of-clinical-stress-ics/) - The ICS is a short-form, 25-item self-report questionnaire that is administered to individual adults and young adults over the age of 12 years. Those completing the questionnaire must be literate and have no severe cognitive impairment.
- [The Modified Caregiver Strain Index (MCSI)](https://archrespite.org/library/the-modified-caregiver-strain-index-mcsi/) - The Modified Caregiver Strain Index (MCSI) is a tool that can be used to quickly screen for caregiver strain with long-term family caregivers. It is a 13-question tool that measures strain related to care provision. There is at least one item for each of the following major domains: Financial, Physical, Psychological, Social, and Personal. This
- [Perceived Stress Scale (PSS)](https://archrespite.org/library/perceived-stress-scale-pss/) - The 4-item version is appropriate for use in situations requiring a very brief measure of stress perceptions. It was previously employed when collecting perceived stress levels over the phone during follow-up interviews. It is not a diagnostic instrument, but intended to make comparisons of subjects’ perceived stress related to current, objective events. The higher the
- [ARCH Evaluation Form for Planned Respite](https://archrespite.org/library/arch-evaluation-form-for-planned-respite/) - From Evaluating and Reporting Outcomes: a Guide for Respite and Crisis Care Program Managers, ARCH National Respite Network and Resource Center Pre-Post Retrospective Survey for assessing the outcomes of planned respite care services.
- [Oklahoma Statewide Caregiver Respite Programs](https://archrespite.org/library/oklahoma-statewide-caregiver-respite-programs/) - Table of all publicly-funded respite program options available in Oklahoma
- [Time for Living and Caring: Making Respite Services Work for You!](https://archrespite.org/library/time-for-living-and-caring-making-respite-services-work-for-you/) - Time for Living and Caring: Making Respite Services Work for You! This brochure from the faculty at the University of Utah Gerontology Interdisciplinary Program and California State University at San Bernardino is based on research that found planning for respite to allow caregivers to engage in activities meaningful to them resulted in better outcomes. The
- [COVID-19/Emergency Preparedness Resource Guide For Kinship Families and Grandfamilies](https://archrespite.org/library/covid-19-emergency-preparedness-resource-guide-for-kinship-families-and-grandfamilies/) - Produced by Supporting Grandparents Raising Grandchildren (SGRG) Advisory Council, Administration for Community Living “Kinship Families and Grandfamilies” are families in which children are raised by their grandparents, other extended family members, or adults with whom they have a close family-like relationship. Currently, there are an estimated 2.7 million children in grandfamily/kinship households without parents in
- [Expanding a Volunteer Respite Workforce to Provide Support to Caregivers in New York State](https://archrespite.org/library/expanding-a-volunteer-respite-workforce-to-provide-support-to-caregivers-in-new-york-state-2/) - Expanding a Volunteer Respite Workforce to Provide Support to Caregivers in New York State A presentation by Thomas V. Caprio, MD, MPH, MS, CMD, HMDC, FACP, AGSF, FAAHPM Professor of Medicine/Geriatrics, Psychiatry, Dentistry, Nursing, & Public Health Director, Finger Lakes Geriatric Education Center Program Evaluator, Lifespan Respite Initiative University of Rochester Medical Center (Rochester, New
- [LifeCourse Respite Tool: Trajectory for Respite](https://archrespite.org/library/lifecourse-respite-tool-trajectory-for-respite/) - Trajectory for Respite Good respite planning starts with a clear vision for a good life and for a good respite experience. Having a vision of what good respite looks like for you and your loved one, and keeping that vision in mind, can help guide you as you make decisions about whether choices or experiences
- [ARCH Respite Research Summit: Roundtable Reports and Recommendations for Future Research](https://archrespite.org/library/arch-respite-research-summit-roundtable-reports-and-recommendations-for-future-research/) - Roundtable Reports and Recommendations for Future Research Facilitated by Kim Whitmore, PhD, RN Joseph Caldwell, PhD, Senior Scientist and Director, Community Living Policy Center, Lurie Institute for Disability Policy, Brandeis University Ray Kirk, PhD, ARCH National Respite Network and Resource Center Susan Peschin, MHS, President and CEO, Alliance for Aging Research Cordelia Robinson Rosenberg, PhD,
- [ARCH Respite Research Summit: Using the Expert Panel Framework](https://archrespite.org/library/arch-respite-research-summit-using-the-expert-panel-framework/) - Using the Expert Panel Framework Presentation at the ARCH Respite Research Summit, September 30, 2020 Tiffany Washington, PhD, MSW John A. Hartford Geriatric Social Work Scholar Associate Professor University of Georgia School of Social Work
- [ARCH Respite Research Summit: Reactor Panel](https://archrespite.org/library/arch-respite-research-summit-reactor-panel/) - Reactor Panel and Group Discussion ARCH Respite Research Summit, September 29, 2020 Facilitated by Kim Whitmore, PhD, RN Joseph Caldwell, PhD, Senior Scientist and Director, Community Living Policy Center, Lurie Institute for Disability Policy, Brandeis University Susan Peschin, MHS, President and CEO, Alliance for Aging Research Cordelia Robinson Rosenberg, PhD, RN, Professor Pediatrics and Psychiatry,
- [ARCH Respite Research Summit: Research on Respite Outcomes and Access](https://archrespite.org/library/research-on-respite-outcomes-and-access/) - Research on Respite Outcomes and Access ARCH Respite Research Summit, September 29, 2020 Moderated by Casandra Firman, MS, ARCH National Respite Network and Resource Center. Presented at the ARCH Respite Research Summit, September 29, 2020. Presentations Respite Time-Use: Research Findings Lead to Novel Intervention to Maximize Benefit of Respite for Caregivers Rebecca Utz, PhD,
- [ARCH Respite Research Summit: Aligning Research Agendas with Research Recommendations](https://archrespite.org/library/aligning-research-agendas-with-research-recommendations/) - Aligning Research Agendas with Research Recommendations Panel at the ARCH Respite Research Summit, September 29, 2022 moderated by Jill Kagan, Director, ARCH A Research Agenda for Adult Day Services Bill Zagorski, Chair and Research Committee Chair, National Adult Day Services Association, PPT Presentation Respite Care/Short Breaks: Sharing an evidence review from Wales and Scotland
- [ARCH Respite Research Summit: Focus on Equity and Diversity in Respite Research](https://archrespite.org/library/focus-on-equity-and-diversity-in-respite-research/) - Focus on Equity and Diversity in Respite Research ARCH Respite Research Summit, September 29, 2020 Presentation by Kim Whitmore, PhD, RN, University of Marquette, College of Nursing, Milwaukee, WI
- [ARCH Respite Research Summit: Building an Evidence Base for Respite](https://archrespite.org/library/building-an-evidence-base-for-respite/) - Opening Remarks ARCH Respite Research Summit, September 29, 2020 This presentation by Ray Kirk, facilitator of the ARCH Respite Research Initiative, provided background on the ARCH Expert Panel on Respite Research and their final report.
- [ARCH Respite Research Summit:  Opening Session](https://archrespite.org/library/arch-respite-research-summit-opening-session/) - Welcome Opening Session ARCH Respite Research Summit, September 29, 2020 Jill Kagan, ARCH National Respite Network and Resource Center Rani E Snyder, MPA, Vice President, Program, The John A. Hartford Foundation Greg Link, Administration for Community Living, Administration on Aging, U.S. Department of Health and Human Services
- [Providing and Receiving Respite Care Safely During the COVID-19 Pandemic](https://archrespite.org/library/providing-and-receiving-respite-care-safely-during-the-covid-19-pandemic/) - Providing and Receiving Respite Care Safely During the COVID-19 Pandemic Voluntary National Guidelines for Respite Care Agencies, Providers, Family Caregivers, and Respite Care Recipients UPDATED WITH GUIDANCE ON COVID-19 VACCINATIONS, December 2021 Principal Author: Kim E. Whitmore, PhD, RN, CPN, Assistant Professor in the School of Nursing at the University of Wisconsin – Madison, and Founder and Chief Change Officer of Ujima United, LLC
- [Person-Centered Planning, Thinking and Practice for Respite](https://archrespite.org/library/person-centered-planning-thinking-and-practice-for-respite/) - The presenters provided an overview of person and family-centered thinking, planning, and practice from the perspective of the LifeCourse framework, and an overview of the National Center on Advancing Person-Centered Practices and Systems (NCAPPS). They focused on how person and family centered-services are important to family caregivers and will provide links to resources that can
- [Webinar on Charting the LifeCourse for Respite During the COVID-19 Pandemic](https://archrespite.org/library/webinar-on-charting-the-lifecourse-for-respite-during-the-covid-19-pandemic/) - The LifeCourse Respite Tools were developed by the Charting the LifeCourse Nexus at the University of Missouri at Kansas City, Institute for Human Development in collaboration with ARCH to help families think about and plan for respite. This webinar explored how to use the LifeCourse Tools for Respite during the coronavirus pandemic to help providers
- [My LifeCourse Respite Portfolio](https://archrespite.org/library/my-lifecourse-respite-portfolio-2/) - LifeCourse Respite Tool - My LifeCourse Respite Portfolio The LifeCourse Respite Portfolio is a set of tools to help you make a plan for respite. The Charting the LifeCoure Respite Portfolio is designed as a booklet printed on 11×17 paper. It includes the CtLC Trajectory tool on the inside and the Integrated Supports Star on
- [LifeCourse Respite Tool - Integrated Respite Schedule](https://archrespite.org/library/integrated-respite-schedule/) - LifeCourse Respite Tool - Integrated Respite Schedule You and your loved one have worked hard to make plans for successful respite and identify resources that can help you reach your vision of good respite. The schedule can help you see the need to take a break as well as find time to incorporate respite into
- [Exploring Respite Opportunities & Options](https://archrespite.org/library/exploring-respite-opportunities-options/) - LifeCourse Respite Tool Charting the LifeCourse Nexus housed at the at the University of Missouri–Kansas City Institute for Human Development, in collaboration with the ARCH National Respite Network and Resource Center, developed Charting the LifeCourse Respite materials. Exploring Respite Opportunities and Options can help you populate your Integrated Star in the Respite Portfolio! These resources include
- [Cultural and Linguistic Competence: What do they mean for respite services?](https://archrespite.org/library/cultural-and-linguistic-competence-what-do-they-mean-for-respite-services/) - Cultural competence and linguistic competence are widely recognized by policy makers, service providers, educators, and advocates as fundamental aspects of quality in health and human services. Cultural competence and linguistic competence are viewed as essential approaches for reducing disparities and promoting equity by improving access to, utilization of, and the delivery of services and supports.
- [Respite for Rural Family Caregivers: Overcoming the Challenges](https://archrespite.org/library/respite-for-rural-family-caregivers-overcoming-the-challenges/) - Family caregivers living in rural and frontier areas face unique challenges to accessing supports, including respite, regardless of the age or condition of the care recipient. Family caregiving can be stressful, but when faced with fewer job opportunities and financial resources, limited access to health and social services, transportation barriers and the geographic isolation that
- [Advisory Boards and Boards of Directors](https://archrespite.org/library/advisory-boards-and-boards-of-directors/) - Distinguishes between the roles and responsibilities of advisory boards and boards of directors. Offers tips on the recruitment, training, and retention of board members.
- [Planned and Crisis Respite for Families with Children: Results of a Collaborative Study](https://archrespite.org/library/planned-and-crisis-respite-for-families-with-children-results-of-a-collaborative-study/) - The Child Welfare League of America (CWLA), the ARCH National Respite Network and Resource Center (ARCH), and Casey Family Programs (CFP) National Center for Resource Family Support collaborated to lay the groundwork for the development of best practice standards for planned and crisis respire services. This report describes the survey’s findings; documents approaches to funding,
- [State of Arkansas - Arkansas Lifespan Respite Awareness Day](https://archrespite.org/library/state-of-arkansas-arkansas-lifespan-respite-awareness-day/) - The Arkansas Lifespan Respite Coalition has held several Respite Legislative Awareness Days at the State Capitol. Material distributed at the 2016 Respite Awareness Day event included this Awareness Day Proclamation from the Executive Department.
- [In Support of Caregivers: Key Accomplishments of Lifespan Respite Program Grantees](https://archrespite.org/library/key-accomplishments-of-lifespan-respite-program-grantees/) - Through competitive grants, the Lifespan Respite Care Program supports individual state grantees to achieve Five Objectives: Expand and enhance respite services in the states; Improve coordination and dissemination of respite services; Streamline access to programs; Fill gaps in service where necessary; and Improve the overall quality of respite services where available. Eight Key Accomplishments In the descriptions
- [Performance Measurement Learning Collaborative: Massachusetts Levels of Organizational Integration](https://archrespite.org/library/performance-measurement-learning-collaborative-massachusetts-levels-of-organizational-integration/) - Presentation of Leanne Winchester, MA Lifespan Respite Coalition
- [Sustainability Plan Outline](https://archrespite.org/library/sustainability-plan-outline/) - Purpose: To capture the readers’ attention and summarize the highlights of the plan. This is your first opportunity to make a compelling case for sustaining your effort. In one or two pages, this section typically includes brief descriptions of:View Post Background: Network’s history, vision and desired results; and the unique role it plays in the
- [Worksheet 1: Workplan for Sustainability Planning](https://archrespite.org/library/worksheet-1-workplan-for-sustainability-planning/) - Worksheet to accompany the Sustainability Planning Workbook. The Finance Project's Sustainability Planning Workbook, a comprehensive tool composed of five modules and a CD-ROM that helps users clarify their vision, identify key issues in sustaining their work, and develop strategies to achieve long-term goals. While the materials in the Workbook are focused on services for children and families,
- [ARCH/NASHP Expert Workgroup on Respite Provider Core Competencies](https://archrespite.org/library/arch-nashp-expert-workgroup-on-respite-provider-core-competencies/) - ARCH convened an Expert Workgroup that participated in an extensive review of existing core competencies and evidence-based frameworks developed by national and state organizations, governmental entities, and universities in training curriculum for direct support professionals and respite providers. The workgroup then helped to identify core competencies specific for respite providers. These core competencies will be used to
- [Idaho Caregiver Alliance Strategic Plan 2020-2024](https://archrespite.org/library/idaho-caregiver-alliance-strategic-plan-2020-2024/) - This document details the 2020 Idaho Caregiver Alliance (ICA) Action Plan and outlines opportunities, challenges, and strategic objectives. Evidence of the critical role family caregivers fill is provided in the appendix.
- [Idaho's Lifespan Family Caregiver Action Plan](https://archrespite.org/library/idahos-lifespan-family-caregiver-action-plan/) - This plan, developed by the Idaho Family Caregiver Alliance, is the product of countless hours of research, outreach, deliberation, and problem solving. It reflects the voice of thousands of often invisible Idaho caregivers and others. The plan is intended to create awareness among policy makers and others and is intended to stimulate dialogue and encourage
- [Idaho Caregiver Alliance Case for Sustainability](https://archrespite.org/library/idaho-caregiver-alliance-case-for-sustainability/) - The Idaho Caregiver Alliance (ICA) serves as a statewide voice, convener, and catalyst for sustaining and supporting family caregivers. This paper makes the case for sustaining the ICA to implement the Goals set out in the Idaho Family Caregiver Action Plan.
- [Ohio Respite Coalition Lifespan Respite Strategic Plan, 2013-2018](https://archrespite.org/library/ohio-respite-coalition-lifespan-respite-strategic-plan-2013-2018/) - The Ohio Respite Coalition (ORC) is a statewide collaboration among family members, caregivers, advocates, respite providers, agencies, community groups, and state and local government officials who believe all caregivers could use a break once in a while. This strategic plan highlights the Ohio Respite Coalition’s five-year approach to increasing the availability of respite services in
- [Summary: North Carolina Lifespan Respite Strategic Plan: 2015-2020](https://archrespite.org/library/summary-north-carolina-lifespan-respite-strategic-plan-2015-2020/) - This two-page summary highlights the main points of the full strategic plan for the NC Lifespan Respite Care Project for 2015-2020.
- [Respite for Family Caregivers of Persons with Dementia, including Alzheimer's Disease](https://archrespite.org/library/respite-for-family-caregivers-of-persons-with-dementia-including-alzheimers-disease/) - Respite for Family Caregivers of Persons with Dementia, including Alzheimer's Disease Dementia, including Alzheimer's disease, affects millions of people in the U.S. and their families. This disease affects a person's ability to communicate and perform everyday activities. Consequently, a diagnosis can result in tremendous physical, psychological, and financial stress in the family. This fact sheet
- [How Fundraising Flows From Strategic Planning](https://archrespite.org/library/how-fundraising-flows-from-strategic-planning/) - Explanation of the interrelationship between strategic planning, marketing, and fundraising. Includes a step-by-step strategic planning process.
- [Webinar: Release of the Voluntary National Guidelines for Providing and Receiving Respite Care Safely During the COVID-19 Pandemic](https://archrespite.org/library/webinar-release-of-the-voluntary-national-respite-guideline-for-covid-19/) - During the webinar, Kim Whitmore, PhD, RN, CPN, author of the ARCH's Voluntary National Respite Guidelines for Providing and Receiving Respite Care Safely During the COVID-19 Pandemic provided an overview of the guidelines and discussed how to use the decision guide for families and the decision guide for respite agencies. The guidelines are designed to
- [COVID-19 Case Study: Lifespan Respite Washington Respite Voucher Program](https://archrespite.org/library/covid-19-case-study-lifespan-respite-washington-respite-voucher-program/) - Lifespan Respite Washington (LRW) offers caregiver support through vouchers or mini grants for unpaid caregivers supporting a family member, friend, or neighbor who has a special need or condition. Recognizing the important relationship between a caregiver and care recipient, the program offers short-term breaks. Vouchers are provided across the lifespan for caregivers of older adults,
- [COVID-19 Case Study: Agape Respite Care, Indiana](https://archrespite.org/library/covid-19-case-study-agape-respite-care-indiana/) - Agape Respite Care, Inc. is primarily an out-of-home, lifespan respite house located in Berne, Indiana. Agape has provided services for families from all over Indiana for 28 years. Care is customized to meet each family’s personal and individualized needs. Services are available for individuals with intellectual or physical disabilities and those with needs acquired through
- [Respite for Family Caregivers of Adults with Neurological Conditions](https://archrespite.org/library/respite-for-family-caregivers-of-adults-with-neurological-conditions/) - Respite for Family Caregivers of Adults with Neurological Conditions Millions of adults in the United States live with various neurological conditions, including epilepsy, Alzheimer's disease and other dementias, cerebrovascular disease including stroke and headache, Amyotrophic Lateral Sclerosis (ALS), Multiple Sclerosis (MS), Parkinson's Disease, brain tumors, and acquired (ABI) or traumatic brain injury (TBI). Many, depending on
- [Respite Services to Support Grandfamilies](https://archrespite.org/library/respite-services-to-support-grandfamilies/) - Respite Services to Support Grandfamilies Many of the challenges facing grandfamilies who have become the primary caregivers for relative children are unique. This fact sheet, written by staff of the Generations United, covers these unique considerations and offers suggestions for support, funding opportunities, and examples of respite programs that provide appropriate options for grandfamilies. Written
- [Bringing Respite to Your Community: A Start-up Manual](https://archrespite.org/library/bringing-respite-to-your-community-a-start-up-manual/) - This manual gives step-by-step instructions on how to begin a respite care program. The 332-page book includes chapters on needs assessment, the planning process, program models, budget, collaboration, marketing, funding, administrative policies and procedures, staffing, daily operations, and evaluation. Included are sample forms, policies, job descriptions, and other resources which can help existing programs reevaluate
- [Self-Directed Respite Voucher Guide](https://archrespite.org/library/participant-directed-respite-guidebook/) - Self-Directed Respite Voucher Guide and Readiness Assessment Tool developed by Applied Self-Direction in partnership with the ARCH National Respite Network and Resource Center. Authors: Molly Morris and Laura Mauldin, Applied Self-Direction The guide is offered as an updated resource for programs, including State Lifespan Respite Program grantees and their partners who provide respite and are
- [Building Respite Registries to Meet the Needs of Families](https://archrespite.org/library/building-respite-registries-to-meet-the-needs-of-families/) - ARCH and the Respite Care Association of Wisconsin hosted this webinar for Lifespan Respite grantees and partners, Building Respite Registries to Reach Family Caregivers, June 16, 2022. This webinar provides useful information for states and coalitions thinking about establishing or enhancing a respite-specific registry. Description The direct care workforce crisis has impacted the availability of
- [Nebraska Lifespan Respite Network’s eLifespan Respite System](https://archrespite.org/library/nebraska-lifespan-respite-networks-elifespan-respite-system/) - The Nebraska Lifespan Respite Network demonstrates their eLifespan Respite System, an online information and referral, and secure online data and workspace system, designed to facilitate statewide access to coordinated respite services. The system provides compatibility with other statewide information and referral systems and has the ability to capture real time contacts to the Respite Network.
- [ARCH Annotated Bibliography of Respite and Crisis Care Studies, 2nd Edition](https://archrespite.org/library/arch-annotated-bibliography-of-respite-and-crisis-care-studies-2nd-edition/) - This document annotates published research studies that focus on respite outcomes and contains brief summaries of 38 articles written between 1979 and 2002 and published in professional, peer-reviewed journals. The summaries presented include a complete citation, a brief overview of the article, and quotations that capture some highlights of the text.
- [Statewide Family Networks](https://archrespite.org/library/statewide-family-networks/) - Prepared by Elizabeth Sweet, M.Ed., Public Health Advisor, Child, Adolescent, and Family Branch, Substance Abuse and Mental Health Services Administration (SAMHSA). Statewide Family Networks are funded by the Substance Abuse and Mental Health Services Administration (SAMHSA). The purpose of the networks is to enhance state capacity and infrastructure to better respond to the needs of
- [Publicly Funded Respite Options for Caregivers in North Carolina](https://archrespite.org/library/publicly-funded-respite-options-for-caregivers-in-north-carolina/) - Produced by the NC Lifespan Respite Project, NC Department of Health and Human Services, Division of Aging and Adult Services This document was originally developed in 2017 by a workgroup of the Lifespan Respite State Advisory Team to address one of the recommendations in the North Carolina Lifespan Respite Strategic Plan: 2015-2020. Subject matter experts
- [Providing Breaks for Family Caregivers: A Toolkit for Volunteers and Faith Communities](https://archrespite.org/library/providing-breaks-for-family-caregivers-a-toolkit-for-volunteers-and-faith-communities/) - From the Alabama Lifespan Respite Resource Network The number of family caregivers and the need for quality respite care in our state is significant. However, current resources are limited, expensive and often difficult to access. Caregiving families are often so focused on the task of providing around-the-clock care that they become isolated. Often, families drop
- [Respite for Family Caregivers of Individuals with Brain Injury](https://archrespite.org/library/respite-for-family-caregivers-of-individuals-with-brain-injury/) - The webinar is brought to you by the National Association of State Head Injury Administrators (NASHIA) and the ARCH National Respite Network and Resource Center. Respite for family caregivers of people with brain injury is often limited because of scarce public dollars as well as a critical shortage of qualified providers. The ARCH National Respite
- [Respite for Caregivers of Veterans](https://archrespite.org/library/respite-for-caregivers-of-veterans/) - Respite for caregivers of Veterans from all eras is a recognized, but often unmet need. Special considerations for the development and implementation of respite care for caregivers of younger Veterans with disabilities, and new ways to improve access to services, may be required. This fact sheet provides a basic review of respite issues for providers
- [Elizabeth Dole Foundation's Respite Relief for Military and Veteran Caregivers](https://archrespite.org/library/elizabeth-dole-foundations-respite-relief-for-military-and-veteran-caregivers/) - Learn more about the Elizabeth Dole Foundation and the resources they offer, including a free Respite Relief Program. The Elizabeth Dole Foundation and the U.S. Department of Veterans Affairs have teamed up with CareLinx, a nationwide professional home care network, Wounded Warrior Project and AARP, to launch the Respite Relief for Military and Veteran Caregivers
- [ACL Lifespan Respite Fact Sheet](https://archrespite.org/library/acl-lifespan-respite-fact-sheet/) - The US Administration for Community Living updated this fact sheet in 2018 to provide background on the implemented Lifespan Respite Program and to provide ACL's vision for the program.
- [Application as a Collaborative Tool](https://archrespite.org/library/application-as-a-collaborative-tool/) - For States to receive a federal grant to implement a Lifespan Respite Program, they must compete for funds by completing an application to be submitted to the Administration for Community Living (ACL). The Lifespan Respite law requires very specific information be included in the application. Compiling this information for the application will require research, documentation,
- [A Voice That Matters: The Impact of Family Caregiving in Alabama](https://archrespite.org/library/a-voice-that-matters-the-impact-of-family-caregiving-in-alabama/) - An update for public policymakers presented by the Alabama Lifespan Respite Coalition, the Alabama Department of Senior Services, and Alabama Lifespan Respite For more than 761,000 Alabama caregivers, the need for support services and respite continues to grow as more individuals and families choose for their loved ones with disabilities and chronic conditions to remain
- [2015 AR Respite Awareness Day Agenda](https://archrespite.org/library/2015-respite-awareness-day-agenda/) - The Arkansas Lifespan Respite Coalition has held several Respite Legislative Awareness Days at the State Capitol. Material distributed includes this agenda.
- [Respite Infographic from Arkansas Lifespan Respite Coalition](https://archrespite.org/library/respite-infographic-from-arkansas-lifespan-respite-coalition/) - The Arkansas Lifespan Respite Coalition has held several Respite Legislative Awareness Days at the State Capitol. Material distributed included this infographic.
- [Nebraska Respite Task Force Report](https://archrespite.org/library/respite-task-force-report-from-nebraska-lifespan-respite-network/) - The Munroe-Meyer Institute, through the Respite Across the Lifespan UCEDD program, was awarded a one-year opportunity grant from the Nebraska Planning Council on Developmental Disabilities. Funding for this project ran from Oct. 1, 2017, to Sept. 30, 2018. The main objective of this grant was to form a Respite Task Force made up of a
- [Interim Study of Oklahoma's Caregiving and Respite Care Programs](https://archrespite.org/library/interim-study-of-oklahomas-caregiving-and-respite-care-programs/) - Produced by OKCares, Oklahoma's Caregiver Coalition OKCares seeks to improve care and patient outcomes by exploring gaps and opportunities for efficiency gains in Oklahoma's caregiving and respite care programs. This presentation provided an overview of existing caregiving and respite care programs in the state and explored possible improvements to increase outcomes and streamline processes. to
- [Tailored Caregiver Assessment and Referral (TCARE)](https://archrespite.org/library/tailored-caregiver-assessment-and-referral-tcare/) - Produced by the Administration for Community Living Tailored Caregiver Assessment and Referral (TCARE) is a care management protocol designed to support family members who are providing care to adults, of any age, with chronic or acute health conditions. TCARE is grounded in the Caregiver Identity Theory, which conceptualizes caregiving as a series of transitions that
- [Washington State Study on the Value of T-Care](https://archrespite.org/library/washington-state-study-on-the-value-of-t-care/) - Expanding Eligibility for the Family Caregiver Support Program in SFY 2012: Updated Findings Bridget Lavelle, PhD  David Mancuso, PhD  Alice Huber, PhD  Barbara E.M. Felver, MES, MPA The 2011 WA State Legislature increased the state funding for the Family Caregiver Support Program (FCSP) in State Fiscal Year (SFY) 2012 by $3.45 million
- [Listening to Family Caregivers: The Need to Include Family Caregiver  Assessment in Medicaid Home- and  Community-Based Service Waiver Programs](https://archrespite.org/library/listening-to-family-caregivers-the-need-to-include-family-caregiver-assessment-in-medicaid-home-and-community-based-service-waiver-programs/) - Produced by AARP Public Policy Institute This research was supported by The John A. Hartford Foundation and the U.S. Administration for Community Living, Administration on Aging. This report presents findings from a 50-state survey examining how well the needs of family caregivers are assessed when states evaluate the needs of older people and adults with disabilities
- [Selected Caregiver Assessment Measures: A Resource Inventory for Practitioners](https://archrespite.org/library/selected-caregiver-assessment-measures-a-resource-inventory-for-practitioners/) - Produced by the Family Caregiver Alliance and the Benjamin Rose Institute on Caregiving A systematic and well-designed assessment can help identify a caregiver's needs and strengths and, in turn, contribute to a plan of care that ensures the well-being of both the caregiver and care recipient. As health care continues to move into home setting,
- [Idaho Family Caregiver Navigator (FCN) - Pilot Year 1 Evaluation Report](https://archrespite.org/library/family-caregiver-navigator-fcn-pilot-year-1-evaluation-report/) - The Family Caregiver Navigation (FCN) Pilot Project, an initiative of the ID Caregiver Alliance , was initiated to extend and sustain the impact of the Money Follows the Person (MFP) program by maximizing the capacity of natural support systems, i.e., family caregivers, siblings, and friends. The project was launched in May 2020 in the southwest
- [Grandparent and Older Relative Caregiver Self Assessment](https://archrespite.org/library/grandparent-and-older-relative-caregiver-self-assessment/) - From the Bluegrass Area Agency on Aging in Kentucky.
- [Caregiver Assessment from Nevada Care Connection](https://archrespite.org/library/caregiver-assessment-from-nevada-care-connection/)
- [Northwest Missouri Area Agency on Aging Family Caregiver Assessment](https://archrespite.org/library/northwest-missouri-area-agency-on-aging-family-caregiver-assessment/) - Caregiver information and assessment form
- [Arizona Caregivers Brochure](https://archrespite.org/library/arizona-caregivers-brochure/) - Caregiver brochure created by the Arizona Department of Economic Security
- [Arkansas Lifespan Respite Coalition Postcard](https://archrespite.org/library/arkansas-lifespan-respite-coalition-postcard/) - Informational postcard created for consumers.
- [Arkansas Lifespan Respite Coalition Brochure](https://archrespite.org/library/arkansas-lifespan-respite-coalition-brochure/) - Informational brochure created for caregivers.
- [Arkansas Lifespan Respite Coalition Educational Booklet](https://archrespite.org/library/arkansas-lifespan-respite-coalition-educational-booklet/) - 4-page document created to educate caregivers and the public about respite.
- [Making the Most of Respite Flyer from Deleware Lifespan Respite](https://archrespite.org/library/making-the-most-of-respite-flyer-from-deleware-lifespan-respite/) - You are important to your family. Be good to yourself. Enjoy your respite time.
- [Nebraska Lifespan Respite Network Brochure](https://archrespite.org/library/nebraska-lifespan-respite-network-brochure/) - Brochure providing respite information and state contacts.
- [Respite for Agricultural Caregivers Brochure](https://archrespite.org/library/respite-for-agricultural-caregivers-brochure/) - From the Nebraska Lifespan Respite Network
