dystonia-foundation.org

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# Dystonia Medical Research Foundation

Resources for people living with dystonia.

## Sitemaps

- [XML Sitemap](https://dystonia-foundation.org/sitemap.xml): Contains all public & indexable URLs for this website.

## Posts

- [Yips and Focal Dystonia](https://dystonia-foundation.org/yips-and-focal-dystonia/) - Yips and dystonia are task-specific motor disorders that affect both athletes and musicians. In the realm of sports, the term "yips" describes a focal dystonia that causes involuntary muscle spasms during specific movements, impeding precise motor control. Similarly, musicians can develop focal dystonia, known as musician's dystonia or musician's cramp, which disrupts their ability
- [Comments Needed on CMS Botulinum Toxin Reimbursements](https://dystonia-foundation.org/comments-needed-on-cms-botulinum-toxin-reimbursements/) - The Centers for Medicare and Medicaid Services (CMS) work with regional providers to serve as the primary operational contact between the Medicare fee for service program and physicians. These regional providers are called Medicare Administrative Contractors MACs. MACs are multi-state, regional contractors responsible for administering both Medicare Part A and Medicare Part B claims. Five
- [Save the Dates for Upcoming Dystonia Zoo Days](https://dystonia-foundation.org/save-the-dates-for-upcoming-dystonia-zoo-days/) - Get ready for these upcoming Dystonia Zoo Days and visit the event websites to learn more about T-shirt deadlines and sponsorship opportunities. You won’t want to miss this family-friendly event to promote dystonia awareness if it is coming to a city near you! July 18: Portland | Oregon Zoo Aug. 15: Toledo | Toledo Zoo
- [Dystonia Medical Research Foundation Announces 2026 Grant and Fellowship Recipients to Advance Dystonia Research](https://dystonia-foundation.org/dystonia-medical-research-foundation-announces-2026-grant-and-fellowship-recipients-to-advance-dystonia-research/) - The Dystonia Medical Research Foundation (DMRF), a leading non-profit organization dedicated to funding research to find a cure for dystonia, is proud to announce its 2026 grant and fellowship recipients. This year, the DMRF awarded six grants and fellowships for basic and clinical dystonia research projects. These grants and fellowships will support scientists investigating the
- [Share with CMS How New Rules Impact Dystonia Patients](https://dystonia-foundation.org/share-with-cms-how-new-rules-impact-dystonia-patients/) - The Centers for Medicare and Medicaid Services (CMS) work with regional providers to serve as the primary operational contact between the Medicare fee for service program and physicians. These regional providers are called Medicare Administrative Contractors (MACs). MACs are multi-state, regional contractors responsible for administering both Medicare Part A and Medicare Part B claims. Five of the MACs
- [7th Samuel Belzberg International Dystonia Symposium to be Held April 7-9, 2027, in Seville](https://dystonia-foundation.org/7th-samuel-belzberg-international-dystonia-symposium-to-be-held-april-7-9-2027-in-seville/) - SAVE THE DATE: The 7th Samuel Belzberg International Dystonia Symposium will be held April 7-9, 2027, in Seville, Spain. Co-chaired by Buz Jinnah, MD, PhD, and Antonio Pisani, MD, PhD, the Symposium will be designed to provide a comprehensive overview of important scientific advances in the field and stimulate discussion within and across disciplines. Stay
- [ACTION ALERT: Support Inclusion of Dystonia on List of Eligible Conditions](https://dystonia-foundation.org/action-alert-support-inclusion-of-dystonia-on-list-of-eligible-conditions/) - We need you to contact your Senators to ask them to support the inclusion of dystonia on the list of eligible conditions for study through the Department of Defense Peer-Reviewed Medical Research Program for Fiscal Year 2027. Action requested by April 24, 2026 Below is a draft message you can use as a template in
- [Registration Open for Portland Dystonia Education Program](https://dystonia-foundation.org/registration-open-for-portland-dystonia-education-program/) - Registration is open for the Dystonia Education Program on Saturday, May 2 from 9 a.m. to 12 p.m. PT in Portland, OR. This is a unique opportunity for anyone who has been impacted by dystonia to learn more about this movement disorder, possible treatments and personal experiences. Location:Sheraton Portland Airport Hotel8235 NE Airport WayPortland, OR
- [Mark Your Calendar: Auction for Action Returns in April](https://dystonia-foundation.org/mark-your-calendar-auction-for-action-returns-in-april/) - Bid. Win. Make a difference for dystonia. Mark your calendar for the DMRF Auction for Action, our national virtual silent auction — where every bid supports dystonia research and community programs nationwide. Get ready for an exciting week of fun and friendly competition featuring incredible deals on dream travel, unforgettable dining, unique art, luxury handbags,
- [Jules van Dongen Launches “Pedals & Points” Fundraiser for DMRF](https://dystonia-foundation.org/jules-van-dongen-launches-pedals-points-fundraiser-for-dmrf/) - Two years after first experiencing symptoms and six months after being diagnosed with task-specific dystonia, professional dart player Jules van Dongen is turning passion into purpose. This spring, Jules will cycle across the U.S. — a powerful solo ride with a big mission. The journey — called Pedals & Points 2026 — blends biking, darts,
- [Spring 2026 Dystonia Dialogue Available Now](https://dystonia-foundation.org/spring-2026-dystonia-dialogue-available-now/) - In this issue: Why Does the DMRF Fund Basic Research? Dystonia Support Groups Meet People Where They Are Personal Profile: Ginny Bryan Focus On: Rare Genetic Forms of Dystonia DMRF Recognizes 50 Years of Making a Difference to the Dystonia Community DMRF Remembers the Legacy of Mark Hallett, MD MOVERS & SHAKERS: Turning Your Passion
- [Dystonia Advocacy Network (DAN) Capitol Hill Day March 12](https://dystonia-foundation.org/dystonia-advocacy-network-dan-capitol-hill-day-march-12/) - REGISTER BY MARCH 2: The next Dystonia Advocacy Network (DAN) Capitol Hill Advocacy Day will be held March 12, 2026, in Washington D.C. This is your opportunity to have your voice heard to ensure that federal dollars are set aside for dystonia research and health care policies that impact people with dystonia are addressed. For
- [Honoring Those Who Make a Difference: 50th Anniversary Tributes](https://dystonia-foundation.org/honoring-those-who-make-a-difference-50th-anniversary-tributes/) - In DMRF’s 50th year, we invite you to honor the people who have made a difference in your dystonia journey — doctors, therapists, caregivers, researchers, friends, and loved ones who inspire hope — with a 50th Anniversary Tribute. Click HERE to learn more! MAKE A TRIBUTE TODAY
- [Join the 2026 Dystonia Pet Palooza!](https://dystonia-foundation.org/join-the-2026-dystonia-pet-palooza/)
- [Jon Davis Continues #Riding4Us with $25,000 Goal](https://dystonia-foundation.org/jon-davis-continues-riding4us-with-25000-goal/) - Follow Dystonia Medical Research Foundation Board Member Jon Davis as he makes progress towards his goal of raising $25,000 for the DMRF this year. All monies raised go towards research to find a cure for dystonia. Jon was diagnosed with dystonia at the age of 13. By his 30s he could no longer ride a
- [Vote for the 2026 Dystonia Zoo Days T-Shirt Color](https://dystonia-foundation.org/vote-for-the-2026-dystonia-zoo-days-t-shirt-color/) - Warmer temperatures and Dystonia Zoo Days events will be here before you know it! Help us recognize 50 years of the Dystonia Medical Research Foundation making a difference in the dystonia community by attending a Dystonia Zoo Day this year. Answer this quick survey to choose the color of this year’s event T-shirt by answering
- [DMRF Recognizes 50 Years of Making a Difference to the Dystonia Community](https://dystonia-foundation.org/dmrf-recognizes-50-years-of-making-a-difference-to-the-dystonia-community/) - The Dystonia Medical Research Foundation looks forward to serving the dystonia community throughout the new year, and 2026 marks a notable milestone as we acknowledge our 50th anniversary. The DMRF was founded in 1976 by Samuel and Frances Belzberg, of Vancouver, British Columbia, after their daughter was diagnosed with dystonia. Dedicated to serving the needs
- [Quick Facts about Botulinum Neurotoxin Injections](https://dystonia-foundation.org/facts-botulinum-neurotoxin/) - Botulinum neurotoxin (BNT) injections are a common treatment for dystonia. This therapy is used to treat dystonia symptoms in a specific group of muscles, for example, the neck, face, or a limb. Despite the popularity of this treatment for dystonia, certain important aspects of the therapy may come as a surprise to new patients. BNT
- [Hope Moves Us. Let’s Keep Moving Forward — Together.](https://dystonia-foundation.org/hope-moves-us-lets-keep-moving-forward-together/) - Make your tax-deductible year-end gift today and help power research, support, and awareness for people affected by dystonia. Whether you’re living with dystonia or fighting for someone who is, you’re part of something powerful — a community that moves with hope. In 2025, your support: Funded critical research for better treatments and a cure. Connected
- [DMRF Highlights from 2025](https://dystonia-foundation.org/dmrf-highlights-from-2025/) - The mission of the Dystonia Medical Research Foundation is to advance dystonia research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and wellbeing of affected individuals and families. The DMRF is grateful to everyone in the dystonia community who contributed to these ongoing efforts, and we
- [Neurotoxin Course Available for Practitioners Administering Neurotoxins](https://dystonia-foundation.org/neurotoxin-course-available-for-practitioners-administering-neurotoxins/) - The Cleveland Clinic, in partnership with the Dystonia Medical Research Foundation, is hosting a Comprehensive Neurotoxin Course for Neurological Conditions March 14-15, 2026, at the Renaissance Dallas Hotel in Dallas, TX. This educational activity is intended for neurologists, physiatrists, residents and fellows. The DMRF is supporting the training of young clinicians attending the workshop supplemented
- [Winter 2025 Dystonia Dialogue Available Now](https://dystonia-foundation.org/winter-2025-dystonia-dialogue-available-now/) - In this issue: Meet Mike Malinin, a drummer with musician’s dystonia who also runs ultramarathons. Discover the history of the DMRF Medical and Scientific Advisory Council (MSAC). Find out about a dystonia educational briefing held at the nation’s capital. See highlights from the 2025 Dystonia Zoo Days and DMRF community events held around the country
- [Happy Holidays from the Dystonia Medical Research Foundation](https://dystonia-foundation.org/happy-holidays-from-the-dystonia-medical-research-foundation/) - On behalf of the leadership and staff of the Dystonia Medical Research Foundation, DMRF President Mark Rudolph and Executive Director Janet Hieshetter would like to wish all of you a peaceful holiday season, and best wishes for the coming year. https://youtu.be/D2Ul2Td3LAY
- [Benefits of Exercise for Dystonia are Physical & Emotional](https://dystonia-foundation.org/benefits-of-exercise/) - Tips for increasing physical activity.
- [Neuromodulation in Dystonia Meeting Held in Atlanta](https://dystonia-foundation.org/neuromodulation-in-dystonia-meeting-held-in-atlanta/) - On Nov. 13-14, 2025, the DMRF hosted a meeting on “Neuromodulation in Dystonia.” Neuromodulation involves treatments that use mild electrical pulses to alter nerve activity in targeted areas of the brain or nervous system to reduce muscle spasms and contractions. The meeting was chaired by Noreen Bukhari-Parlakturk, MD, PhD, Assistant Professor of Neurology at Duke
- [DMRF Remembers Mark Hallett, MD](https://dystonia-foundation.org/dmrf-remembers-mark-hallett-md/) - It is with great sadness that we report the death of Mark Hallett, MD. Dr. Hallett was a giant in the field of movement disorders, a global expert in dystonia, and a great friend to the DMRF. Dr. Hallett’s contributions to the body of knowledge about dystonia were exceptional and included over 1,500 publications. For
- [November is National Family Caregivers Month](https://dystonia-foundation.org/november-is-national-family-caregivers-month-2/) - November is National Family Caregivers Month in the United States, which recognizes and honors family caregivers across the country. The theme for 2025 is “Plug-in to Care,” with a focus on making connections to help caregivers feel supported. Last year, Natalie Hellmers, PhD, RN, ACNP-BC, from Weill Cornell Medicine in New York City, shared four
- [Thank You for Supporting Dystonia Awareness](https://dystonia-foundation.org/thank-you-for-supporting-dystonia-awareness/) - Ten Dystonia Zoo Day Events were held across the country from June through October this year—with five of them being held during Dystonia Awareness Month in September. The Dystonia Medical Research Foundation is grateful to all the volunteers and advocates who raised awareness and funds for dystonia research during the in-person Dystonia Zoo Day events,
- [Survey: What Would You Like to See on the DMRF Online Store?](https://dystonia-foundation.org/survey-what-would-you-like-to-see-on-the-dmrf-online-store/) - DMRF-branded merchandise can be fun and practical, but most of all, it is an opportunity to promote dystonia awareness and start a conversation about this rare movement disorder. Anyone who has been impacted by dystonia can become an ambassador for the greater community in their own way—and we’re here to help! We invite you to
- [Clinical Trials Webinar Recording Now Available](https://dystonia-foundation.org/clinical-trials-webinar-recording-now-available/) - If you have ever considered a clinical trial for a new dystonia treatment, you may have questions about what clinical trials are and what may be expected of trial participants. To get answers to these questions and more, watch the recording of the DMRF webinar, “What You Need to Know About Clinical Trials” on the
- [Fall in Love with These Cool Weather Items](https://dystonia-foundation.org/fall-in-love-with-these-cool-weather-items/) - Cooler temperatures are here, but you can still stay warm with cozy merch from the DMRF. Visit the DMRF online store for these items and show your support for the work of the Dystonia Medical Research Foundation. DMRF Blue Beanie Hat This knit beanie will keep you warm all winter and show your support for
- [How to Promote Dystonia Awareness in September](https://dystonia-foundation.org/get-ready-for-dystonia-awareness-month-in-september/) - During the month of September, the DMRF is asking YOU to help raise awareness of dystonia. As many as 70% of patients are misdiagnosed prior to receiving a dystonia diagnosis, so spreading knowledge within the medical profession can be just as important as sharing information outside of it. The theme for this year’s Dystonia Awareness
- [Visit the DMRF Events Page to Find a Dystonia Zoo Day Near You](https://dystonia-foundation.org/welcome-to-summer-return-of-dystonia-zoo-days/) - Summertime is a time of community, support and awareness for those living with dystonia. By Janet Hieshetter, Executive Director, Dystonia Medical Research Foundation Memorial Day is traditionally the start of summer and summer is one of the most important and active times for DMRF members and supporters. All too often people are hearing the word
- [Dystonia Dialogue Summer 2025 Edition Now Online](https://dystonia-foundation.org/dystonia-dialogue-summer-2025-edition-now-online/) - Inside this issue: Get the researchers’ perspectives on the 2025 DMRF Grant and Fellowship awards. Learn more about the Definition and Classification of Dystonia Update. Focus On: Cervical Dystonia. Meet Lansing Zoo Day co-organizer and dystonia advocate Barry Casler. Discover how medical treatments and complementary therapies can manage dystonia pain. Observations on the Medical and
- [Get Your Movers & Shakers Shirt for Dystonia Awareness Month](https://dystonia-foundation.org/get-your-movers-shakers-shirt-for-dystonia-awareness-month/) - Place your order today so you can wear this shirt during Dystonia Awareness Month in September and all year round to raise awareness of this little-known condition. A “mover and shaker” is a powerful person who initiates events and influences people, and everyone who wears this shirt has the potential to raise awareness of dystonia.
- [Ask Me About Dystonia Buttons Available Now](https://dystonia-foundation.org/ask-me-about-dystonia-buttons-available-now/) - It’s the ultimate conversation starter—the “Ask Me About Dystonia” button. DMRF’s Chief Scientific Advisor Jan Teller, MA, PhD, proudly wore his “Ask Me” button during the Mechanisms of Reduced Penetrance in Dystonia workshop in Helsinki in June. These buttons are now available on the DMRF store in the following quantities: 1 button: $3.00 5 buttons:
- [Get Ready for the 2025 Dystonia Zoo Days](https://dystonia-foundation.org/dystonia-zoo-days-dates-announced/) - Get ready for these 2025 Dystonia Zoo Days events and be sure to sign up by the T-Shirt registration deadline so everyone can see that you are a part of the “Zoo Crew” at your local Dystonia Zoo Day! Visit our events page to see a full listing of upcoming community events. June 14, 2025
- [DMRF Hosts Workshop on Dystonia Penetrance](https://dystonia-foundation.org/dmrf-hosts-workshop-on-dystonia-penetrance/) - The DMRF organized a scientific workshop on the Mechanisms of Reduced Penetrance in Dystonia in Helsinki, Finland on June 19-21. Dystonia penetrance refers to the percentage of individuals with a specific genetic mutation who develop dystonia. The workshop was co-chaired by Christine Klein, MD from the University of Lübeck and Christopher Pearson, PhD from the
- [DMRF Welcomes New MSAC Members](https://dystonia-foundation.org/dmrf-welcomes-new-msac-members/) - The Dystonia Medical Research Foundation is welcoming six new members to the Medical and Scientific Advisory Council this year. We look forward to working with them and having them as part of the DMRF. Robert Chen, MA, MBBChir, MSc, FRCPC University of Toronto Toronto, ON, Canada Darius Ebrahimi-Fakhari, MD, PhD Boston Children’s Hospital Boston, MA
- [2024 Annual Report Now Available on DMRF Website](https://dystonia-foundation.org/2024-annual-report-now-available-on-dmrf-website/) - The Dystonia Medical Research Foundation appreciates your ongoing support, and you can learn more about what you helped us accomplish last year in the 2024 DMRF Annual Report, which is now available on our website. Thanks to the efforts of our donors, volunteers and sponsors, the DMRF was able to extend our reach in many
- [Your Support is Needed More Than Ever](https://dystonia-foundation.org/your-support-is-needed-more-than-ever/) - By Janet Hieshetter, Executive Director, Dystonia Medical Research Foundation Allow me to begin this blog by expressing my appreciation to all who participated in the Dystonia Medical Research Foundation’s recent Auction for Action: Supporting Dystonia Research, the online auction. Your participation resulted in a successful event for the DMRF and will go to support
- [The Power of Laughter Webinar Now on DMRF YouTube Channel](https://dystonia-foundation.org/the-power-of-laughter-webinar-now-on-dmrf-youtube-channel/) - We could all benefit from more laughter in our lives. “The Power of Laughter” webinar is now available on the DMRF YouTube channel so you can learn how laughter can improve our health. Certified Yoga and Laughter Yoga instructor Rachel Frank explores the power of a good laugh on our health, and you can enjoy
- [Dystonia Dialogue Spring Edition 2025 Now Available](https://dystonia-foundation.org/dystonia-dialogue-spring-edition-2025-now-available/) - In this issue: Meet two gold medalist Paralympians with dystonia Get to know the DMRF’s new Chief Science Officer Find out what fuels dystonia research Focus on: Early onset childhood dystonia Learn how advocates nurture dystonia awareness READ NOW
- [New Brochure on Non-Motor Symptoms of Dystonia Available](https://dystonia-foundation.org/new-brochure-on-non-motor-symptoms-of-dystonia-now-available/) - The Dystonia Medical Research Foundation has added a new brochure to our library of resources: Non-Motor Symptoms of Dystonia. Dystonia is a life-altering neurological disorder that affects the physical body, but the impact goes far deeper. The hallmark signs of dystonia are excessive, involuntary muscle contractions that cause abnormal postures and/or repetitive movements. Individuals diagnosed
- [Dystonia Medical Research Foundation Announces 2025 Grant and Fellowship Recipients to Propel Dystonia Research](https://dystonia-foundation.org/dystonia-medical-research-foundation-announces-2025-grant-and-fellowship-recipients-to-propel-dystonia-research/) - The Dystonia Medical Research Foundation (DMRF), a leading non-profit organization dedicated to funding research to find a cure for dystonia, is proud to announce its 2025 grant and fellowship recipients. This year, the DMRF awarded six grants and fellowships for basic and clinical dystonia research projects. These grants and fellowships will support scientists investigating the
- [Living with Cervical Dystonia: Martha's Story](https://dystonia-foundation.org/living-with-cervical-dystonia-marthas-story/) - In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance is nothing short of awe-inspiring. Their stories will be featured in a four-part series called Warrior Women Wednesdays. Cervical dystonia is a type of dystonia that affects the neck muscles,
- [Living with Cervical Dystonia: Nadia's Story](https://dystonia-foundation.org/living-with-cervical-dystonia-nadias-story/) - In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance is nothing short of awe-inspiring. Their stories will be featured in a four-part series called Warrior Women Wednesdays. Cervical dystonia is a type of dystonia that affects the neck muscles,
- [Living with Cervical Dystonia: Diana's Story](https://dystonia-foundation.org/living-with-cervical-dystonia-dianas-story/) - In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance is nothing short of awe-inspiring. Their stories will be featured in a four-part series called Warrior Women Wednesdays. Cervical dystonia is a type of dystonia that affects the neck muscles,
- [Living with Cervical Dystonia: Pat's Story](https://dystonia-foundation.org/living-with-cervical-dystonia-pats-story/) - In honor of International Women’s Day on March 8, this month the Dystonia Medical Research Foundation (DMRF) is recognizing women with cervical dystonia whose perseverance is nothing short of awe-inspiring. Their stories will be featured in a four-part series called Warrior Women Wednesdays. Cervical dystonia is a type of dystonia that affects the neck muscles,
- [DMRF Urges Trump Administration to Retain Indirect Cost Reimbursements from NIH](https://dystonia-foundation.org/dmrf-urges-trump-administration-to-retain-indirect-cost-reimbursements-from-nih/) - Rare Disease Research Will be Significantly Impacted by Change in Reimbursement Levels CHICAGO, IL—The Dystonia Medical Research Foundation (DMRF) joins with other national voluntary health organizations in calling for the Trump Administration to reverse its decision to change indirect cost reimbursements from the National Institutes of Health (NIH). These reimbursements are a longstanding practice for
- [New Brochure on Truncal Dystonia Now Available](https://dystonia-foundation.org/new-brochure-on-truncal-dystonia-now-available/) - The truncal dystonia (axial dystonia) brochure is the latest addition to the DMRF’s library of resources. Truncal dystonia impacts the muscles in the middle trunk of the body, including the chest, back, and abdominal muscles, and may be affected in both isolated (primary) and acquired (secondary) dystonia. The trunk is affected in generalized and can
- [Season's Greetings from the Dystonia Medical Research Foundation](https://dystonia-foundation.org/seasons-greetings-from-the-dystonia-medical-research-foundation/) - On behalf of the leadership and staff of the Dystonia Medical Research Foundation, DMRF Executive Director Janet Hieshetter would like to wish all of you a happy, healthy and peaceful holiday season.
- [During the Holiday Season There Are Many Things We Are Thankful For.](https://dystonia-foundation.org/during-the-holiday-season-there-are-many-things-we-are-thankful-for/) - At the DMRF we are happy that our work gives hope to people who suffer from dystonia. By Janet Hieshetter, Executive Director, Dystonia Medical Research Foundation Now that we are into the “official” holiday season it means the end of 2024 is in sight. This year there are so many things that we here at
- [Tips for Managing Holiday Stress With Dystonia](https://dystonia-foundation.org/tips-for-managing-holiday-stress/) - Living with dystonia is a constant battle, but the holiday season brings additional stresses. Here are practical tips for managing the season with this movement disorder.
- [Focus On: DYT1 Dystonia](https://dystonia-foundation.org/focus-on-dyt1-dystonia/) - DYT1 dystonia, also known as early-onset torsion dystonia, is a severe form of hereditary, generalized dystonia.
- [Mental Health Care Provider Overview for Dystonia](https://dystonia-foundation.org/dystonia-mental-health-care/) - It is not uncommon for some people with dystonia to also suffer with depression and/or anxiety. Knowing where to seek help can be overwhelming and sometimes a hindrance to getting help. To break down that barrier, DMRF spoke with Laurie Strawgate-Kanefsky, PhD to explain the various types of mental health providers and offer some critical
- [Service Dogs Can Change Lives for Those with Dystonia](https://dystonia-foundation.org/service-dogs-dystonia/) - Maddie Paolero and Dee Linde share how their dogs, JJ and Murphy, bring independence and companionship to their lives. Learn if a service dog may be right for you and what it takes to find and care for one. At age 5, Maddie Paolero was diagnosed with early-onset generalized dystonia. “I started noticing when she
- [Dystonia Awareness Month for Leaders](https://dystonia-foundation.org/leader-awareness/)
- [Creative Coping: Tips & Tricks for Daily Life](https://dystonia-foundation.org/creative-coping/) - This article was published in the Dystonia Dialogue. Medical treatment for dystonia is available, but effectiveness varies. Few treatment options, on their own, provide 100% relief. Living well with dystonia often requires creative adaptations invented by those experiencing the disorder firsthand. An international team of clinicians recently published examples of the “self-concocted, curious, and creative”
- [Not Born Yesterday: Dystonia & Aging](https://dystonia-foundation.org/aging/) - Born Yesterday: Dystonia & Aging Whether someone has lived with dystonia for months or decades, the disorder often requires adjustments across many areas of daily life. The advantages of experience and aging can help ease certain aspects of the dystonia journey, while evolving realities may create new challenges. Being aware of the natural aging process
- [Living with Cervical Dystonia](https://dystonia-foundation.org/living-with-cd-2022/) - September is Dystonia Awareness Month. Join us for a conversation about cervical dystonia, its impact, diagnosis and management, and the importance of speaking with a healthcare provider if you are experiencing potential symptoms. Janet Hieshetter, Dystonia Medical Research Foundation’s Executive Director, is joined by Crystal Edmonds, who is diagnosed with cervical dystonia, and Dr. Diego
- [Family Healing in Living with Dystonia](https://dystonia-foundation.org/family-healing/) - By Karen K. Ross, PhD, DMRF Vice President of Support This article was published in the Dystonia Dialogue. Our family felt like the rug was pulled out from under us when my son was first diagnosed with dystonia. Each family member was affected in profound ways, and we experienced the entire range of emotions. Shock,
- [Mental Health Resources](https://dystonia-foundation.org/mental-health-resources/) - Dystonia is a neurological disorder that affects the physical body, but the impact goes far deeper and may affect a person's emotional and mental health. Individuals diagnosed with dystonia commonly experience symptoms that affect more than how the body moves. If you are feeling depressed, anxious, or overwhelmed, please consider reaching out for help. The
- [New Dystonia Drug Candidates Discovered](https://dystonia-foundation.org/new-drugs-aug-2021/) - Several research teams reported major advances in the development of new drugs to treat movement disorders including dystonia. In one of the preclinical studies, investigators have identified several compounds that retain the beneficial effects of anticholinergic drugs like Artane® while eliminating side effects. Another research group successfully corrected dystonic brain abnormalities in mice with a
- [Accelerating Advancements in Deep Brain Stimulation](https://dystonia-foundation.org/advancements-dbs-miocinovic/) - This article was published in the Dystonia Dialogue. Svjetlana Miocinovic, MD, PhD is Assistant Professor in the Department of Neurology, Movement Disorders Section, at Emory University School of Medicine. Her research focus is on the electrophysiology of human motor circuits and the development of device-based therapies. Her clinical focus is using deep brain stimulation (DBS)
- [Dystonia, Depression & Anxiety](https://dystonia-foundation.org/depression-anxiety/) - This article was published in the Dystonia Dialogue. Dystonia is a neurological disorder that causes excessive, involuntary muscle contractions. These muscle contractions result in abnormal muscle movements and body postures, making it difficult for individuals to control their movements. People who live with dystonia may also experience a range of non-motor symptoms that dramatically impact
- [Journeys into Parenthood](https://dystonia-foundation.org/journeys-parenthood/) - This article was published in the Dystonia Dialogue. The path to becoming a parent for individuals in the dystonia community is as varied as society at large. There are more options than ever for having children: biologically, via reproductive medicine, fostering, and adoption. Parents with dystonia may encounter challenges that parents without health issues might
- [What is a Physical Medicine & Rehabilitation Physician?](https://dystonia-foundation.org/pmr-physician/) - This article was published in the Dystonia Dialogue. “We’re experts in the diagnosis, pathophysiology, and management of any disabling condition,” explained John McGuire, MD, a physical medicine and rehabilitation (PM&R) specialist and Director of Stroke Rehabilitation & Spasticity Management at Froedtert Medical College of Wisconsin. PM&R physicians evaluate and treat patients with physical and cognitive
- [Dystonia: Frequently Asked Questions](https://dystonia-foundation.org/faq-2020/) - This article was originally published in the Dystonia Dialogue. What is dystonia? Dystonia is a brain disorder resulting in involuntary, abnormal postures or movements of the body due to excessive muscle contractions. Dystonia may be the only neurological disorder a person has, or the dystonia may be part of a medical condition or disease with
- [40+ Years of DMRF Research Achievements](https://dystonia-foundation.org/40-years-of-dmrf-research-achievements/) - “DMRF initiated, supported, stimulated, and catalyzed essential scientific and medical efforts that created the modern dystonia field.” -Jan Teller, MA, PhD Chief Scientific Advisor Nearly 45 years ago, the DMRF began the ambitious mission to find a dystonia cure. Since that time, the Foundation has provided funding to 270+ investigators and has grown the field
- [Mindfulness Meditation with Dr. Karen Ross](https://dystonia-foundation.org/mindfulness/) - 20-minute meditations to reduce stress, anxiety, and pain.
- [More than a Movement Disorder: Non-Motor Dystonia Symptoms](https://dystonia-foundation.org/more-than-movement/) - Individuals with dystonia often experience symptoms that affect more than how the body moves.
- [Dystonia & Sleep](https://dystonia-foundation.org/dystonia-sleep/) - Tips for good sleep.
- [Naturally Curious: An Integrative Approach to Treating Dystonia](https://dystonia-foundation.org/integrative-treatment/) - This article originally appeared in the Dystonia Dialogue. "Even when we treat symptoms in dystonia, people are still sometimes left with bothersome symptoms, and they're also dealing with more than just the physical symptoms that we can see,” explained Danny Bega, MD, neurologist and movement disorders specialist at Northwestern Medicine in Chicago. “A lot of patients with
- [On Target: Drug Discovery Efforts Pursue New & Improved Treatment](https://dystonia-foundation.org/on-target-drug-discovery/) - This article originally appeared in the Dystonia Dialogue. Drug discovery and development efforts are an important part of the Dystonia Medical Research Foundation's (DMRF) multi-faceted science strategy. “The dystonia community cannot wait for pharmaceutical and biotech companies to necessarily get interested in dystonia on their own,” explains Jan Teller, MA, PhD, DMRF’s Chief Scientific Advisor.
- [Non-Invasive Brain Stimulation Therapies Offer New Therapeutic Opportunities](https://dystonia-foundation.org/clinical-researchers-tackle-treatment-gaps/) - Clinical Researchers Tackle Dystonia Treatment Gaps
- [What Makes You Stronger: Mother & Daughter Reflect on Family Legacy of Living Beyond Dystonia](https://dystonia-foundation.org/rawson-2019/) - Mother and daughter reflect on family legacy of living beyond dystonia.
- [Eyes on Me: Dystonia & Social Anxiety](https://dystonia-foundation.org/dystonia-social-anxiety/) - 45% of adults with focal dystonia may experience significant social anxiety.

## Pages

- [Home](https://dystonia-foundation.org/) - Dystonia Medical Research Foundation mission is to advance dystonia research for more treatments and ultimately a cure, promote awareness, and offer support.
- [Better Questions Better Outcome](https://dystonia-foundation.org/living-dystonia/better-questions/) - Be prepared, be informed, and be empowered. Ask better questions for a better outcome. Discuss the treatment options for dystonia with your doctor.
- [People](https://dystonia-foundation.org/about-us/people/) - The DMRF is led by a Board of Directors and network of volunteers with personal connections to dystonia. Dystonia Foundation.
- [Accomplishments & Milestones in Research](https://dystonia-foundation.org/research/accomplishments/) - Accomplishments & Milestones in Research. 1970's - 1980's - 1990's - 2000's - 2010's. Dystonia Medical Research Foundation.
- [Financials](https://dystonia-foundation.org/about-us/financials/) - The DMRF is committed to serving the dystonia community responsibly. Because of this commitment to transparency and the utmost respect we hold for our donors, the DMRF gladly makes information about our finances and operations available to the public.
- [2025 Annual Report](https://dystonia-foundation.org/about-us/2025-annual-report/) - Thank you for your generous support in 2025! Read about the important accomplishments you made possible. DMRF’S 2025 Annual Report
- [Current Projects](https://dystonia-foundation.org/research/current-projects/) - Current Dystonia Research Projects. Dystonia is dedicated to dystonia research and supporting the collaborations and projects necessary for a Dystonia cure.