- [Nebraska Respite Programs Funding Matrix](https://archrespite.org/library/respite-programs-funding-matrix/) - From Nebraska Lifespan Respite Network
- [Respite for Caregivers, Identifying your Care-Giving Role](https://archrespite.org/library/respite-for-caregivers-identifying-your-care-giving-role/) - Powerpoint presentation from Nevada Lifespan Respite Care Program
- [Lifespan Respite Training Script](https://archrespite.org/library/lifespan-respite-training-script/) - A Script to go along with the presentation, Respite for Caregivers, Identifying your Care-Giving Role Developed by the Nevada Lifespan Respite Care Program
- [What is Respite? Flyer from South Carolina Respite Coalition](https://archrespite.org/library/what-is-respite-flyer-from-south-carolina-respite-coalition/) - 2-page PDF about respite including Creating Circles of Support.
- [Respite Provider Hiring Tips](https://archrespite.org/library/respite-provider-hiring-tips/) - Flyer created by South Carolina Respite Coalition
- [How to Help Hispanic Caregivers](https://archrespite.org/library/how-to-help-hispanic-caregivers/) - 2-page fact sheet from the Texas Department of Aging and Disability Services.
- [Crisis Respite Eligibility Criteria - Nebraska Lifespan Respite Network](https://archrespite.org/library/crisis-respite-eligibility-criteria-nebraska-lifespan-respite-network/) - Example from Nebraska Lifespan Respite Network Crisis Respite Funds may be used for crisis situations defined as an unforeseen circumstance or unplanned event that calls for immediate action or an urgent need for short-term assistance or relief to substitute for the Caregiver in the absence of any other funding source.
- [Emergency Respite Flyer from Nevada Aging & Disability Services Division](https://archrespite.org/library/emergency-respite-flyer-from-nevada-aging-disability-services-division/) - Flyer about emergency funding for respite assistance.
- [Emergency Fund Request Referral Form from Nevada Care Connection](https://archrespite.org/library/emergency-fund-request-referral-form-from-nevada-care-connection/) - Respite Emergency Funds Request from Nevada Care Connection
- [Caregiving-Friendly Workplace Toolkit](https://archrespite.org/library/caregiving-friendly-workplace-toolkit/) - Colorado Respite Coalition's toolkit provides information about the impacts of caregiving on workers and companies, as well as strategies for Colorado employers to create workplaces that help support caregivers.
- [New York State's Working Caregivers](https://archrespite.org/library/new-york-states-working-caregivers/) - 2-page PDF with facts
- [Brochure for Faith-Based Respite Ministry](https://archrespite.org/library/brochure-for-faith-based-respite-ministry/) - From Alabama Lifespan Respite
- [Arkansas Information for Volunteer Respite Provider](https://archrespite.org/library/information-for-volunteer-respite-provider/) - The Arkansas Lifespan Respite Coalition is pleased to offer this guide that may help alleviate some of the worries associated with taking a break from stressful and strenuous daily caregiving duties. You can find additional resources at http://www.choicesinliving.ar.gov/alrc.html
- [Arkansas Volunteer Respite Training Guide and Registration Form](https://archrespite.org/library/volunteer-respite-training-guide-and-registration-form/) - From Arkansas Lifespan Respite Coalition
- [Hawaii TimeBanking Feasibility Study](https://archrespite.org/library/timebanking-feasibility-study/) - From the Hawaii Lifespan Respite Care Program Executive Summary: As long-term supports and services (LTSS) increasingly favor home and community-based approaches, the need for family caregivers and community supports becomes significant. The resource limitations of Hawai‘i’s aging and disability networks, coupled with the growing older adult population, increase the urgency for innovative care approaches that
- [Lifespan Respite: Information Guide for Developing, Recruiting, Training and Retaining Volunteers](https://archrespite.org/library/lifespan-respite-information-guide-for-developing-recruiting-training-and-retaining-volunteers/) - Produced by the North Carolina Respite Care Coalition and the North Carolina Lifespan Respite Project Team
- [The Faith Community: Enhancing Caregiver Assistance and Respite](https://archrespite.org/library/the-faith-community-enhancing-caregiver-assistance-and-respite/) - Created by the North Carolina Respite Care Coalition
- [Ohio Lifespan Respite Volunteer Respite Expansion Mini-grants](https://archrespite.org/library/ohio-lifespan-respite-volunteer-respite-expansion-mini-grants/)
- [Spectrum of Respite Options for Faith Communities](https://archrespite.org/library/spectrum-of-respite-options-for-faith-communities/) - Spectrum of possible respite services for parents and other family caregivers. Created by the South Carolina Respite Coalition.
- [Respite Brochure for Faith Communities](https://archrespite.org/library/respite-brochure-for-faith-communities/) - From the South Carolina Respite Coalition
- [Policy and Procedures for Volunteers](https://archrespite.org/library/policy-and-procedures-for-volunteers/) - From the Florida Department of Elder Affairs. The purpose of these policies and procedures is to provide overall guidance and direction to individuals serving as volunteers for the Department of Elder Affairs (DOEA) volunteer programs. The policies and procedures do not constitute, either implicitly or explicitly, a binding contractual or employment agreement. Volunteers shall not
- [About Me: Child Information Story](https://archrespite.org/library/about-me-child-information-story/) - Example from Gio's Garden
- [Matrix of Modules, Tasks, Tools, and Resources for Sustaining Lifespan Respite Systems](https://archrespite.org/library/matrix-of-modules-tasks-tools-and-resources-for-sustaining-lifespan-respite-systems/) - The Matrix serves as an interactive table of contents for the Workbook and its five modules. The Finance Project's Sustainability Planning Workbook, a comprehensive tool composed of five modules and a CD-ROM that helps users clarify their vision, identify key issues in sustaining their work, and develop strategies to achieve long-term goals. While the materials in the
- [Sustainability Planning Workbook Implementation Guide for Lifespan Respite Grantees and Partners](https://archrespite.org/library/sustainability-planning-workbook-implementation-guide-for-lifespan-respite-grantees-and-partners/) - Designed to guide you through the Sustainability Planning Workbook. The guide highlights sustainability strategies specific to sustaining Lifespan Respite grant activities and State Respite Coalitions. The Finance Project's Sustainability Planning Workbook, a comprehensive tool composed of five modules and a CD-ROM that helps users clarify their vision, identify key issues in sustaining their work, and develop strategies
- [Respite Programs for Adults and the Aging: A Start-up Manual](https://archrespite.org/library/respite-programs-for-adults-and-the-aging-a-start-up-manual/) - This 258-page manual, contains all of the topics addressed in the original manual (Bringing Respite to Your Community). Examples, forms, and resources relevant to services for adults were substituted for those in the original document. $28.00 + shipping. Visit the ARCH online store.
- [COVID-19 Oath of Personal Responsibility](https://archrespite.org/library/covid-19-oath-of-personal-responsibility/) - We have composed a simple “Oath of Personal Responsibility” that all respite agency staff, respite providers, family caregivers, and care recipients should adhere to. While not legally binding, it does remind all of us of our responsibilities to help reduce the spread of COVID-19 and ensure that respite care services can be provided safely.
- [COVID-19 Respite Agency Decision Guide to Reopen Respite Worksheet](https://archrespite.org/library/respite-agency-decision-guide/) - Deciding when it’s safe to resume respite care services during the COVID-19 pandemic. Developed by the ARCH Workgroup. The decision to resume respite services is a continuous process that involves thorough assessment, detailed planning, ongoing monitoring, and regular reassessment. Respite care agencies must carefully consider all potential risks, benefits, and barriers before making an informed
- [COVID-19 Competency Validation Checklist](https://archrespite.org/library/covid-19-competency-validation-checklist/)
- [COVID-19 Health Screening Policy and Procedure](https://archrespite.org/library/covid-19-health-screening-policy-and-procedure/) - Before conducting any respite service, a health screening will be completed based on the county health department recommendations for safe reopening. This screening will occur anytime a provider, client, or any other person enters into the space where respite care is occurring. Respite providers must complete their own self-checks 24-hours before a respite appointment so
- [Sample Agency/Volunteer Agreement](https://archrespite.org/library/sample-agency-volunteer-agreement/) - This agreement is intended to indicate the seriousness with which we treat our volunteers. The intent of the agreement is to assure you both of our deep appreciation of your services and to indicate our commitment to do the very best we can to make your volunteer experience here a productive and rewarding one.
- [Examples of Volunteer Interview Questions](https://archrespite.org/library/examples-of-volunteer-interview-questions/) - From Successful Strategies for Recruiting, Training and Utilizing Volunteers, 2005. As printed in North Carolina Respite Care Coalition, Lifespan Respite: An Information Guide for Developing, Recruiting, Training and Retaining Volunteers, 2011 Samples include: What would you like to know about our organization? What attracted you to our organization? What types of work have you done
- [Senior Companion Volunteer Position Descriptions](https://archrespite.org/library/senior-companion-volunteer-position-descriptions/) - Senior Companions serve adults with physical, emotional, or mental health limitations, especially older persons, in an effort to achieve and maintain their highest level of independent living. Senior Companion volunteers serve 5 – 40 hours per week and involve person-to-person relationships with the individuals served.
- [Sample Senior Companion Program Volunteer Assignment Plan](https://archrespite.org/library/sample-senior-companion-program-volunteer-assignment-plan/) - This document is provided as a sample only. Its use is optional by Senior Companion Programs and, if used, it should be customized as appropriate.
- [National Criminal Background Check for Employees or Volunteers Providing Care to Children, the Elderly and Disabled](https://archrespite.org/library/national-criminal-background-check-for-employees-or-volunteers-providing-care-to-children-the-elderly-and-disabled/)
- [CareBreak Respite Volunteer Application](https://archrespite.org/library/carebreak-volunteer-application/) - From the CareBreak Respite Program at the Watson Institute
- [CareBreak Volunteer Reference Form](https://archrespite.org/library/carebreak-volunteer-reference-form/) - CareBreak program volunteers provide respite to families with children who have a disability. Once matched with one particular family, the volunteer goes into the family’s home on a weekly basis and cares for the child (or children) while the parents take a break. Our volunteers develop relationships with both child and family; they are a
- [The CareBreak Program Respite Volunteer Interview Questions](https://archrespite.org/library/the-carebreak-program-interview-questions/) - From the CareBreak Respite Program at the Watson Institute
- [Activity Training Sheet: Assessing Your Cultural Competence](https://archrespite.org/library/activity-training-sheet-assessing-your-cultural-competence/) - From Arizona CASA
- [Volunteer/Student Paperwork and Orientation Checklist](https://archrespite.org/library/volunteer-student-paperwork-and-orientation-checklist/) - From Easterseals
- [Volunteer Program Sample Code of Ethics](https://archrespite.org/library/volunteer-program-sample-code-of-ethics/) - This code of ethics governs the performance of the (Sponsoring Organization’s) officers, employees, board members, volunteers, and agents, (representatives) engaged in the administration of contracts supported by Federal assistance. Any employee in violati on of these policies is subject to disciplinary action as outlined in the Employee Handbook. Any officer or board member who violates
- [Sample Confidentiality Agreements for Information About Clients](https://archrespite.org/library/sample-confidentiality-agreements-for-information-about-clients/) - These samples are provided for educational purposes only and should not be considered legal or other professional advice. The Nation al Council of Nonprofits encourages nonprofits to seek the advice of competent professional advisors prior to adopting this, or any template document.
- [Sample Drug Free Workplace Policy](https://archrespite.org/library/sample-drug-free-workplace-policy/) - Source: Agency Council on Coordinated Transportation (ACCT), Washington State, to Best Practices (2013)
- [Volunteer Program Sample Policy on Harassment](https://archrespite.org/library/volunteer-program-sample-policy-on-harassment/)
- [Volunteer Program Sample Policy: Etiquette & Behavior for Relating to Persons with Disabilities](https://archrespite.org/library/volunteer-program-sample-policy-etiquette-behavior-for-relating-to-persons-with-disabilities/)
- [Sample Volunteer Evaluation of Assignment](https://archrespite.org/library/sample-volunteer-evaluation-of-assignment/) - Source: From NC Handbook of Volunteer Management, 1991. As printed in North Carolina Respite Care Coalition, Lifespan Respite: An Information Guide for Developing, Recruiting, Training and Retaining Volunteers, 2011
- [Sample Performance Evaluation of a Volunteer](https://archrespite.org/library/sample-performance-evaluation-of-a-volunteer/) - Source: From NC Handbook of Volunteer Management, 1991. As printed in North Carolina Respite Care Coalition, Lifespan Respite: An Information Guide for Developing, Recruiting, Training and Retaining Volunteers, 2011
- [Initial Cover Letter: Example from Gio's Garden](https://archrespite.org/library/initial-cover-letter-example-from-gios-garden/) - Thank you for your interest in Gio’s Garden. This letter will give you more information about who qualifies for our services, and the process that you will go through to start receiving services. Gio’s Garden is also here as a resource for families. Even if you do not think you qualify, please give us a
- [Respite Registration Information: Example form Gio's Garden](https://archrespite.org/library/respite-registration-information-example-form-gios-garden/) - Sample registration information flyer
- [Registration Forms Checklist: Example from Gio's Garden](https://archrespite.org/library/registration-forms-checklist-example-from-gios-garden/) - Gio’s Garden is licensed by the State of Wisconsin as a Family Child Care Center. Licensed Family Child Care Centers must follow the State of Wisconsin’s Department of Children and Families Administrative Code 250. This code requires families to complete several forms about their child. Gio’s Garden has also created forms to better understand your
- [Application for Respite: Example from Gio's Garden](https://archrespite.org/library/application-for-respite-example-from-gios-garden/) - Example respite application.
- [Media Release for Child](https://archrespite.org/library/media-release-for-child/) - Example from Gio's Garden
- [Volunteer and Intern Training Agenda](https://archrespite.org/library/volunteer-and-intern-training-agenda/) - Example from Gio's Garden
- [Volunteer/Intern Application](https://archrespite.org/library/volunteer-intern-application/) - Example from Gio's Garden
- [Frequently Asked Questions for Volunteers and Interns](https://archrespite.org/library/frequently-asked-questions-for-volunteers-and-interns/) - Example from Gio's Garden
- [Feeding Tube Administration & Emergency Action Plan](https://archrespite.org/library/feeding-tube-administration-emergency-action-plan/) - Example from Gio's Garden
- [Site Orientation Manual: Example from Gio's Garden](https://archrespite.org/library/site-orientation-manual-example-from-gios-garden/) - Gio’s Garden was created, by a group of parents, to address the gap between the respite needs of a family with a young child with special needs, and the respite services that are currently available to these families. Families with children with special needs are often placed on lengthy respite care waiting lists, struggle to qualify for enough
- [Plan of Care and Declaration of Consent](https://archrespite.org/library/plan-of-care-and-declaration-of-consent/) - Example from Masterpiece R&R. Plan of Care (for children) and Declaration of Consent (for Emergency Treatment, Photographic Release, and Waiver of Liability)
- [Incident Report Example](https://archrespite.org/library/incident-report-example/) - Example form from First Free Church
- [Masterpiece Ministry Respite Night Schedule & Map](https://archrespite.org/library/respite-night-schedule-map/) - Example from Masterpiece R&R
- [Masterpiece Ministry Quiz Sample](https://archrespite.org/library/ministry-quiz-sample/) - Powerpoint presentation from Masterpiece Ministry
- [Masterpiece Ministries Volunteer Training](https://archrespite.org/library/ministries-volunteer-training/) - Powerpoint presentation from Masterpiece Ministries
- [Caregivers of Central Jersey - ARCP Volunteer Preference Form Prior to Family Match](https://archrespite.org/library/volunteer-preference-form-prior-to-family-match/) - Example from the Alzheimer’s Respite Care Program.
- [Caregiver Volunteers of Central Jersey - ARCP Home Visit Evaluation Form](https://archrespite.org/library/home-visit-evaluation-form/) - Example from the Alzheimer’s Respite Care Program.
- [Easterseals HIPAA Authorization Form “C”](https://archrespite.org/library/hipaa-authorization-form-c/) - Example from EasterSeals
- [Easterseals Child Model Publicity Release](https://archrespite.org/library/child-model-publicity-release/) - Example from Easerseals
- [Easterseals Waiver of Liability](https://archrespite.org/library/waiver-of-liability/) - Example from Easterseals
- [Easterseals Respite Services Volunteer Form](https://archrespite.org/library/respite-services-volunteer-form/) - From Easterseals
- [Easterseals Confidential Information Statement](https://archrespite.org/library/confidential-information-statement/) - From Easterseals
- [Easterseals Adult Model Publicity Release](https://archrespite.org/library/adult-model-publicity-release/) - From Easterseals
- [Easterseals Background Investigation Notice](https://archrespite.org/library/background-investigation-notice/) - From Easterseals
- [Living with COVID-19: Guide for Volunteer Programs](https://archrespite.org/library/living-with-covid-19-guide-for-volunteer-programs/) - Webinar Slides, Administration for Community Living, April 13, 2020
- [COVID-19 Case Study: Centennial Adultcare Center - Tennessee](https://archrespite.org/library/covid-19-case-study-centennial-adultcare-center-tennessee/) - Centennial Adultcare Centers (CAC) are privately owned adult day health care programs1 that provide integrated day care, respite and health care services for families of adults with cognitive or physical disabilities (dementia, CVA, developmental, intellectual, brain injury, etc.) who are 18 years and older. Approximately 60% of adult day care participants are over the age
- [COVID-19 Case Study: ChildServe Respite Services (Iowa)](https://archrespite.org/library/covid-19-case-study-childserve-respite-services-iowa/) - The needs and priorities of caregivers and their children are foremost in the development of respite options offered by ChildServe (CS) including individual and group respite services. Caregivers with children birth to 25 years with a wide range of needs, including complex medical, autism, behavioral, and physical disabilities, can receive planned respite through ChildServe. The
- [COVID-19 Case Study: St. Louis Arc's Assistance with Residential Care in the Home Respite Care](https://archrespite.org/library/covid-19-case-study-st-louis-arcs-assistance-with-residential-care-in-the-home-respite-care/) - The St. Louis Arc’s ARCH (Assistance with Residential Care in the Home) Respite Care program is a consumer-directed respite service that helps a person with developmental disabilities live at home by providing intermittent, short-term relief to primary caregivers. It is one of the largest and longest running programs of this type in the United States.
- [COVID-19 Case Study: New Jersey Family Resource Network](https://archrespite.org/library/covid-19-case-study-new-jersey-family-resource-network/) - The Family Resource Network (FRN) provides direct support services to children and adults with intellectual and developmental disabilities and their family caregivers statewide in New Jersey. Originally known as the Epilepsy Foundation of New Jersey, the Family Resource Network is in its 50th year of operation and includes Epilepsy Services of NJ, Autism Family Services
- [COVID-19 Case Study: Respite Care Association of Wisconsin](https://archrespite.org/library/covid-19-case-study-respite-care-association-of-wisconsin/) - Respite Care Registry and Caregiver Respite Grant Program Description The Respite Care Association of Wisconsin (RCAW) provides a statewide respite care registry1 with a searchable list of respite care providers for primary caregivers to use for short breaks or support with their caregiving duties. The registry lists private in-home respite providers who have completed our
- [COVID-19 Case Study: YMCA of San Diego County, CA](https://archrespite.org/library/covid-19-case-study-ymca-of-san-diego-county-ca/) - The YMCA of San Diego County provides respite for families of children and adults with special needs to give families short-term relief from the ongoing care of their child with developmental disabilities. The in-home respite care program currently serves children as young as 2 years old through older adults in their 60s. Respite is available
- [Program Evaluation Report - Advancing State Lifespan Respite Systems - New York](https://archrespite.org/library/program-evaluation-report-advancing-state-lifespan-respite-systems-new-york/) - Project Title: Building Long-Term Sustainability in State Lifespan Respite Programs (Lifespan Respite) – New York ACL Grant: # 90LRLI0012 Project Period: September 1, 2017 – August 31, 2020 (3 years) September 1, 2020 – August 31, 2021 (No Cost Extension) Report Category: FINAL PROGRAM EVALUATION REPORT Date of Report: December 1, 2021
- [Program Evaluation Plan for New York State Lifespan Respite Program](https://archrespite.org/library/program-evaluation-plan-for-new-york-state-lifespan-respite-program/) - “Building Long-Term Sustainability in State Lifespan Respite Programs – New York” AOA Funding Opportunity Number: HHS-2014-ACL-AOA-LI-0078 Total Project Period: September 1, 2014 – August 31, 2017
- [Outcomes vs. Outputs](https://archrespite.org/library/outcomes-vs-outputs/) - Prepared by Casandra Firman, ARCH, for the Performance Measurement Learning Collaborative, June 3, 2021
- [Idaho Caregiver Alliance Logic Model for Family Caregiver Navigator Pilot Program](https://archrespite.org/library/logic-model/) - Logic Model for the Family Caregiver Navigation (FCN) Pilot Program
- [ID Family Caregiver Navitor Caregiver Retrospective Survey](https://archrespite.org/library/caregiver-retrospective-survey/) - Survey from Idaho Family Caregiver Alliance - Family Caregiver Navigator
- [Oklahoma Logic Model](https://archrespite.org/library/oklahoma-logic-model/)
- [Idaho Caregiver Alliance Lifespan Respite Logic Model](https://archrespite.org/library/idaho-caregiver-alliance-lifespan-respite-logic-model/)
- [Final Report - NV Caregiver Respite Self-Directed Pilot](https://archrespite.org/library/caregiver-respite-self-directed-pilot/) - State of Nevada Aging and Disability Services Division Authored By: Cheryl Dinnell, Autumn Blattman, Jamie Ahumada, and Cheyenne Pasquale
- [Caretaker Intake Form from Nevada Care Connection](https://archrespite.org/library/caretaker-intake-form-from-nevada-care-connection/)
- [Nevada RespiteRx - Voucher Implementation: A Deep Dive](https://archrespite.org/library/respite-voucher-implementation-a-deep-dive/) - An ARCH Voucher Learning Collaborative Webinar Presenters: Cheryl Dinnell, Project Coordinator on behalf of the Nevada Aging and Disability Services Division Planning, Advocacy & Community Services Unit Carson City, NV Lisa Schneider, Executive Director Respite Care Association of Wisconsin Appleton, WI
- [Strategic and Sustainability Planning](https://archrespite.org/library/strategic-and-sustainability-planning/) - The Idaho Caregiver Alliance Experience
- [Some Thoughts About Data](https://archrespite.org/library/some-thoughts-about-data/) - 2011 Lifespan Respite Grantee and Partner Meeting, Glendale, AZ. Presented by Casandra Firman, ARCH Evaluation Specialist.
- [Using Data to Successfully Drive Your Program: Program Evaluation and Evidence-Informed Respite Programs](https://archrespite.org/library/using-data-to-successfully-drive-your-program-program-evaluation-and-evidence-informed-respite-programs/) - From the 2011 National Respite Conference, Glendale, AZ. Presented By: MaryJo Alimena Caruso, CareBreak and the Pennsylvania Respite Coalition and Jennifer Abernathy, Tennessee Respite Coalition
- [Performance vs. Evaluation](https://archrespite.org/library/performance-vs-evaluation/) - 2010 Lifespan Respite Grantee and Partner Meeting, Baltimore, MD. Presented by: Valerie Cook, Office of Performance and Evaluation, Administration on Aging, US Dept. of Health and Human Services, Washington.
- [Utilizing Collaboration Theory to Evaluate Strategic Alliances](https://archrespite.org/library/utilizing-collaboration-theory-to-evaluate-strategic-alliances/) - By Rebecca Gajda Abstract: Increasingly, collaboration between business, non-profit, health and educational agencies is being championed as a powerful strategy to achieve a vision otherwise not possible when independent entities work alone. But the definition of collaboration is elusive and it is often difficult for organizations to put collaboration into practice and assess it with
- [Evaluating Organizational Collaborations: Suggested Entry Points and Strategies](https://archrespite.org/library/evaluating-organizational-collaborations-suggested-entry-points-and-strategies/) - Abstract: Collaboration is a widely utilized strategy for addressing complex social issues and for facilitating organizational innovation and performance. Evaluators are uniquely positioned to empirically examine the development and effects of interagency and interprofessional collaboration. In this article, the authors present the Collaboration Evaluation and Improvement Framework (CEIF), an extension of earlier work in collaboration
- [Finance Project Logic Model](https://archrespite.org/library/finance-project-logic-model/) - Posted with permission from The Finance Project
- [Cultural Adaptations in Respite and Caregiving Support](https://archrespite.org/library/cultural-adaptations-in-respite-and-caregiving-support/) - Lifespan Respite Grantee and Partner Learning Symposium July 15, 2021 Presented By: Lauren L Parker, PhD, MPH Assistant Scientist Department of Health, Behavior and Society Johns Hopkins Bloomberg School of Public Health
- [Caregiver Wellness Initiative](https://archrespite.org/library/caregiver-wellness-initiative/) - From Alabama Lifespan Respite To further support the total wellbeing of unpaid, full-time family caregivers statewide, Alabama Lifespan Respite has established the Caregiver Wellness Initiative (CWI) to provide funds specifically for free mental health counseling to caregivers currently enrolled with any Alabama Lifespan Respite reimbursement program.
- [Respite Voucher Program Flyer from Mississippi](https://archrespite.org/library/respite-voucher-program-flyer-from-mississippi/) - Example flyer about respite vouchers.
- [Arkansas Lifespan Respite Infographic](https://archrespite.org/library/arkansas-lifespan-respite-infographic/) - Example infographic from Arkansas Lifespan Respite.
- [A Survey of Informal Caregivers in New York City](https://archrespite.org/library/a-survey-of-informal-caregivers-in-new-york-city/) - Study by the New York City Department for the Aging
- [A Practical Guide to Respite for Your Family](https://archrespite.org/library/a-practical-guide-to-respite-for-your-family/) - By Molly Dellinger-Wray and Monica Uhl with the Partnership for People with Disabilities (formerly the Virginia Institute for Developmental Disabilities), a university-affiliated program at Virginia Commonwealth University.
- [Get Creative About Respite: A Parent's Guide](https://archrespite.org/library/get-creative-about-respite-a-parents-guide/) - This book is written and compiled by members of the Connecticut Lifespan Respite Coalition, Inc.
- [What You Need to Know About ME: A Child/Adolescent Guide for Families and Caregivers](https://archrespite.org/library/what-you-need-to-know-about-me-a-child-adolescent-guide-for-families-and-caregivers/) - This notebook is adapted for children from material that was written for seniors by Susan R. Carlton, Executive Director, The South Carolina Respite Coalition Norma S. Sessions, Training/Development Director, The (SC) Center for Child and Family Studies. Funding for this project was provided to Connecticut Lifespan Respite Coalition, Inc. through the Connecticut Department of Public
- [Finding Caregivers  & Respite Providers](https://archrespite.org/library/finding-caregivers-respite-providers/) - From the South Carolina Respite Coalition. Finding a good caregiver is often difficult. Many people decide to go out for dinner, take a quiet walk, run errands, or attend a sports activity, then consider their choices and plan for respite care. But what if you have no plan? Planning ahead and putting in the time
- [A Respite Care Notebook](https://archrespite.org/library/a-respite-care-notebook/) - By the Child Neurology Foundation
- [Respite Care Guide: Finding What's Best for You](https://archrespite.org/library/respite-care-guide-finding-whats-best-for-you/) - From the Alzheimer's Association. Everyone needs a break. If you are a caregiver, you may need a break from caregiving tasks. If you have dementia, you may want a break from the daily routine and have the opportunity to meet others who share some of the same challenges. Respite care can help, by providing a
- [Medicare Advantage 2020 Infographic](https://archrespite.org/library/medicare-advantage-2020-infographic/)
- [Risk Management](https://archrespite.org/library/risk-management/) - Details the liability risk to programs and provides five steps for managing those risks. Points out the value of sound agency structure as a risk management tool, the need for a risk management policy statement, and ways to address parental concerns and confidentiality. Written by Becky Montgomery, planner, consultant, and trainer in child abuse and
- [Respite for Families Caring for Children Who Are Medically Fragile](https://archrespite.org/library/respite-for-families-caring-for-children-who-are-medically-fragile/) - Medically complex or medically fragile infants and children have numerous medical needs resulting from multiple chronic conditions, technology dependence, and/or complex medication treatments. This fact sheet is intended to provide a basic overview of useful information for respite providers who work with individuals and families with children who are medically fragile. It is also meant to
- [Aging Resources for Seniors' Equity](https://archrespite.org/library/aging-resources-for-seniors-equity/) - Four Best Practices for Working with Diverse Older Adults. From the National Consortium on Aging.
- [Siblings of Children with Special Health and Developmental Needs](https://archrespite.org/library/siblings-of-children-with-special-health-and-developmental-needs/) - Discussion of the typical concerns of sisters and brothers and how to create programs that address their specific needs. Provides a checklist for organizations to assess their inclusion of sisters and brothers. Written by Donald Meyer, Director, Sibling Support Project.
- [Respite for Adults with Mental Health Disorders](https://archrespite.org/library/respite-for-adults-with-mental-health-disorders/) - Because of the unique nature of their respite needs, this fact sheet focuses on respite for family caregivers of individuals with mental health issues who are between the ages of 18 and 60. It is meant to assist state agencies, Lifespan Respite grantees and their collaborators, and respite providers by increasing their understanding of the
- [Respite for Adoptive Families](https://archrespite.org/library/respite-for-adoptive-families/) - Respite, a short break for caregivers and their families, is an important support service for parents who have adopted a child. It is particularly important for families who adopt a child with developmental, health related, or emotional needs, or one who has experienced abuse or neglect. This fact sheet provides strategies to help respite providers
- [Study of Four Lifespan Respite Programs](https://archrespite.org/library/study-of-four-lifespan-respite-programs/) - In 2004, ARCH endeavored to secure the most current information about the existing State Lifespan Respite Programs by conducting state surveys and follow-up interviews. While only four states had implemented State Lifespan Programs (OR, NE, WI, OK) by that time, several salient findings emerged from early lessons learned. These four programs became best practices upon
- [The OK and SC Lifespan Respite Voucher Programs](https://archrespite.org/library/the-ok-and-sc-lifespan-respite-voucher-programs/) - An ARCH Voucher Learning Collaborative Webinar Presenters: Robyn A. Boswell Special Programs Coordinator Sooner SUCCESS Respite Voucher Programs/Sibshops Oklahoma City, OK Rachal Hatton Executive Director SC Respite Coalition Columbia, SC
- [COVID-19 Case Study: Channel Islands Social Services (Camarillo, CA)](https://archrespite.org/library/covid-19-case-study-channel-islands-social-services-camarillo-ca/) - Channel Islands Social Services (CISS) is a family-operated organization founded in 2004 with funding provided through Tri-Counties Regional Center (TCRC) and North Los Angeles County Regional Center (NLACRC). CISS provides in-home respite services1 for families caring for a child or adult relative with special needs (defined specifically as a developmental disability such as Autism Spectrum