- [Clinical Fellowship Program](https://dystonia-foundation.org/research/fellow-training/) - 1-year clinical fellowships to support the training of physicians in preparation for a clinical and/or research career in movement disorders.
- [Events](https://dystonia-foundation.org/get-involved/events/) - Join the DMRF in 2025 for Dystonia Zoo Days and other community events to raise awareness of the brain disorder dystonia and raise funds for research.
- [Science Can't Wait](https://dystonia-foundation.org/donate-other-ways/donate-online/stronger/) - The DMRF offers FREE tools and resources to answer questions about every form of dystonia. Please donate to support our work.
- [Dystonia Dialogue](https://dystonia-foundation.org/dystonia-dialogue/) - Dystonia Dialogue Magazine of the Dystonia Medical Research Foundation Dystonia Dialogue magazine, now available in an interactive electronic edition, is published three times a year, features news on the latest dystonia research, personal profiles, coping tips for living with dystonia, and community news and events. Dystonia Dialogue Spring Edition 2026 Now Available Read Latest Issue
- [Dystonia Newsletters](https://dystonia-foundation.org/about-us/dystonia-dialogue/) - The latest information and news about dystonia.
- [Genetics](https://dystonia-foundation.org/what-is-dystonia/genetics/) - Being informed about the genetics of dystonia can be important in the diagnosis and treatment process. Individuals with dystonia may be concerned that their children are at risk of inheriting the disorder. There are forms of dystonia that are known to be genetic and forms that may or may not have a genetic component—researchers cannot confirm or rule it out at this time. More than 200 genes have been linked to dystonia.
- [Non-Motor Symptoms of Dystonia](https://dystonia-foundation.org/living-dystonia/mental-health/non-motor-symptoms-of-dystonia/) - Dystonia is a life-altering neurological disorder that affects the physical body, but the impact goes far deeper. The hallmark signs of dystonia are excessive, involuntary muscle contractions that cause abnormal postures and/or repetitive movements. Individuals diagnosed with dystonia also commonly experience symptoms that affect more than how the body moves. These are referred to as
- [Truncal Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/truncal-dystonia/) - Truncal dystonia impacts the muscles in the middle trunk of the body, including the chest, back, and abdominal muscles, and may be affected in both isolated (primary) and acquired (secondary) dystonia. The trunk is affected in generalized and can be affected in segmental dystonias. Truncal dystonia, sometimes referred to as axial dystonia, may also occur
- [What is Dystonia?](https://dystonia-foundation.org/what-is-dystonia/) - What is Dystonia? Dystonia is a neurological movement disorder that causes excessive, involuntary muscle contractions. The movements and postures may be painful.
- [Start a Fundraiser](https://dystonia-foundation.org/start-fundraiser/) - Collecting donations to support dystonia research.
- [Jon Davis - #Riding4Us](https://dystonia-foundation.org/riding4us/) - Support DMRF Board Member Jon Davis as he attempts to ride 4250 miles in 2024 to raise awareness of the brain disorder dystonia.
- [Jon Davis - Riding4Us 2026](https://dystonia-foundation.org/jon-davis-riding4us-2026/) - Top Donation $3,550.00 Average Donation $1,775.00 $0 of $25,000 raised $ Donation Amount: $50.00 – A penny per mile!$500 – 10 cents per mileGive Other Amount Would you like to help cover the processing fees? I'd like to help cover the transaction fees of 0 for my donation. Make this donation every weekmonthquarteryear Donate Select
- [SB Squares for Dystonia](https://dystonia-foundation.org/get-involved/events/sb-squares/) - This is a FUNdraiser to support the DMRF. Watch the big game on February 9 and help raise money to support the DMRF mission to find a dystonia cure.
- [About Us](https://dystonia-foundation.org/about-us/) - About Dystonia Medical Research Foundation. A non-profit organization serving people with Dystonia and their families. Dystonia Research - Dystonia Treatments.
- [Donate](https://dystonia-foundation.org/donate-other-ways/) - Other Ways to Give Every Gift Makes a Difference Thank you for supporting the Dystonia Medical Research Foundation. DONATE ONLINE NOW Give By Mail or Telephone Donations can be sent by mail to: Dystonia Medical Research Foundation1 East Wacker Drive, Suite 1730Chicago, IL 60601 Please call us at 800-377-3978 if you would like to make a donation
- [Donate Online New](https://dystonia-foundation.org/donate-other-ways/donate-online-new/) - Donate Online to Dystonia Medical Research Foundation. Donate Online - Become a Dystonia Member - Donate to a Dystonia Event. Dystonia Foundation.
- [X-linked Dystonia-Parkinsonism](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/x-linked/) - X-linked dystonia Parkinsonism (XDP) is a genetic form of dystonia that includes symptoms of both dystonia and Parkinsonism. Dystonia Research Foundation.
- [Legacy Society](https://dystonia-foundation.org/donate-other-ways/legacy/) - The DMRF Legacy Society Dystonia is a Movement Disorder Leaving a Legacy of Caring While the DMRF cannot operate without the generous cash donations received every day, there are some gifts for which we are happy to patiently wait. You can make a commitment of support to the DMRF today that is fulfilled in the
- [Donate Online](https://dystonia-foundation.org/donate-other-ways/donate-online/) - Donate Online to Dystonia Medical Research Foundation. Donate Online - Become a Dystonia Member - Donate to a Dystonia Event. Dystonia Foundation.
- [Valentine E-Cards](https://dystonia-foundation.org/valentines/) - This Valentine’s Day we invite you to share the love by making a donation, sending a note, and taking action to help raise awareness of dystonia with a cute Valentine E-Card from the DMRF. To send an ecard – click on the card of your choice below and select “Dedicate this Donation” and include the
- [Botulinum Neurotoxin Injections](https://dystonia-foundation.org/living-dystonia/treatment/botulinum-toxin-injections/) - Botulinum neurotoxin injections relieve dystonia symptoms. Injections into specific muscles acts to relax the muscles and reduce excessive muscle contractions.
- [Research](https://dystonia-foundation.org/research/) - Dystonia Medical Research Foundation is moving toward a cure. Funded medical research has led to understanding dystonia, genetics and therapeutic breakthroughs.
- [Delaney Sondag](https://dystonia-foundation.org/friends/delaney-sondag/) - Delaney Sondag was diagnosed with cervical dystonia 5 years ago at age 24. She will run a half marathon during Dystonia Awareness Month to raise funds for DMRF.
- [Donate](https://dystonia-foundation.org/donate/) - Donate Every Gift Makes a Difference Find out how to donate to the Dystonia Medical Research Foundation. Donate Online Use our secure site to make a donation, renew your membership or give a gift in someone's honor. Give By Mail or Telephone Donations can be sent by mail to: Dystonia Medical Research Foundation 1 East
- [Donate - Miller Family Fundraiser](https://dystonia-foundation.org/donate-other-ways/donate-online/miller-family-fundraiser/) - The DMRF offers FREE tools and resources to answer questions about every form of dystonia. Please donate to support our work.
- [Cure Dystonia Now Fund](https://dystonia-foundation.org/friends/cdn-fund/) - We are excited to announce that Cure Dystonia Now (CDN) has joined with longtime partner, the Dystonia Medical Research Foundation (DMRF). This has eliminated some redundant expenses and efforts, while maintaining CDN’s and DMRF’s mutual quest to find a cure for dystonia. CDN, now operating as the Cure Dystonia Now Fund of DMRF, supports urgently-needed
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- [DMRF Webinars](https://dystonia-foundation.org/living-dystonia/dmrf-webinars/) - The Dystonia Medical Research Foundation has a number of webinars and lectures available on the DMRF YouTube channel, with a wide range of topics covering various aspects of patient education, mental health/self-care, dystonia treatment, and dystonia research. Patient Education What You Need to Know About Clinical Trials Legacy of DYT1 Webinar Living with Cervical Dystonia
- [Complementary Therapies](https://dystonia-foundation.org/living-dystonia/treatment/complementary-therapy/) - Complementary Therapy may play a role in your Dystonia Treatment. Relaxation Techniques - Meditation - Acupuncture. Dystonia Foundation.
- [$5CURE4DYSTONIA](https://dystonia-foundation.org/5dollarcure/) - The $5DollarCure4Dystonia campaign is a national movement to bring visibility to dystonia and the urgent need for dystonia research, $5 at a time.
- [Non-Drug Therapies](https://dystonia-foundation.org/living-dystonia/treatment/non-drug-therapies/) - Dystonia Non-Drug Therapies include physical therapy, occupational therapy, speech therapy, voice therapy, relaxation, stress management. Dystonia Foundation.
- [Calendar](https://dystonia-foundation.org/calendar-3/) - Upcoming Events & Meetings Register for Upcoming Events
- [Calendar](https://dystonia-foundation.org/calendar-3/) - Upcoming Events & Meetings Register for Upcoming Events
- [Calendar](https://dystonia-foundation.org/calendar-3/) - Upcoming Events & Meetings Register for Upcoming Events
- [Calendar](https://dystonia-foundation.org/calendar-3/) - Upcoming Events & Meetings Register for Upcoming Events
- [Calendar](https://dystonia-foundation.org/calendar-3/) - Upcoming Events & Meetings Register for Upcoming Events
- [Calendar](https://dystonia-foundation.org/calendar-3/) - Upcoming Events & Meetings Register for Upcoming Events
- [Calendar](https://dystonia-foundation.org/calendar-3/) - Upcoming Events & Meetings Register for Upcoming Events
- [Acquired Dystonias](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/dystonias/) - Acquired Dystonias Dystonia is a Movement Disorder Quick Facts Secondary Dystonia is a term that has historically referred to types of dystonia that are caused by identifiable non-genetic factors such as medications, toxins, infections, stroke, or other forms of injury to the brain, spinal cord, or peripheral nerves. As we have gained more knowledge about
- [Mike Malinin | Hennepin Hundred](https://dystonia-foundation.org/mike-malinin-hennepin-hundred/) - Hi, I’m Mike Malinin — and I’m a musician living with dystonia. I grew up in Miami and started playing drums the summer before 7th grade. I knew from an early age that music is what I wanted to do for a living. Throughout middle and high school, I poured myself into music, playing with
- [Mike Malinin Hennepin Hundred Fundraiser](https://dystonia-foundation.org/get-involved/events/mike-malinin-hennepin-hundred-fundraiser/) - Top Donation $250.00 Average Donation $60.41 Musician Mike Malinin is running the Hennepin Hundred ultramarathon to support the Dystonia Medical Research Foundation. Recent Donations Cyberoptik donated $5.00 5 months ago Jennifer donated $25.00 7 months ago Ronald donated $100.00 7 months ago Ellen donated $25.00 7 months ago Jennifer donated $25.00 7 months ago Top
- [Dystonia Warrior Ride](https://dystonia-foundation.org/get-involved/events/warrior-ride/) - The Dystonia Warrior Ride is a charity motorcycle ride to raise money for research and to bring dystonia awareness to Northern Illinois and Southern Wisconsin.
- [Supporting DMRF & William K](https://dystonia-foundation.org/williamk/) - The DMRF thanks everyone who has supported William K and all those who struggle with the brain disorder dystonia. Donate today!
- [William K Fundraiser](https://dystonia-foundation.org/william-k-fundraiser/) - Top Donation $1,200.00 Average Donation $142.19 $ Donation Amount: $25$50$100$250$500$1,000Give Other Amount Would you like to help cover the processing fees? I'd like to help cover the transaction fees of 0 for my donation. Make this donation monthly Donate Select Payment Method Stripe – Credit Card PayPal Personal Info First Name * Last Name *
- [2024 Annual Report](https://dystonia-foundation.org/about-us/2024ar/) - Thank you for your generous support in 2024! Read about the important accomplishments you made possible. DMRF’S 2024 Annual Report
- [Membership](https://dystonia-foundation.org/donate-other-ways/membership/) - Donate Online to Dystonia Medical Research Foundation. Donate Online - Become a Dystonia Member - Donate to a Dystonia Event. Dystonia Foundation.
- [Friends](https://dystonia-foundation.org/friends/) - Friends Stefanie Barbieri Cure Dystonia Now Fund Keith Emerson Fund NDR Fund $8,596 of $20,000 raised Jon Davis #Riding4Us Jacob Peterson Boston Marathon
- [Types of Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/) - Types of Dystonia. There are many types of Dystonia. And, many diseases may include dystonia symptoms. Dystonia diagnosis and treatment. Dystonia Foundation.
- [Emotional & Mental Health](https://dystonia-foundation.org/living-dystonia/mental-health/) - Dystonia Emotional & Mental Health. Dystonia is a neurological disorder that affects the physical body and may affect a person's emotional and mental health.
- [Download Materials](https://dystonia-foundation.org/what-is-dystonia/printed-publications/) - Download Dystonia Educational Materials. Dystonia Foundation provides FREE Dystonia Educational Publications, Newsletters, Fact Sheets and Brochures. DMRF.
- [testing only 2024121302595159](https://dystonia-foundation.org/testing-only-2024121302595159/)
- [DMRF E-Cards](https://dystonia-foundation.org/dmrf-e-cards/) - DMRF e-cards are perfect for any occasion. Show your support for DMRF & dystonia research by sending a note of thanks, encouragement, or congratulations today.
- [Test Donation Form](https://dystonia-foundation.org/test-donation-form/) - Donate Thank you for giving. Your support funds dystonia research toward a cure, awareness and education activities, and support programs. If you experience any issues submitting your donation, please call the DMRF office at (312) 755-0198 and we’ll be happy to assist. Donate Online Now
- [Mission & History](https://dystonia-foundation.org/about-us/mission/) - The mission of the DMRF is to advance research for more dystonia treatments, find a cure, promote awareness, and support affected individuals and families.
- [Resources for Investigators](https://dystonia-foundation.org/research/resources-investigators/) - Resources for Investigators & Researchers. Dystonia Medical Research Foundation.
- [Register as a Brain Donor](https://dystonia-foundation.org/get-involved/brain-donor/) - Register as a Brain Donor. Brain donation provides the opportunity to contribute to the field of dystonia research for future generations. Dystonia Foundation.
- [Science Events - Internation Symposium](https://dystonia-foundation.org/science-events-internation-symposium/) - Dystonia Science Events Dystonia Research News and Information Available Now! Samuel Belzberg 6th International Dystonia SymposiumSummary for the Dystonia Community The Samuel Belzberg 6th International Dystonia Symposium (IDS6) drew top dystonia researchers from 32 countries, including 68 faculty members and close to 350 attendees. The Symposium also showcased 105 scientific posters presenting the latest in
- [2023AR](https://dystonia-foundation.org/2023ar/) - Thank you for your generous support in 2023! Read about the important accomplishments you made possible. DMRF’s 2023 Annual Report
- [Dystonia Strong](https://dystonia-foundation.org/get-involved/strong/) - Dystonia is a neurological movement disorder. Dystonia Moves Me is an annual awareness campaign.
- [Email Sign Up](https://dystonia-foundation.org/get-involved/email-sign-up/) - Dystonia Email Sign Up. Join us, and be a part of the global effort to find a cure for Dystonia. Dystonia Foundation.
- [Lower Limb Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/lower-limb/) - Lower limb dystonia refers to dystonic movements and postures in the leg, foot, and/or toes. Dystonia Foundation.
- [Myoclonus-Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/myoclonus-dystonia/) - Myoclonus Dystonia is an inherited dystonia disorder that includes prominent myoclonus symptoms. Dystonia Medical Research Foundation.
- [Paroxysmal Dystonia & Dyskinesias](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/paroxysmal/) - Paroxysmal Dystonia & Dyskinesias are episodic movement disorders in which abnormal movements are present only during attacks. Dystonia Foundation.
- [Spasmodic Dysphonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/spasmodic-dysphonia/) - Spasmodic dysphonia (also known as laryngeal dystonia) is a movement disorder featuring involuntary contractions of the vocal cord muscles. Dystonia Foundation.
- [Functional Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/functional-dystonia/) - Dystonia Types. Functional Dystonia are due to dysfunction of the nervous system, not neurological damage or disease. Dystonia Foundation.
- [Hand Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/hand-dystonia/) - Hand dystonia is a focal dystonia characterized by excessive, involuntary muscle contractions in the fingers, hand, forearm, and shoulder.
- [Musician's Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/musicians/) - Musician’s Dystonia Task Specific Focal Dystonia Professional musicians are susceptible to a number of occupational conditions, including task-specific focal dystonia. Experts estimate about 1% of professional musicians are affected by dystonia, but there are likely large numbers of musicians living with symptoms who remain unidentified. Almost all individuals with musician’s dystonia are classically trained, and
- [Drug-Induced Dyskinesias & Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/drug-induced/) - Drug-induced movement disorders. Dopamine blocking drugs can cause a variety of movement disorders. May be relieved by stopping the offending drug. Dystonia Types.
- [Oromandibular Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/oromandibular/) - Oromandibular Dystonia is characterized by forceful muscle contractions of the face, jaw, and/or tongue. May effect chewing and Speech. Dystonia Foundation.
- [Cervical Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/cervical-dystonia/) - Cervical dystonia affects the head and neck. Cervical dystonia produces excessive muscle contractions in the neck, head, neck, and shoulders.
- [Generalized Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/generalized/) - Generalized dystonia typically affects muscles in the torso and limbs, and sometimes the neck and face.
- [Dopa-Responsive Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/dopa-responsive/) - Dopa-responsive dystonia is a dystonia disorder that respond to levodopa. Symptoms may be similar to those of early onset generalized dystonia.
- [Blepharospasm](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/blepharospasm/) - Blepharospasm is a focal dystonia. Individuals with blepharospasm have normal vision, but forced closure of the eyelids may interfere with sight.
- [Frequently Asked Questions](https://dystonia-foundation.org/what-is-dystonia/faq/) - Dystonia Frequently Asked Questions. Dystonia Foundation, promotes Dystonia Awareness, Dystonia Medical Research to find a cure for Dystonia. Dystonia Treatment.
- [Treatment](https://dystonia-foundation.org/living-dystonia/treatment/) - Dystonia Treatment. Dystonia treatment must be highly customized. Multiple dystonia treatment options are available. Presently there is no cure for dystonia.
- [Common Misunderstandings](https://dystonia-foundation.org/what-is-dystonia/common-misunderstandings/) - Dystonia is a neurological disorder that occurs with a variety of symptoms, characteristics, and causes. Incorrect information about dystonia is easy to find, not just on the internet but in media stories and even from sources that claim to be authorities on dystonia. It can be challenging to identify credible sources for information. Here we clarify several common misunderstandings about dystonia.
- [Other Surgical Procedures](https://dystonia-foundation.org/living-dystonia/treatment/other-surgical-procedures/) - Dystonia Surgical Procedures. Dystonia surgery has been recommended to you by a movement disorder specialist. Dystonia Foundation for Neurological Movement Disorders.
- [Deep Brain Stimulation](https://dystonia-foundation.org/living-dystonia/treatment/deep-brain-stimulation/) - Deep brain stimulation (DBS) is a surgical treatment that uses an implanted medical device to treat dystonia and other neurological disorders. Once reserved for only severe cases of generalized dystonia, DBS is being used to treat a greater variety of dystonia patients than ever before. The use of DBS is evolving as research progresses. The movement disorders field now has more than two decades of experience and data regarding the long-term safety and efficacy of DBS.
- [Resources for Mental Health Professionals](https://dystonia-foundation.org/living-dystonia/mental-health-pros/) - Dystonia Emotional & Mental Health. Dystonia is a neurological disorder that affects the physical body and may affect a person's emotional and mental health.
- [Untangling Complexity of Dystonia: Report](https://dystonia-foundation.org/research/40-years-report/) - 40+ years of dystonia research achievements.
- [Get Involved](https://dystonia-foundation.org/get-involved/) - Get Involved in the Dystonia Community. Join DMRF, Dystonia Events, Promote Dystonia Awareness, Global Dystonia Registry, Dystonia Brain Donor. Dystonia Foundation.
- [Taking Charge of Your Care](https://dystonia-foundation.org/living-dystonia/taking-charge/) - Taking charge of your dystonia treatment requires being a proactive patient, asking questions, and understanding options.
- [Dystonia Advocacy Network](https://dystonia-foundation.org/get-involved/advocacy-network/) - Dystonia Advocacy Network. Advocates educate legislators about the needs of the dystonia community. Help us educate legislators and government officials.
- [Donation Confirmation](https://dystonia-foundation.org/donation-confirmation/) - Donation Confirmation Thank you for supporting the Dystonia Medical Research Foundation. Your gift funds dystonia research toward a cure, awareness and education activities, and support programs. A receipt will be sent to your email.
- [Donor Dashboard](https://dystonia-foundation.org/donor-dashboard-3/)
- [SResults](https://dystonia-foundation.org/sresults/) - No search query provided.
- [Research Funding Programs](https://dystonia-foundation.org/research/fund-program/) - DMRF supports research investigations related to the causes, mechanisms, prevention, and treatment of all types of dystonia.
- [Living with Dystonia](https://dystonia-foundation.org/living-dystonia/) - Living with dystonia includes treating the physical symptoms, & protecting emotional and psychological well-being. Dystonia is a neurological movement disorder.
- [Symptoms & Classifications](https://dystonia-foundation.org/what-is-dystonia/symptoms-classifications/) - Symptoms Classifications of Dystonia. Dystonia can occur in people of all ages. Certain types of dystonia tend to begin at specific ages. Dystonia Foundation.
- [Dystonia Basics](https://dystonia-foundation.org/what-is-dystonia/dystonia-basics/) - Dystonia Basics. Dystonia is a brain disorder causing uncontrollable body movements and postures. Dystonia Medical Research Foundation is working toward a cure.
- [Newly Diagnosed](https://dystonia-foundation.org/what-is-dystonia/new-diagnosed/) - Dystonia Diagnosed. Dystonia Basics - Find Dystonia Support Group - Find Dystonia Doctor. Dystonia is a neurological movement disorder. Dystonia Medical Research.
- [Support Groups](https://dystonia-foundation.org/living-dystonia/support-groups/) - Dystonia Support Groups. Find Dystonia Support Groups. Dystonia Foundation.
- [News & Press Releases](https://dystonia-foundation.org/about-us/dystonia-news/) - The Dystonia Medical Research Foundation announced its latest post-doctoral fellowship awards to advance research toward improved dystonia treatments and a cure.
- [Register as a Brain Donor](https://dystonia-foundation.org/get-involved/brain-donor/register-as-a-brain-donor/) - Brain Donor Registration form. Brain donation provides the opportunity to contribute to the field of dystonia research for future generations.
- [Dystonia Coalition](https://dystonia-foundation.org/research/dystonia-coalition/) - Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups working to advance the pace of clinical and research in dystonia.
- [Matching Gifts](https://dystonia-foundation.org/matching-gifts/) - As an easy way to double your contribution to the DMRF is through employee giving programs. More than 26 million people work for companies with employee matching gift programs. Learn more about your employer’s matching gift programs by entering the company’s name below. some companies will even match gifts made by spouses and retirees If
- [Donor Advised Funds](https://dystonia-foundation.org/donate-other-ways/daf-direct/) - Donor Advised Funds Dystonia is a Movement Disorder Please consider recommending DMRF as an organization to support through your donor advised fund. DAF grants are not subject to a processing fee, which means 100 percent of the grant goes to support our mission. If you have a fund with Fidelity Charitable, Schwab Charitable, or BNY
- [Donate Online](https://dystonia-foundation.org/donate-other-ways/donate-online-2/) - Donate Online to Dystonia Medical Research Foundation. Donate Online - Become a Dystonia Member - Donate to a Dystonia Event. Dystonia Foundation.
- [Resources for Parents](https://dystonia-foundation.org/living-dystonia/parents/) - Resources for Parents with child diagnosed with Dystonia. Pediatric Dystonia diagnosis, treatment, and symptoms. Connect with the Dystonia Foundation.
- [Rapid-onset Dystonia Parkinsonism](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/rapid-onset/) - Rapid onset dystonia Parkinsonism (RDP), a hereditary form of dystonia, is characterized by the abrupt onset of slowness of movement and dystonic symptoms.
- [Toxins](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/toxins/) - Toxins. A number of uncommon toxins are capable of causing brain damage centered in the motor control region known as the basal ganglia. Dystonia Foundation.
- [Traumatic Injury](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/injury/) - Trauma Injury. Dystonia symptoms may follow trauma to the head, and/or trauma to a specific body area.
- [Pediatric Dystonia](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/pediatric-dystonia/) - Pediatric Dystonia in childhood is a movement disorder that causes involuntary muscle contractions. Dystonia Medical Research Foundation.
- [Neurological & Metabolic Disorders](https://dystonia-foundation.org/what-is-dystonia/types-dystonia/other-disorders/) - Neurological Disorders and Metabolic Disorders. Dystonia can occur as a part of many disorders and conditions. Dystonia Foundation.
- [Research Overview 101](https://dystonia-foundation.org/research/research-101/) - Dystonia Research Overview. The DMRF aspires to serve as a leader in dystonia research. Dystonia Medical Research Foundation.
- [Global Dystonia Registry](https://dystonia-foundation.org/research/dystonia-registry/) - Global Dystonia Registry. The goal of the Global Dystonia Registry is to support future dystonia studies, including clinical and research trials.
- [Dystonia Study Group](https://dystonia-foundation.org/research/dystonia-study-group/) - The Dystonia Study Group organizes and conducts clinical trials to test treatments for dystonia. Dystonia Medical Research Foundation.
- [Dystonia Journal](https://dystonia-foundation.org/research/journal/) - The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups that is working to advance the pace of clinical and translational research in the dystonia's to find better treatments.
- [Conversations with Investigators](https://dystonia-foundation.org/research/research-conversations/) - Conversations with Dystonia Investigators. Dystonia Medical Research Foundation Partners with Researchers around the World. Dystonia Foundation.
- [What is a Movement Disorder Specialist?](https://dystonia-foundation.org/living-dystonia/what-is-movement-disorder/) - Movement disorders is a subspecialty of neurology.
- [Online](https://dystonia-foundation.org/living-dystonia/online/) - Dystonia Online Support resources are available 24 hours a day, 7 days a week to people all over the world. Communicate with the dystonia foundation community.
- [Find Support](https://dystonia-foundation.org/living-dystonia/support/) - Find Support for Dystonia. Online Support Forums - Dystonia Support Groups - Dystonia Foundation.
- [Oral Medications](https://dystonia-foundation.org/living-dystonia/treatment/oral-medications/) - Dystonia Oral Medications been shown to improve dystonia symptoms. No single Dystonia drug works for everyone. Dystonia Medical Research Foundation.
- [Do I Have Cervical Dystonia?](https://dystonia-foundation.org/cervical-dystonia-screener/) - Cervical dystonia affects the head and neck. Cervical dystonia produces excessive muscle contractions in the neck, head, neck, and shoulders.
- [DMRF Monthly Donors](https://dystonia-foundation.org/donate-other-ways/donate-online/monthly/) - The DMRF offers FREE tools and resources to answer questions about every form of dystonia.
- [Calendar](https://dystonia-foundation.org/calendar/) - Dystonia Events Calendar. Upcoming Dystonia Events and Meetings. Dystonia Medical Research Foundation.
- [How Will We Find a Cure?](https://dystonia-foundation.org/about-us/cure/) - Dystonia Cure. Knowledgeable Dystonia clinicians and scientists who are shaping neurology, neuroscience, neurosurgery, and related fields. Dystonia Foundation.
- [Contact](https://dystonia-foundation.org/about-us/contact/) - Contact Dystonia Medical Research Foundation.
- [Submit a Doctor](https://dystonia-foundation.org/living-dystonia/submit-a-doctor/) - Submit a Doctor Complete the Form Below to be Considered for the Directory Complete the form below if you are a physician who treats dystonia and wish to submit your information to be added to the directory. Physician's First Name (required) Physician's Last Name (required) Degree (required) Type of Medicine (required) Mental Health ProviderMovement Disorder
- [Find a Doctor](https://dystonia-foundation.org/living-dystonia/find-a-doctor/) - Find a Doctor with special training in movement disorders can make a big difference in your treatment. Search for Dystonia Doctor. Dystonia physicians.
- [Test Instagram](https://dystonia-foundation.org/test-instagram/) - About Dystonia Medical Research Foundation. A non-profit organization serving people with Dystonia and their families. Dystonia Research - Dystonia Treatments.
- [Welcome to the DMRF](https://dystonia-foundation.org/new-to-dmrf/) - Resources and links for new donors to the DMRF. The DMRF and our volunteers are here for you.
- [Defining the Role of Brain Networks](https://dystonia-foundation.org/networks-meeting-2021/) - The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups that is working to advance the pace of clinical and translational research in the dystonia's to find better treatments.
- [Donor Dashboard](https://dystonia-foundation.org/donor-dashboard-2/)
- [Donor Dashboard](https://dystonia-foundation.org/donor-dashboard/)
- [Dystonia Social Network Logged In](https://dystonia-foundation.org/dystonia-social-network-loggedin/) - Find Support for Dystonia. Online Support Forums - Dystonia Support Groups - Dystonia Foundation.
- [Dystonia Social Network](https://dystonia-foundation.org/dystonia-social-network/) - Find Support for Dystonia. Online Support Forums - Dystonia Support Groups - Dystonia Foundation.
- [Support Leader Webinars](https://dystonia-foundation.org/leader-webinars/) - Dystonia Events Calendar. Upcoming Dystonia Events and Meetings. Dystonia Calendar of Events. Dystonia Medical Research Foundation.
- [Register](https://dystonia-foundation.org/register/)
- [Activate](https://dystonia-foundation.org/activate/)
- [Shopping](https://dystonia-foundation.org/shopping/) - Merchandise & Brochures Merchandise Brochures
- [Merchandise & Brochures](https://dystonia-foundation.org/shop/)
- [Recurring Donations](https://dystonia-foundation.org/recurring-donations/)
- [Donation Failed](https://dystonia-foundation.org/donation-failed/) - We're sorry, your donation failed to process. Please try again or contact site support.