## Bibliography

- [Family and Friends as Respite Providers](https://archrespite.org/bibliography/family-and-friends-as-respite-providers/) - Study Aim/Purpose: The purpose of this study was to compare the in-home respite experiences of caregivers using the direct pay mode of California’s Caregiver Resource Centers (CRCs) respite program (which is consumer-directed and gives caregivers vouchers to hire and manage their own respite workers) to pay family or friends to provide respite with caregivers who
- [The effectiveness and cost-effectiveness of respite for caregivers of frail older people.](https://archrespite.org/bibliography/the-effectiveness-and-cost-effectiveness-of-respite-for-caregivers-of-frail-older-people/) - Study Aim/Purpose: The authors’ aim was to conduct a systematic review of the literature on the effectiveness and cost-effectiveness of community-based respite for caregivers of frail older people. Summary of Methods: Authors searched 37 databases for studies from 1980 through March 2005, including databases of systematic reviews, old age and aging, health and social care,
- [How effective are dementia caregiver interventions? An updated comprehensive meta-analysis](https://archrespite.org/bibliography/how-effective-are-dementia-caregiver-interventions-an-updated-comprehensive-meta-analysis/) - Study Aim/Purpose: The purpose of this paper was to update a 2006 meta-analysis of interventions for caregivers of persons with dementia that was conducted by Pinquart and Sorensen. The analysis sought to determine the average effects of interventions for caregivers of individuals with dementia on caregivers and their care recipients, how these effects differ between
- [Children with medical complexity: a scoping review of interventions to support caregiver stress](https://archrespite.org/bibliography/children-with-medical-complexity-a-scoping-review-of-interventions-to-support-caregiver-stress/) - Study Aim/Purpose: The authors conducted this review to identify and describe the full range of published studies on interventions for reducing the stress of caregivers of children with medical complexity (CMC). Summary of Methods: The authors conducted a broad systematic “scoping” review of the Cumulative Index to Nursing and Allied Health Literature (CINAHL), Ovid Medline,
- [Adult day center programs and their associated outcomes on clients, caregivers, and the health system: a scoping review](https://archrespite.org/bibliography/adult-day-center-programs-and-their-associated-outcomes-on-clients-caregivers-and-the-health-system-a-scoping-review/) - Study Aim/Purpose: The purpose of this paper was to summarize findings and identify gaps in the literature evaluating outcomes of stand-alone adult day center (ADC) programs serving older adults in the community. Summary of Methods: The authors conducted a scoping review of evaluations of standalone ADCs published in English from 2004 through October 2014 searching
- [Effectiveness of day care in supporting family caregivers of people with dementia: A systematic review](https://archrespite.org/bibliography/effectiveness-of-day-care-in-supporting-family-caregivers-of-people-with-dementia-a-systematic-review/) - Study Aim/Purpose: The purpose of this paper was to summarize literature on the strategies used in day care for supporting family caregivers of people with dementia, as well as their effects on family caregiver burden, coping strategies, and quality of life. Summary of Methods: The authors conducted a systematic review of literature published In English
- [The effectiveness of adult day services for older adults: A review of the Literature from 2000 to 2011](https://archrespite.org/bibliography/the-effectiveness-of-adult-day-services-for-older-adults-a-review-of-the-literature-from-2000-to-2011/) - Study Aim/Purpose: The aim of the study was to summarize literature from 2000-2011 on Adult Day Services (ADS) effectiveness and make recommendations for future research. The study was intended to update a similar review conducted by Gaugler and Zarit in 2001. Summary of Methods: The researchers summarized findings from published qualitative and quantitative, peer-reviewed English
- [The influence of day care centers for people with dementia on family caregivers: An integrative review of the literature](https://archrespite.org/bibliography/the-influence-of-day-care-centers-for-people-with-dementia-on-family-caregivers-an-integrative-review-of-the-literature/) - Study Aim/Purpose: The aim of the study was to summarize and analyze existing research on the influence of adult day care centers (DCCs) for people with dementia on family caregivers. Summary of Methods: The review used an integrative review framework to summarize findings of peer-reviewed published qualitative and quantitative studies located through searches of Pub
- [The impacts of short break provision on families with a disabled child: an international literature review](https://archrespite.org/bibliography/the-impacts-of-short-break-provision-on-families-with-a-disabled-child-an-international-literature-review/) - Study Aim/Purpose: This international literature review aims to assess the existing research evidence concerning the impacts of short breaks on families with disabled children. Summary of Methods: The authors conducted electronic literature searches using ASSIA, PsycInfo, CINAHL, and Web of Science, and also sent requests for information to select email lists. Summary of Key Results:
- [Carer interventions: An overview of service effectiveness](https://archrespite.org/bibliography/carer-interventions-an-overview-of-service-effectiveness/) - Study Aim/Purpose: This is a summary of caregiver interventions and their effectiveness for the following major types of interventions: (1) information and education, (2) psychoeducation, (3) respite care, (4) counseling, (5) peer support, (6) the use of technology, and (7) multicomponent interventions. Summary of Methods: The paper summarizes information from 75 research studies and literature
- [Dementia care costs and outcomes: a systematic review](https://archrespite.org/bibliography/dementia-care-costs-and-outcomes-a-systematic-review/) - Study Aim/Purpose: The purpose of this article was to review available literature evaluating the cost effectiveness of dementia care prevention, care and treatment strategies. Summary of Methods: The authors conducted an electronic search for published articles from 2005 and a web search of articles from 2000 onward evaluating interventions for people with dementia or their
- [The effect of caregiver support interventions for informal caregivers or community-dwelling frail elderly: a systematic review](https://archrespite.org/bibliography/the-effect-of-caregiver-support-interventions-for-informal-caregivers-or-community-dwelling-frail-elderly-a-systematic-review/) - Study Aim/Purpose: The aim of the review was to summarize research on the effectiveness of caregiver interventions targeting informal caregivers of frail elderly living in the community. Summary of Methods: In September 2010, the authors conducted a systematic search in Medline, sychINFO, Ovid Nursing Database, Cinahl, Embase, Cochrane Central Register of Controlled Trials, and British
- [Re-thinking the nature of day programs for people with dementia: Implications for research](https://archrespite.org/bibliography/re-thinking-the-nature-of-day-programs-for-people-with-dementia-implications-for-research/) - Study Aim/Purpose: This was a literature review to seeking to identify weaknesses in past research that could help improve future research on day programs for people with dementia to better inform policy and practice. Specifically, the review sought to identify prevailing assumptions about the purpose and structure of day programs for people with dementia, as
- [Respite care for caregivers and people with severe mental illness: literature review](https://archrespite.org/bibliography/respite-care-for-caregivers-and-people-with-severe-mental-illness-literature-review/) - Study Aim/Purpose: To review research literature on respite for people affected by severe mental illness and identify implications for nursing practice. Summary of Methods: An initial literature search was undertaken using the key words ‘respite’, ‘short-term care’, ‘shared care’ and ‘day care’ for literature published in English between 1967-2002 in PsycINFO, CINAHL, Sociological Abstracts, APAIS
- [Literature review: Use of respite by carers of people with dementia](https://archrespite.org/bibliography/literature-review-use-of-respite-by-carers-of-people-with-dementia/) - Study Aim/Purpose: The review summarizes research findings on factors affecting respite use and outcomes for carers of people with dementia living in the community. Summary of Methods: The authors conducted a search of English language articles from Australasia, the United States, Canada, United Kingdom, and Europe primarily using EBSCOhost via CIAHL, MEDLINE, and PsycINFO databases
- [What are the consequences of caring for older people and what interventions are effective for supporting unpaid carers? A rapid review of systematic reviews.](https://archrespite.org/bibliography/what-are-the-consequences-of-caring-for-older-people-and-what-interventions-are-effective-for-supporting-unpaid-carers-a-rapid-review-of-systematic-reviews/) - Study Aim/Purpose: The authors conducted a review and synthesis of published systematic literature reviews on available findings and gaps in the literature on the impact of caring for older adults on unpaid caregivers and interventions that aim to improve their health and well-being. Summary of Methods: The authors conducted “a rapid review” of systematic reviews
- [Respite Care for Children with Complex Care Needs: A Literature Review.](https://archrespite.org/bibliography/respite-care-for-children-with-complex-care-needs-a-literature-review/) - Study Aim/Purpose: This study aimed to identify and summarize findings from qualitative research on parental perceptions and evaluation of respite care services for their children with complex needs. Summary of Methods: The authors conducted a systematic search of research conducted from 2010-2019, using six databases: Medline, Cumulative Index of Nursing and Allied Health Literature (CIHAHL),
- [Respite care and short breaks for young adults aged 18-40 with complex health-care needs: mixed-methods systematic review and conceptual framework development.](https://archrespite.org/bibliography/respite-care-and-short-breaks-for-young-adults-aged-18-40-with-complex-health-care-needs-mixed-methods-systematic-review-and-conceptual-framework-development/) - Study Aim/Purpose: The authors’ review focused on respite care and short breaks for young adults aged 18-40 with complex medical needs, examining extant literature on the services provided, policies, service effectiveness and cost-effectiveness, and the experience of the target population. Summary of Methods: The authors searched 14 different electronic databases, additional databases on the Cochrane
- [Mediating effects of social support on caregiver burden and quality of life for compound and noncompound caregivers](https://archrespite.org/bibliography/mediating-effects-of-social-support-on-caregiver-burden-and-quality-of-life-for-compound-and-noncompound-caregivers/) - Study Aim/Purpose: The aim of this study is to examine the mediating effects of informal social support on the relationship between caregiver burden and quality of life for parents who care for only one adult child with Autism Spectrum Disorder (ASD) (noncompound caregivers) and those who provide care to multiple recipients (compound caregivers). Summary of
- [Staff and family views of alternative respite services for adults with intellectual disabilities – aims, outcomes and experiences](https://archrespite.org/bibliography/staff-and-family-views-of-alternative-respite-services-for-adults-with-intellectual-disabilities-aims-outcomes-and-experiences/) - Study Aim/Purpose: This study explored the perceptions and experiences of respite service managers and family members regarding six models of respite services recently funded in Ireland to promote greater social integration and normalization of people with intellectual disabilities (ID). These respite models were funded specifically to provide alternatives to overnight stays at a facility, which
- [The impact of respite care from the perspectives and experiences of people with amyotrophic lateral sclerosis and their care partners: A qualitative study](https://archrespite.org/bibliography/the-impact-of-respite-care-from-the-perspectives-and-experiences-of-people-with-amyotrophic-lateral-sclerosis-and-their-care-partners-a-qualitative-study/) - Study Aim/Purpose: The purpose of this study was to explore the experiences of persons with amyotrophic lateral sclerosis (ALS) and their care partners with caregiving and respite care, as well as the perceived effects of in-home respite care. Summary of Methods: Thirty-one dyads of people with ALS and their partners who provide care to them
- [A music therapy respite program for caregivers of individuals with memory loss](https://archrespite.org/bibliography/a-music-therapy-respite-program-for-caregivers-of-individuals-with-memory-loss/) - Study Aim/Purpose: This study aimed to describe the benefits of participation in a community-based drop-in music therapy program (Music Therapy Respite) offered weekly from April – July 2018 to adults ages 64 to 91 with memory loss. Summary of Methods: Researchers collected 128 total survey responses over 23 sessions in a four- month period. The
- [Dementia caregiver virtual support−An implementation evaluation of two pragmatic models during COVID-19](https://archrespite.org/bibliography/dementia-caregiver-virtual-support−an-implementation-evaluation-of-two-pragmatic-models-during-covid-19/) - Study Aim/Purpose: This article describes the design and implementation of two support programs in Tennessee that began providing online sessions for caregivers of persons with Alzheimer’s and related dementias (ADRD) during the COVID-19 pandemic. The first was the Caregivers First program, which served caregivers of veterans, and the second was the Alzheimer’s Tennessee program, which
- [Cost-effectiveness of an in-home respite care program to support informal caregivers of persons with dementia:  A model-based analysis](https://archrespite.org/bibliography/cost-effectiveness-of-an-in-home-respite-care-program-to-support-informal-caregivers-of-persons-with-dementia-a-model-based-analysis/) - Study Aim/Purpose: This study sought to determine the cost-effectiveness of an in-home respite care program administered by a nonprofit organization in Belgium. Summary of Methods: To determine cost-effectiveness, the study compared costs of care and quality of life years (QALYs) for an in-home respite care program plus standard community-based dementia care to a standard community-based
- [Does adult day service use improve well-being of Black caregivers of people living with dementia?](https://archrespite.org/bibliography/does-adult-day-service-use-improve-well-being-of-black-caregivers-of-people-living-with-dementia/) - Study Aim/Purpose: The purpose of this study was to examine the association between the use of adult day services (ADS) and depressive symptoms among Black caregivers of people living with dementia. Summary of Methods: The researchers conducted a cross-sectional study using data collected as part of baseline surveys of 135 Black caregivers in two intervention
- [Two different primary care approaches for caring for people with dementia and their families](https://archrespite.org/bibliography/two-different-primary-care-approaches-for-caring-for-people-with-dementia-and-their-families/) - Study Aim/Purpose: The authors compare the experience and perspectives of primary care providers using the widely disseminated New Zealand Framework for Dementia Care to that of primary care providers in Vermont working in a statewide, value-based all-payer accountable-care system. Summary of Methods: The authors conducted semi-structured interviews with five general practitioners (GPs) from two regions
- [Daily sleep, well-being, and adult day services use among dementia care dyads](https://archrespite.org/bibliography/daily-sleep-well-being-and-adult-day-services-use-among-dementia-care-dyads/) - Study Aim/Purpose: The study aimed to describe the daily sleep characteristics over several days among persons living with dementia (PLWD) and their caregivers, and how these characteristics differ before and after a day of adult day services (ADS) use compared to before and after a non-ADS use day. The study also examined the association of
- [The Effects of in-Home Respite Care on the Burden of Caregivers in Taiwan](https://archrespite.org/bibliography/the-effects-of-in-home-respite-care-on-the-burden-of-caregivers-in-taiwan/) - Study Aim/Purpose: The purpose of this study was to investigate the effects on caregiver burden of in-home respite care for older adults, offered under Taiwan’s National Ten-Year Long-Term Plan 1.0. Under this program, staff evaluate care recipients’ functional disability level based on activities of daily living (ADLs) and instrumental activities of daily living (IADLs). Caregivers
- [Respite services utilization and self-rated health of older family caregivers in the United States: Differences between young-old and old-old caregivers](https://archrespite.org/bibliography/respite-services-utilization-and-self-rated-health-of-older-family-caregivers-in-the-united-states-differences-between-young-old-and-old-old-caregivers/) - Study Aim/Purpose: This study aimed to examine respite service use and its relationship to self-rated health of older family caregivers in the United State and how this relationship might differ by their age. Summary of Methods: Authors conducted a cross-sectional study using data from the nationally representative 13th National Survey of Older Americans Act Participants,
- [Perceived role overload and physical symptom experience among caregivers of older adults: The moderating effect of social support](https://archrespite.org/bibliography/perceived-role-overload-and-physical-symptom-experience-among-caregivers-of-older-adults-the-moderating-effect-of-social-support/) - Study Aim/Purpose: This study examined associations between perceived role overload and negative physical symptoms among caregivers who provide health-related assistance to older persons. It also examined the potential moderating effects of informal and formal support resources on these associations. Summary of Methods: The researchers analyzed data from surveys of 1,471 primary caregivers from the 2017
- [A group respite pilot project for children with special needs](https://archrespite.org/bibliography/a-group-respite-pilot-project-for-children-with-special-needs/) - Study Aim/Purpose: This paper describes feedback from caregivers and program staff on a pilot group out-of-home respite program for children with special needs, including those with physical, cognitive and/or developmental impairments. The pilot involved monthly four-hour out-of-home group respite care sessions for children with physical, cognitive and/or developmental impairment, as well as in-home visits. Nursing
- [Uplifts, respite, stress, and marital quality of parents raising children with Downs Syndrome or Autism](https://archrespite.org/bibliography/uplifts-respite-stress-and-marital-quality-of-parents-raising-children-with-downs-syndrome-or-autism/) - Study Aim/Purpose: This study examined associations between perceived pleasant experiences (referred to as “uplifts”) and amount of respite care used on reported stress and marital quality among mothers and fathers of children with autism spectrum disorder (ASD) and Down Syndrome (DS). Summary of Methods: This cross-sectional study collected information using a survey of heterosexual married
- [Comprehensive Support for Family Caregivers: Impact on Veteran Health Care Utilization and Costs](https://archrespite.org/bibliography/comprehensive-support-for-family-caregivers-impact-on-veteran-health-care-utilization-and-costs/) - Study Aim/Purpose: This study examines the early impact of a Veterans Administration program called the Program of Comprehensive Assistance for Family Caregivers (PCAFC).1 Summary of Methods: This study used a quasi-experimental pre/post retrospective cohort design, comparing veteran health care utilization and costs at six month intervals for up to 36 months between two groups: (1)
- [Comprehensive Support for Family Caregivers of Post-9/11 Veterans Increases Veteran Utilization of Long-term Services and Supports: A Propensity Score Analysis](https://archrespite.org/bibliography/comprehensive-support-for-family-caregivers-of-post-9-11-veterans-increases-veteran-utilization-of-long-term-services-and-supports-a-propensity-score-analysis/) - Study Aim/Purpose: This study examined trends in the use of VA-purchased long-term services and supports (LTSS) to determine whether there is an association between participation in the Veterans’ Administration (VA)’s Program of Comprehensive Assistance for Family Caregivers (PCAFC)1 and Veteran use of home and community based services (HCBS) and institutional LTSS. Summary of Methods: This
- [Crisis nursery services and foster care prevention: An exploratory study](https://archrespite.org/bibliography/crisis-nursery-services-and-foster-care-prevention-an-exploratory-study/) - Study Aim/Purpose: This study explored the relationship between receipt of short-term crisis nursery services, including case management and parenting education, and children’s subsequent foster care placement. Summary of Methods: This was a cross-sectional study examining administrative data on 186 families and their 322 children who received crisis nursery services in Cleveland, Ohio, between 2006 and
- [Perceptions of effective support services to families with disabled children whose behavior is severely challenging: A multi-informant study.](https://archrespite.org/bibliography/perceptions-of-effective-support-services-to-families-with-disabled-children-whose-behavior-is-severely-challenging-a-multi-informant-study/) - Study Aim/Purpose: The purpose of the study was to identify how “specialist short break and community support services programs” administered by Action for Children in three United Kingdom cities were perceived to meet the needs of families whose children are disabled and have severely challenging behaviors. “Family support services from these programs consist mostly of
- [Crisis nurseries: Important services in a system of care for families and children](https://archrespite.org/bibliography/crisis-nurseries-important-services-in-a-system-of-care-for-families-and-children/) - Study Aim/Purpose: This study sought to describe the program participants and services and begin to e the impact of crisis nurseries for children and families in Illinois. Summary of Methods: This cross sectional study analyzed administrative data reported by five crisis nurseries to the Illinois Department of Human Services for State fiscal years 2001, 2002
- [A pre-test and post-test study of the physical and psychological effects of out-of-home respite care on caregivers of children with life-threatening conditions](https://archrespite.org/bibliography/a-pretest-and-post-test-study-of-the-physical-and-psychological-effects-of-out-of-home-respite-care-on-caregivers-of-children-with-life-threatening-conditions/) - Study Aim/Purpose: This study sought to measure the association between planned, overnight out-of-home hospice respite stays on parental caregivers fatigue level, psychological adjustment, quality of life, and relationship satisfaction. Summary of Methods: This study surveyed parental caregivers whose children spent an average of four days in Very Special Kids (VSK), out-of-home overnight hospice setting for
- [Respite care, stress, uplifts, and marital quality in parents of children with Down syndrome](https://archrespite.org/bibliography/respite-care-stress-uplifts-and-marital-quality-in-parents-of-children-with-down-syndrome/) - Study Aim/Purpose: This study’s primary purpose was to examine the relationship between respite care use and wives’ and husbands’ perception of their marital quality. It also sought to assess wife and husband stress and uplifts (defined as positive experiences) as possible mediating variables of the relationship between respite care and perceived marital quality. Summary of
- [Outcomes from a randomized controlled trial of the Relief Nursery program](https://archrespite.org/bibliography/outcomes-from-a-randomized-controlled-trial-of-the-relief-nursery-program/) - Study Aim/Purpose: This study examined the impacts of the Relief Nursery program, established in the mid-1970s in the Eugene-Springfield community of Oregon. The program is designed to provide a comprehensive array of family support services to low-income families at risk of child abuse and neglect, including home visiting, parent education and a therapeutic early childhood
- [The impact of formal and informal respite care on foster, adoptive, and kinship parents caring for children involved in the child welfare system](https://archrespite.org/bibliography/the-impact-of-formal-and-informal-respite-care-on-foster-adoptive-and-kinship-parents-caring-for-children-involved-in-the-child-welfare-system/) - Study Aim/Purpose: This study explored the utilization of formal and informal respite services by foster, adoptive and kinship parents, as well as the association between each of these kinds of respite on family experiences, ability to care for their children, and stress levels. Summary of Methods: Using a cross sectional study design, the authors conducted
- [Respite care for single mothers of children with autism spectrum disorders](https://archrespite.org/bibliography/respite-care-for-single-mothers-of-children-with-autism-spectrum-disorders/) - Study Aim/Purpose: This study sought to measure how use of respite care was associated with depression levels among single mothers of children with autism spectrum disorders (ASD). Summary of Methods: This was a cross-sectional study with a sample of 122 single mothers who had at least one child with ASD. Mothers were recruited to complete
- [A comparative cost-minimization analysis of providing pediatric palliative respite care before and after the opening of services at a pediatric hospice](https://archrespite.org/bibliography/a-comparative-cost-minimization-analysis-of-providing-pediatric-palliative-respite-care-before-and-after-the-opening-of-services-at-a-pediatric-hospice/) - Study Aim/Purpose: This study sought to analyze changes in costs for the Children’s Hospital of Eastern Ontario (CHEO) ( a regional pediatric health care system in Canada) resulting from the provision of palliative hospice respite care for children with life-limiting illness (provided at a new 8-bed pediatric residential hospice adjacent to the hospital called Roger’s
- [Respite Care: Outcomes for Kinship and Non-Kinship Caregivers](https://archrespite.org/bibliography/respite-care-outcomes-for-kinship-and-non-kinship-caregivers/) - Study Aim/Purpose: This study, conducted “in a large urban area of a western state” sought to examine the outcomes associated with use of formal respite care services by kinship, foster, and adoptive caregivers of children with special needs involved in the child welfare system. Summary of Methods: The study involved 71 adult kinship caregivers, adoptive,
- [Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: evidence from an evaluation](https://archrespite.org/bibliography/dilemmas-in-the-provision-of-own-home-respite-support-for-parents-of-young-children-with-complex-health-care-needs-evidence-from-an-evaluation/) - Study Aim/Purpose: To examine parent responses and effects of a nurse-led in-home respite support service for parents of young children with complex health care needs. Summary of Methods: This is a qualitative study involving interviews with 18 families. Parents were interviewed using semi-structured topic guides at three time points: immediately after their assessment (but before
- [The influence of respite care on psychological distress in parents of children with developmental disabilities: a longitudinal study](https://archrespite.org/bibliography/the-influence-of-respite-care-on-psychological-distress-in-parents-of-children-with-developmental-disabilities-a-longitudinal-study/) - Study Aim/Purpose: The purpose of this study was to examine the benefits of inpatient respite services for children with developmental disabilities and their parents. Summary of Methods: The study used a quasi-experimental pre-post design comparing survey responses for families who applied for and received 3-7 day inpatient services at a center for developmental disabilities in
- [Summer camps for chronically ill children: a source of respite care for mothers](https://archrespite.org/bibliography/summer-camps-for-chronically-ill-children-a-source-of-respite-care-for-mothers/) - Study Aim/Purpose: The study’s purpose was to examine psychosocial benefits for mothers of a one-week overnight summer camp for chronically ill children. The authors note that “this study is the first to empirically examine camp as overnight respite care for mothers of children with chronic illnesses. In addition, the large sample size and longitudinal design
- [The interplay of outpatient services and psychiatric hospitalization among Medicaid-enrolled children with autism spectrum disorders](https://archrespite.org/bibliography/the-interplay-of-outpatient-services-and-psychiatric-hospitalization-among-medicaid-enrolled-children-with-autism-spectrum-disorders/) - Study Aim/Purpose: The study’s aim was to examine whether increasing outpatient respite and therapeutic services resulted in reduced use of psychiatric hospitalizations among children with autism spectrum disorders (ASDs) Summary of Methods: The authors used a retrospective cohort study to examine the association of respite and therapeutic outpatient service use in the preceding 60 days
- [Respite Care, Marital Quality, and Stress in Parents of Children with Autism Spectrum Disorders](https://archrespite.org/bibliography/respite-care-marital-quality-and-stress-in-parents-of-children-with-autism-spectrum-disorders/) - Study Aim/Purpose: The purpose of this study was to examine the relationship between receipt of respite care and quality of marriage for couples with a child with autism spectrum disorders (ASD), with wife and husband stress and daily uplifts as potential mediating variables Summary of Methods: Data were collected from 101 married heterosexual couples of
- [The impact on families of respite care in a children's hospice program](https://archrespite.org/bibliography/the-impact-on-families-of-respite-care-in-a-childrens-hospice-program/) - Study Aim/Purpose: This study seeks to describe how parents viewed the strengths and limitations of the respite component of a children’s hospice program (Canuck Place, Vancouver, British Columbia) during its first 30 months of operation. Summary of Methods: This was a qualitative study involving in-person interviews with 18 parents and completed mail surveys from 65
- [Effects of respite care for children with developmental disabilities: evaluation of an intervention for at-risk families](https://archrespite.org/bibliography/effects-of-respite-care-for-children-with-developmental-disabilities-evaluation-of-an-intervention-for-at-risk-families/) - Study Aim/Purpose: This study sought to examine the effects of respite care on parental stress and the relationships between levels of respite service use, parental stress, and other parental characteristics on their children’s foster care placement and maltreatment rates. Summary of Methods: Eighty-seven (87) parents completed the Parenting Stress Index (PSI) questionnaire before and after
- [A Break from Caring for a Disabled Child: Parent Perceptions of the Uses and Benefits of Short Break Provision in England.](https://archrespite.org/bibliography/a-break-from-caring-for-a-disabled-child-parent-perceptions-of-the-uses-and-benefits-of-short-break-provision-in-england/) - Study Aim/Purpose: This paper examined perspectives of parents of children with disabilities on the provision of respite services through the Programme Aiming High for Disabled Children Short Breaks Pathfinder in England. In this program respite services are called “short breaks.” In this program, the term is used to describe a range of services for disabled
- [Crisis nursery effects on child placement after foster care](https://archrespite.org/bibliography/crisis-nursery-effects-on-child-placement-after-foster-care/) - Study Aim/Purupse: This study investigated the effect of crisis nursery services on the length of stay infants and young children in foster care and other differences in placement outcomes when child welfare services were terminated. Summary of Methods: of Using Illinois state program data, the study authors compared foster care length and placement outcomes for