- [Donation History](https://dystonia-foundation.org/donation-history/)
- [Directory](https://dystonia-foundation.org/directory/)
- [Directory Dashboard](https://dystonia-foundation.org/directory-dashboard/)
- [Add Listing](https://dystonia-foundation.org/add-directory-listing/)

## Directory

- [Contact the DMRF for Assistance - ND](https://dystonia-foundation.org/living-dystonia/support-groups/25893/dystonia-support-group-of-north-dakota/)
- [Dyscoveries Dystonia Support Group of Spokane, WA](https://dystonia-foundation.org/living-dystonia/support-groups/3488/dyscoveries-spokane-washington-dystonia-support-group/)
- [Utah Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3476/contact-the-dmrf-for-assistance-ut/)
- [Dystonia Support Group of Kentuckiana](https://dystonia-foundation.org/living-dystonia/support-groups/38340/dystonia-support-group-of-kentuckiana/)
- [Dystonia Support Group of Greater Cleveland](https://dystonia-foundation.org/living-dystonia/support-groups/6863/dystonia-support-group-of-greater-cleveland/)
- [Contact the DMRF for Assistance - KS](https://dystonia-foundation.org/living-dystonia/support-groups/59190/contact-the-dmrf-for-assistance-ks/)
- [Central Indiana Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3526/central-indiana-dystonia-support-group/)
- [Contact the DMRF for Assistance - OK](https://dystonia-foundation.org/living-dystonia/support-groups/3524/tulsa-ok-dystonia-support-group/)
- [Contact the DMRF for Assistance - NM](https://dystonia-foundation.org/living-dystonia/support-groups/3462/dystonia-support-group-of-new-mexico-sw-texas/)
- [Contact the DMRF for Assistance - NH](https://dystonia-foundation.org/living-dystonia/support-groups/11535/dystonia-support-group-of-keene-nh/)
- [Rochester, NY Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/37394/rochester-ny-dystonia-support-group-2/)
- [Sacramento Area Contact](https://dystonia-foundation.org/living-dystonia/support-groups/7989/san-joaquin-county-support-group/)
- [Quad-Cities Iowa Area Contact](https://dystonia-foundation.org/living-dystonia/support-groups/3474/quad-cities-support-group/)
- [Michigan Tri-Cities Area contact](https://dystonia-foundation.org/living-dystonia/support-groups/3519/michigan-tri-cities-dystonia-support-group/)
- [Alabama Area Contact](https://dystonia-foundation.org/living-dystonia/support-groups/3447/birmingham-al-dystonia-support-group/)
- [Contact the DMRF for Assistance - NJ](https://dystonia-foundation.org/living-dystonia/support-groups/3449/northern-new-jersey-dystonia-support-group/)
- [Western Connecticut Dystonia Support & Action Group](https://dystonia-foundation.org/living-dystonia/support-groups/3448/central-connecticut-dystonia-support-group/)
- [Fairfield, CA Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3455/fairfield-ca-dystonia-support-group/)
- [Central Ohio Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/40361/central-ohio-dystonia-support-group/)
- [Southeast Pennsylvania Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3482/southeast-pennsylvania-support-group/)
- [Contact DMRF for Assistance - ME](https://dystonia-foundation.org/living-dystonia/support-groups/37395/maine-dystonia-support-group/)
- [Contact DMRF for Assistance - AR](https://dystonia-foundation.org/living-dystonia/support-groups/6862/dystonia-support-group-of-the-ozarks/)
- [Contact DMRF for Assistance - SC](https://dystonia-foundation.org/living-dystonia/support-groups/3484/south-carolina-dystonia-support-group/)
- [Contact DMRF for Assistance - AZ](https://dystonia-foundation.org/living-dystonia/support-groups/3473/phoenix-arizona-dystonia-support-group/)
- [Greater Richmond Area Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/45313/greater-richmond-area-dystonia-support-group/)
- [MI Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/54593/mi-dystonia-support-group/)
- [NYC Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3509/nyc-adult-dystonia-support-group/)
- [Western Pennsylvania Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3483/western-pennsylvania-dystonia-support-group-2/)
- [Portland, OR & Southwest WA Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3480/portland-or-southwest-wa-support-group/)
- [North Carolina Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/17832/north-carolina-dystonia-support-group/)
- [Nebraska Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/21892/nebraska-dystonia-support-group/)
- [Metro Detroit Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/14713/metro-detroit-dystonia-support-group/)
- [East Central Iowa Corridor Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3510/east-central-iowa-corridor-dystonia-support-group/)
- [Atlanta Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/10712/atlanta-dystonia-support-group/)
- [CO Dystonia Support Group in Denver & Colorado Springs](https://dystonia-foundation.org/living-dystonia/support-groups/3452/denver-co-dystonia-support-group/)
- [Los Angeles Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3458/los-angeles-dystonia-support-group/)
- [Minnesota Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3459/minnesota-dystonia-support-group/)
- [Contact the DMRF for Assistance – FL](https://dystonia-foundation.org/living-dystonia/support-groups/34889/miami-fl-dystonia-support-group/)
- [Nevada Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/10713/southern-nevada-dystonia-group/)
- [St. Louis Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/7262/st-louis-dystonia-support-group/)
- [Hudson Valley, NY Dystonia Outreach and Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3457/hudson-valley-ny-dystonia-outreach-and-support-group/)
- [Area Contact - Shreveport, LA](https://dystonia-foundation.org/living-dystonia/support-groups/3522/louisiana-area-contact/)
- [Contact the DMRF for Assistance - TN](https://dystonia-foundation.org/living-dystonia/support-groups/36148/contact-the-dmrf-for-assistance-tn/)
- [Contact the DMRF for Assistance – WV](https://dystonia-foundation.org/living-dystonia/support-groups/3479/regional-coordinator-mid-atlantic/)
- [Contact DMRF for assistance - DE](https://dystonia-foundation.org/living-dystonia/support-groups/34890/delaware/)
- [Rhode Island Area Contact](https://dystonia-foundation.org/living-dystonia/support-groups/3492/rhode-island-dystonia-support-group/)
- [Support and Advocacy Group of San Diego County](https://dystonia-foundation.org/living-dystonia/support-groups/3472/support-and-advocacy-group-of-san-diego-county/)
- [Greater Washington DC Dystonia Support Group (MD)](https://dystonia-foundation.org/living-dystonia/support-groups/3498/greater-washington-dc-dystonia-support-group-md/)
- [Greater Washington DC Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3456/greater-washington-dc-dystonia-support-group/)
- [Contact the DMRF for Assistance – VT](https://dystonia-foundation.org/living-dystonia/support-groups/3471/regional-coordinator-northeast-3/)
- [Greater Boston Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3527/greater-boston-dystonia-support-group/)
- [Contact the DMRF for Assistance - IL](https://dystonia-foundation.org/living-dystonia/support-groups/3525/greater-chicagoland-dystonia-support-group/)
- [Houston Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/15152/houston-dystonia-support-group/)
- [Central Oregon Dystonia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3450/central-oregon-dystonia-support-group/)
- [Roanoke, Virginia Support Group](https://dystonia-foundation.org/living-dystonia/support-groups/3501/roanoke-virginia-support-group/)
- [Contact the DMRF for Assistance - SD](https://dystonia-foundation.org/living-dystonia/support-groups/3521/contact-the-dmrf-for-assistance-sd/)
- [Regional Coordinator - Pacific](https://dystonia-foundation.org/living-dystonia/support-groups/3516/regional-coordinator-pacific-2/)
- [Contact the DMRF for Assistance - WY](https://dystonia-foundation.org/living-dystonia/support-groups/3515/contact-the-dmrf-for-assistance-wy/)
- [Contact the DMRF for Assistance - MS](https://dystonia-foundation.org/living-dystonia/support-groups/3513/contact-the-dmrf-for-assistance-ms/)
- [Regional Coordinator - Pacific](https://dystonia-foundation.org/living-dystonia/support-groups/3491/regional-coordinator-pacific/)
- [Regional Coordinator - South Central](https://dystonia-foundation.org/living-dystonia/support-groups/3489/regional-coordinator-south-central/)
- [Contact the DMRF for Assistance - WI](https://dystonia-foundation.org/living-dystonia/support-groups/3478/contact-the-dmrf-for-assistance-wi/)
- [Regional Coordinator - Northwest](https://dystonia-foundation.org/living-dystonia/support-groups/3466/regional-coordinator-northwest/)
- [Regional Coordinator - Northwest](https://dystonia-foundation.org/living-dystonia/support-groups/3468/regional-coordinator-northwest-2/)

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- [Home Page Research Investigations Scroll](https://dystonia-foundation.org/?elementor_library=home-page-research-investigations-scroll) - Current Dystonia Research Investigations The Dystonia Medical Research Foundation (DMRF) prides itself on a long history of supporting and stimulating dystonia research Normalizing DYT1 Cholinergic Neurons by CRISPR Disruption of Mutant TOR1A Allele Gene therapy is proving beneficial in an increasing number of neurological diseases. This proposal represents a step in evaluating whether gene therapy
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- [Accordion](https://dystonia-foundation.org/?elementor_library=accordion) - 2022 Dystonia Dialogue Newsletters The Dystonia Dialogue is supported by Ipsen Biopharmaceuticals. Dystonia Dialogue – Spring 2022 2021 Dystonia Dialogue Newsletters Dystonia Dialogue – Winter 2021 Dystonia Dialogue – Summer 2021 Dystonia Dialogue – Spring 2021 2020 Dystonia Dialogue Newsletters Dystonia Dialogue – Winter 2020 Dystonia Dialogue – Summer 2020 Dystonia Dialogue – Spring 2020 Accordi 2019 Dystonia Dialogue Newsletters on Title Dystonia Dialogue – Winter
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- [Get Involved - accordion](https://dystonia-foundation.org/?elementor_library=get-involved-accordion) - What are the Symptoms of Paroxysmal Dyskinesias? Identifying the types of movements associated with PD is complicated. These movements may be dystonic, choreic, ballistic, or a combination. An individual may show one specific type of movement or a combination of movements. Dystonic movements are typically patterned and repetitive, causing twisting movements and abnormal postures. Dystonia occurs
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- [Get Involved Content](https://dystonia-foundation.org/?elementor_library=get-involved-content) - There are numerous ways to get involved and make a difference on behalf of the DMRF community. Getting involved is empowering and provides an opportunity for you to contribute to the DMRF’s unrelenting quest for a cure and commitment to serving the needs of affected people and families.
- [Get Involved Header](https://dystonia-foundation.org/?elementor_library=get-involved-header) - Get Involved Dystonia is a Movement Disorder
- [About Us Content](https://dystonia-foundation.org/?elementor_library=about-us-content) - The DMRF is a 501(c)3 non-profit organization dedicated to serving all people with dystonia and their families. Since 1976, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a Board of Directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home
- [About Us Page Slider](https://dystonia-foundation.org/?elementor_library=about-us-page-slider) - About Us Dystonia is a Movement Disorder
- [Get Involved: Promote Awareness - Bingo Header](https://dystonia-foundation.org/?elementor_library=get-involved-promote-awareness-bingo-header) - Tips & Hints for Completing Bingo Items:
- [Get Involved: Promote Awareness - Graphic](https://dystonia-foundation.org/?elementor_library=get-involved-promote-awareness-graphic)
- [Get Involved: Promote Awareness - Content](https://dystonia-foundation.org/?elementor_library=get-involved-promote-awareness-content) - September is Dystonia Awareness Month, but promoting dystonia awareness is critical all year round. You can promote dystonia awareness by joining Dystonia Moves Me, the DMRF’s annual awareness campaign. Dystonia Moves Me empowers volunteers to promote dystonia awareness locally and in social media. Take the “Dystonia Moves Me Bingo Challenge.” The bingo card below contains
- [About Us - How Will We Find a Cure Video](https://dystonia-foundation.org/?elementor_library=about-us-how-will-we-find-a-cure-video)
- [Get Involved: Promote Awareness - Header](https://dystonia-foundation.org/?elementor_library=get-involved-promote-awareness-header) - Promote Dystonia Awareness Dystonia is a Movement Disorder
- [About Us - How Will We Find a Cure Video Header](https://dystonia-foundation.org/?elementor_library=about-us-how-will-we-find-a-cure-video-header) - Research Update with Dr. Jan Teller
- [About Us - How Will We Find a Cure Accordion](https://dystonia-foundation.org/?elementor_library=about-us-how-will-we-find-a-cure-accordion) - Work with the best people. The Medical & Scientific Advisory Council is made up of dystonia clinicians and scientists who are among the most knowledgeable in the world and whose work is shaping neurology, neuroscience, neurosurgery, and related fields. Fill in the gaps. The DMRF partners with investigators to answer specific questions about dystonia by
- [About Us - How Will We Find a Cure - Content](https://dystonia-foundation.org/?elementor_library=about-us-how-will-we-find-a-cure-content) - The DMRF believes the best service it can provide the dystonia community is to work every day toward improved therapies and a cure. How will we get there? Here are some of our key approaches:
- [Get Involved: Advocacy - Cynthis Video](https://dystonia-foundation.org/?elementor_library=get-involved-advocacy-cynthis-video)
- [About Us - How Will We Find a Cure Header](https://dystonia-foundation.org/?elementor_library=about-us-how-will-we-find-a-cure-header) - How will We Find a Cure? Dystonia is a Movement Disorder
- [Get Involved: Advocacy - Cynthia Video Header](https://dystonia-foundation.org/?elementor_library=get-involved-advocacy-cynthia-video-header) - Cynthia Comella & Davis Peterson
- [Get Involved: Advocacy - Rosalie Lewis Video](https://dystonia-foundation.org/?elementor_library=get-involved-advocacy-rosalie-lewis-video)
- [Get Involved: Advocacy - Rosalie Lewis Video Header](https://dystonia-foundation.org/?elementor_library=get-involved-advocacy-rosalie-lewis-video-header) - Rosalie Lewis & Ellen Hess
- [About Us - Financials 2](https://dystonia-foundation.org/?elementor_library=about-us-financials-2) - The DMRF is committed to serving the dystonia community responsibly. Because of this commitment to transparency and the utmost respect we hold for our donors, the DMRF gladly makes information about our finances and operations available to the public. 2021 Annual Report 2021 Audited Financial Statements 2021 IRS Form 2022 Plans The DMRF has the
- [Get Involved: Advocacy Virtual 2022 Video](https://dystonia-foundation.org/?elementor_library=get-involved-advocacy-virtual-2022-video)
- [Get Involved: Advocacy Virtual 2022 Header](https://dystonia-foundation.org/?elementor_library=get-involved-advocacy-virtual-2022-header) - Virtual Advocacy Day 2022
- [About Us - Financials 1](https://dystonia-foundation.org/?elementor_library=about-us-financials-1) - Financials Dystonia is a Movement Disorder
- [Get Involved: Advocacy Register Button](https://dystonia-foundation.org/?elementor_library=get-involved-advocacy-register-button) - REGISTER IN 2022
- [About Us - People 3](https://dystonia-foundation.org/?elementor_library=about-us-people-3) - Board of Directors The DMRF is governed by a volunteer Board of Directors led by the President. The Board serves as the principle fundraising and decision-making body. Co-FounderSamuel Belzberg(1928-2018) Honorary Chair & Co-FounderFrances Belzberg Lifetime Honorary DirectorsMahlon R. DeLong, MD, Scientific Director EmeritusStanley Fahn, MD Board of Directors Mark RudolphPresident Richard A. Lewis, MDVice President
- [About Us - People 2](https://dystonia-foundation.org/?elementor_library=about-us-people-2) - The DMRF has grown from a small family-based foundation into a dynamic membership-driven organization. The DMRF is led by a Board of Directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for our directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find
- [Get Involved: Events - Content](https://dystonia-foundation.org/?elementor_library=get-involved-events-content) - This year the DMRF plans to return to hosting in-person events. The health and well-being of the DMRF community remains our highest priority and local public health guidelines will be followed. If you would like to plan an event in your community, please contact us with questions.
- [About Us - People 1](https://dystonia-foundation.org/?elementor_library=about-us-people-1) - People DMRF is a community
- [Get Involved: Events - Header](https://dystonia-foundation.org/?elementor_library=get-involved-events-header) - Events & Zoo Days Dystonia is a movement disorder.
- [Get Involved: Promote Awareness/Dystonia Strong - Accordion](https://dystonia-foundation.org/?elementor_library=get-involved-promote-awareness-dystonia-strong-accordion) - Tips & Hints for Awareness Actions Purchase Dystonia Strong Merchandise Check out the line of Dystonia Strong items: baseball-style shirt, yard flag, banner, magnet, and more! View our Merchandise and order today! Post Awareness Selfie Selfies are fun but can also promote awareness. Consider posting a pic that demonstrates an aspect of life with dystonia:
- [Get Involved: Promote Awareness/Dystonia Strong - Graphic](https://dystonia-foundation.org/?elementor_library=get-involved-promote-awareness-dystonia-strong-graphic) - Promote Awareness Check List
- [Get Involved: Promote Awareness/Dystonia Strong - Content](https://dystonia-foundation.org/?elementor_library=get-involved-promote-awareness-dystonia-strong-content) - September is Dystonia Awareness Month, but promoting dystonia awareness is critical all year round. You can promote dystonia awareness by joining Dystonia Strong, the DMRF’s campaign to celebrate the strength and resilience of individuals with dystonia and their families. Dystonia Strong empowers the community to work together to promote dystonia awareness locally and in social
- [Get Involved: Promote Awareness/Dystonia Strong Header](https://dystonia-foundation.org/?elementor_library=get-involved-promote-awareness-dystonia-strong-header) - Dystonia Strong Celebrate the Strength of the Dystonia Community
- [About Us - News & Press Releases 2](https://dystonia-foundation.org/?elementor_library=about-us-news-press-releases-2)
- [About Us - News & Press Releases 1](https://dystonia-foundation.org/?elementor_library=about-us-news-press-releases-1) - News & Press Releases Dystonia is a Movement Disorder
- [About Us - Mission and History Video](https://dystonia-foundation.org/?elementor_library=about-us-mission-and-history-video)
- [Get Involved: Promote Awareness - Paroxysmal dyskinesias accordion](https://dystonia-foundation.org/?elementor_library=get-involved-promote-awareness-paroxysmal-dyskinesias-accordion) - What are the Symptoms of Paroxysmal Dyskinesias? Identifying the types of movements associated with PD is complicated. These movements may be dystonic, choreic, ballistic, or a combination. An individual may show one specific type of movement or a combination of movements. Dystonic movements are typically patterned and repetitive, causing twisting movements and abnormal postures. Dystonia occurs
- [About Us - Mission and History Video Header](https://dystonia-foundation.org/?elementor_library=about-us-mission-and-history-video-header) - Step by Step Toward a Dystonia Cure
- [About Us - Mission and History Content](https://dystonia-foundation.org/?elementor_library=about-us-mission-and-history-content) - The mission of the DMRF is to advance research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and well being of affected individuals and families. The membership of the DMRF is comprised of individuals living with all forms dystonia, their friends and families, donors, healthcare professionals,
- [About Us - Mission and History Header](https://dystonia-foundation.org/?elementor_library=about-us-mission-and-history-header) - Mission & History Dystonia is a Movement Disorder
- [Get Involved: Promote Awareness - Bingo accordion](https://dystonia-foundation.org/?elementor_library=get-involved-promote-awareness-bingo-accordion) - Read an Article in the Dystonia Dialogue The Dystonia Dialogue is the DMRF’s newsletter, printed three times a year. Are you a subscriber? A Dystonia Dialogue subscription is just one perk of DMRF membership. You can find the latest issue online. Share DMRF Post on Social Media Follow DMRF on social media and share news and facts about dystonia. Find us
- [Get Involved: Brain Donation - Register Brain Button](https://dystonia-foundation.org/?elementor_library=get-involved-brain-donation-register-brain-button) - REGISTER AS A BRAIN DONOR CONTACT US
- [Get Involved: Brain Donation Accordion](https://dystonia-foundation.org/?elementor_library=get-involved-brain-donation-accordion) - Why Register as a Brain Donor? Giving scientists the opportunity to study brain tissue is a crucial step toward developing improved therapies and a cure for dystonia in all its forms. Brain donation provides the opportunity to contribute to the field of dystonia research in a practical, tangible way that will assist researchers working today
- [Get Involved: Brain Donation Content](https://dystonia-foundation.org/?elementor_library=get-involved-brain-donation-content) - Why register as a brain donor? Studies that have made important contributions to dystonia would not have been possible if volunteers had not decided in advance to donate their brains to research. Brain donation provides the opportunity to contribute to the field of dystonia research for future generations. The DMRF works in partnership with the Harvard
- [Get Involved: Brain Collective Graphic](https://dystonia-foundation.org/?elementor_library=get-involved-brain-collective-graphic)
- [Get Involved: Brain Donation Header](https://dystonia-foundation.org/?elementor_library=get-involved-brain-donation-header) - Register as a Brain Donor Give a Gift to Dystonia Research
- [Get Involved: Events - Upcoming Events - Events Section](https://dystonia-foundation.org/?elementor_library=get-involved-events-upcoming-events-events-section) - Indy Hunt for a Cure September 17, 2022 Dystonia Warrior Ride (IL) September 24, 2022 Dystonia Awareness Month September 1-30, 2022
- [Get Involved: Events - Upcoming Events Content](https://dystonia-foundation.org/?elementor_library=get-involved-events-upcoming-events-content) - Find a Dystonia Medical Research Foundation event near you.