- [Crisis nursery outcomes for caregivers served at multiple sites in Illinois](https://archrespite.org/bibliography/crisis-nursery-outcomes-for-caregivers-served-at-multiple-sites-in-illinois/) - Study Aim/Purpose: This study used aggregate administrative data from the Illinois Department of Human Services (IDHS) to assess the effects of crisis nursery services on individual caregiver service recipients. Summary of Methods: This study used a cross sectional design to analyze the response of caregivers regarding the effect of crisis nursery services on parental stress,
- [How is taking care of caregivers of children with disabilities related to academic achievement?](https://archrespite.org/bibliography/how-is-taking-care-of-caregivers-of-children-with-disabilities-related-to-academic-achievement/) - Study Aim/Purpose: This article summarizes re 38: 91102. search conducted using longitudinal national survey data to examine the association between receipt of respite care and academic achievement of children with disabilities. Summary of Methods: The research was conducted using survey responses from three time points Special Education Elementary Longitudinal Study This longitudinal national survey, supported
- [The relationship between respite care and child abuse potential in parents of children with developmental disabilities: A preliminary report.](https://archrespite.org/bibliography/the-relationship-between-respite-care-and-child-abuse-potential-in-parents-of-children-with-developmental-disabilities-a-preliminary-report/) - Study Aim/Purpose: The study’s aim was to examine the longitudinal impact of short-term inpatient respite care services on child abuse potential and family relationships among parents of children with developmental disabilities. Summary of Methods: Researchers employed a quasi-experimental pre-post design comparing outcomes among a sample of 14 parents or primary caregivers of children and adolescents
- [Exploring the benefits of respite services to family caregivers: methodological issues and current findings](https://archrespite.org/bibliography/exploring-the-benefits-of-respite-services-to-family-caregivers-methodological-issues-and-current-findings/) - Study Aim/Purpose: This literature review focuses on methodological issues that have impeded reliable and valid research studies involving respite care. There is special emphasis on how these methodological issues affect conducting research and practice settings, and how these issues may limit, or in some cases should limit the research designs available to conduct outcome studies.
- [Past is prologue: How to advance caregiver interventions](https://archrespite.org/bibliography/past-is-prologue-how-to-advance-caregiver-interventions/) - Study Aim/Purpose: This article is a retrospective overview of research on caregiver interventions to highlight strengths and weaknesses and identify conceptual and methodological issues that could lead to better treatment outcomes. Summary of Methods: The author provided a critical review of the literature of caregiver interventions, drawing examples from studies of psychosocial interventions for caregivers
- [Respite care and stress among caregivers of children with autism spectrum disorder: an integrative review](https://archrespite.org/bibliography/respite-care-and-stress-among-caregivers-of-children-with-autism-spectrum-disorder-an-integrative-review/) - Study Aim/Purpose: The aim of this paper was to review existing primary research studies examining the relationship between respite care and stress among caregivers of children with autism spectrum disorder (ASD). Summary of Methods: The review used an integrative review framework to identify English language studies published within the last 10 years that used either
- [Effectiveness of respite care in supporting informal caregivers of persons with dementia: A systematic review](https://archrespite.org/bibliography/effectiveness-of-respite-care-in-supporting-informal-caregivers-of-persons-with-dementia-a-systematic-review/) - Study Aim/Purpose: This study was designed as a systematic review of studies on the impact of respite care for caregivers of persons with dementia. Summary of Methods: The authors conducted a systematic search of articles published since 2000 on the effect of respite care on caregivers, care recipients or health care resource use, where the
- [Respite care for families of special needs children: A systematic review](https://archrespite.org/bibliography/respite-care-for-families-of-special-needs-children-a-systematic-review/) - Study Aim/Purpose: The author sought to identify the common findings of quantitative and qualitative studies of respite care for families of children with disabilities. Summary of Methods: A keyword search was conducted to identify studies conducted in the United States, Australia and the United Kingdom. The following electronic databases were searched: Cochrane Database of Systematic
- [Systematic review of respite care in the frail elderly](https://archrespite.org/bibliography/systematic-review-of-respite-care-in-the-frail-elderly/) - Study Aim/Purpose: This article provides a systematic review of published studies up through 2008. The review includes quantitative studies on the effectiveness and cost-effectiveness of respite on the well-being of informal caregivers of frail and disabled adults aged 65 years and older who live in the community. The review also summarizes findings of qualitative studies
- [Helping caregivers of persons with dementia: which interventions work and how large are their effects?](https://archrespite.org/bibliography/helping-caregivers-of-persons-with-dementia-which-interventions-work-and-how-large-are-their-effects/) - Study Aim/Purpose: This meta-analysis sought to improve upon findings from extant evaluations of various interventions serving dementia caregivers by pooling the samples and analyses of intervention effects from studies that generally use small sample sizes and measuring more reliable mean effects. Summary of Methods: Using a keyword search of electronic databases (Psycinfo, Medline, Ageline, and
- [Respite in palliative care: a review and discussion of the literature](https://archrespite.org/bibliography/respite-in-palliative-care-a-review-and-discussion-of-the-literature/) - Study Aim/Purpose: The purpose of this paper was to consider the definitions and assumptions that underpin the term respite and its impact on the physical, psychological and social outcomes of carers in palliative care contexts. Summary of Methods: The literature review, which involved searching five electronic databases (Web of Science, Medline, CINHAHAL, Cochrane Database System
- [The types and functions of social supports used by parents caring for a child with autism spectrum disorder](https://archrespite.org/bibliography/the-types-and-functions-of-social-supports-used-by-parents-caring-for-a-child-with-autism-spectrum-disorder/) - Study Aim/Purpose: The purpose of this study was to document the kinds of social support used by parents caring for children with autism spectrum disorder (ASD) and to understand how they characterize the benefits and effectiveness of these supports for them as caregivers. Summary of Methods: The study design was cross-sectional, utilizing an online survey
- [Rest assured? A study of unpaid carers’ experiences of short breaks](https://archrespite.org/bibliography/rest-assured-a-study-of-unpaid-carers-experiences-of-short-breaks/) - Study Aim/Purpose: This report explored the benefits, limitations, factors affecting access to and recommendations for improvement to short breaks (also known as respite care) provided by formal services, family, and friends. Summary of Methods: Findings are based on the responses of 1210 caregivers to a country-wide survey distributed through carer centers across Scotland. The survey
- [Effects of Respite care training on respite provider knowledge and confidence and outcomes for family caregivers receiving respite services](https://archrespite.org/bibliography/effects-of-respite-care-training-on-respite-provider-knowledge-and-confidence-and-outcomes-for-family-caregivers-receiving-respite-services/) - Study Aim/Purpose: This article presents the results from a large nationwide evaluation of the Respite Education and Support Tools (REST) respite provider training program. Summary of Methods: The first component of the study was a pre/post design including 895 trainees who participated in 126 different REST training workshops between June 2014 and June 2017 in
- [Respite care as a community care service: Factors associated with the effects on family carers of adults with intellectual disability in Taiwan](https://archrespite.org/bibliography/respite-care-as-a-community-care-service-factors-associated-with-the-effects-on-family-carers-of-adults-with-intellectual-disability-in-taiwan/) - Study Aim/Purpose: The study aims to describe the use of publicly funded respite care in Taiwan and caregivers’ satisfaction with those services. The study’s purpose was also to measure the effects of respite use on caregivers’ burden and factors that may contribute to positive effects of respite. Summary of Methods: 116 primary family caregivers who
- [Management of respite and personal assistance services in a consumer-directed family support programme](https://archrespite.org/bibliography/management-of-respite-and-personal-assistance-services-in-a-consumer-directed-family-support-programme/) - Study Aim/Purpose: The study had two main objectives. First, it sought to explore associations between the amount of family control in the management of paid respite/personal assistance services for families of individuals with developmental disabilities (DD) and five outcomes: caregiving burden, caregiving satisfaction, caregiving self-efficacy, satisfaction with the service, hours of weekly employment of the
- [Caregiving to older adults: Determinants of informal caregivers’ subjective well-being and formal and informal support as alleviating conditions](https://archrespite.org/bibliography/caregiving-to-older-adults-determinants-of-informal-caregivers-subjective-well-being-and-formal-and-informal-support-as-alleviating-conditions/) - Study Aim/Purpose: This study investigated the association between caregivers’ subjective well-being and the health status of their care-receiver, hours of informal caregiving they provide, and the reported burden of caregiving. The study also examined how supports—both formal and informal—used by caregivers mediate or buffer against diminished caregiver well-being. Summary of Methods: The authors conducted secondary
- [Effectiveness of an in-home respite care program to support informal dementia caregivers: A comparative study](https://archrespite.org/bibliography/effectiveness-of-an-in-home-respite-care-program-to-support-informal-dementia-caregivers-a-comparative-study/) - Study Aim/Purpose: The aim of this study was to assess the effectiveness of a 24-hour in-home respite care program in supporting informal caregivers of persons with dementia residing in the community. Summary of Methods: This study used a pre/post prospective quasi-experimental design to compare differences in caregiver outcomes between caregivers participating in the intervention and
- [Effectiveness of respite care via short-stay services to support sleep in family caregivers](https://archrespite.org/bibliography/effectiveness-of-respite-care-via-short-stay-services-to-support-sleep-in-family-caregivers/) - Study Aim/Purpose: Conducted in Japan between July 2015 and February 2017, this study analyzed the effects of “short-stay services” (i.e., one or more nights of overnight respite care) on the sleep of family caregivers living with an older person with dementia or with nocturnal awakening. Summary of Methods: A total of 17 caregivers began the
- [Adult day service use decreases likelihood of a missed physician’s appointment among dementia caregivers](https://archrespite.org/bibliography/adult-day-service-use-decreases-likelihood-of-a-missed-physicians-appointment-among-dementia-caregivers/) - Study Aim/Purpose: The study examined the association between adult day services (ADS) use for community-dwelling persons with dementia and a missed physician’s appointment among their family caregivers. Summary of Methods: The authors conducted secondary analysis of baseline data collected for two randomized controlled trials evaluating behavioral interventions for community-living persons with moderate-stage dementia (Advancing Caregiver
- [Accentuate the positive: the association between informal and formal supports and caregiving gains](https://archrespite.org/bibliography/accentuate-the-positive-the-association-between-informal-and-formal-supports-and-caregiving-gains/) - Study Aim/Purpose: This study explored whether receipt of formal and informal supports by caregivers for persons living with dementia (PLWD) were associated with caregiver gains, such as perceived benefits of the caring role or other positive influences on the caregiver’s life. The research also assessed whether the positive effects of caregiving differ between women and
- [Gerontological social work student-delivered respite: A community-university partnership pilot program](https://archrespite.org/bibliography/gerontological-social-work-student-delivered-respite-a-community-university-partnership-pilot-program/) - Study Aim/Purpose: This study analyzes satisfaction with a small short-term pilot home-based respite program intended to fill a service gap for dementia caregivers. Summary of Methods: The authors used a qualitative research design, analyzing caregiver responses from pre- and post-intervention semi-structured caregiver interviews to assess satisfaction with the Houseguest program. This program implemented by Masters-level
- [Impact of home and community-based services on hospitalisation and institutionalization among individuals eligible for long-term care insurance in Japan](https://archrespite.org/bibliography/impact-of-home-and-community-based-services-on-hospitalisation-and-institutionalization-among-individuals-eligible-for-long-term-care-insurance-in-japan/) - Study Aim/Purpose: This study examined the effect of use of home and community-based services for the elderly on their admission to a hospital or residential care facility. Summary of Methods: This study used a retrospective cohort design and analyzed linked health insurance and long-term care insurance (LTCI) claims data for 565 adults from two farming
- [The impact of respite programming on caregiver resilience in dementia care: a qualitative examination of family caregiver perspectives.](https://archrespite.org/bibliography/the-impact-of-respite-programming-on-caregiver-resilience-in-dementia-care-a-qualitative-examination-of-family-caregiver-perspectives/) - Study Aim/Purpose: The three main study research questions were: (1) What was the determining factor in the transition to the role of family caregiver?; (2) In what ways do awareness of respite programming and actual utilization of respite impact resilience outcomes?; and (3) If the use of respite programming has impacted resilience for the caregiver,
- [Depressive symptoms and use of home-based respite time in family caregivers](https://archrespite.org/bibliography/depressive-symptoms-and-use-of-home-based-respite-time-in-family-caregivers/) - Study Aim/Purpose: This study investigated the relationship between how family caregivers used in-home respite time and subsequent symptoms of depression. Specifically, the study sought to determine whether there were different effects of respite time used by caregivers for “pleasant activities” versus respite times used to catch up on non-caregiving chores. Summary of Methods: The study
- [Time for Living and Caring: An intervention to make respite more effective for caregivers.](https://archrespite.org/bibliography/time-for-living-and-caring-an-intervention-to-make-respite-more-effective-for-caregivers/) - Study Aim/Purpose: This pilot study presents the rationale for a description of a promising intervention to enhance the effectiveness of respite services for family caregivers. The intervention pilot tested, Time for Living ad Caring (TLC), is founded on the understanding that respite, to be effective, should allow caregivers to tend to their own wellness, relationships,
- [Modeling cortisol daily rhythms of family caregivers of individuals with dementia: Daily stressors and adult day services use](https://archrespite.org/bibliography/modeling-cortisol-daily-rhythms-of-family-caregivers-of-individuals-with-dementia-daily-stressors-and-adult-day-services-use/) - Study Aim/Purpose: This study examined associations between the timing of adult day service (ADS) use and the trajectory of daily cortisol levels as a biomarker for stress among caregivers of individuals with dementia who experience chronic stress. Summary of Methods: The study involved 165 family caregivers who live in the same household and care for
- [Sleep duration and the cortisol awakening response in dementia caregivers utilizing adult day services](https://archrespite.org/bibliography/sleep-duration-and-the-cortisol-awakening-response-in-dementia-caregivers-utilizing-adult-day-services/) - Study Aim/Purpose: This study examines the effect of sleep duration on the cortisol awakening response (CAR) and whether use of adult day service respite can counteract that negative effect. Summary of Methods: The study followed 158 family caregivers who lived with individuals with dementia who were attending ADS at least two days a week. Each
- [Distinct impacts of high intensity caregiving on caregivers’ mental health and continuation of caregiving](https://archrespite.org/bibliography/distinct-impacts-of-high-intensity-caregiving-on-caregivers-mental-health-and-continuation-of-caregiving/) - Study Aim/Purpose: This study sought to measure the impacts of high intensity caregiving for older adults on informal caregivers’ mental health and continuation of caregiving as well as how those outcomes varied by level of caregiving intensity, certain caregiver characteristics, and receipt of respite. Summary of Methods: The author analyzed data collected from the nationwide
- [Anticipating an Easier Day: Effects of Adult Day Services on Daily Cortisol and Stress](https://archrespite.org/bibliography/anticipating-an-easier-day-effects-of-adult-day-services-on-daily-cortisol-and-stress/) - Study Aim/Purpose: This study investigates whether and how use of Adult Day Services (ADS) is associated with improved regulation of cortisol for caregivers. Summary of Methods: The study followed 158 family caregivers who lived with individuals with dementia who were attending ADS at least two days a week. After an initial in-person interview to collect
- [Immediate and Lagged Effects of Daily Stress and Affect on Caregivers’ Daily Pain Experience](https://archrespite.org/bibliography/immediate-and-lagged-effects-of-daily-stress-and-affect-on-caregivers-daily-pain-experience/) - Study Aim/Purpose: The authors examined the immediate and lagged daily pain outcomes associated with daily levels of stress and adult day service (ADS) use among family caregivers of persons with dementia. Summary of Methods: This longitudinal study involved daily telephone interviews with 173 family caregivers of persons with dementia who live in the same household
- [Daily Stressors and Adult Day Service Use by Family Caregivers: Effects on Depressive Symptoms, Positive Mood, and Dehydroepiandrosterone-Sulfate](https://archrespite.org/bibliography/daily-stressors-and-adult-day-service-use-by-family-caregivers-effects-on-depressive-symptoms-positive-mood-and-dehydroepiandrosterone-sulfate/) - Study Aim/Purpose: This study examined the effects of adult day service (ADS) use on caregiver relatives living with individuals with dementia (IWD) on the caregivers’ level of a salivary biomarker of stress reactivity as well as the association of the biomarker levels with variability in reported symptoms of positive mood and depression. Summary of Methods:
- [The effects of adult day care services on family caregivers’ daily stress, affect, and health: outcomes from the Daily Stress and Health (DaSH) Study](https://archrespite.org/bibliography/the-effects-of-adult-day-care-services-on-family-caregivers-daily-stress-affect-and-health-outcomes-from-the-daily-stress-and-health-dash-study/) - Study Aim/Purpose: The objective of this study was to examine the effects of adult day service (ADS) programming on reported daily stressor exposure, affect, and health symptoms of caregivers of individuals with dementia (IWD). Summary of Methods: This study used a “within-person withdrawal design” with a sample of 173 relative caregivers of IWD in New
- [Effects of Adult Day Care on Daily Stress of Caregivers: A Within-Person Approach](https://archrespite.org/bibliography/effects-of-adult-day-care-on-daily-stress-of-caregivers-a-within-person-approach/) - Study Aim/Purpose: The objective of this study was to examine the effects of adult day service (ADS) programming in New Jersey on exposure to and emotional response to stressors for family caregivers of individuals with dementia. Summary of Methods: This study used a “within-person withdrawal design” using 24-hour daily diaries (using the Daily Record of
- [The impact of adult day programs on family caregivers of elderly relatives](https://archrespite.org/bibliography/the-impact-of-adult-day-programs-on-family-caregivers-of-elderly-relatives/) - Study Aim/Purpose: This study, part of a broader evaluation of 14 adult day programs in Alberta, Canada, sought to measure the impact of the programs on the caregivers of elderly relatives and the degree of caregiver satisfaction with the program. Summary of Methods: A time series research design was used with caregivers of adult day
- [The Benefits of Respite Time-Use: A Comparison of Employed and Nonemployed Caregivers](https://archrespite.org/bibliography/the-benefits-of-respite-time-use-a-comparison-of-employed-and-nonemployed-caregivers/) - Study Aim/Purpose: The primary objective of this study was to describe and compare how employed and nonemployed caregivers of older adults spend their time and are satisfied with their use of time while their family members are in adult day respite center care. The benefits caregivers received from their respite time-use as well as how
- [Examination of a psychoeducational intervention and a respite grant in relieving psychosocial stressors associated with being an Alzheimer’s caregiver](https://archrespite.org/bibliography/examination-of-a-psychoeducational-intervention-and-a-respite-grant-in-relieving-psychosocial-stressors-associated-with-being-an-alzheimers-caregiver/) - Study Aim/Purpose: The purpose of this study was to examine whether and how receipt of a psychoeducational training program called the Savvy Caregiver Program (SCP), receipt of a respite voucher-type grant, and receipt of a combination of both services impacted caregivers and their use of other support services beyond the intervention. Both types of interventions
- [Respite care after acquired brain injury: The well-being of caregivers and patients](https://archrespite.org/bibliography/respite-care-after-acquired-brain-injury-the-well-being-of-caregivers-and-patients/) - Study Aim/Purpose: The study sought to investigate caregiver and patient satisfaction with respite provided by adult daycare centers in the Netherlands, and patient and caregiver factors related to caregiver well-being. Summary of Methods: This cross-sectional study conducted a one-time survey with a sample of 108 caregiver and patient dyads who had been enrolled in a
- [Adult Day Health Center Participation and Health-Related Quality of Life](https://archrespite.org/bibliography/adult-day-health-center-participation-and-health-related-quality-of-life/) - Study Aim/Purpose: The purpose of this study was to assess the association between participation in an adult day health center (ADHC) in the San Francisco Bay Area and quality of life for the participants who suffer from multiple chronic conditions and functional limitations. Summary of Methods: The study used a prospective case/comparison group design collecting
- [Evaluation of a weekend respite program for persons with Alzheimer Disease](https://archrespite.org/bibliography/evaluation-of-a-weekend-respite-program-for-persons-with-alzheimer-disease/) - Study Aim/Purpose: This study explored family caregivers’ experience with a pilot weekend respite program in western Canada. The program provided respite care in a homelike environment for persons with Alzheimer’s disease. Summary of Methods: The authors conducted a qualitative assessment using multiple data collection methods. The data presented in this article were collected through telephone
- [The impact of residential respite care on the behavior of older people](https://archrespite.org/bibliography/the-impact-of-residential-respite-care-on-the-behavior-of-older-people/) - Study Aim/Purpose: The aim of this study was to examine the impact of residential care on disruptive behavior displayed by older adults, particularly those with dementia. Summary of Methods: The study used a quasi-experimental, longitudinal, single group design. Over a 12-month period 100 older adults (mean age of 81.8 years), who were admitted to one
- [Does day care also provide care for the caregiver?](https://archrespite.org/bibliography/does-day-care-also-provide-care-for-the-caregiver/) - Study Aim/Purpose: The authors state that the primary aim of the study was to investigate whether day care programs in Sweden positively impacted caregivers of relatives with dementia, with specific regard to feelings of worry, burden, overload and depression, physical difficulties, and psychological wellbeing. Summary of Methods: The study design was a pre/post analysis of
- [Examining What Caregivers Do During Respite Time to Make Respite More Effective](https://archrespite.org/bibliography/examining-what-caregivers-do-during-respite-time-to-make-respite-more-effective/) - Study Aim/Purpose: The study described and analyzed consistency between family caregivers’ desired and actual use of their time while their relatives were receiving adult day services. The study then sought to examine the relationship between this level of consistency (or inconsistency) and caregivers satisfaction with respite time-use, their feeling of burden, depression and satisfaction with
- [Impact of a multicomponent support services program on informal caregivers of adults aging with disabilities](https://archrespite.org/bibliography/impact-of-a-multicomponent-support-services-program-on-informal-caregivers-of-adults-aging-with-disabilities/) - Study Aim/Purpose: The aim of this study was to evaluate the impact of a multi-component support program for caregivers of adults with aging Veterans with disabilities, implemented through a Veterans Administration site in Tampa Florida. The program included 24-hr in-home respite care, caregiver group support, and education/skills training. Caregivers had the option to receive services
- [Effect of institutional respite care on the sleep of people with dementia and their primary caregivers](https://archrespite.org/bibliography/effect-of-institutional-respite-care-on-the-sleep-of-people-with-dementia-and-their-primary-caregivers/) - Study Aim/Purpose: This study sought to evaluate the impact of two weeks of institutional respite care provided in four community hospital units in East Midlands, United Kingdom on sleep patterns of patients with dementia who normally live at home. Summary of Methods: The authors describe their study design as “prospective case series.” Baseline measurements of
- [Older Carers in Ageing Societies: An Evaluation of a Respite Care Program for Older Carers in Western Australia](https://archrespite.org/bibliography/older-carers-in-ageing-societies-an-evaluation-of-a-respite-care-program-for-older-carers-in-western-australia/) - Study Aim/Purpose: To describe the Older Carers Program in Western Australia administered by the Australian Red Cross and whether it met its stated objectives and carried out its intended activities. This 22-month old program at the time of the research was designed to provide help for older carers of adults with disabilities through home visits,
- [Enhancing quality of life of families who use adult day services: short- and long-term effects of the Adult Day Services Plus Program](https://archrespite.org/bibliography/enhancing-quality-of-life-of-families-who-use-adult-day-services-short-and-long-term-effects-of-the-adult-day-services-plus-program/) - Study Aim/Purpose: The study’s purpose was to examine the short and long-term effects of the Adult Day Service Plus (ADS Plus) program, which integrates care management within adult day center services with the goal of “helping family caregivers develop problem-solving and coping skills, improve social and instrumental support, and enhance perceived competence in managing the
- [Adult day service use and reductions in caregiving hours: Effects on stress and psychological well-being for dementia caregivers](https://archrespite.org/bibliography/adult-day-service-use-and-reductions-in-caregiving-hours-effects-on-stress-and-psychological-well-being-for-dementia-caregivers/) - Study Aim/Purpose: The objective of this study was to determine whether adult day service (ADS) use and its related reductions in primary caregiving hours would positively impact caregivers’ negative emotional appraisals (i.e. exhaustion and fatigue, feeling of being trapped in the caregiving role) and levels of psychological distress. Summary of Methods: This study used a
- [Impact of adult day services on behavioral and psychological symptoms of dementia](https://archrespite.org/bibliography/impact-of-adult-day-services-on-behavioral-and-psychological-symptoms-of-dementia/) - Study Aim/Purpose: The study examined the short-term (2 month) effects of adult day services (ADS) participation by individuals with dementia on their behavioral and psychological symptoms of dementia (BPSD) immediately after ADS use and on days when not using ADS. Summary of Methods: A quasi-experimental design was used, comparing reports of caregivers of individuals with
- [The hospice caregiver support project: Providing support to reduce caregiver stress](https://archrespite.org/bibliography/the-hospice-caregiver-support-project-providing-support-to-reduce-caregiver-stress/) - Study Aim/Purpose: This study sought to measure the impact and level of hospice respite benefits used in the Hospice Caregiver Support Project, designed to provide in-home support services to unpaid, primary, at-home informal caregivers of hospice patients. Summary of Methods: During the ten month project period, caregivers referred by project social workers to respite care
- [Evaluation of the Home Help Service and its impact on the informal caregiver’s burden of dependent elders](https://archrespite.org/bibliography/evaluation-of-the-home-help-service-and-its-impact-on-the-informal-caregivers-burden-of-dependent-elders/) - Study Aim/Purpose: This study had two aims. The first was descriptive, to describe the characteristics of users and services received from and satisfaction with the Home Help Service (HHS), a respite program serving elders in Comunidad Valenciana in Spain. The second study aim was to measure the impact of HHS use on the burden of
- [The Going to Stay at Home program: combining dementia caregiver training and residential respite care](https://archrespite.org/bibliography/the-going-to-stay-at-home-program-combining-dementia-caregiver-training-and-residential-respite-care/) - Study Aim/Purpose: This Australian study examined the effects of a short term residential caregiver education and respite program called the Going to Stay at Home (GTSAH) program. GTSAH was provided to caregiver/care recipient dyads, with a care recipient who had dementia who volunteered to stay in a residential care home for five days. During their
- [Comparison of African American and Caucasian caregiver self-efficacy](https://archrespite.org/bibliography/comparison-of-african-american-and-caucasian-caregiver-self-efficacy/) - Study Aim/Purpose: This study examined the self-efficacy impacts of an intervention targeted to caregivers of individuals with Alzheimer’s diseases, with a specific focus on differences in effects on African American versus Caucasian caregivers. Summary of Methods: This study evaluated the Resources for Enhancing Alzheimer’s Caregiver Health (REACH II) intervention, using a pre/post quasi experimental design

## Awards

- [Eagle Valley Children’s Home Respite](https://archrespite.org/awards/eagle-valley-childrens-home-respite/) - Rising Star (2022): Eagle Valley Children’s Home Respite Program, established in 1985, began by serving four caregivers of children with disabilities, and through “word-of-mouth” in this rural area, has grown over the years to serve more than 60 families, with more than 30 families on a waitlist for services. Respite is provided in-home, and care
- [Rhode Island CareBreaks - Nursing Student Respite Workforce Initiative](https://archrespite.org/awards/rhode-island-carebreaks/) - Innovative and Exemplary (2020): The Rhode Island CareBreaks - Nursing Student Respite Workforce Initiative has supported caregivers of children and adults with long-term disabilities or medical needs, especially underserved families for whom respite services are unavailable or inadequate, by providing respite through nursing students as part of their college curriculum. Five Rhode Island colleges and universities
- [TRE-ADD Respite Choices of Community Living Toronto](https://archrespite.org/awards/tre-add-respite-choices-community-living-toronto/) - Innovative and Exemplary (2020): Respite Choices of Community Living Toronto offers hourly, overnight, camp, and community-based respite for children and adults with intellectual disability and/or autism, including Treatment Research and Education for Autism and Developmental Disorders (TRE-ADD) respite services for children with autism whose complex behavioral needs prevent them from participating in other community respite options.
- [ChildServe Respite](https://archrespite.org/awards/childserve-respite/) - Innovative and Exemplary (2020): The needs and priorities of Iowa's caregivers and their children are foremost in the development of respite options offered by ChildServe. Caregivers with children birth to 25 years with a wide range of needs, including complex medical, autism, behavioral, and physical disabilities, can receive planned and emergency respite through ChildServe. The
- [The ALS Association, ND and SD Chapter, Jack Norton Family Respite Program](https://archrespite.org/awards/the-als-association-mn-nd-and-sd-chapter-jack-norton-family-respite-program/) - Innovative (2020): The ALS Association of North Dakota and South Dakota pays a partnering home care agency to provide a professional caregiver in the home of families caring for a loved one with ALS. The Jack Norton Family Respite Program was developed by a man when he was in the early stages of ALS. He
- [Lutheran Services in Iowa Respite Care](https://archrespite.org/awards/lutheran-services-in-iowa-respite-care/) - Innovative and Exemplary (2021): Lutheran Services in Iowa Respite Care has offered respite to caregivers of children with disabilities and mental and emotional conditions for 19 years. Based on both research and caregiver preferences, one respite care service the program offers is a 48-hour weekend, providing caregivers with extended time for self-care. The program also
- [HEARTS Respite](https://archrespite.org/awards/hearts-respite/) - Innovative and Exemplary (2022): HEARTS (Health, Emergency, And Respite Treatment Service) at United Cerebral Palsy of Huntsville and the Tennessee Valley provides home-based respite to caregivers of children birth to 19 years with intellectual, developmental, or physical disabilities, mental or behavioral health conditions, and chronic illness or special medical needs through a voucher service model. Beginning as a single respite service
- [Lifespan of Greater Rochester, Partners in Caring](https://archrespite.org/awards/lifespan-of-greater-rochester-caregiver-respite-program/) - Innovative and Exemplary (2020): The Partners in Caring (formerly Caregiver Respite Program) at Lifespan of Greater Rochester, New York, in a strong partnership with the Alzheimer’s Foundation, has for more than 10 years served persons with Alzheimer’s disease and other dementias and their families by supporting and empowering caregivers, care recipients, and volunteer providers. Using
- [C.H.A.I. (Caregiving Helping Aid Initiative)](https://archrespite.org/awards/c-h-a-i-caregiving-helping-aid-initiative/) - Innovative and Exemplary (2024): C.H.A.I. (Caregiving Helping Aid Initiative), is a Chaldean Community Foundation (CCF) program. Located in Sterling Heights, Michigan, C.H.A.I. strengthens the CCF’s mission by continuing to improve the stability, health, and wellness of new Americans including refugees, immigrants, and vulnerable families. Of the 41,000+ individuals from 58 countries that C.H.A.I. serves, more
- [Autism Eats](https://archrespite.org/awards/autism-eats/) - Rising Star (2024): Autism Eats, recognized as a Rising Star, is located in Boston, Massachusetts. As a non-profit entity, it has organized more than 150 shared respite events across the country since it began 7 years ago. Persons of any age with autism along with their caregivers, families and friends may gather together to share
- [Tennessee Caregiver Coalition - Respite Voucher Program](https://archrespite.org/awards/tennessee-respite-coalition/) - Rising Star (2021): The Tennessee Caregiver Coalition (formerly the Tennessee Respite Coalition) Respite Voucher Program has served caregivers and their families for 17 years, typically providing care for 700 caregivers and their loved ones of any age or disability conditions each year. Tennessee’s Respite Voucher Program is recognized by ARCH as a Rising Star Respite
- [Masterpiece Respite Nights](https://archrespite.org/awards/masterpiece-rr-respite-care-program/) - Innovative and Exemplary (2019): Masterpiece Respite Nights, Lincoln, NE, is a faith-based volunteer respite program where parents drop off their child(ren) with special needs of any age, along with siblings through age 13 for an evening, while background-checked volunteers care for them. There is no charge for the service. Children who are medically fragile or have behavior
- [Caregiver Volunteers of Central Jersey/Caregiver Respite Program](https://archrespite.org/awards/caregiver-volunteers-of-central-jersey-alzheimers-respite-care-program/) - Innovative and Exemplary (2019): Caregiver Volunteers of Central Jersey/Caregiver Respite Program, located in Toms River, New Jersey, has provided weekly, in-home respite care for persons with Alzheimer’s disease and dementia since 2002. In recent years, the program was expanded to include older adults with chronic illness. A careful process matches respite volunteers with caregivers, including
- [Respite Care, Inc.](https://archrespite.org/awards/respite-care-inc/) - Innovative and Exemplary (2019): Respite Care, Inc. in Fort Collins, CO, provides short-term and overnight respite care to more than 165 children with developmental disabilities from infancy to age 21. It was founded in April of 1981 by a group of parents who recognized the need for respite care in their community. In 2026, after
- [Child Care Aware® of America Exceptional Family Member Program (EFMP) Respite Care](https://archrespite.org/awards/child-care-aware-of-america-exceptional-family-member-program-efmp-respite-care/) - Innovative and Exemplary (2019): Child Care Aware® of America Exceptional Family Member Program (EFMP) Respite Care in Arlington, VA, provides respite care to eligible families in the Navy, Air Force, and Space Force. They have been serving military families across the country who have children birth through 18 years with special needs for nearly 20
- [Vanessa Behan](https://archrespite.org/awards/vanessa-behan-crisis-nursery/) - Innovative and Exemplary (2019): Vanessa Behan in Spokane, WA, in operation nearly forty years, is designed to support parents and primary caregivers in a way that prevents the potential for abuse or neglect. Services include 24-hour emergency respite child care for infants and children under the age of seven (ages seven to twelve on a
- [Gio’s Garden](https://archrespite.org/awards/gios-garden/) - Innovative and Exemplary (2019): Gio’s Garden, in Middleton, WI, is a therapeutic respite care program for children seven years and younger who have significant developmental or physical delays. In operation for more than ten years, Gio’s Garden fills service gaps by reaching children awaiting diagnoses or on waiting lists for other services. To meet the
- [Claude Moore Precious Time](https://archrespite.org/awards/claude-moore-precious-time/) - Innovative and Exemplary (2019): Claude Moore Precious Time in Harrisonburg, VA, works with the James Madison University College of Health and Behavioral Studies to match nursing and health and human service students as respite care providers to children with special needs. Claude Moore Precious Time is a pediatric respite care program that works to create
- [Agape Respite Care, Inc](https://archrespite.org/awards/agape-respite-care-inc/) - Innovative and Exemplary (2019): Agape Respite Care, Inc., Berne, Indiana, provides in-home, community-based, and 24/7 out of home respite care from 2 hours up to 10 consecutive day stays, located in a residential setting enabling families to maintain their loved ones in their community. Trained Direct Support Professionals care for persons with intellectual and/or physical
- [George Mark Children's House](https://archrespite.org/awards/george-mark-childrens-house/) - Innovative and Exemplary (2019): George Mark Children's House, in San Leandro, California, provides individualized, residential medical care and caring attention to children birth to 22 years with complex physical and medical needs, offering parents and families respite from ongoing physical and emotional caregiving responsibilities. Opened in 2004 as the first facility of its kind in the
- [A Rosie Place for Children](https://archrespite.org/awards/a-rosie-place-for-children/) - Innovative and Exemplary (2019): A Rosie Place for Children in South Bend, IN, the first (and only) specialty hospital in Indiana, serving all 92 counties, exclusively supporting medically fragile children and their families by providing highly equipped hospital care for the most complex pediatric conditions in a home-away-from-home environment. During its nearly 20-year history, A
- [Providence House](https://archrespite.org/awards/providence-house/) - Innovative and Exemplary (2019): Providence House in Cleveland, OH, was established four decades ago by Sister Hope Greener. In July 2025, a second crisis nursery was opened on Cleveland's East Side, expanding their capacity to serve nearly 400 children wait listed for services each year. With both the East and West Crisis Nurseries open and
- [Assistance with Residential Care in the Home (ARCH) Respite Care](https://archrespite.org/awards/assistance-with-residential-care-in-the-home-arch-respite-care/) - Innovative and Exemplary (2019): Assistance with Residential Care in the Home (ARCH) Respite Care, St. Louis Arc, St. Louis, MO is a consumer-directed respite service that helps a person with developmental disabilities live at home by providing intermittent, short-term relief to primary caregivers. It is one of the largest and longest running programs of this type
- [Parc Center for Disabilities, Caregiver Relief Services](https://archrespite.org/awards/parc-center-for-disabilities-caregiver-relief-services/) - Innovative and Exemplary (2022): Parc Center for Disabilities, Caregiver Relief Services, in existence 15 years, serves children birth through 22 years with intellectual, developmental, or physical disabilities, mental health or behavioral conditions, chronic illness, special medical needs, and/or diagnosed trauma. Families, regardless of income, receive 15 to 35 hours of in-home respite monthly, at no
- [ONEgeneration Adult Day Program](https://archrespite.org/awards/onegeneration-adult-day-program/) - Innovative and Exemplary (2022): ONEgeneration Adult Day Program provides center-based respite services to caregivers of adults 18 years or older with intellectual or developmental disabilities, physical disabilities, aging-related conditions, dementia or memory-related conditions, mental or behavioral health conditions, chronic illnesses, and special medical needs. Beginning in 1978 as a volunteer-led senior center, during the subsequent four-plus
- [Lutheran Social Service of Minnesota Caregiver Support & Respite Program](https://archrespite.org/awards/lutheran-social-service-of-minnesota-caregiver-support-respite-program/) - Innovative and Exemplary (2022): Lutheran Social Service of Minnesota Caregiver Support & Respite Program has been supporting caregivers for more than 30 years. The program provides respite care, resources to grow their caregiving skills, and the opportunity to connect with others through support groups and education. The program offers both in-person and virtual services which
- [The Center for Volunteer Caregiving](https://archrespite.org/awards/the-center-for-volunteer-caregiving/) - Innovative and Exemplary (2022): The Center for Volunteer Caregiving has a 25-year history providing in-home respite to caregivers of adults with physical disabilities, dementia and memory conditions, chronic illness, and special medical needs. Services are available at no cost to families by more than 50 volunteers providing more than 2,000 hours of respite yearly. Person- and
- [Community Connections](https://archrespite.org/awards/community-connections/) - Rising Star (2022): Community Connections was established in 2007 when the owners of a pediatric therapy clinic observed that children with developmental disabilities tended to be excluded from the greater community, and that parents were in need of support. Available to caregivers of children birth to 18-years with disabilities, Community Connections offers three-hour respite sessions
- [Home Away from Home Respite Center](https://archrespite.org/awards/home-away-from-home-respite-center/) - Innovative and Exemplary (2021): The Home Away from Home Respite Center, now at the University of Rochester Medicine, was created to address an identified gap in community services for aging populations with Alzheimer’s and other dementias. The Home Away from Home Respite program’s goals are to meet the needs of caregivers by giving them time to care
- [Stepping Up Again, Grandparents Raising Grandchildren](https://archrespite.org/awards/stepping-up-again-grandparents-raising-grandchildren/) - Rising Star (2025) Stepping Up Again, Grandparents Raising Grandchildren, located in Lawrence, Massachusetts, is a recent program within AgeSpan’s Family Caregiver Support Program. AgeSpan is a fifty-year-old agency serving older adults. Stepping Up Again, Grandparents Raising Grandchildren has operated year-round for three years, and serves 35 grandfamilies of 50+ grandchildren from birth through 22-years. Their
- [Sumner Senior Volunteer Program](https://archrespite.org/awards/sumner-senior-volunteer-program/) - Innovative and Exemplary (2025): Sumner Senior Volunteer Program, based in Nashville, Tennessee, replicates Tennessee’s AmeriCorps-funded Senior Companion Program, and provides four or more hours of in-home or virtual respite per week to more than 30 families. For those families opting for virtual respite (about half of those served), tablets or Chromebooks and training and support
- [Duet: Partners in Health & Aging – Kinship Care Services](https://archrespite.org/awards/duet-partners-in-health-aging-kinship-care-services/) - Innovative and Exemplary (2025) Duet: Partners in Health & Aging – Kinship Care Services, located in Phoenix, Arizona, provided 7,600 hours of respite to 144 grandfamilies during the past year. Kinship Care services were created at Duet in 1995 when staff members noticed that a growing number of seniors stopped attending programs because they had
- [OK ABLE Tech: Respite Kits Program](https://archrespite.org/awards/ok-able-tech-respite-kits-program/) - Rising Star (2025): OK ABLE Tech: Respite Kits Program at Oklahoma State University in Stillwater, Oklahoma works with Oklahoma Human Services and with the Oklahoma Lifespan Respite Care Program to provide Respite Kits containing assistive technology (AT). AT Respite Kits are designed to provide short-term respite by supporting caregivers’ and care recipients’ needs and preferences
- [Will's House](https://archrespite.org/awards/wills-house/) - Innovative and Exemplary (2024): Will’s House, located in Tulsa, Oklahoma, was especially designed to provide customized respite care, including medical needs care, short-term, long-term, and emergency respite, to support families caring for children and young adults with disabilities. Will’s House is also a specialized foster care placement for the state of Oklahoma. Part of the
- [Saint Louis Crisis Nursery](https://archrespite.org/awards/saint-louis-crisis-nursery/) - Innovative and Exemplary (2024): The Saint Louis Crisis Nursery has provided trauma-responsive 24/7/365 emergency respite care services for children in the Greater St. Louis, Missouri region for nearly 40 years. Originally founded through the collaborative work of the St. Louis Junior League and the St. Louis Chapter of the National Coalition of 100 Black Women,
- [Musical Memories Café](https://archrespite.org/awards/musical-memories-cafe/) - Innovative and Exemplary (2024): The Musical Memories Café, located in rural West Falls, New York and nearby communities, provides shared respite experiences for persons with Alzheimer’s Disease and dementias and their caregivers, and other physically or socially isolated adults. Musical Memories Cafés offer regularly scheduled live music with local musicians and communal meals at community
- [Crisis Nursery](https://archrespite.org/awards/crisis-nursery/) - Innovative and Exemplary (2021): The Crisis Nursery in Urbana, Illinois has provided emergency crisis respite care to children birth to six-years-of-age for 37 years. Based on best practice research and observed need, the Crisis Nursery began offering planned respite to further support family caregivers. The Crisis Nursery works to reduce caregiver stress and risk of child maltreatment,
- [Alzheimer’s Disease Caregiver Support Initiative](https://archrespite.org/awards/alzheimers-disease-caregiver-support-initiative/) - Rising Star (2020): The Caregiver Support Initiative provides services for caregivers of individuals with Alzheimer's and other types of dementia. Care Navigators work with caregivers to educate them about the support services they may require in their caregiving journey. Respite services are provided by trained professionals who may be volunteers or paid individuals. The services
- [Bethel Life, Loving Hands](https://archrespite.org/awards/bethel-life-loving-hands/) - Rising Star (2020): Loving HANDS is a faith-based program with a monthly family-night-off for caregivers of children with special needs as its centerpiece. Relationships across individuals, families, the local faith community, schools, and service organizations in the community have developed and been strengthened through the family night-out. Those relationships have led to increased levels of
- [SOAR 365 Respite](https://archrespite.org/awards/soar-365-respite/) - Innovative (2020): SOAR365 provides an array of services for people birth to adulthood who have disabilities as well as respite for caregivers. Services include pediatric therapy, adult day programs, workforce development, summer camp, and business solutions. Out-of-home respite services are provided on the weekends, Friday-Sunday, 46 weekends a year. During these weekends, a robust schedule
- [Nurturing Newborns](https://archrespite.org/awards/nurturing-newborns/) - Innovative (2020): Nurturing Newborns offers respite to families in crisis. They serve caregivers of infants and children using a model based upon the Fussy Baby Network Model. Nurturing Newborns supports parents through an infant mental health and prevention-focused home visiting model and provides respite during times of need. Their program focuses particularly on parents of children
- [Ryan House](https://archrespite.org/awards/ryan-house/) - Innovative and Exemplary (2020): Ryan House in Phoenix, Arizona, has been providing pediatric respite, life-enhancing therapeutic activities, and pediatric palliative and hospice care to help families navigate their children’s life limiting and end-of-life conditions. In existence for ten years, Ryan House serves 200 children and families each year through a continuity of care model in
- [RISE Wisconsin, Inc., The Respite Center](https://archrespite.org/awards/rise-wisconsin-inc-the-respite-center/) - Innovative and Exemplary (2020): The Respite Center at RISE was conceptualized over forty years ago, when concerned staff at a local child-care center began looking for ways to support families who had no informal support systems to provide care for their children during times of crisis or high stress. The center began providing crisis care
- [Caregiving Youth Project of the American Association of Caregiving Youth](https://archrespite.org/awards/caregiving-youth-project-of-the-american-association-of-caregiving-youth/) - Innovative and Exemplary (2020): The Caregiving Youth Project, an initiative of the American Association of Caregiving Youth, supports young people who are providing care for a family member. These youth spend an average of twenty (20) hours per week caring for loved ones and often sacrifice their personal well-being in service to others. Respite is
- [Neighbor Network of Northern Nevada’s Community Care Program](https://archrespite.org/awards/neighbor-network-of-northern-nevadas-community-care-program/) - Innovative and Exemplary (2025): Neighbor Network of Northern Nevada’s Community Care Program, serving 12 counties in Northern Nevada, was established five years ago. Guided by a human-centered design approach for creating a community village model, this program serves more than 170 adults over the age of 18 who have conditions related to aging and disability,
- [Share the Care™](https://archrespite.org/awards/share-the-care/) - Rising Star (2025): Share the Care™, located in Winter Park, Florida, has offered an array of respite, case management, and behavioral health services and supports to caregivers of adults 18-years and older with a variety of disabilities and conditions over the past 38 years. Share the Care™ serves approximately 1500 families each year. Their respite
- [Pause for Parents, Play for Kids](https://archrespite.org/awards/pause-for-parents-play-for-kids/) - Innovative and Exemplary (2025): Pause for Parents, Play for Kids, located in Liberty Township, Ohio, was established ten years ago in response to local planning data showing that 100% of parents of children with disabilities in the community reported feeling isolated with a decreased support system. This center-based, drop-off respite model was piloted in a