- [Get Involved: Events - Upcoming Events Header](https://dystonia-foundation.org/?elementor_library=get-involved-events-upcoming-events-header) - Upcoming Events
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- [Get Involved: Events - Zoo Day Cities - 3](https://dystonia-foundation.org/?elementor_library=get-involved-events-zoo-day-cities-3) - Los Angeles Dystonia Zoo Day October 1, 2022Los Angeles Zoo Twin Cities Dystonia Zoo Day October 2, 2020Como Zoo Virtual Dystonia Zoo Day Kick-Off – August 18Virtual Zoo Day & Closing – October 8
- [Get Involved: Events - Zoo Day Cities - 2](https://dystonia-foundation.org/?elementor_library=get-involved-events-zoo-day-cities-2) - Boston Dystonia Zoo Day September 17, 2022Franklin Park Zoo Pittsburg Dystonia Zoo Day September 18, 2022Pittsburgh Zoo Cleveland Dystonia Zoo Day September 25, 2022Cleveland Zoo
- [Get Involved: Events - Zoo Day Cities -1](https://dystonia-foundation.org/?elementor_library=get-involved-events-zoo-day-cities-1) - Portland Dystonia Zoo Day August 27, 2022Toledo Zoo Toledo Dystonia Zoo Day August 20, 2022Oregon Zoo Bronx Dystonia Zoo Day September 10, 2022Bronx Zoo
- [Get Involved: Events - Zoo Days - Join Email section](https://dystonia-foundation.org/?elementor_library=get-involved-events-zoo-days-join-email-section) - Join our email list for notification of events near you.
- [Get Involved: Events - Zoo Days Header](https://dystonia-foundation.org/?elementor_library=get-involved-events-zoo-days-header) - 2022 Dystonia Zoo Days
- [Get Involved: Events - Zoo Day Graphic](https://dystonia-foundation.org/?elementor_library=get-involved-events-zoo-day-graphic)
- [Living with Dystonia: Emotional & Mental Health: Video Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-emotional-mental-health-video-header) - Dystonia, Depression, & Anxiety Webinar
- [Living with Dystonia: Emotional & Mental Health Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-emotional-mental-health-content) - Dystonia is a neurological disorder that affects the physical body, but the impact goes far deeper and may affect a person’s emotional and mental health. Individuals diagnosed with dystonia commonly experience symptoms that affect more than how the body moves.
- [Living with Dystonia: Emotional & Mental Health Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-emotional-mental-health-header) - Emotional & Mental Health Dystonia is More than a Movement Disorder
- [Living with Dystonia: Support - 4 Buttons](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-support-4-buttons) - ONLINE SUPPORT FORUMS FIND A SUPPORT GROUP SUPPORT GROUP NEETING CALENDAR SUBMIT A SUPPORT GROUP MEETING
- [Living with Dystonia: Support Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-support-content) - Many people have never heard the word “dystonia” until their own diagnosis. The DMRF partners with volunteers to sponsor local support groups and online support forums.Support groups provide local opportunities for information, camaraderie, and community activism.Online groups are available 24/7 and connect you to others in the community regardless of geography.
- [About Us - Dystonia Newsletters 3](https://dystonia-foundation.org/?elementor_library=about-us-dystonia-newsletters-3) - 2022 Dystonia Dialogue Newsletters The Dystonia Dialogue is supported by Ipsen Biopharmaceuticals. Dystonia Dialogue – Winter 2022 Dystonia Dialogue – Summer 2022 Dystonia Dialogue – Spring 2022 2021 Dystonia Dialogue Newsletters Dystonia Dialogue – Winter 2021 Dystonia Dialogue – Summer 2021 Dystonia Dialogue – Spring 2021 2020 Dystonia Dialogue Newsletters Dystonia Dialogue – Winter 2020 Dystonia Dialogue – Summer 2020 Dystonia Dialogue –
- [Living with Dystonia: Support Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-support-header) - Find Support Connect with Others Who Understand
- [About Us - Dystonia Newsletters 2](https://dystonia-foundation.org/?elementor_library=about-us-dystonia-newsletters-2) - Three print issues of the Dystonia Dialogue are included in your annual DMRF membership. JOIN TODAY Read Past Issues Click on the links below to access complete issues of past newsletters in PDF format.
- [Living with Dystonia - Contact for Assistance](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-contact-for-assistance) - Contact the DMRF if You Need Assistance If you have questions and concerns about dystonia and are not sure where to turn, start by contacting the DMRF at dy******@*****************on.org or 800-377-3978.
- [Living with Dystonia - CTA 4](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-cta-4) - Treat Depression & Anxiety Depression and anxiety can dramatically impact quality of life and the severity of motor symptoms. Consider being evaluated for depression and/or anxiety and, if symptoms are present, seek treatment. Do Things You Enjoy It can be easy to let pleasurable activities and fun fall by the way side. Create space in
- [Living with Dystonia - CTA 3](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-cta-3) - Develop a Multi-Layered Support System Seek out supportive family and friends, local dystonia support groups, online support groups, community events, and self-help resources. Enlist the help of a psychotherapist or counselor to help navigate concerns and vulnerabilities. Seek Help When You Need It If you need assistance, reach out and be specific about what you
- [Living with Dystonia - CTA 2](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-cta-2) - Actively Participate in Your Treatment Learn about dystonia. Investigate treatment options and make choices about your care with the input of your medical team. Exercise The benefits of exercise can be profound: strength, endurance, energy, stress reduction. Consider working with a physical therapist to develop an exercise plan that works for you. Remain as Active
- [Living with Dystonia - CTA 1](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-cta-1) - Seek Out Expert Healthcare Providers It often takes a team of experienced professionals to diagnose and treat dystonia. This may include a movement disorder neurologist, physical therapist/occupational therapist, psychiatrist, psychotherapist/counselor, pain management specialist, or other healthcare providers. Cautiously Explore Complementary Therapies Talk to your doctor about non-traditional therapies that interest you. Different complementary approaches may
- [Living with Dystonia - Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-content) - Dystonia is a movement disorder that impacts the physical body, and it can also have an impact on emotional and psychological health. Living well with dystonia includes treating the physical symptoms, protecting emotional and psychological well-being, and accommodating your unique needs as an individual. There is no single strategy for living well with dystonia. The
- [Living with Dystonia - Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-header) - Living with Dystonia
- [Get Involved: Register as a Brain Donor Form](https://dystonia-foundation.org/?elementor_library=get-involved-register-as-a-brain-donor-form) - Donor Information (required) First Name (required) Middle Name (required) Last Name (required) Address Line 1(required) Address Line 2 City (required) State (required) ZIP Code (required) Email (required) Phone (required) Date of birth Are you a? (required) Person with DystoniaBiological Relative of Someone with dystonia Type(s) of Dystonia (required) Next-of-Kin Information (required) First Name (required) Middle
- [Events & Meetings Content](https://dystonia-foundation.org/?elementor_library=events-meetings-content) - NOTE: The DMRF has cancelled numerous events and meetings to help limit the risk of spread of COVID-19. The health and well-being of the DMRF community is our highest priority and we are following the recommendations of public health officials. We hope to reschedule as many meetings and events as possible. Please confirm that a
- [Events & Meetings Header](https://dystonia-foundation.org/?elementor_library=events-meetings-header) - Upcoming Events & Meetings
- [Get Involved: Register as a Brain Donor Header](https://dystonia-foundation.org/?elementor_library=get-involved-register-as-a-brain-donor-header) - Register as a Brain Donor Gift a Gift to Dystonia Research
- [Donate Page Forms](https://dystonia-foundation.org/?elementor_library=donate-page-forms) - Donate Thank you for giving. Your support funds dystonia research toward a cure, awareness and education activities, and support programs. DONATE ONLINE MEMBERSHIP DONATE TO AN EVENT FIND FUNDRAISER SEND E-CARD DONATE ONLINE Donate Online Now Donations $ Donation Amount: $10 $25 $50 $100 $250 $500 $1,000 $5,000 Give Other Amount Would you like to
- [Living with Dystonia: Emotional & Mental Health: Accordion](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-emotional-mental-health-accordion) - Non-movement Aspects of Dystonia The human brain is staggeringly complex: structures and pathways associated with movement are also involved in cognition, emotion, memory, and other mental functions. Research has demonstrated that individuals with dystonia are prone to certain mental health disorders, particularly depression and anxiety. Individuals may also experience sleep disturbance, pain, and sensory signs.
- [Living with Dystonia: Emotional & Mental Health: Video](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-emotional-mental-health-video)
- [Living with Dystonia: Resources for Parents - Video](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-resources-for-parents-video)
- [Donate - Other Ways to Give 2](https://dystonia-foundation.org/?elementor_library=donate-other-ways-to-give-2) - Thank you for supporting the Dystonia Medical Research Foundation.
- [Living with Dystonia: Resources for Parents - Video Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-resources-for-parents-video-header) - Dystonia in Children & Adolescents Webinar
- [Donate - Other Ways to Give 1](https://dystonia-foundation.org/?elementor_library=donate-other-ways-to-give-1) - Other Ways to Give Every Gift Makes a Difference
- [Living with Dystonia: Resources for Parents - Content 1](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-resources-for-parents-content-1) - When a child is diagnosed with dystonia, parents may not know where to turn. DMRF has resources available to help you: Seek out the best medical care for your child. Consider consulting a pediatric neurologist with training in movement disorders or a movement disorder neurologist who treats children. FIND A DOCTOR Educate yourself about childhood dystonia and
- [Living with Dystonia: Resources for Parents Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-resources-for-parents-header) - Parents of Children with Dystonia Resources for Families
- [Living with Dystonia: Resources Mental Health - Video](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-resources-mental-health-video)
- [Living with Dystonia: Resources Mental Health - Video Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-resources-mental-health-video-header) - Dystonia, Depression & Anxiety
- [Living with Dystonia: Resources Mental Health Accordion](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-resources-mental-health-accordion) - Intro for Mental Health Professionals DMRF’s Vice President of Mental Health Programming Karen K. Ross, PhD offers a letter to thank and acknowledge mental health providers who are treating individuals with dystonia. Dystonia Fact Sheets “Understanding Dystonia” “Living Well with Dystonia” Non-Motor Aspects of Dystonia The human brain is staggeringly complex: structures and pathways associated with movement
- [Living with Dystonia: Resources Mental Health Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-resources-mental-health-content) - Dystonia is a neurological disorder that causes excessive, involuntary muscle contractions. These muscle contractions result in abnormal muscle movements and body postures, making it difficult for individuals to control their movements. There are multiple types of dystonia, and symptoms can present quite differently from one individual to the next. Individuals with dystonia may also experience anxiety, depression,
- [Living with Dystonia: Resources Mental Health Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-resources-mental-health-header) - Resources for Mental Health Professionals Dystonia id More than a Movement Disorder
- [Donate - Other Ways - Donor Advised Funds 2](https://dystonia-foundation.org/?elementor_library=donate-other-ways-donor-advised-funds-2) - Please consider recommending DMRF as an organization to support through your donor advised fund. DAF grants are not subject to a processing fee, which means 100 percent of the grant goes to support our mission. If you have a fund with Fidelity Charitable, Schwab Charitable, BNY Mellon or Greater Kansas City Community Foundation you can
- [Donate - Other Ways - Donor Advised Funds 1](https://dystonia-foundation.org/?elementor_library=donate-other-ways-donor-advised-funds-1) - Donor Advised Funds Dystonia is a Movement Disorder
- [Living with Dystonia: Find Doctor - 2 CTA Buttons](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-find-doctor-2-cta-buttons) - FIND A DOCTOR NEAR YOU Are you a physician who treats dystonia and wish to join the directory? REQUEST TO JOIN
- [Living with Dystonia: Find Doctor Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-find-doctor-content) - Finding a doctor with special training in movement disorders can make a big difference in your treatment. The DMRF maintains a directory of physicians and healthcare providers with experience and/or interest in treating people with dystonia. Please Note:the professionals listed in this directory vary in their experience and expertise and have voluntarily chosen to be
- [Living with Dystonia: Find Doctor Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-find-doctor-header) - Find a Doctor
- [Living with Dystonia: Event/Meeting Submission Form](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-event-meeting-submission-form) - Event or Meeting Submission Name of Support Group (required) Meeting Date (required) Meeting Starts: Time (required) Meeting Ends: Time (required) MEETING LOCATION Address Line 1(required) Address Line 2 City (required) State (required) Zip Code (required) MEETING CONTACT NAME First Name (required) Last Name (required) Phone (required) Email (required) ALTERNATE MEETING CONTACT Alternate First Name Alternate
- [Living with Dystonia: Emotional & Mental Health: Accordion 2](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-emotional-mental-health-accordion-2) - Symptoms of Depression Signs that someone may be depressed can include: Persistent ’empty’ mood Feeling hopeless, helpless, worthless, pessimistic, and/or guilty Substance abuse Disturbance in eating and sleeping patterns Irritability, increased crying, anxiety or panic attacks Difficulty concentrating, remembering, or making decisions Persistent physical symptoms or pain that do not respond to treatment Suicide Warning
- [Living with Dystonia: Emotional & Mental Health: Help Section](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-emotional-mental-health-help-section) - Are You Feeling Hopeless? Having Thoughts of Suicide? Help is available and you are not alone. Dystonia can be a difficult and painful disorder to live with. Managing the day-to-day challenges can seem overwhelming and impossible. Sources of HelpThe Dystonia Medical Research Foundation is not a crisis intervention center. We do not have training in
- [Living with Dystonia: Treatment Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-header) - Treatment Dystonia is a Movement Disorder
- [Living with Dystonia: Taking Charge - CTA 5](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-taking-charge-cta-5) - Remember You Have Choices You have the right to appropriate treatment, and to make choices about your health care providers, medical institution, and course of treatment. Contact the DMRF if you need assistance locating movement disorder specialists for evaluation and treatment, or a second opinion. If you are having difficulty with your health insurance provider covering the
- [Living with Dystonia: Taking Charge - CTA 4](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-taking-charge-cta-4) - Investigate Telehealth Movement disorder clinics are increasingly using video conferencing, smartphone apps, and additional telehealth technology to care for and interact with patients. You may have the option to conduct appointments from the comfort of your home. Secure video conferencing can save you time, energy, and expense from traveling to your doctor’s office. Build Your Own Record
- [Living with Dystonia: Taking Charge - CTA 3](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-taking-charge-cta-3) - Know Your Medical History You will often be asked to recount your medical history, which may be lengthy. Have the essentials in a concise written format and bring it with you to appointments. Information to be include may be: childhood illnesses, traumas, and injuries, history of medication use and allergic reactions, family and medical history
- [Living with Dystonia: Taking Charge - CTA 2](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-taking-charge-cta-2) - Establish Rapport It is important from the beginning to establish a positive relationship with your physician and health care team. Consider your medical team as partners in your healthcare. Clear communication is key. Your doctor will have questions for you and you will have questions for them too. Medical appointments may feel intimidating or uncomfortable
- [Living with Dystonia: Taking Charge - CTA 1](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-taking-charge-cta-1) - Make Yourself a Priority Even under the best of circumstances, dystonia is a life-changing disorder that requires management over time. Treatment can be time-consuming and inconvenient. When life gets busy or stressful, it can be tempting to ‘just deal with’ pain, medication side effects, or changes in how you feel. It may be easy to rationalize or ignore new
- [Living with Dystonia: Taking Charge - Header "A procative...](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-taking-charge-header-a-procative) - A proactive patient is one who has dedicated themselves to living well with dystonia. Below are some tips for take charge of your care.