## LC Meetings

- [February 16, 2023 - Launch of the Collaborative](https://archrespite.org/lc-meetings/february-16-2023-launch-of-the-collaborative/) - Launch of the Lifespan Respite Grantee and Partner Learning Collaborative to Implement the Respite Actions in the 2022 National Strategy to Support Family Caregivers The RAISE Family Caregiving Advisory Council and the Advisory Council to Support Grandparents Raising Grandchildren put forth the 2022 National Strategy to Support Family Caregivers. The Strategy outlines hundreds of actions
- [Dec. 10, 2020 - Logic Models and State Data Tracking Systems](https://archrespite.org/lc-meetings/performance-measurement-meeting-dec-10-2020/) - Logic Models and State Data Tracking Systems
- [July 31, 2025: Part Three of the Webinar Series on Sustaining Respite - The Art of Sustainability: Developing and Maintaining Resources](https://archrespite.org/lc-meetings/july-31-2025-part-3-of-the-webinar-series-on-sustaining-respite-the-art-of-sustainability-developing-and-maintaining-resources/) - Part 3 of the Webinar Series on Sustaining Respite The Art of Sustainability: Developing and Maintaining Resources This session offers practical guidance in developing and diversifying resources from the ground up, ways to reduce risks and threats to sustainability, and strategies for securing funding and using it to build lasting respite infrastructure. Presenter Tracy Cieniewicz,
- [February 27, 2025: Part One of the Webinar Series on Sustaining Respite - The Foundation for Sustainability: Empowering Leaders, Cultivating Partnerships, and Nurturing Mentorships](https://archrespite.org/lc-meetings/february-27-2025-part-one-of-the-webinar-series-on-sustaining-respite/) - Part One of the Webinar Series on Sustaining Respite The Foundation for Sustainability: Empowering Leaders, Cultivating Partnerships, and Nurturing Mentorships This session offers guidance in forming and nurturing strong partnerships, the importance of shared leadership within and across organizations, and ways to mentor and support strong respite leaders over time. Presenter Talena Ford, Programs Administrator, Community
- [July 10, 2025: Part Two of the Webinar Series on Sustaining Respite - The Evolution of Sustainability: Planning, Measuring, and Pivoting](https://archrespite.org/lc-meetings/part-two-of-the-webinar-series-on-sustaining-respite-the-evolution-of-sustainability-planning-measuring-and-pivoting/) - Part Two of the Webinar Series on Sustaining Respite The Evolution of Sustainability: Planning, Measuring, and Pivoting This session offers practical guidance in respite systems planning -- including who, when, where, how, and why; finding and working with a facilitator; and the importance of circling back and revising plans based on data that informs wise
- [April 10, 2025 - Nebraska Lifespan Respite Services Program & Nebraska Lifespan Respite Network](https://archrespite.org/lc-meetings/april-10-2025-lifespan-respite-services-program-nebraska-lifespan-respite-network/) - Lifespan Respite Best Practices Nebraska Lifespan Respite Services Program & Nebraska Lifespan Respite Network Hanna Quiring, Administrator, and Daniel Petersen, Program Coordinator, Division of Developmental Disabilities, Nebraska Department of Health and Human Services, will share the history of the NE Lifespan Respite Network (supported by state legislation enacted in 1999), and describe the program’s regional
- [June 8, 2023 - Access to Services: Lessons from the Field](https://archrespite.org/lc-meetings/june-8-2023-centering-equity-in-access-to-services-lessons-from-the-field/) - Laura Mauldin with Applied-Self-Direction presented the final Readiness Assessment Tool for Self-Directed Respite Voucher Programs and responded to questions from Lifespan Respite grantees and partners seeking clarification on using the tool. Tracy Kahlo and Barb Koumjian, Lifespan Respite Washington, presented on Access to Services: Lessons from the Field. Presentation Description: The presentation provided an opportunity
- [January 9, 2025 - Respite Vouchers 101: Getting Back to Basics](https://archrespite.org/lc-meetings/january-9-2025-respite-vouchers-101-getting-back-to-basics/) - Respite Vouchers 101: Getting Back to Basics This topic should be especially useful to states that are still new to, or considering starting, respite voucher programs. State presenters will focus on step-by-step guidance on how to start up a voucher program, and how to identify and avoid pitfalls along the way. Presenters Jack Read, Tennessee
- [April 11, 2024 - Leadership Principle: Performance](https://archrespite.org/lc-meetings/april-11-2024-principle-of-leadership-performance/) - Principle of Leadership: Performance This Learning Collaborative will focus on improving performance towards implementing the National Strategy. Good leaders can create a positive work environment, motivate those they work with, and provide clear direction and guidance. This can lead to increased efficiency and productivity. A more engaged and committed workforce is a high-performing one. Trust
- [December 12, 2024 - Volunteer Respite Squad: Learn how to create your own Respite Volunteer Program](https://archrespite.org/lc-meetings/volunteer-respite-squad-learn-how-to-create-your-own-respite-volunteer-program/) - Volunteer Respite Squad Learn how to create your own Respite Volunteer Program The innovative Volunteer Respite Squad is run by Age Well, a large Area Agency on Aging in Vermont. The program won a 2021 USAging Recognition Award in the Caregiving Category. During this presentation, you will learn about the development and growth of the
- [October 10, 2024 - Consumer Directed Respite: Decades of Experience from the Family Caregiver Alliance and California Caregiver Resource Centers](https://archrespite.org/lc-meetings/october-10-2024-consumer-directed-respite-decades-of-experience-from-the-family-caregiver-alliance-and-california-caregiver-resource-centers/) - Consumer Directed Respite: Decades of Experience from the Family Caregiver Alliance and California Caregiver Resource Centers Kathy Kelly, Executive Director, and Christina Irving, Clinical Services Director at the Family Caregiver Alliance in San Francisco provided an overview of long-running consumer-directed respite services offered by California's Caregiver Resource Centers, including the Family Caregiver Alliance, and their
- [February 10, 2022 - Respite in the Faith-Community](https://archrespite.org/lc-meetings/february-10-2022-new-york-state-caregiving-and-respite-coalition-respite-revival-and-the-respite-ministry-and-respite-foundation-for-all-montgomery-al/) - Respite in the Faith Community Doris Green with the New York State Caregiving and Respite Coalition presented on the Respite Revival held by the coalition last summer that brought faith communities in NY together to learn more about volunteer respite opportunities. Daphne Johnston, Founder and Director of the Respite Ministry, housed at First United Methodist
- [September 5, 2024 - Assessing Progress and Developing Recommendations for the Updated National Strategy](https://archrespite.org/lc-meetings/september-5-2024-assessing-progress-and-developing-recommendations-for-the-updated-national-strategy/) - Assessing Progress and Developing Recommendations for the National Strategy This meeting of the ARCH National Strategy Learning Collaborative will focus on our respite recommendations to inform the next version of the National Strategy, and the ARCH report on the National Strategy Learning Collaborative. It will be the last regularly scheduled meeting for the group. As
- [June 13, 2024 - Ask the Experts! Office Hours and Discussion with Experienced Mentors](https://archrespite.org/lc-meetings/june-13-2024-ask-the-experts-office-hours-and-discussion/) - Ask the Experts! Office Hours and Discussion with Experienced Mentors. Experienced Respite Voucher Learning Collaborative members from the Lifespan Respite network gathered with newer members and grantees to share respite voucher program start up, implementation, statewide coordination, and community engagement techniques, tools and strategies. ARCH is grateful to the network leaders who participated and helped
- [August 23, 2024: Sustainability 101: How to Build Sustainable  Respite Services and Systems](https://archrespite.org/lc-meetings/august-23-2024-sustainability-101-how-to-build-sustainable-respite-services-and-systems/) - Sustainability 101: How to Build Sustainable Respite Services and Systems Learning Collaborative participants reviewed the basic concepts for sustainability planning. The meeting focused on the challenges and strategies of sustainability planning for lifespan respite systems. Susan Summers from ARCH highlighted the importance of a comprehensive sustainability plan, including leadership, mentorship, planning, diversifying funding, and advocacy,
- [August 8, 2024 - Leadership Principle: Resilience, Discipline & Self-Care](https://archrespite.org/lc-meetings/august-8-2024-leadership-principle-resilience-discipline-self-care/) - Leadership Principle: Resilience, Discipline & Self-Care This meeting of the Lifespan Respite Grantee and Partner National Strategy Learning Collaborative focused on Personal Ecology: Resilience & Discipline & Self-Care. It is more difficult to contribute to the world in a positive and sustainable way without taking care of oneself first, recognizing one’s own unique responsibilities and
- [July 11, 2024 - Leadership Principle: Negotiation](https://archrespite.org/lc-meetings/july-11-2024-leadership-principle-negotiation-skills/) - Leadership Principle: Negotiation This meeting of the ARCH National Strategy Learning Collaborative focused on employing Negotiation Skills towards implementing the National Strategy. Negotiation involves two or more people finding an acceptable solution to a shared problem. Negotiation is a strategic discussion that involves give and take, and both parties usually need to make some concessions,
- [July 18, 2024 - Caregiver to Caregiver (C2C) Respite Network](https://archrespite.org/lc-meetings/july-18-2024-caregiver-to-caregiver-c2c-respite-network/) - Caregiver to Caregiver (C2C) Respite Network, A community of caregiving rooted in shared experience The Caregiver to Caregiver (C2C) Respite Network was developed by a parent of a child with a disability. C2C is funded by American Rescue Plan Act funds though a special state respite initiative, and is a program of the Federation for Children
- [June 6, 2024 - Leadership Principle: Time Management](https://archrespite.org/lc-meetings/june-6-2024-leadership-principle-time-management/) - Leadership Principle: Time Management This meeting of the ARCH National Strategy Learning Collaborative focused on improving Prioritization & Time Management Skills towards implementing the National Strategy to Support Family Caregivers. Time management is the process of organizing and planning how to divide your time between different activities. Time management is the coordination of tasks and activities to maximize
- [June 28, 2024 - Sustainability 101: How to Build Sustainable Respite Services and Systems](https://archrespite.org/lc-meetings/june-28-2024-sustainability-101-how-to-build-sustainable-respite-services-and-systems/) - Sustainability 101: How to Build Sustainable Respite Services and Systems Learning collaborative participants met to plan a webinar series over the next 12 months that would help share the sustainability planning lessons learned during the last 5 or 6 years of the learning collaborative with the rest of the wider respite network.
- [June 3, 2021 - Outcomes vs Outputs and Measuring Collaboration](https://archrespite.org/lc-meetings/performance-measurement-meeting-june-3-202147i87/) - Outcomes vs Outputs and Measuring Collaboration
- [June 8, 2017 - Using the Finance Project Sustainability Tools. Presented by Learning Collaborative Leaders from Exemplar States](https://archrespite.org/lc-meetings/using-the-finance-project-sustainability-tools-presented-by-learning-collaborative-leaders-from-exemplar-states/) - Using the Finance Project Sustainability Tools Learning Collaborative leaders from the Exemplar States* who participated in the ARCH Sustainability TA Project shared their experiences in using the Finance Project Toolkit and provided an introduction to Logic Modeling and Sustainability Planning. State Case Study Presentations NEBRASKA, Sharon Johnson, Nebraska Lifespan Respite Network PENNSYLVANIA, MaryJo Alimena Caruso,
- [March 22, 2024 - A Systems Focus for Infrastructure and Sustainability](https://archrespite.org/lc-meetings/march-22-2024-a-systems-focus-for-infrastructure-and-sustainability/) - A Systems Focus for Infrastructure and Sustainability The group discussed the importance of understanding sustainability of Lifespan Respite Care program activities in terms of systems building goals of the Lifespan Respite Care Program.
- [October 27, 2023 - Documenting Systems Change and Collective Impact](https://archrespite.org/lc-meetings/october-27-2023-documenting-systems-change-and-collective-impact/) - Documenting Systems Change and Collective Impact This session focused on describing what a system is, how systems change occurs, and how to use data to measure incremental systems change. This discussion is especially important for those participants interested in sustaining their respite coalition and coalition activities. This meeting was not recorded.
- [March 7, 2024 - Leadership Principle: Persuasion](https://archrespite.org/lc-meetings/march-7-2024-leadership-principle-persuasion/) - Power and Influence Leadership Principle: Persuasion This ARCH National Strategy Learning Collaborative focused on using persuasion towards implementing the National Strategy to Support Family Caregivers. Persuasion comes into play when presenting ideas, proposals, or strategies to enable organizational change as people and organizations can be resistant to change, especially if they’ve followed the same processes
- [March 14, 2024 - Reimbursement Strategies for Voucher Programs: Boon or Barrier for Family Caregivers](https://archrespite.org/lc-meetings/march-14-2024-reimbursement-strategies-for-voucher-programs-boon-or-barrier-for-family-caregivers/) - Reimbursement Strategies for Voucher Programs: Boon or Barrier for Family Caregivers This meeting focuses on how reimbursing family caregivers, rather than paying them upfront or paying the providers directly, may be a financial barrier to their ready use of respite vouchers. While this may be a barrier for family caregivers, it may allow the administering
- [February 29, 2024 - Creating Dementia-Friendly Congregations to Support African American Families](https://archrespite.org/lc-meetings/creating-dementia-friendly-congregations-to-support-african-american-families/) - Creating Dementia-Friendly Congregations to Support African American Families The ARCH Volunteer and Faith-based Respite Learning Collaborative held a webinar to learn more about the Alter program. Alter is the first of its kind and is a substantial piece of the puzzle in responding to the needs of African American family caregivers and people living with
- [February 1, 2024 - Leadership Principle: Challenge the Process](https://archrespite.org/lc-meetings/february-1-2024-leadership-principle-challenge-the-process/) - Leadership Principle: Challenge the Process In this Learning Collaborative session, participants learned how to recognize and address barriers that may be encountered when building successful campaigns promoting the National Strategy and its proposed actions. Leaders constantly question how things are done in their organizations. They identify processes that do not work and take action to
- [January 4, 2024 - Leadership Principle: Enabling Others to Act](https://archrespite.org/lc-meetings/january-4-2024-leadership-principle-enabling-others-to-act/) - Leadership Principle: Enabling Others to Act (Building Partnerships) This meeting of the ARCH National Strategy Learning Collaborative focused on partnerships, and how to engage in actions that will enable others to act towards implementing the National Strategy. As an example, the Massachusetts Lifespan Respite Grantee and the Respite Coalition presented on how they motivated others
- [January 26, 2024 - Experienced Mentors Help others Build and Sustain their Lifespan Respite Systems](https://archrespite.org/lc-meetings/january-26-2024-experienced-mentors-help-others-build-and-sustain-their-lifespan-respite-systems/) - Experienced Mentors Help others Build and Sustain their Lifespan Respite Systems Learning Collaborative participants discussed the future content and format for the Learning Collaborative. Experienced Lifespan Respite grantees from AL, OK and NE shared how they have sustained their systems for more than 10-20 years, through embedded, systemic collaboration; legislative initiatives that require state agency
- [January 18, 2024 - Stretching Your Voucher Dollars to Serve More Caregivers: Cost-Sharing and other Strategies](https://archrespite.org/lc-meetings/january-18-2024-stretching-your-dollars-to-serve-more-caregivers-cost-sharing-and-other-strategies/) - Stretching Your Voucher Dollars to Serve More Caregivers: Cost-Sharing and other Strategies Aleatha Dickerson, Network Manager, Community Living, and Lifespan Respite grantee manager, Rhode Island Office of Healthy Aging, and Hector Munoz, CareBreaks Respite Coordinator, Catholic Social Services, Diocese of Providence, described Rhode Island's CareBreaks Program, RI's primary respite program, that offers cost-share respite services
- [September 14. 2023 - Scaling Up: Caregiver-Directed Respite Care in New York State](https://archrespite.org/lc-meetings/september-14-2023-caregiver-directed-respite-care-in-new-york-state/) - Scaling Up: Caregiver-Directed Respite Care in New York State Building on their Lifespan Respite caregiver-directed respite voucher services administered by the NY State Caregiving and Respite Coalition, presenters Deana Prest and Abbey Derepentigny from the New York State Office for the Aging discussed their process, the products they developed, and their experiences of expanding respite voucher
- [November 2, 2023 - Leadership Principle: Inspire a Shared Vision](https://archrespite.org/lc-meetings/november-2-2023-leadership-principle-inspire-a-shared-vision/) - Leadership Principle: Inspire a Shared Vision At this meeting of the ARCH National Strategy Learning Collaborative, participants will focus on creating a vision towards implementing the National Strategy to Support Family Caregivers. Communicating vision is the ability to paint a vivid and inspirational picture of a future state that rallies individual and collective support to
- [November 9, 2023 - The National Volunteer Caregiving Network: Celebrating 40 Years of Volunteer Service to the Nation’s Caregivers](https://archrespite.org/lc-meetings/november-9-2023-the-national-volunteer-caregiving-network-celebrating-40-years-of-volunteer-service-to-the-nations-caregivers/) - The National Volunteer Caregiving Network: Celebrating 40 Years of Volunteer Service to the Nation’s Caregivers Description: The original Volunteer Caregiving initiative, Faith in Action, now overseen by the National Volunteer Caregiving Network (NVCN), was launched in 1984 by the Robert Wood Johnson Foundation, which offered start-up funding to 25 pilots, the success of which resulted
- [October 5, 2023  – Purpose: Foundation of Leadership](https://archrespite.org/lc-meetings/october-5-2023-purpose-foundation-of-leadership/) - Purpose: Foundation of Leadership Cheryl Dinnell, the Learning Collaborative facilitator, outlined a new framework focused on leadership skill development that will guide the group going forward. The learning collaborative will work on developing leadership and assist in identifying the skills needed to be successful. Each week, through guest presentations, we also expect to highlight a
- [September 22, 2023 - Exploring Strategies to Address the Uncertainty of Sustained Funding](https://archrespite.org/lc-meetings/september-22-2023-exploring-strategies-to-address-the-uncertainty-of-sustained-funding/) - Exploring Strategies to Address the Uncertainty of Sustained Funding Participants met and discussed the questions: How do you deal with the uncertainty of funding streams? Do you have alternative financing strategies in place? Are you experiencing shifts in the pool of direct care workers who seem to have less of a commitment to the job
- [July 28, 2023 - Sustainability Requirements for State Discretionary Mini-Grantees](https://archrespite.org/lc-meetings/july-28-2023-states-check-in/) - Sustainability Requirements for State Discretionary Mini-Grantees Learning collaborative participants provided updates on their sustainability planning efforts. A discussion about whether or not the state Lifespan Respite program requires or requests sustainability plans from discretionary grants awarded to community or faith-based organizations, and if so, what they asked to be included in those plans.
- [April 28, 2023 - Sustainability Learning Collaborative History](https://archrespite.org/lc-meetings/april-28-2023-sustainability-learning-collaborative-history/) - History and Accomplishments of the Sustainability Learning Collaborative Susan Janko Summers, Learning Collaborative facilitator, reviewed the history of the Sustainability Learning Collaborative, its accomplishments, and led a discussion on future content and structure for the group. This meeting was not recorded.
- [August 25, 2023 - Key Factors for Sustainability](https://archrespite.org/lc-meetings/august-25-2023-key-factors-for-sustainability/) - Key Factors for Sustainability of Respite Program, Respite Coalition or Lifespan Respite Systems Group members shared and discussed the top factors that have influenced their sustainability successes at the respite program, state respite coalition or state systems levels. Top factors include partnerships that developed as a result of coalition building, and a stable source of
- [May 26, 2023 - Advocacy Tools](https://archrespite.org/lc-meetings/may-26-2023-advocacy-tools/) - Advocacy Tools The collaborative focused on gathering and learning about advocacy tools, strategies and other resources that could assist them in legislative and administrative advocacy ins support of respite care at the state level. Partners in Policymaking was shared as an example of advocacy training. The meeting was not recorded.
- [August 10, 2023 - Youth Volunteers Providing Respite for Children and Young Adults with Disabilities](https://archrespite.org/lc-meetings/august-10-2023-volunteer-respite-for-children-and-youth-with-disabilities/) - Youth Volunteers Providing Respite for Children and Young Adults with Disabilities Lessons from the Northern Nevada R.A.V.E. Family Foundation (Respite And Volunteer Experiences) The ARCH Volunteer and Faith-Based Respite Learning Collaborative focused on Volunteer Respite for Children and Youth with Disabilities. We heard from Northern Nevada R.A.V.E. Family Foundation and their approach to providing respite
- [July 13, 2023 - Strengthening the Direct Care Workforce](https://archrespite.org/lc-meetings/july-13-2023-strengthening-the-direct-care-workforce/) - Strengthening the Direct Care Workforce The focus of this meeting is on Strengthening the Direct Care Workforce to help improve respite capacity. Dr. Kezia Scales, Vice President of Research & Evaluation, with PHI, Quality Care through Quality Jobs, was the guest presenter. Dr. Scales leads the work at PHI on building the evidence base on state and
- [June 15, 2023 - State Respite Action Next Steps](https://archrespite.org/lc-meetings/june-15-2023-respite-action-next-steps/) - State Respite Action Next Steps At this meeting of the Lifespan Respite grantee and partner Learning Collaborative on Implementing the National Strategy to Support Family Caregivers, participants reviewed the most relevant items to advancing respite and caregiver support in the White House Executive Order on Increasing Access to High-Quality Care and Supporting Caregivers and shared
- [April 20, 2023 - Approaches to State Policymaking and Diversified Funding](https://archrespite.org/lc-meetings/april-20-2023-approaches-to-state-policymaking-and-diversified-funding/) - Approaches to State Policymaking and Diversified Funding Identifying strategies to sustain and scale up respite care services and supports to reach more family caregivers is one of the goals of this Learning Collaborative. At the last meeting, we catalogued activities and initiatives that Lifespan respite grantees and their partners have undertaken or are planning to
- [March 16, 2023 - Aligning Grantee Activities with National Strategy Goals](https://archrespite.org/lc-meetings/march-16-2023-aligning-grantee-activities-with-national-strategy-goals/) - Aligning Grantee Activities with National Strategy Goals The focus of this meeting was to review the ARCH matrix of Lifespan Respite Grantee activities with the goals and outcomes in the National Strategy to Support Family Caregivers. Grantees and partners shared additional activities to add to the matrix.
- [June 23, 2023 - Coalition Structure and the Impact on Sustainabilty](https://archrespite.org/lc-meetings/june-23-2023-coalition-structure-and-the-impact-on-sustainabilty/) - Coalition Structure and the Impact on Sustainability Resources were shared to describe various respite coalition structures and the group discussed the pros and cons for each in impacting sustainability. Susan Summers, the LC facilitator, made reference to ARCH's Building A Statewide Respite Coalition: Where Do We Begin? that can be found on the ARCH website
- [February 8, 2018 - Growing a State Respite Program from the Ground Up!](https://archrespite.org/lc-meetings/growing-a-state-respite-program-from-the-ground-up/) - Growing a State Respite Program from the Ground Up! Presentation of Melissa Terry and Cheryl Smith from Alabama Lifespan Respite ARCH National Respite Network and Resource Center · Growing a State Respite Program from the Ground Up! In 1996, United Cerebral Palsy of Huntsville realized there were limited respite options for Alabama caregivers and successfully
- [May 29, 2018 - Launch of the Sustainability Planning Workgroup](https://archrespite.org/lc-meetings/may-29-2018-launch-of-the-sustainability-planning-workgroup/) - Call recording is not available. See Meeting Notes. The meeting began with a check–in from member states. Each state shared activities they engaged in from the five Toolkit modules. Participants asked questions and offered information in a discussion format. Nadine Walter, the OK Lifespan Respite grantee, presented their experience using the Financing Project toolkit and
- [July 27, 2018 - States Check In](https://archrespite.org/lc-meetings/july-27-2018-states-check-in/) - States Check In ARCH National Respite Network and Resource Center · Sustainiability LC_7 - 27 - 2018 Track1 - ID357860780
- [June 22, 2018 - States Check In](https://archrespite.org/lc-meetings/june-22-2018-states-check-in/) - States Check In Discussion Points led by Group Leaders Updates and strategies for using the Finance Project Tool Kit Self-Assessment Identifying and Engaging the Right People for Planning Increasing the Likelihood of Buy-in from Team Members Dealing with Time Pressures
- [August 24, 2018 - States Check In](https://archrespite.org/lc-meetings/states-check-in/) - States Check In ARCH National Respite Network and Resource Center · FinanceProj 8 - 24 - 18 Track1 - ID352893868
- [September 28. 2018 - States Check In](https://archrespite.org/lc-meetings/september-28-2018-states-check-in/) - States Check In The group learned about New York’s sustainability planning process. Using a facilitator, New York developed a logic model for sustainability planning. Doris Green with the NYSCRC shared the agenda for their State Lifespan Respite Sustainability Summit, notes from the Summit, and the draft Financing Logic Model (see next version of the draft
- [October 26, 2018 - States Check In](https://archrespite.org/lc-meetings/october-26-2018-states-check-in/) - States Check In ARCH National Respite Network and Resource Center · Finance Proj Wkgrp 10 - 26 - 2018 Track1 - ID301879793
- [November 30, 2018 - States Check In](https://archrespite.org/lc-meetings/november-30-2018-states-check-in/) - States Check In Call recording not available. See meeting notes for State Updates.
- [January 25, 2019 - States Check In](https://archrespite.org/lc-meetings/january-25-2019-states-check-in/) - States Check In ARCH National Respite Network and Resource Center · Jan 25 2019 Track1 - ID118952858
- [February 22, 2019 - States Check In](https://archrespite.org/lc-meetings/february-22-2019-states-check-in/) - States Check In Topics Discussed: Legislative activity, planning and consensus, and using data to support sustainability were discussed as important components of a multi-faceted sustainability strategy. Call recording not available.
- [March 22, 2019 - Focus on Writing the Sustainability Plan](https://archrespite.org/lc-meetings/march-22-2019-focus-on-writing-the-sustainability-plan/) - Focus on Writing the Sustainability Plan Discussion Topic: Putting pen to paper - beginning the discussion on writing the sustainability plan. Call recording not available.
- [June 28, 2019 - Focus on Financing Strategies and Succession Planning](https://archrespite.org/lc-meetings/june-28-2019-focus-on-financing-strategies-and-succession-planning/) - Focus on Financing Strategies and Succession Planning The learning collaborative reviewed ARCH's Financing Strategies Matrix and reviewed tips for successful succession planning -- an often overlooked component of successful sustainability. ARCH National Respite Network and Resource Center · Sustainability Workgroup 6 - 28 - 19 Track1 - ID697967595
- [August 23, 2019 - Focus on Collaboration](https://archrespite.org/lc-meetings/august-23-2019-focus-on-collaboration/) - Focus on Collaboration The group discussed the role of collaborative communities -- continuing forums where public and private sector members proactively work together to achieve common objectives and outcomes, to solve shared challenges and to leverage collective opportunities in an environment of trust, respect, empathy and openness. New York shared their Financing Strategies Logic Model
- [September 27, 2019 - States Check In](https://archrespite.org/lc-meetings/september-27-2019-states-check-in/) - States Check In ARCH National Respite Network and Resource Center · Sustainability Planning Workgroup 9 - 27 - 19 Track1 - ID377927303
- [January 24, 2020 - States Check In](https://archrespite.org/lc-meetings/january-24-2020-states-check-in/) - States Check In ARCH National Respite Network and Resource Center · Sustainability Planning Worgroup 1 - 24 - 2020
- [March 27, 2020 - States Check In](https://archrespite.org/lc-meetings/march-27-2020-states-check-in/) - States Check In ARCH National Respite Network and Resource Center · Sustainability Planning Learning Collaborative March 27 2020
- [February 26, 2021 - States Check In](https://archrespite.org/lc-meetings/february-26-2021/) - States Check In
- [April 24, 2020 - States Check In](https://archrespite.org/lc-meetings/april-24-2020-states-check-in/) - States Check In ARCH National Respite Network and Resource Center · Sustainability Planning Workgroup April 24, 2020
- [October 25, 2019 - States Check In](https://archrespite.org/lc-meetings/october-25-2019-states-check-in/) - States Check In ARCH National Respite Network and Resource Center · Sustainability Planning WkGrp 10 - 25 - 19 Track1 - ID358979683
- [February 28, 2020 - The Easy, Peasy Sustainability Planner](https://archrespite.org/lc-meetings/february-28-2020-the-easy-peasy-sustainability-planner/) - The Easy, Peasy Sustainability Planner During the February 28, 2020, Sustainability Planning Learning Collaborative meeting, states checked in and Susan Summers shared a guide to facilitate discussion about the steps to sustainability planning to help the group think aloud about how to convey sustainability plans to others in a succinct and clearly understandable way. This
- [November 22, 2019 - Contributions of time, talent and treasure in sustaining Lifespan Respite](https://archrespite.org/lc-meetings/november-22-2019-contributions-of-time-talent-and-treasure-in-sustaining-lifespan-respite/) - Contributions of time, talent and treasure in sustaining Lifespan Respite During this Learning Collaborative meeting, states checked in and Susan Summers shared a resource on contributions of time, talent and treasure in sustaining Lifespan Respite. As a regular part of collective lifespan respite work, coalition and planning partners generously contribute time, talent and treasure to
- [July 24, 2020 - Checking in to Sustain our Work](https://archrespite.org/lc-meetings/july-24-2020-checking-in-to-sustain-our-work/) - Checking in to Sustain our Work Susan Summers, LC facilitator, reviewed a one-page handout entitled Checking-In to Sustain our Work (attached and posted on the ARCH website) that provided an overview of the process the Nevada Lifespan Respite Coalition used recently during a strategic planning session. Each state shared an update on activities they are
- [April 21, 2017 - Launch of the Sustainability Learning Collaborative](https://archrespite.org/lc-meetings/april-21-2017-launch-of-the-sustainability-learning-collaborative/) - Launch of the Sustainability Learning Collaborative ARCH staff conducted a survey to determine the most pressing issues in sustainability planning among Lifespan Respite grantees and partners, and generated a summary of key topics from the survey findings. The key topics list was presented at the launch of Sustainability Learning Collaborative to generate discussion about content
- [December 11, 2017 - Burning Issues and Markers of Sustainability: Funding and Stakeholders/Coalitions and Planning Groups](https://archrespite.org/lc-meetings/december-11-2017-burning-issues-and-markers-of-sustainability-funding-and-stakeholders-coalitions-and-planning-groups/) - Burning Issues and Markers of Sustainability: Funding and Stakeholders/Coalitions and Planning Groups ARCH National Respite Network and Resource Center · Burning Issuesand Markers of Sustainability At the Lifespan Respite Grantee and Partner Learning Symposium in Huntsville, AL, in October, 2017, the group identified burning issues. During this call, the learning collaborative explored the
- [August 16, 2018 - Using a SWOT for Strategic Planning and Measuring Outcomes](https://archrespite.org/lc-meetings/august-16-2018-using-a-swot-for-strategic-planning-and-measuring-outcomes/) - Using a SWOT for Strategic Planning and Measuring Outcomes Presentation by Julie Waters with the Alabama Department of Senior Services, and AL’s Lifespan Respite grantee manager. ARCH National Respite Network and Resource Center · Using a SWOT for Strategic Planning and Measuring Outcomes SWOT analysis is a strategic planning method used to research external and
- [May 11, 2023 - Partnering with AmeriCorps Seniors to Support Respite and Workforce Development](https://archrespite.org/lc-meetings/may-11-2023/) - Partnering with AmeriCorps Seniors to Support Respite and Workforce Development This meeting of the Volunteer and Faith-based Respite Learning Collaborative focused on the AmeriCorps Seniors – Senior Companion Program and how it can support Lifespan Respite grantees’ and other respite agencies’ efforts to increase access to respite and support workforce development. To connect with local
- [April 6, 2023 - The Business of Respite: Key Performance Indicators for Program Sustainability and Accountability](https://archrespite.org/lc-meetings/april-6-2023-the-business-of-respite-key-performance-indicators-for-program-sustainability-and-accountability/) - The Business of Respite: Key Performance Indicators for Program Sustainability and Accountability A joint presentation for the ARCH Performance Measurement and Sustainability Learning Collaboratives Jed Johnson, Managing Director, Aging Services, CARF International, presented a practical approach and framework for identifying, prioritizing, monitoring and implementing performance indicators for respite services and systems. Topics covered include: Costs
- [January 19, 2023 - A Readiness Assessment Tool for Self-Directed Respite Voucher Programs](https://archrespite.org/lc-meetings/january-19-2023-a-readiness-assessment-tool-for-self-directed-respite-voucher-programs/) - A Readiness Assessment Tool for Self-Directed Respite Voucher Programs In order to solicit input from Lifespan Respite grantees and partners, Laura Mauldin and Molly Morris with Applied Self-Direction shared the first draft of a readiness self-assessment tool for respite voucher programs. The purpose of this tool is to help grantees plan for and start up
- [February 9, 2023 - Students as Respite Volunteers: A Creative Approach to Supporting Family Caregivers](https://archrespite.org/lc-meetings/february-9-2023-students-as-respite-volunteers-a-creative-approach-to-supporting-family-caregivers/) - Students as Respite Volunteers: A Creative Approach to Supporting Family Caregivers Using students from undergraduate and graduate nursing, social work, and other health care professional academic programs as volunteer respite providers is a growing approach among Lifespan Respite Care Programs and others to support family caregivers and address the direct care worker shortage. ARCH recently
- [February 24, 2023 - Sustainability Planning vs. Business Planning and State Check-In](https://archrespite.org/lc-meetings/february-24-2023-sustainability-planning-vs-business-planning-and-state-check-in/) - Sustainability Planning vs. Business Planning During this Learning Collaborative Meeting , the group discussed the differences between Sustainability Planning and Business Planning. Susan Janko Summers, the ARCH facilitator shared a side-by-side comparison of Sustainability Planning and Business Planning. Susan prepared this to address recent and ongoing questions about the differences between sustainability plans and business
- [March 25, 2022 - Strategic and Sustainability Planning](https://archrespite.org/lc-meetings/march-25-2022-strategic-and-sustainability-planning/) - Strategic and Sustainability Planning Presentation by LC members, Sarah Toevs, PhD, Director, Center for Study of Aging, Boise State University and Marilyn Sword, Coordinator, Idaho Caregiver Alliance. Discussion followed on the differences between strategic, sustainability and business plans, the impact of coalition structure on sustainability, and overcoming age and disability agency silos to ensure sustainability.
- [August 26, 2022 - States Check In](https://archrespite.org/lc-meetings/august-26-2022-meeting/) - States Check In States reported on their progress in sustainability planning and New York shared resources on Employer Engagement to support family caregivers.
- [January 27, 2023 - Coalitions as a Tool for Advocacy](https://archrespite.org/lc-meetings/january-27-2023-coalitions-as-a-tool-for-advocacy-2/) - Coalitions as a Tool for Advocacy During this learning collaborative meeting, Susan Janko Summers, ARCH, shared a short presentation on Coalitions as a Tool for Advocacy, resources from tccGroup. Participants provided their monthly check in on progress made and challenges faced in their sustainability planning efforts.
- [September 8, 2022 - States Share Measurement Tools](https://archrespite.org/lc-meetings/states-share-measurement-tools/) - States Share Measurement Tools Two members of the collaborative, Nick Slentz, Virginia Department for Aging and Rehabilitative Services, and Cory Lutz, Helping Hands of Vegas Valley, Nevada, shared the tools they use for measuring outcomes, discussed how they use the tools, and how the tools have helped them better understand their services. Casandra Firman, ARCH, also shared tools developed
- [December 9, 2022 - Forming, Building and Maintaining Coalitions](https://archrespite.org/lc-meetings/december-9-2022-forming-building-and-maintaining-coalitions/) - Forming, Building and Maintaining Coalitions Susan Summers, the ARCH LC facilitator, shared a presentation on Forming, Building and Maintaining Coalitions, with resources from the Community Toolbox at the University of Kansas. States provided monthly check in reports and shared valuable resources.
- [April 21, 2022 - Exploring Administrative and Outreach Issues in Respite Voucher Programs](https://archrespite.org/lc-meetings/exploring-administrative-and-outreach-issues-in-respite-voucher-programs/) - Exploring Administrative and Outreach Issues in Respite Voucher Programs The Collaborative broke up into three discussion groups and utilized a discussion guide to facilitate conversations related to voucher program implementation on the following topics: Group #1. Flexible and Responsive Voucher Programs (No recording Group #2 - Outreach to Special Populations Group #3 - Helping Family Caregivers
- [July 14, 2022 - Vouchers for Emergency Respite](https://archrespite.org/lc-meetings/july-14-2022-vouchers-for-emergency-respite/) - Vouchers for Emergency Respite The July 14th meeting of the ARCH Respite Voucher Learning Collaborative focused on the implementation of respite vouchers for emergency respite. We heard from colleagues in Illinois and Nevada and then broke out into smaller discussion groups to delve more deeply: Tina Yurik, Executive Director, Illinois Respite Coalition. Read more about
- [October 20, 2022 - Topical Issues in Self-Directed Respite Voucher Programs](https://archrespite.org/lc-meetings/october-20-2022/) - Topical Issues in Self-Directed Respite Voucher Programs The October 20, 2022 meeting of the Respite Voucher Learning Collaborative focused on Topical Issues in Self-Directed Respite Voucher Programs, using the Self-Directed Respite Voucher Guide as a resource. The following issues were discussed in small discussion groups: 1) Stakeholder Involvement in Voucher Respite programs; 2) Marketing and
- [December 15, 2022 - States Share Measurement Tools](https://archrespite.org/lc-meetings/december-15-2022-states-share-measurement-tools/) - States Share Measurement Tools Tami Cirerol, Asst Director of the Center for the Study of Aging, and Sarah E. Toevs, Director of the Center for the Study of Aging at Boise State University, and Hanna Scheuffele, with the ID Caregiver Alliance, shared information on the evaluation tool(s) they’ve used for Idaho’s Lifespan Respite initiatives, including their respite voucher pilot
- [September 20, 2018 - Practical Considerations When Starting a New Voucher Program and for Experienced Voucher Program Providers](https://archrespite.org/lc-meetings/september-20-2018-practical-considerations-when-starting-a-new-voucher-program-and-for-experienced-voucher-program-providers/) - Practical Considerations When Starting a New Voucher Program and for Experienced Voucher Program Providers Are you thinking about starting a voucher respite program? Are you a seasoned veteran in implementing a program, but still have questions? This call will explore the many issues you should consider before getting started as well as those that may
- [May 12, 2022 - Collaborative Members Share Best Practices in Volunteer and Faith-based Respite](https://archrespite.org/lc-meetings/may-12-2022-collaborative-members-share-best-practices/) - Collaborative Members Share Best Practices in Volunteer and Faith-based Respite Elaine Whitford, Executive Director, The Center for Volunteer Caregiving, Cary, NC provided background and progress on NC Lifespan Respite Project’s Volunteer Respite Consortium. Kathy Mayfield Smith, Board President and Co-Founder, South Carolina Respite Coalition, Columbia, SC presented an overview of their long history in engaging the faith community
- [November 10, 2022 - Step-by-Step Guide to Mini grants for Volunteer and Faith-based Respite](https://archrespite.org/lc-meetings/november-10-2022-step-by-step-guide-to-mini-grants-for-volunteer-and-faith-based-respite/) - Step-by-Step Guide to Mini grants for Volunteer and Faith-based Respite This meeting focused on the mechanics of planning for and administering a mini grant program to build capacity of community and faith-based organizations to provide volunteer respite. Members of the Lifespan Respite Network, Deana Prest, New York State Office for the Aging (NYSOFA) and Kathy
- [May 22, 2020 - Continuing Sustainability Planning Virtually](https://archrespite.org/lc-meetings/may-22-2020-continuing-sustainability-planning-virtually/) - State Check Ins Discussion focused on how to continue with sustainability planning during COVID-19, Some virtual tools like Ideaboard and Thought Exchange are ways to keep exchanging ideas and gathering stakeholder input. AZ, WA and NY state coalitions also discussed how their programs are addressing challenges to meet goals and objectives of their LIfespan Respite
- [June 26, 2020 - Coping with COVID and Changes in Leadership](https://archrespite.org/lc-meetings/june-26-2020-coping-with-covid-and-changes-in-leadership/) - Coping with COVID and Changes in Leadership Ongoing conversations about adapting to alternatives to service delivery during COVID, changes in leadership and the impact and more.
- [July 24, 2020 - State Check Ins](https://archrespite.org/lc-meetings/july-24-2020-state-check-ins/) - State Check Ins There is a written summary of this meeting, but no recording.
- [October 23, 2020 - Implications of COVID-19 on Sustainability Planning](https://archrespite.org/lc-meetings/october-23-2020-implications-of-covid-19-on-sustainability-planning/) - Implications of COVID-19 on Sustainability Planning This call focused on a review and discussion of preliminary findings from The Break Exchange survey of respite providers and the impact of Covid-19 on their work.
- [September 25, 2020 - COVID-19 Effects on Services and Sustainability](https://archrespite.org/lc-meetings/september-25-2020-covid-19-effects-on-services-and-sustainability/) - COVID-19 Effects on Services and Sustainability This learning collaborative meeting began an ongoing discussion of how grantee activities are changing due to COVID-19 and addressed the questions: Is respite being defined differently: what changes have been made to your respite services and activities as a result of COVID; do you plan to make these changes
- [November 20, 2020 - States Share Sustainability Plans and Processes](https://archrespite.org/lc-meetings/november-20-2020-states-share-sustainability-plans-and-processes/) - States Share Sustainability Plans and Processes States were asked to share the sustainability plans they included in their most recent Lifespan Respite grant proposals to ACL. States spoke generally about their proposed sustainability strategies. Doris Green with the NY State Caregiving and Respite Coalition and Deana Prest with the New York State Office for the
- [January 22, 2021 - NV Lifespan Respite Care Coalition 2020 Action Plan](https://archrespite.org/lc-meetings/january-22-2021/) - NV Lifespan Respite Care Coalition 2020 Action Plan As an excellent example of deliberative and thoughtful planning to sustain a respite coalition, Cory Lutz with the NV Lifespan Respite Care Coalition shared the Coalition's 2020 Action Plan to Increase Awareness and Access to the Coalition and how they developed it.
- [March 26, 2021 - Revisiting the Sustainability Learning Collaborative Framework](https://archrespite.org/lc-meetings/march-26-2021-revisiting-the-sustainability-learning-collaborative-framework/) - Revisiting the Sustainability Learning Collaborative Framework Susan Janko Summers, ARCH Learning Collaborative facilitator, used the discussion guide to revisit topics for future discussion. A number of resources were mentioned during the states' check in and are provided in the attached resource list.
- [April 23, 2021 - Respite Systems, Shared Leadership and Collaboration](https://archrespite.org/lc-meetings/april-23-2021-respite-systems-shared-leadership-and-collaboration/) - Respite Systems, Shared Leadership and Collaboration Susan Janko Summers, ARCH Learning Collaborative facilitator, shared a discussion guide on the importance of shared leadership and collaboration. States provided their check ins, focusing on the importance of shared leadership.
- [May 28, 2021 - Sustainability Planning Activities and Summits](https://archrespite.org/lc-meetings/may-28-2021-sustainability-planning-activities-and-summits/) - Sustainability Planning Activities and Summits Doris Green with the New York State Caregiving and Respite Coalition did a presentation on their sustainability planning activities and summits held to date, with lessons learned.
- [August 27, 2021 - History and Overview of Sustainability Planning Learning Collaborative](https://archrespite.org/lc-meetings/august-27-2021-history-and-overview-of-sustainability-planning-learning-collaborative/) - History and Overview of Sustainability Planning Learning Collaborative Susan Summers, ARCH Learning Collaborative facilitator, for the benefit of new members, provided an historical look back at ARCH's training and technical assistance activities and products, the formation of the Learning COllaborative and its initial priorities, and the current topics and format for the group. The group
- [September 24, 2021 - Systems and Sustainability](https://archrespite.org/lc-meetings/september-24-2021-systems-and-sustainability/) - Systems and Sustainability Susan Summers, ARCH Sustainability Planning Learning Collaborative facilitator, shared slides on definition of sustainable systems and respite systems, and how to build sustainability respite systems. Resources mentioned during the meeting when states presented their check ins: TCare is a proprietary caregiver assessment tool discussed on the call by Deana Prest, NY, and
- [October 29, 2021 - States Check In](https://archrespite.org/lc-meetings/october-29-2021/) - States Check In
- [January 28, 2022- Introducing a Framework for Understanding Sustainability Planning](https://archrespite.org/lc-meetings/january-28-2022/) - Introducing a Framework for Understanding Sustainability Planning Susan Summers, ARCH LC collaborative facilitator, introduced a draft of a framework for understanding Sustainability Planning and how to access resources, knowledge and experience that have been garnered by this Learning Collaborative, the other Lifespan Respite grantees and partners, and ARCH. This draft document Standards, Guidelines, and Measures
- [February 25, 2022 - States Check In](https://archrespite.org/lc-meetings/february-25-2022/) - States Check In
- [May 27, 2022 - Sharing our Space](https://archrespite.org/lc-meetings/may-27-2022-meeting/) - Sharing our Space The facilitator reviewed a section on Sustainability from a Generations United Toolkit on Sharing Our Space: A Toolkit for Developing and Enhancing Intergenerational Shared Sites. Unfortunately, the recording was accidentally started late and the first five minutes of the presentation were not recorded. However, the presentation slides are available. The remainder of the call focused on
- [June 24, 2022 - New York State Lifespan Respite Final Sustainability Plan Report](https://archrespite.org/lc-meetings/june-24-2022-meeting/) - New York State Lifespan Respite Final Sustainability Plan Report This month’s Learning Collaborative featured Deana Prest and Abbey Derepentigny from the NY State Office for the Aging. They presented the New York State Caregiving and Respite Coalition Lifespan Respite Final Sustainability Plan Report.
- [September 23, 2022 - Creating, Repairing, Reviving, and Sustaining Lifespan Respite Systems - A Sustainability Planning Framework](https://archrespite.org/lc-meetings/september-23-2022-creating-repairing-reviving-and-sustaining-lifespan-respite-systems-a-sustainability-planning-framework/) - Creating, Repairing, Reviving, and Sustaining Lifespan Respite Systems - A Sustainability Planning Framework Susan Summer, the LC facilitator, discussed a framework that she is building to organize and catalogue information this Learning Collaborative has generated since it began five years ago. You can find the outline for the framework in her presentation slides, Creating, Repairing,
- [October 28, 2022 - States Check In](https://archrespite.org/lc-meetings/october-28-2022-states-check-in/) - States Check In The call was focused on state check-ins and the conversation was very rich and inspirational. Revisiting the Finance Project’s Sustainability Planning Workbook. Before each state shared their updates, for the newer members in the group, we talked about the original Sustainability Planning Workbook that some in the group have used to engage
- [October 12, 2021 - Launch of the Learning Collaborative](https://archrespite.org/lc-meetings/october-12-2021-launch-of-the-learning-collaborative/) - Launch of the Learning Collaborative The Learning Collaborative offers an opportunity for peer-to-peer learning by providing a forum for grantees and partners to share their successes and challenges in providing or supporting Volunteer and Faith-based respite options. For those of you in the planning stages, it will provide a safe place to ask questions of
- [August 11, 2022 - Community Care Corps](https://archrespite.org/lc-meetings/august-11-2022-community-care-corps/) - Community Care Corps Caregiver Action Network staff presented an overview of the federally-funded Community Care Corps initiative, and shared recent outcomes from funded projects across the country. Nichole Goble, Director of Community Initiatives, Caregiver Action Network Derrick Goddard, Community Care Corps Director, Caregiver Action Network
- [May 16, 2018 - The Nuts and Bolts of Voucher Respite](https://archrespite.org/lc-meetings/may-16-2018-the-nuts-and-bolts-of-voucher-respite/) - The Nuts and Bolts of Voucher Respite In implementing a respite voucher program, States use a variety of delivery and reimbursement systems, target different populations, and define provider eligibility differently. This call will provide an opportunity for network members to discuss different approaches to respite voucher program implementation. Linda Porter from Lifespan Respite Washington and
- [February 27, 2019 - Discussion Generated by 2018 Respite Voucher Survey Findings](https://archrespite.org/lc-meetings/february-27-2019-discussion-generated-by-2018-respite-voucher-survey-findings/) - Discussion Generated by 2018 Respite Voucher Survey Findings This call generated a very informative discussion stimulated by the findings from the 2018 Voucher Respite Survey results. In addition, the ACL Operational Assessment plans of state Lifespan Respite voucher programs were presented to the group by Victoria Wright, ACL and Krissy Rerucha-Azeem, The Lewin Group. No
- [April 30, 2019 - Discussion at the Lifespan Respite Grantee and Partner Learning Symposium](https://archrespite.org/lc-meetings/april-30-2019-discussion-at-the-lifespan-respite-grantee-and-partner-learning-symposium/) - Discussion at the Lifespan Respite Grantee and Partner Learning Symposium The Voucher Learning Collaborative met in person during the Lifespan Respite Grantee and Partner Learning Symposium in Buffalo New York. The group discussion was facilitated by Elle Billman, Colorado Respite Coalition, Linda Porter, Lifespan Respite Washington, and Ronelle Baker, OK Sooner Success. In the video,
- [September 19, 2019 - Respite Voucher Implementation - A Deep Dive](https://archrespite.org/lc-meetings/september-19-2019-respite-voucher-implementation-a-deep-dive/) - Respite Voucher Implementation - A Deep Dive Presenters (Voucher Collaborative Members): Cheryl Dinnell, Project Coordinator, on behalf of the Nevada Aging and Disability Services Division, Planning, Advocacy & Community Services Unit, NV Dept of Health and Human Services, Carson City, NV Lisa Schneider, Executive Director, Respite Care Association of Wisconsin, Appleton, WI
- [October 27, 2020 - Respite Rx: What Caregivers Need Now](https://archrespite.org/lc-meetings/october-27-2020-respite-rx-what-caregivers-need-now/) - Respite Rx: What Caregivers Need Now Presenter: Cheryl Dinnell, Program Coordinator, Nevada Aging & Disability Services Division Cheryl Dinnell from the NV Lifespan Respite project in the Nevada Aging and Disability Services Division presented on the NV Respite Rx voucher program and lessons learned. In 2019, Cheryl presented a description of the pilot Respite Rx
- [October 6, 2021 - 2021 Respite Voucher Survey Results](https://archrespite.org/lc-meetings/respite-voucher-meeting-october-6-2021/) - 2021 Respite Voucher Survey Results During this meeting, Aietah Stephens from Sooner Success in Oklahoma presented the 2021 Respite Voucher Survey Results with a focus on changes reported due to COVID-19. Members of the group provided updates on program adaptations due to COVID-19. This discussion was followed by presentations from Aietah Stephens, OK, and Track
- [February 10, 2021 - Voucher Survey and Revisiting Respite During the Pandemic](https://archrespite.org/lc-meetings/respite-voucher-meeting-february-10-2021/) - Voucher Survey and Revisiting Respite During the Pandemic During this meeting, ARCH provided an overview of changes to State Respite Voucher Programs due to COVID-19, and the Voucher Learning Collaborative leaders introduced the 2021 Respite Voucher Survey to be completed by Learning Collaborative members. Participants broke into small discussion groups to share experiences during COVID;
- [January 20, 2022 - Overview of Self-Direction and Update of Participant-Directed Respite Guidebook](https://archrespite.org/lc-meetings/respite-voucher-meeting-january-20-2022/) - Overview of Self-Direction and Update of Participant-Directed Respite Guidebook Presentation of Molly Morris, Kate Murray, and Merle Edwards Orr, Applied Self-Direction Molly Morris and Merle Edwards-Orr with Applied Self-Direction provided an overview of self-direction with a focus on the most recent Internal Revenue Service tax and Department of Labor issues relevant to respite voucher programs.
- [Sep. 30, 2021 - Pinpointing Outcomes and Performance Targets for Measurement, Selecting Measurement Tools](https://archrespite.org/lc-meetings/performance-measurement-meeting-sep-30-2021/) - Pinpointing Outcomes and Performance Targets for Measurement, presented by Dr. Raymond S. Kirk. Dr. Kirk, a researcher and valued colleague of ARCH staff, will present on identifying and articulating outcomes and performance targets. Ray will reference the following documents: A Research Agenda for Respite Care and the Performance Measurement Guide.
- [Dec. 16, 2021 - Working with an External Evaluator: Moving from a logic model to a full report](https://archrespite.org/lc-meetings/performance-measurement-meeting-dec-16-2021/) - Working with an External Evaluator: Moving from a logic model to a full report Shared by Doris Green, New York State Caregiving and Respite Coalition, and Deana Prest, New York State Office for the Aging. Doris and Deana described how they partnered with an external evaluator to create and implement an evaluation plan. They will
- [March 13, 2020 - Respite Voucher Programs in Oklahoma and South Carolina](https://archrespite.org/lc-meetings/march-13-2020-respite-voucher-programs-in-oklahoma-and-south-carolina-2/) - Respite Voucher Programs in Oklahoma and South Carolina Presenters (Voucher Collaborative Members): Robyn A. Boswell, Special Programs Coordinator, Sooner SUCCESS, Respite Voucher Programs/Sibshops, Oklahoma City, OK Rachal Hatton, Executive Director, SC Respite Coalition, Columbia, SC
- [October 21, 2020 - Inaugural Meeting of the ARCH Performance Measurement Learning Collaborative](https://archrespite.org/lc-meetings/october-21-2020-inaugural-meeting-of-the-arch-performance-measurement-learning-collaborative/) - Inaugural Meeting of the ARCH Performance Measurement Learning Collaborative Purpose: To provide a platform for the exchange of ideas related to performance measurement. Approach: Members will learn useful measurement strategies while offering collegial support while working on real performance measurement tasks in real time. Grantees and partners will be asked to describe the goals and
- [March 4, 2021 - Caregiver Navigator Tools, Measuring Outcomes, Statewide Family Caregiver Survey](https://archrespite.org/lc-meetings/performance-measurement-meeting-march-4-2021/) - Idaho Presentation PPT Slides Logic Model for the Family Caregiver Navigation (FCN) Pilot Program ID Caregiver Retrospective Survey CareBreak Evaluation Tools CareBreak Retrospective Survey Pre Survey for CareBreak Post Survey for CareBreak Alabama Respite Alabama Whitepaper - A VOICE THAT MATTERS The Impact of Family Caregiving in Alabama Alabama Lifespan Respite Act Alabama Respite Coalition
- [March 17, 2022 - A Conversation with Dr. Rebecca Utz, Respite Researcher and Professor of Sociology, University of Utah](https://archrespite.org/lc-meetings/performance-measurement-meeting-march-17-2022/) - A Conversation with Dr. Rebecca Utz, Respite Researcher and Professor of Sociology, University of Utah. Read more about Dr. Utz and her research. Dr. Utz showed us behind the scenes of her research, discussing how she identifies evaluation questions and measures, how data are gathered and analyzed, and how family caregivers and care-providers participate in the work.
- [March 13, 2020 - Respite Voucher Programs in Oklahoma and South Carolina](https://archrespite.org/lc-meetings/march-13-2020-respite-voucher-programs-in-oklahoma-and-south-carolina/) - Presenters (Voucher Collaborative Members): Robyn A. Boswell, Special Programs Coordinator, Sooner SUCCESS, Respite Voucher Programs/Sibshops, Oklahoma City, OK Rachal Hatton, Executive Director, SC Respite Coalition, Columbia, SC