- [Living with Dystonia: Taking Charge - Accordion](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-taking-charge-accordion) - Suggested Questions for Your Doctor • What is my diagnosis?• Is my dystonia early (childhood) onset or late (adult) onset?• Is my dystonia isolated (primary) or acquired (secondary)?• Does the dystonia appear to be associated with another neurological or metabolic disorder?• Should I consult a genetic counselor? If so, what can I expect to learn?•
- [Living with Dystonia: Taking Charge - Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-taking-charge-content) - Taking charge of your treatment means being a proactive patient. Being a proactive patient means asking questions. You have a right to fully understand all of your treatment options and any potential side effects associated with your choices.
- [Donate - Other Ways - Legacy Society 3](https://dystonia-foundation.org/?elementor_library=donate-other-ways-legacy-society-3) - Wills and Bequests Bequest gifts are the simplest of planned gifts. A bequest is simply a statement in a will that stipulates a gift to an individual or organization–for example, the Dystonia Medical Research Foundation (DMRF). A combination of both large and small bequests throughout the years has enabled the DMRF to continue to move
- [Living with Dystonia: Taking Charge - Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-taking-charge-header) - Taking Charge of Your Care Tips for Being a Proactive Patient
- [Donate - Other Ways - Legacy Society 2](https://dystonia-foundation.org/?elementor_library=donate-other-ways-legacy-society-2) - Wills and Bequests Bequest gifts are the simplest of planned gifts. A bequest is simply a statement in a will that stipulates a gift to an individual or organization–for example, the Dystonia Medical Research Foundation (DMRF). A combination of both large and small bequests throughout the years has enabled the DMRF to continue to move
- [Living with Dystonia: Find Support Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-find-support-header) - Finding Support Search for a Support Group in Your Local Area
- [Donate - Other Ways - Legacy Society 2](https://dystonia-foundation.org/?elementor_library=donate-other-ways-legacy-society-2-2) - Leaving a Legacy of Caring While the DMRF cannot operate without the generous cash donations received every day, there are some gifts for which we are happy to patiently wait. You can make a commitment of support to the DMRF today that is fulfilled in the future.The DMRF Legacy Society was created to recognize those
- [Donate - Other Ways - Legacy Society 1](https://dystonia-foundation.org/?elementor_library=donate-other-ways-legacy-society-1) - The DMRF Legacy Society Dystonia is a Movement Disorder
- [Living with Dystonia: Submit a Doctor - Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-submit-a-doctor-content) - Complete the form below if you are a physician who treats dystonia and wish to submit your information to be added to the directory.
- [Living with Dystonia: Submit a Doctor - Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-submit-a-doctor-header) - Submit a Doctor Complete the Form Below to be Considered for the Directory
- [Donate - Other Ways to Give 3](https://dystonia-foundation.org/?elementor_library=donate-other-ways-to-give-3) - Give By Mail or Telephone Donations can be sent by mail to: Dystonia Medical Research Foundation1 East Wacker Drive, Suite 1730Chicago, IL 60601 Please call us at 800-377-3978 if you would like to make a donation by telephone. Monthly or Recurring Gifts Give at your own pace with recurring gifts. You can choose to give weekly, quarterly,
- [Living with Dystonia:- Treatment > Deep Brain - 3 Videos](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-deep-brain-3-videos) - Surgical Interventions for Dystonia DBS Patient Perspective Brain Sensing & Adaptive DBS
- [Living with Dystonia:- Treatment > Deep Brain Accordion](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-deep-brain-accordion) - What is Deep Brain Stimulation? Deep brain stimulation (DBS) is a surgical procedure used to treat a variety of neurological disorders. A battery-powered stimulator —essentially a brain pacemaker—is implanted in the body and delivers electrical stimulation to the areas of the brain responsible for causing dystonia symptoms. The stimulator is implanted in the chest, and
- [Living with Dystonia:- Treatment > Deep Brain Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-deep-brain-content) - Deep brain stimulation (DBS) is a surgical treatment that uses an implanted medical device to treat dystonia and other neurological disorders. Once reserved for only severe cases of generalized dystonia, DBS is being used to treat a greater variety of dystonia patients than ever before. The use of DBS is evolving as research progresses. The
- [Living with Dystonia:- Treatment > Deep Brain Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-deep-brain-header) - Deep Brain Stimulation Neuromodulation Therapy
- [Living with Dystonia:- Comp Therapies - 3 videos](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-comp-therapies-3-videos) - Complimentary & Integrative Therapies Dystonia & Medical Cannabis Self Care for the Holidays
- [Living with Dystonia:- Comp Therapies Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-comp-therapies-content) - Complementary therapy care can be a very important component of a personalized treatment plan. The DMRF encourages individuals with dystonia to consult a movement disorder specialist, and to consult their doctors about all non-traditional therapies they are curious about including supplements, devices, and techniques. Speak with your doctors, support group leaders, and other people with
- [Living with Dystonia:- Comp Therapies Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-comp-therapies-header) - Complimentary Therapies Treatment may include Supportive Therapies
- [Living with Dystonia: Botulinum neurotoxin Accordion](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-botulinum-neurotoxin-accordion) - What is Botulinum Neurotoxin Therapy? Botulinum neurotoxin injections are a localized treatment to relieve dystonia symptoms. Botulinum neurotoxin (BNT), a biological product, is injected into muscles where it relaxes the muscles and reduces excessive muscle contractions. BNT is derived from the bacterium Clostridium botulinum. Ironically this is the same bacterium responsible for botulism, a disease
- [Living with Dystonia: Botulinum neurotoxin Video](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-botulinum-neurotoxin-video)
- [Living with Dystonia: Botulinum neurotoxin - Botulinum neurotoxin injections Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-botulinum-neurotoxin-botulinum-neurotoxin-injections-header) - Botulinum Neurotoxin Injections
- [Living with Dystonia: Botulinum neurotoxin Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-botulinum-neurotoxin-content) - Botulinum neurotoxin (BNT) injections are a common treatment for several types of dystonia. This therapy is used to treat to dystonia symptoms in a specific group of muscles, for example in the neck or a limb.
- [Living with Dystonia: Botulinum neurotoxin Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-botulinum-neurotoxin-header) - Botulinum neurotoxin Injections Dystonia is a Movement Disorder
- [Pet Palooza Registration 2](https://dystonia-foundation.org/?elementor_library=pet-palooza-registration-2) - Virtual Run, Walk, Roll, and Post 2022 Throughout the month of February you and your favorite pet can join DMRF’s Dystonia Pet Palooza. Anyone who loves pets can participate. Once you register and send in a photo, your favorite pet will be added to our Dystonia Pet Palooza Team page. Then, your friends and family can
- [Pet Palooza Registration 1](https://dystonia-foundation.org/?elementor_library=pet-palooza-registration-1) - Dystonia Pet Palooza Registration
- [Living with Dystonia: Treatment - Video](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-video)
- [Living with Dystonia: Treatment - Video Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-video-header) - Telemedicine Webinar
- [Living with Dystonia: Treatment - Find A Doctor Button](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-find-a-doctor-button) - The DMRF can help you locate movement disorder specialists. FIND A DOCTOR
- [Pet Palooza 2](https://dystonia-foundation.org/?elementor_library=pet-palooza-2) - Register Your Pet
- [Living with Dystonia: Treatment Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-content) - Dystonia treatment is not one size fits all. Treatment for dystonia must be customized to the individual person. Although there is not yet a cure, multiple treatment options are available. The purpose of treatment is to lessen the symptoms of muscle spasms, pain, and involuntary movements/postures. The ultimate goal is to improve quality of life
- [Pet Palooza 1](https://dystonia-foundation.org/?elementor_library=pet-palooza-1) - Dystonia Pet Palooza
- [Living with Dystonia: Treatment > Oral Meds Accordion](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-oral-meds-accordion) - Anticholinergics Anticholinergic drugs include Artane® (trihexyphenidyl), Cogentin® (benztropine), and Parsitan® (ethopropazine). These medications act by blocking a neurotransmitter chemical called acetylcholine, which plays an important role in muscle activation. Benzodiazepines Benzodiazepines include Valium® (diazepam), Klonopin (clonazepam), and Ativan® (lorazepam). These drugs act on the neurotransmitter chemical GABA-A. Baclofen Baclofen (Lioresal®) stimulates the body’s ability to
- [Living with Dystonia: Treatment > Oral Meds Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-oral-meds-content) - Numerous oral medications have been shown to improve dystonia. No single drug works for everyone, and several trials of medications may be needed to determine which is most appropriate for you. It is essential to clearly communicate with your doctors about all medications you are taking. Changes to medication dosage should be done only under
- [Living with Dystonia: Treatment > Oral Meds Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-oral-meds-header) - Oral Medications Dystonia is a Movement Disorder
- [What is Dystonia - Common Misunderstandings 5](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-5) - There is one genetic test for dystonia. You either have the genetic mutation or you don’t. REALITY: Researchers have found that mutations in a number of specific genes cause dystonia. However, right now it is only possible to test for a handful of these mutated genes. There is not a genetic test available for every form
- [What is Dystonia - Common Misunderstandings 4](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-4) - There is a gene for dystonia. REALITY: The genetics of dystonia are complicated. There is no single gene responsible for all cases of dystonia. Approximately 200 genes or genetic markers have been associated with different types of dystonia. And it is inevitable that new genes will be discovered in the future. It must be emphasized also that carrying
- [What is Dystonia - Common Misunderstandings 2](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-2) - Dystonia is a neurological disorder that occurs with a variety of symptoms, characteristics, and causes. Incorrect information about dystonia is easy to find, not just on the internet but in media stories and even from sources that claim to be authorities on dystonia.It can be challenging to identify credible sources for information. Here we clarify
- [What is Dystonia - Common Misunderstandings 1](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-1) - Common Misunderstandings Dystonia is a Movement Disorder
- [Living with Dystonia:- Treatment > Non-Drug - Video 3](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-non-drug-video-3)
- [Living with Dystonia:- Treatment > Non-Drug - Video 3 Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-non-drug-video-3-header) - Self Care for the Holidays
- [Living with Dystonia:- Treatment > Non-Drug - Video 2](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-non-drug-video-2)
- [Living with Dystonia:- Treatment > Non-Drug - Video 2 Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-non-drug-video-2-header) - Occupational Therapy, Physical Therapy & Alternative Therapies
- [Living with Dystonia:- Treatment > Non-Drug - Video 1](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-non-drug-video-1)
- [Living with Dystonia:- Treatment > Non-Drug - Video 1 Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-non-drug-video-1-header) - Coping Strategies for Managing Stress During COVID-19
- [What is Dystonia 3](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-3) - Common Signs of Dystonia >> A body part is flexed or twisted into an abnormal position. Repetitive and patterned body movements, which may resemble tremor. Dystonic symptoms may worsen or occur only with specific tasks. For example, hand dystonia may be present only when writing or playing a musical instrument. Attempting a movement task on
- [Living with Dystonia:- Treatment > Non-Drug - Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-non-drug-content) - A movement disorder specialist may recommend non-drug approaches in conjunction with traditional treatments. Non-drug approaches may include physical and occupational therapy as well as speech or voice therapy if appropriate. These approaches empower the individual with techniques to help achieve greater awareness and control over the body. Feel free to ask your movement disorder specialist
- [What is Dystonia 2](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-2) - Dystonia is a neurological disorder that causes excessive, involuntary muscle contractions. These muscle contractions result in abnormal muscle movements and body postures, making it difficult for individuals to control their movements. The movements and postures may be painful. Dystonic movements are typically patterned and repetitive. Dystonia can affect any region of the body including the
- [What is Dystonia 1](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-1) - What is Dystonia? Dystonia is a Movement Disorder
- [Living with Dystonia:- Treatment > Non-Drug - Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-non-drug-header) - Non-Drug Therapies Treatment May Include Supportive Therapies
- [Living w/ Dystonia: What is movement disorder Accordion](https://dystonia-foundation.org/?elementor_library=living-w-dystonia-what-is-movement-disorder-accordion) - Examples of Movement Disorders >> Ataxia Dystonia Huntington’s disease and chorea Parkinson’s disease and parkinsonism Myoclonus Restless legs syndrome Stiff Person Spectrum Disorder Tics and Tourette syndrome Tremors
- [Living w/ Dystonia: What is movement disorder Content](https://dystonia-foundation.org/?elementor_library=living-w-dystonia-what-is-movement-disorder-content) - Dystonia is a disorder that disrupts the body’s ability to move normally. It may come as a surprise to new patients that there is a subspecialty of medical doctors who have dedicated their careers to caring for people with movement disorders and researching these specific neurological problems. A movement disorder specialist is a neurologist with
- [Living w/ Dystonia: What is movement disorder Header](https://dystonia-foundation.org/?elementor_library=living-w-dystonia-what-is-movement-disorder-header) - What is a Movement Disorder Specialist? Dystonia is a Movement Disorder
- [What is Dystonia - Download Materials 3](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-download-materials-3) - ONLINE STORE
- [What is Dystonia - Download Materials 2](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-download-materials-2) - The following publications are available for free download. Click on the links below to access PDF files of select DMRF publications. To order printed educational material brochures, visit our online store.
- [What is Dystonia - Download Materials 1](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-download-materials-1) - Download Materials Free Educational Publications
- [Living with Dystonia: Treatment > Other Surgical Video](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-other-surgical-video)
- [Living with Dystonia: Treatment > Other Surgical Video Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-other-surgical-video-header) - Surgical Interventions for Dystonia
- [What is Dystonia - Common Misunderstandings 12](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-12) - No new treatments for dystonia are being explored. REALITY: Improved treatments are a major focus of the DMRF’s research efforts, including partnering with drug companies to discover new targets for medications, uncovering new treatment approaches, and funding investigators who are working to make existing treatments more effective. Meanwhile, advances in medical and research technology may reveal new
- [What is Dystonia - Common Misunderstandings 11](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-11) - Vaccinations cause dystonia. REALITY: There is no evidence that vaccinations cause dystonia. The DMRF asked a panel of preeminent movement disorder experts to examine this closely several years ago when a story surfaced of a woman who claimed to have developed “dystonia” following a flu immunization. It was later established the dystonia diagnosis was not correct.
- [Living with Dystonia: Treatment > Other Surgical Accordion](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-other-surgical-accordion) - Selective Peripheral Denervation – Cervical Dystonia Selective peripheral denervation surgery for cervical dystonia was developed to treat cervical dystonia before the availability of botulinum neurotoxin injections. The term selective refers to the care taken to identify the muscles of the neck affected by dystonia, and the term denervation refers to cutting the nerves that supply those muscles. The purpose of the procedure
- [What is Dystonia - Common Misunderstandings 10](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-10) - No research is being done in dystonia. REALITY: Investigators all over the world are working to better understand dystonia and develop improved treatments—and ultimately a cure. These research investigators are supported by private organizations such as the DMRF and government institutions such as the National Institutes of Health and the Department of Defense. However, there are more opportunities
- [What is Dystonia - Common Misunderstandings 9](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-9) - Botulinum neurotoxin injections are unsafe. REALITY: It may be confusing that a treatment includes the word “toxin” in its name. Botulinum neurotoxin injections have decades of research demonstrating that they are a safe and effective medical treatment. Botulinum neurotoxin has been approved for use in the United States since 1989, and treatment for dystonia was among the earliest
- [Living with Dystonia: Treatment > Other Surgical Content](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-other-surgical-content) - Surgery may be a treatment option for individuals whose dystonia symptoms do not respond to other therapies.