## Venues

- [Bernardo O'Higgins University](https://archrespite.org/venue/bernardo-ohiggins-university/)
- [The Westin Huntsville](https://archrespite.org/venue/the-westin-huntsville/)
- [Hilton Albany](https://archrespite.org/venue/hilton-albany/)
- [Zoom](https://archrespite.org/venue/zoom/)

## Organizers

- [National Dementia Care Collaborative](https://archrespite.org/organizer/national-dementia-care-collaborative/)
- [Alabama Lifespan Respite](https://archrespite.org/organizer/alabama-lifespan-respite/)
- [Chilean Foundation for Disability](https://archrespite.org/organizer/chilean-foundation-for-disability/)
- [National Center for Cultural Competence](https://archrespite.org/organizer/national-center-for-cultural-competence/)
- [New York State Office for the Aging](https://archrespite.org/organizer/new-york-state-office-for-the-aging/)
- [New York State Caregiving and Respite Coalition](https://archrespite.org/organizer/new-york-state-caregiving-and-respite-coalition/)
- [International Short Break Association](https://archrespite.org/organizer/international-short-break-association/)
- [BREAK Exchange](https://archrespite.org/organizer/break-exchange/)
- [ARCH National Respite Network and Resource Center](https://archrespite.org/organizer/arch-national-respite-network-and-resource-center/)

## Events

- [Virtual Lifespan Respite Grantee and Partner Learning Symposium: Bring, Brag and Borrow](https://archrespite.org/event/virtual-lifespan-respite-bring-brag-and-borrow/2026-02-12/) - Virtual – February 3, 5, 10 and 12, 2026 | 2-4 PM ET each day The virtual Lifespan Respite Grantee and Partner Learning Symposium that will focus on Bring, Brag and Borrow, will be held February 3, 5, 10 and 12, 2026, from 2-4 PM ET each day. Please find the Bring, Brag and Borrow instructions with due
- [Virtual Lifespan Respite Grantee and Partner Learning Symposium: Bring, Brag and Borrow](https://archrespite.org/event/virtual-lifespan-respite-bring-brag-and-borrow/2026-02-10/) - Virtual – February 3, 5, 10 and 12, 2026 | 2-4 PM ET each day The virtual Lifespan Respite Grantee and Partner Learning Symposium that will focus on Bring, Brag and Borrow, will be held February 3, 5, 10 and 12, 2026, from 2-4 PM ET each day. Please find the Bring, Brag and Borrow instructions with due
- [Virtual Lifespan Respite Grantee and Partner Learning Symposium: Bring, Brag and Borrow](https://archrespite.org/event/virtual-lifespan-respite-bring-brag-and-borrow/2026-02-03/) - Virtual – February 3, 5, 10 and 12, 2026 | 2-4 PM ET each day The virtual Lifespan Respite Grantee and Partner Learning Symposium that will focus on Bring, Brag and Borrow, will be held February 3, 5, 10 and 12, 2026, from 2-4 PM ET each day. Please find the Bring, Brag and Borrow instructions with due
- [Virtual Lifespan Respite Grantee and Partner Learning Symposium: Bring, Brag and Borrow](https://archrespite.org/event/virtual-lifespan-respite-bring-brag-and-borrow/2026-02-05/) - Virtual – February 3, 5, 10 and 12, 2026 | 2-4 PM ET each day The virtual Lifespan Respite Grantee and Partner Learning Symposium that will focus on Bring, Brag and Borrow, will be held February 3, 5, 10 and 12, 2026, from 2-4 PM ET each day. Please find the Bring, Brag and Borrow instructions with due
- [ARCH Virtual Respite Research Summit](https://archrespite.org/event/arch-virtual-respite-research-summit/) - Thank you to presenters and attendees for making the 2024 Respite Research Summit a huge success! Visit the Summit Website for video recordings of all three days, program agendas, speaker bios, and presentation slides. Summit Proceedings ARCH and the Committee for Advancement of Respite Research held a virtual capstone event in October 2024 with nearly
- [Webinar: Respite Services in the series Getting to Yes for Launch: Overcoming Challenges to Implement Comprehensive Dementia Care](https://archrespite.org/event/webinar-respite-services-in-the-series-getting-to-yes-for-launch-overcoming-challenges-to-implement-comprehensive-dementia-care/) - Webinar: Respite Services in the series Getting to Yes for Launch: Overcoming Challenges to Implement Comprehensive Dementia Care National Dementia Care Collaborative Experts from the University of Minnesota and ARCH National Respite Network and Resource Center discussed the importance of respite services for caregivers to people living with dementia. Presenters identified the benefits of respite,
- [Webinar: Supporting Caregivers - Opportunities for Public Health in Growing and Sustaining Respite Programs](https://archrespite.org/event/webinar-supporting-caregivers-opportunities-for-public-health-in-growing-and-sustaining-respite-programs/) - BOLD Public Health Center of Excellence on Dementia Caregiving (PHCOE-DC) August 20, 2025 | 12:00 pm - 1:00 pm ET The BOLD Public Health Center of Excellence on Dementia Caregiving (PHCOE-DC) is holding a webinar August 20 on "Supporting Caregivers: Opportunities for Public Health in Growing and Sustaining Respite Programs." The webinar will explore how
- [Webinar Series on Sustaining Respite](https://archrespite.org/event/webinar-series-on-sustaining-respite/2025-02-27/) - During the 7 years that the ARCH Sustainability Planning Learning Collaborative met regularly, Lifespan Respite grantees and partners shared their ongoing work developing strategic plans and participating in leadership and partnership activities to sustain respite in their states. All those participating in the Learning Collaborative generously shared ideas and resources, and unfailingly supported their peers
- [Webinar Series on Sustaining Respite](https://archrespite.org/event/webinar-series-on-sustaining-respite/2025-07-10/) - During the 7 years that the ARCH Sustainability Planning Learning Collaborative met regularly, Lifespan Respite grantees and partners shared their ongoing work developing strategic plans and participating in leadership and partnership activities to sustain respite in their states. All those participating in the Learning Collaborative generously shared ideas and resources, and unfailingly supported their peers
- [Webinar Series on Sustaining Respite](https://archrespite.org/event/webinar-series-on-sustaining-respite/2025-07-31/) - During the 7 years that the ARCH Sustainability Planning Learning Collaborative met regularly, Lifespan Respite grantees and partners shared their ongoing work developing strategic plans and participating in leadership and partnership activities to sustain respite in their states. All those participating in the Learning Collaborative generously shared ideas and resources, and unfailingly supported their peers
- [Webinar: Caregiver to Caregiver (C2C) Respite Network](https://archrespite.org/event/webinar-caregiver-to-caregiver-c2c-respite-network/) - Caregiver to Caregiver (C2C) Respite Network, A community of caregiving rooted in shared experience The ARCH Volunteer and Faith-based Respite Learning Collaborative is pleased in invite you to a webinar to learn more about the Caregiver to Caregiver (C2C) Respite Network in Massachusetts, The Caregiver to Caregiver (C2C) Respite Network was developed by a parent of
- [2024 National Lifespan Respite Conference](https://archrespite.org/event/2024-national-lifespan-respite-conference/) - The National Lifespan Respite Conference will be held May 21-23, 2024 at the Hilton Albany in Albany, New York. ARCH is pleased to cohost this important event with the NY State Caregiving and Respite Coalition and the NY State Office for the Aging. In 2022, the Administration for Community Living released the first-ever National Strategy to Support Family Caregivers.
- [Webinar: Cultural and Linguistic Competence Assessment for Respite Organizations](https://archrespite.org/event/webinar-cultural-and-linguistic-competence-assessment-for-respite-organizations/) - NEW DATE and TIME! April 29, 2024 | 2:00 - 3:00 PM ET ARCH is pleased to invite you to a webinar on the release of a new resource, the Cultural and Linguistic Competence Assessment for Respite Organizations (CLCARO) developed for the respite network by the Georgetown University National Center for Cultural Competence. This webinar
- [“It’s like a weight lifted off your shoulder”: A qualitative study of adult carers taking a break.](https://archrespite.org/event/its-like-a-weight-lifted-off-your-shoulder-a-qualitative-study-of-adult-carers-taking-a-break/) - ARCH is pleased to join the BREAK Exchange in inviting you to attend the webinar, “It’s like a weight lifted off your shoulder”: A qualitative study of adult carers taking a break, presented by our colleagues at Carers Scotland. The webinar will be held on Thursday, April 11, 2024 at 11:00 AM ET (10:00 AM
- [Webinar: Creating Dementia-Friendly Congregations to Support African American Families](https://archrespite.org/event/webinar-creating-dementia-friendly-congregations-to-support-african-american-families/) - WATCH the RECORDING The ARCH Volunteer and Faith-based Respite Learning Collaborative will hold a webinar to learn more about the Alter program. Alter is the first of its kind and is a substantial piece of the puzzle in responding to the needs of African American family caregivers and people living with dementia (PLWD) to deliver
- [ARCH and BREAK Exchange Webinar: Alabama Lifespan Respite - Caregiver Wellness Initiative](https://archrespite.org/event/webinar-alabama-lifespan-respite-caregiver-wellness-initiative/) - ARCH joined the BREAK Exchange in hosting the webinar, Alabama Lifespan Respite: Caregiver Wellness Initiative on March 7, 2023. Alabama Lifespan Respite (ALR) identified a lack of emotional and mental health supports for rural/underserved family caregivers as a growing problem prior to the Spring of 2020, but this deficiency was amplified in the wake of
- [International Short Break Association (ISBA) Conference](https://archrespite.org/event/international-short-break-association-isba-conference/) - Building Better Breaks Together! International Short Break Association Conference September 12-14, 2023, Wroclaw, Poland Poland is excited to host the next ISBA Conference in 2023 September, Wroclaw – the capital of Lower Silesia! The International Short Breaks Conference is intended for everyone who provides, uses or requires respite/short break services and addresses issues raised by

## Tags

- [RRF Foundation](https://archrespite.org/tag/rrf-foundation/)

## Content Types

- [Fact Sheets](https://archrespite.org/library_type/fact-sheets/)
- [Publications](https://archrespite.org/library_type/publication/)
- [Tools](https://archrespite.org/library_type/tools/)
- [Webinars](https://archrespite.org/library_type/webinar/)
- [Examples](https://archrespite.org/library_type/examples/)
- [Presentations](https://archrespite.org/library_type/presentations/)
- [Manual](https://archrespite.org/library_type/manual/)
- [Case Study](https://archrespite.org/library_type/case-study/)
- [Reports](https://archrespite.org/library_type/reports/)
- [Infographic](https://archrespite.org/library_type/infographic/)
- [Guide](https://archrespite.org/library_type/guide/)
- [Video](https://archrespite.org/library_type/video/)
- [Proclamation](https://archrespite.org/library_type/proclamation/)
- [Podcasts](https://archrespite.org/library_type/podcasts/)
- [Contact List](https://archrespite.org/library_type/contact-list/)
- [Strategic Plans](https://archrespite.org/library_type/strategic-plans/)
- [State Plans](https://archrespite.org/library_type/state-plans/)
- [Teleconferences](https://archrespite.org/library_type/teleconferences/)
- [LifeCourse Respite Tool](https://archrespite.org/library_type/lifecourse-respite-tool/)
- [Sustainability Plan](https://archrespite.org/library_type/sustainability-plan/)
- [Worksheet](https://archrespite.org/library_type/worksheet/)
- [Survey](https://archrespite.org/library_type/survey/)
- [Poster](https://archrespite.org/library_type/poster/)
- [Issue Brief](https://archrespite.org/library_type/issue-brief/)
- [Executive Summary](https://archrespite.org/library_type/executive-summary/)
- [White Paper](https://archrespite.org/library_type/white-paper/)
- [Data Brief](https://archrespite.org/library_type/data-brief/)
- [Compendium](https://archrespite.org/library_type/compendium/)

## Topics

- [For Caregivers](https://archrespite.org/library_topic/for-caregivers/)
- [LifeCourse Tools](https://archrespite.org/library_topic/lifecourse/)
- [Lifespan Respite](https://archrespite.org/library_topic/lifespan-respite/)
- [Research](https://archrespite.org/library_topic/research/)
- [Caregiver Assessment](https://archrespite.org/library_topic/assessment/)
- [Volunteer and Faith-Based](https://archrespite.org/library_topic/faith-based-and-volunteer/)
- [Policy](https://archrespite.org/library_topic/policy/)
- [COVID-19](https://archrespite.org/library_topic/covid-19/)
- [Collaboration](https://archrespite.org/library_topic/collaboration/)
- [Evaluation/Performance Measurement](https://archrespite.org/library_topic/evaluation/)
- [Respite Vouchers](https://archrespite.org/library_topic/respite-vouchers/)
- [Sustainability](https://archrespite.org/library_topic/sustainability/)
- [Program Start-up](https://archrespite.org/library_topic/program-start-up/)
- [Funding](https://archrespite.org/library_topic/funding/)
- [Public Awareness](https://archrespite.org/library_topic/public-awareness/)
- [Provider Training](https://archrespite.org/library_topic/provider-training/)
- [Program Management](https://archrespite.org/library_topic/program-management/)
- [Cultural Competence](https://archrespite.org/library_topic/cultural-competence/)
- [Special Populations](https://archrespite.org/library_topic/special-populations/)
- [Respite Types](https://archrespite.org/library_topic/respite-types/)
- [Coalition Building](https://archrespite.org/library_topic/coalition-building/)
- [Crisis Nurseries](https://archrespite.org/library_topic/crisis-nurseries/)
- [Needs Assessments/Surveys](https://archrespite.org/library_topic/needs-assessments-surveys/)
- [Employed Caregivers](https://archrespite.org/library_topic/employed-caregivers/)
- [Emergency Respite](https://archrespite.org/library_topic/emergency-respite/)
- [Grandparents/Kinship Caregivers](https://archrespite.org/library_topic/grandparents-kinship-caregivers/)
- [Innovative Respite Model](https://archrespite.org/library_topic/innovative-respite-model/)
- [Informal Respite](https://archrespite.org/library_topic/informal-respite/)
- [Veterans/Military](https://archrespite.org/library_topic/veterans/)
- [Systems Change Outcomes](https://archrespite.org/library_topic/systems-change-outcomes/)
- [Caregiver/Care Recipient/Family Outcomes](https://archrespite.org/library_topic/caregiver-care-recipient-family-outcomes/)
- [Caregiving Coping Assessment](https://archrespite.org/library_topic/caregiving-coping-assessment/)
- [Care Receiver Assessment](https://archrespite.org/library_topic/care-receiver-assessment/)
- [Parent Caregiver Assessment](https://archrespite.org/library_topic/parent-caregiver-assessment/)
- [Nationally Recognized Tools](https://archrespite.org/library_topic/nationally-recognized-tools/)
- [Advocacy](https://archrespite.org/library_topic/advocacy/)
- [Technology](https://archrespite.org/library_topic/technology/)
- [No Wrong Door](https://archrespite.org/library_topic/no-wrong-door/)
- [Caregiving Youth](https://archrespite.org/library_topic/caregiving-youth/)
- [Respite Registries](https://archrespite.org/library_topic/respite-registries/)
- [International](https://archrespite.org/library_topic/international/)
- [Self-Direction](https://archrespite.org/library_topic/self-direction/)
- [Dementia/Alzheimer's](https://archrespite.org/library_topic/dementia-alzheimers/)
- [Medicaid Waivers](https://archrespite.org/library_topic/medicaid-waivers/)
- [Strategic Planning](https://archrespite.org/library_topic/strategic-planning/)
- [Direct Care Workforce](https://archrespite.org/library_topic/direct-care-workforce/)
- [Rural](https://archrespite.org/library_topic/rural/)
- [Respite Access](https://archrespite.org/library_topic/respite-access/)
- [Caregiver Satisfaction Survey](https://archrespite.org/library_topic/satisfaction-survey/)
- [Conversations on Caregiving](https://archrespite.org/library_topic/conversations-on-caregiving/) - This Conversations on Caregiving podcast series highlights the work of individual Innovative & Exemplary respite programs and services across the nation. ARCH has recognized Innovative & Exemplary respite programs and services annually since 2019. Innovative & Exemplary programs vary in approaches and settings –– community and faith-based, university-based, volunteer –– but each program meets defined criteria for best respite practices in seven key areas, including: volunteer and professional development, person- and family-centered practice, performance measurement, and sustainability. The human stories presented in Conversations on Caregiving inspire and show us practical ways to incorporate respite best practices day-to-day in our own work. Welcome to Conversations on Caregiving, and thanks for listening. Listen here on the ARCH website, on Spotify, iTunes, Soundcloud, Anchor or Google Podcasts.
- [Cost-Benefits](https://archrespite.org/library_topic/cost-benefits/)
- [National Strategy to Support Family Caregivers](https://archrespite.org/library_topic/national-strategy-to-support-family-caregivers/)
- [Autism](https://archrespite.org/library_topic/autism/)
- [Transportation](https://archrespite.org/library_topic/transportation/)
- [Planning Respite Time](https://archrespite.org/library_topic/planning-respite-time/)

## Produced By

- [ARCH](https://archrespite.org/library_produced-by/arch/)
- [Other Organization](https://archrespite.org/library_produced-by/other-organization/)
- [State Coalition](https://archrespite.org/library_produced-by/state-coalition/)
- [Lifespan Respite Program](https://archrespite.org/library_produced-by/lifespan-respite-program/)
- [Administration for Community Living](https://archrespite.org/library_produced-by/administration-for-community-living/)
- [BREAK Exchange](https://archrespite.org/library_produced-by/break-exchange/)

## Topics

- [Respite Targeted to Children](https://archrespite.org/bibliography_topic/children/)
- [Respite Targeted to Older Adults](https://archrespite.org/bibliography_topic/older-adults/)
- [Respite Targeted to Adults with Developmental Disabilities](https://archrespite.org/bibliography_topic/developmental-disabilities/)
- [Respite Targeted to Multi-Age Groups](https://archrespite.org/bibliography_topic/multi-age-groups/)
- [Veterans’ Administration Program of Comprehensive Assistance for Family Caregivers (PCAFC)](https://archrespite.org/bibliography_topic/pcafc/)
- [Literature Reviews/Meta-analyses of Respite Care Studies](https://archrespite.org/bibliography_topic/literature-reviews/)
- [Methodological Issues in Research on Respite and Caregiver Interventions](https://archrespite.org/bibliography_topic/issues/)

## Years

- [2004](https://archrespite.org/bibliography_year/2004/)
- [2016](https://archrespite.org/bibliography_year/2016/)
- [2015](https://archrespite.org/bibliography_year/2015/)
- [2020](https://archrespite.org/bibliography_year/2020/)
- [2018](https://archrespite.org/bibliography_year/2018/)
- [2009](https://archrespite.org/bibliography_year/2009/)
- [2005](https://archrespite.org/bibliography_year/2005/)
- [2008](https://archrespite.org/bibliography_year/2008/)
- [2011](https://archrespite.org/bibliography_year/2011/)
- [2013](https://archrespite.org/bibliography_year/2013/)
- [2002](https://archrespite.org/bibliography_year/2002/)
- [2012](https://archrespite.org/bibliography_year/2012/)
- [2001](https://archrespite.org/bibliography_year/2001/)
- [2007](https://archrespite.org/bibliography_year/2007/)
- [2010](https://archrespite.org/bibliography_year/2010/)
- [2003](https://archrespite.org/bibliography_year/2003/)
- [2006](https://archrespite.org/bibliography_year/2006/)
- [2014](https://archrespite.org/bibliography_year/2014/)
- [2017](https://archrespite.org/bibliography_year/2017/)
- [2019](https://archrespite.org/bibliography_year/2019/)
- [2021](https://archrespite.org/bibliography_year/2021/)
- [2022](https://archrespite.org/bibliography_year/2022/)

## Ages Served

- [Any Age](https://archrespite.org/awards_ages-served/any-age/)
- [Infants up to 2-3 yrs](https://archrespite.org/awards_ages-served/infant-up-to-2-3-yrs/)
- [Children (up to 18)](https://archrespite.org/awards_ages-served/children/)
- [Adults (18-59 yrs.)](https://archrespite.org/awards_ages-served/adults/)
- [Older Adults (60+ yrs.)](https://archrespite.org/awards_ages-served/older-adults/)
- [Young adults (18 to early to mid twenties)](https://archrespite.org/awards_ages-served/young-adults/)
- [Children (up to 6)](https://archrespite.org/awards_ages-served/children-up-to-6/)
- [Children (0-12)](https://archrespite.org/awards_ages-served/children-0-12/)

## Type of Program

- [In-home](https://archrespite.org/awards_program-type/in-home/)
- [Center-based](https://archrespite.org/awards_program-type/center-based/)
- [Volunteer](https://archrespite.org/awards_program-type/volunteer/)
- [Faith-based](https://archrespite.org/awards_program-type/faith-based/)
- [Self-Directed Voucher Respite](https://archrespite.org/awards_program-type/self-directed-voucher-respite/)
- [Camps](https://archrespite.org/awards_program-type/camps/)
- [Community-based](https://archrespite.org/awards_program-type/community-based/)
- [Provider's home](https://archrespite.org/awards_program-type/providers-home/)
- [Overnight](https://archrespite.org/awards_program-type/overnight/)
- [Crisis Nursery](https://archrespite.org/awards_program-type/crisis-nursery-emergency/)
- [Emergency](https://archrespite.org/awards_program-type/emergency/)
- [Pediatric Palliative Care Setting](https://archrespite.org/awards_program-type/pediatric-palliative-care-setting/)
- [Intergenerational](https://archrespite.org/awards_program-type/intergenerational/)
- [Rural](https://archrespite.org/awards_program-type/rural/)
- [Youth Caregivers](https://archrespite.org/awards_program-type/youth-caregivers/)
- [For military families](https://archrespite.org/awards_program-type/for-military-families/)
- [Virtual](https://archrespite.org/awards_program-type/virtual/)
- [Technology](https://archrespite.org/awards_program-type/technology/)
- [Kinship Respite](https://archrespite.org/awards_program-type/kinship-respite/)

## Primary Disability/Condition Served

- [Any Disability](https://archrespite.org/awards_disability-condition/any-disability/)
- [Physical Disabilities](https://archrespite.org/awards_disability-condition/physical-disabilities/)
- [Autism](https://archrespite.org/awards_disability-condition/autism/)
- [Mental Health Conditions](https://archrespite.org/awards_disability-condition/mental-health-conditions/)
- [Intellectual and Developmental Disabilities](https://archrespite.org/awards_disability-condition/intellectual-and-developmental-disabilities/)
- [Chronic Illness/Medical Condition](https://archrespite.org/awards_disability-condition/chronic-illness/)
- [Alzheimer's and Dementia](https://archrespite.org/awards_disability-condition/alzheimers-and-dementia/)
- [Functional Limitations Due to Age](https://archrespite.org/awards_disability-condition/functional-limitations-due-to-age/)
- [At-risk of abuse or neglect](https://archrespite.org/awards_disability-condition/at-risk-of-abuse-or-neglect/)
- [Trauma](https://archrespite.org/awards_disability-condition/trauma/)
- [Medically Fragile](https://archrespite.org/awards_disability-condition/medically-fragile/)
- [No disability required for eligibility](https://archrespite.org/awards_disability-condition/no-disability-required-for-eligibility/)

## Recognition Levels

- [Innovative](https://archrespite.org/awards_level/innovative/)
- [Innovative and Exemplary](https://archrespite.org/awards_level/innovative-and-exemplary/)
- [Rising Star](https://archrespite.org/awards_level/rising-star/)

## Collaborative

- [Performance Measurement](https://archrespite.org/lc-meetings_collaborative/performance-measurement/)
- [Respite Voucher](https://archrespite.org/lc-meetings_collaborative/respite-voucher/)
- [Sustainability Planning](https://archrespite.org/lc-meetings_collaborative/sustainability-planning/)
- [Volunteer & Faith-Based Respite](https://archrespite.org/lc-meetings_collaborative/volunteer-and-faith-based-respite/)
- [National Strategy Implementation](https://archrespite.org/lc-meetings_collaborative/national-strategy-implementation/)

## Blackbaud Builder Categories

- [Headers](https://archrespite.org/fl-builder-template-category/headers/)
- [footer](https://archrespite.org/fl-builder-template-category/footer/)
- [Heading](https://archrespite.org/fl-builder-template-category/heading/)

## Categories

- [System Pages](https://archrespite.org/bbi_page_category/system-pages/) - A category that should not be deleted – used for login, registration pages etc.

## Event Categories

- [Webinar](https://archrespite.org/events/category/webinar/)
- [Conference](https://archrespite.org/events/category/conference/)
- [Learning Symposium](https://archrespite.org/events/category/learning-symposium/)
- [Summit](https://archrespite.org/events/category/summit/)