- [Living with Dystonia: Treatment > Other Surgical Header](https://dystonia-foundation.org/?elementor_library=living-with-dystonia-treatment-other-surgical-header) - Other Surgical Procedures
- [What is Dystonia - Common Misunderstandings 8](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-8) - Dystonia is a muscle problem only. REALITY: While dystonia manifests as abnormal muscle contractions, numerous studies have shown that the abnormality in patients with dystonia is found in the brain. Furthermore, for some types of dystonia, especially DYT1 dystonia, deep brain stimulation (DBS) is the most effective means of treatment, which speaks to the origins in the brain.
- [What is Dystonia - Common Misunderstandings 7](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-7) - Little is known about the cause of dystonia. REALITY: Although for most people with dystonia there is no obvious cause to be found, experts have shown that the disorder can be caused by a staggeringly diverse variety of factors and conditions. These include genetic mutations, exposure to certain drugs, brain injury or infection, and within the context of numerous different disorders. Although
- [What is Dystonia - Common Misunderstandings 6](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-common-misunderstandings-6) - DYT1 dystonia is the most common. REALITY: DYT1 dystonia is a primary torsion dystonia (sometimes referred to as early onset or childhood onset dystonia). It is among the best understood forms of the disorder, but it is not the most common. Focal dystonia’s that begin in adulthood are believed to be the most common. These include cervical dystonia, blepharospasm,
- [Research: CTA 1](https://dystonia-foundation.org/?elementor_library=research-cta-1) - ACCOMPLISHMENTS & MILESTONES >> RESOURCES FOR INVESTIGATORS >>
- [Research: Content](https://dystonia-foundation.org/?elementor_library=research-content) - The Dystonia Medical Research Foundation (DMRF) has supported and stimulated dystonia research for 40+ years. DMRF-funded research has led to a better overall understanding of dystonia as well as breakthroughs in genetics and therapeutics. The funding investigators obtain from the DMRF often serves as seed money that ultimately positions them to earn more robust funding
- [Research: Header](https://dystonia-foundation.org/?elementor_library=research-header) - Dystonia Research Moving Toward A Cure
- [What is Dystonia - FAQ 2](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-faq-2) - How is dystonia diagnosed? At this time, there is not a single test to confirm or rule out a dystonia diagnosis. Instead, the diagnosis depends on a physician’s ability to observe symptoms and obtain a patient history. Medical tests may be ordered to try to identify the cause for the development of dystonia, but a
- [What is Dystonia - FAQ 1](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-faq-1) - Frequently Asked Questions Dystonia is a Movement Disorder
- [Privacy: Accordion](https://dystonia-foundation.org/?elementor_library=privacy-accordion) - Donor Privacy Your privacy is a priority for the Dystonia Medical Research Foundation (DMRF). We are committed to a successful stewardship program for our donors. For donations of $100 or more, the DMRF may acknowledge the names of individual donors in our annual report and similar publications. For corporate and foundation partners, we may acknowledge
- [What is Dystonia - Dystonia Basics 3](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-dystonia-basics-3) - CONTACT US The DMRF is here to help you get the information and support you need. FIND A DOCTOR It may take a team of health care experts to successfully treat and manage dystonia. The DMRF can help you find a movement disorder specialist. TREATMENTS There is not yet a cure, but treatments are available.
- [Privacy: Content](https://dystonia-foundation.org/?elementor_library=privacy-content) - The Dystonia Medical Research Foundation (DMRF) has created this privacy statement in order to demonstrate our firm commitment to privacy.
- [What is Dystonia - Dystonia Basics 2](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-dystonia-basics-2) - Dystonia is a brain disorder. There are several types. Dystonia causes uncontrollable body movements and postures. The brain sends chaotic signals to the muscles, telling the muscles to contract, even if the person does not want them to0. Common Dystonia symptoms include Involuntary movements and pain in the neckExcessive blinkingA breathy or strangled-sounding voiceSlurred speechHand
- [What is Dystonia - Dystonia Basics 1](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-dystonia-basics-1) - Dystonia Basics Dystonia is a Movement Disorder
- [Privacy: Header](https://dystonia-foundation.org/?elementor_library=privacy-header) - Privacy Statement Transparency & Responsibility
- [Find Doctor Button](https://dystonia-foundation.org/?elementor_library=find-doctor-button) - FIND A DOCTOR
- [What is Dystonia - Download Materials 4](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-download-materials-4) - Dystonia Information Kit Download the following materials for a basic introduction and overview of dystonia and the Dystonia Medical Research Foundation (DMRF). Join the DMRF for access to all the resources available to members. Understanding Dystonia fact sheet Dystonia, A Movement Disorder Brochure Dystonia Medical Research Foundation: Moving Toward A Cure Brochure To order printed
- [Living w/ Dystonia: What is movement disorder - Tips Section](https://dystonia-foundation.org/?elementor_library=living-w-dystonia-what-is-movement-disorder-tips-section) - Tips for Locating a Movement Disorder Specialist A credential to identify a movement disorder specialist is that the physician has completed clinical fellowship training specifically in ‘movement disorders.’ DMRF offers a voluntary directory of physicians who treat dystonia. Child neurologists with expertise in movement disorders may be challenging to locate. Some movement disorder clinics treat children while
- [Living w/ Dystonia: What is movement disorder Quote Box](https://dystonia-foundation.org/?elementor_library=living-w-dystonia-what-is-movement-disorder-quote-box) - “I have had good treatment from a regular neurologist but my movement disorder neurologist is more knowledgeable about dystonia and does a better job injecting botulinum neurotoxin. I switched to the specialist and have been happy with the change.”
- [Living w/ Dystonia: What is movement disorder Content 2](https://dystonia-foundation.org/?elementor_library=living-w-dystonia-what-is-movement-disorder-content-2) - Following medical school, a neurologist’s training includes a one-year internship in internal medicine (or two years of pediatrics for child neurologists) and at least three years of specialized residency training in neurology. Many neurologists invest one or two additional years of fellowship training in a wide variety of subspecialties—movement disorders is one example. Many fellowships
- [What is Dystonia – Newly Diagnosed 2](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-newly-diagnosed-2) - A dystonia diagnosis may feel overwhelming at first.The Dystonia Medical Research Foundation and our volunteers are here for you.
- [What is Dystonia – Newly Diagnosed 1](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-newly-diagnosed-1) - Newly Diagnosed? Dystonia is a Movement Disorder
- [Research: Accomplishments - Video Section 2](https://dystonia-foundation.org/?elementor_library=research-accomplishments-video-section-2) - The Development of Dystonia as a Recognized Disorder
- [Research: Accomplishments - Accordion](https://dystonia-foundation.org/?elementor_library=research-accomplishments-accordion) - 2020s The Samuel Belzberg 6th International Dystonia Symposium was scheduled for June 2023 after postponement due to the Covid-19 pandemic. The Co-Chairs are H. A. (Buz) Jinnah, MD, PhD and Antonio Pisani, MD, PhD. The symposium is a joint organizational effort of Dystonia Europe and the Dystonia Medical Research Foundation. As of 2022, the Department
- [What is Dystonia – Genetics 7](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-genetics-7) - What Forms of Dystonia are Genetic? If an individual has a form of dystonia that is known to be genetic then there is a chance that the person may pass the disorder on to his/her biological children. This is especially true if other family members exhibit symptoms or are already diagnosed. Genetic dystonias that are
- [What is Dystonia – Genetics 6](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-genetics-6)
- [Research: Accomplishments Content 2](https://dystonia-foundation.org/?elementor_library=research-accomplishments-content-2) - Untangling the Complexity of Dystonia: 40+ Years of Achievement
- [Research: Accomplishments Content 1](https://dystonia-foundation.org/?elementor_library=research-accomplishments-content-1) - Since 1976, the DMRF has funded over $37 million in research grants and awards.
- [What is Dystonia – Genetics 5](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-genetics-5) - Dystonia Genetics & Genetic Testing Video
- [What is Dystonia – Genetics 4](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-genetics-4) - A genetic counselor can help individuals and families learn about the genetics of dystonia and whether they are eligible for genetic testing. Researchers are actively seeking to better understand the genetics of all dystonia’s and to identify dystonia-causing genes.
- [Research: Accomplishments Header](https://dystonia-foundation.org/?elementor_library=research-accomplishments-header) - Accomplishments & Milestones in Research Dystonia is a movement disorder.
- [What is Dystonia – Genetics 3](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-genetics-3) - Update on Dystonia Genetics Click here for an update on dystonia genetics from the Dystonia Dialogue newsletter Update on Dystonia Genetics
- [Research: CTA 4](https://dystonia-foundation.org/?elementor_library=research-cta-4) - CONVERSATIONS WITH INVESTIGATORS >>
- [Research: CTA 3](https://dystonia-foundation.org/?elementor_library=research-cta-3) - CURRENT PROJECTS >> GLOBAL REGISTRY >>
- [Research: CTA 2](https://dystonia-foundation.org/?elementor_library=research-cta-2) - GRANTS & RESEARCH FELLOWSHIPS >> CLINICAL FELLOWSHIPS >>
- [What is Dystonia - Genetics 2](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-genetics-2) - Being informed about the genetics of dystonia can be important in the diagnosis and treatment process. Individuals with dystonia may be concerned that their children are at risk of inheriting the disorder. There are forms of dystonia that are known to be genetic and forms that may or may not have a genetic component—researchers cannot
- [What is Dystonia - Genetics 1](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-genetics-1) - Genetics Dystonia is a Movement Disorder
- [Research: Conversations - Video 3](https://dystonia-foundation.org/?elementor_library=research-conversations-video-3)
- [What is Dystonia – Types of Dystonia 6](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-types-of-dystonia-6) - MUSICIAN’S DYSTONIA Task specific focal dystonia. MYOCLONUS DYSTONIA An inherited dystonia disorder that includes prominent myoclonus symptoms. NEUROLOGICAL METABOLIC DISORDERS Dystonia can occur asa symptom of multiple disorders.
- [Research: Conversations - Video Header 3](https://dystonia-foundation.org/?elementor_library=research-conversations-video-header-3) - Facial Recognition Software to Objectively Measure Dystonia
- [Research: Conversations - Video 2](https://dystonia-foundation.org/?elementor_library=research-conversations-video-2)
- [What is Dystonia – Types of Dystonia 5](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-types-of-dystonia-5) - HAND DYSTONIA Dystonia of the fingers, hand, and/or forearm. LARYNGEAL DYSTONIA Dystonia that affects the vocal cords. LOWER LIMB DYSTONIA Dystonia of the leg, foot, and/or toes.
- [Research: Conversations - Video Header 2](https://dystonia-foundation.org/?elementor_library=research-conversations-video-header-2) - New Treatment Target for Dystonia?
- [What is Dystonia – Types of Dystonia 4](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-types-of-dystonia-4) - DRUG INDUCED Specific drugs are capable of causing dystonia. FUNCTIONAL DYSTONIA Dystonia that is secondary to a combination of neurological and psychiatric/psychological causes. GENERALIZED DYSTONIA Characterized by twisting of the limbs and torso.
- [Research: Conversations - Video 1](https://dystonia-foundation.org/?elementor_library=research-conversations-video-1)
- [What is Dystonia – Types of Dystonia 3](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-types-of-dystonia-3) - BLEPHAROSPASM Dystonia that affects the muscles of the eyelids and brow. CERVICAL DYSTONIA Dystonia that affects the neck and sometimes the shoulders. DOPA-RESPONSIVE DYSTONIA A group of movement disorders that respond to a medication called levodopa.
- [What is Dystonia – Types of Dystonia 2](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-types-of-dystonia-2) - There are many types of dystonia. Some types of dystonia can be referred to in more than one way. And, many diseases and conditions can include dystonia as a symptom. The list below is in alphabetical order. Click on the button to learn more about each type of Dystonia.
- [Research: Conversations - Video Header 1](https://dystonia-foundation.org/?elementor_library=research-conversations-video-header-1) - Songbirds, Brian Circuits & Dystonia
- [What is Dystonia - Types of Dystonia 1](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-types-of-dystonia-1) - Types of Dystonia Dystonia is a Movement Disorder
- [Research: Conversations Header](https://dystonia-foundation.org/?elementor_library=research-conversations-header) - Conversations with Dystonia Investigators DMRF Partners with Researchers around the World
- [What is Dystonia – Symptoms & Classifications 3](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-symptoms-classifications-3) - At Whay Age Did the Symptoms Start? Dystonia can occur in people of all ages. Certain types of dystonia tend to begin at specific ages. Dystonia in infants and children will likely require a different treatment plan than dystonia that occurs in middle-age or older adults. How is the Body Affected? Dystonia is also classified
- [Research: Clinical Fellowship Content](https://dystonia-foundation.org/?elementor_library=research-clinical-fellowship-content) - Dystonia is a multifaceted neurological disorder. Despite advances in clinical management and research, the diagnosis of dystonia continues to be, far too often, delayed or missed. Although treatment options have expanded with the recent approval of botulinum neurotoxins and the success of deep brain stimulation, patients with dystonia continue to report difficulties in locating physicians
- [Research: Clinical Fellowship Header](https://dystonia-foundation.org/?elementor_library=research-clinical-fellowship-header) - Clinical Fellowship Program Training Movement Disorder Specialists
- [What is Dystonia – Symptoms & Classifications 2](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-symptoms-classifications-2) - There are many types of dystonia, and dystonia is classified in specific ways. The classifications can help guide diagnosis and treatment. To accurately determine the type of dystonia a person has, physicians look at several major factors:
- [What is Dystonia – Symptoms & Classifications 1](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-symptoms-classifications-1) - Symptoms & Classifications Dystonia is a Movement Disorder
- [Research: Accomplishments - Newsletters Accordion](https://dystonia-foundation.org/?elementor_library=research-accomplishments-newsletters-accordion) - Dystonia Dialogue Newsletters 2022 Dystonia Dialogue Newsletters The Dystonia Dialogue is supported by Ipsen Biopharmaceuticals. Dystonia Dialogue – Spring 2022 2021 Dystonia Dialogue Newsletters Dystonia Dialogue – Winter 2021 Dystonia Dialogue – Summer 2021 Dystonia Dialogue – Spring 2021 2020 Dystonia Dialogue Newsletters Dystonia Dialogue – Winter 2020 Dystonia Dialogue – Summer 2020 Dystonia Dialogue – Spring 2020 2019 Dystonia Dialogue Newsletters Dystonia Dialogue – Winter
- [What is Dystonia – Newly Diagnosed 3](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-newly-diagnosed-3) - DYSTONIA BASICS FIND A SUPPORT GROUP FIND A DOCTOR
- [Types of Dystonia – Cervical Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-cervical-dystonia-3) - What are the Symptoms of Cervical Dystonia? Cervical dystonia may cause sustained head postures, and/or abrupt, jerking head and neck movements. Many individuals have a combination of sustained and jerky movements. Jerky movements may resemble a tremor, and sometimes dystonia may be confused with essential tremor. Up to 75% of people with cervical dystonia experience
- [Types of Dystonia – Cervical Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-cervical-dystonia-2) - Cervical Dystonia is a specific form that affects the head and neck. Cervical dystonia produces excessive muscle contractions in the neck. These muscle contractions cause involuntary movements and awkward positions of the head, neck, and sometimes shoulders. Cervical dystonia may cause the:• Neck to twist or tilt to the side• Head to tip forward or
- [Research: Current Projects - Fellowships section](https://dystonia-foundation.org/?elementor_library=research-current-projects-fellowships-section) - Research Fellowships Over the years, DMRF has created funding awards to support young investigators at different stages in their scientific training. Postdoctoral fellowship awards recognize and support outstanding young scientists who have earned a doctoral degree and have embarked on a period of mentored research. DMRF is supporting postdoctoral fellows who are working to fundamentally
- [Types of Dystonia – Cervical Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-cervical-dystonia-1) - Cervical Dystonia Dystonia of the Neck
- [Research: Current Projects - Continuing Projects Accordion](https://dystonia-foundation.org/?elementor_library=research-current-projects-continuing-projects-accordion) - Continuing Projects Genetic Modifiers of Penetrance in DYT1 Dystonia David Arkadir, MD, PhDHadassah Medical Center and Hebrew University of Jerusalem Some types of dystonia are hereditary, for example, DYT1 dystonia caused by mutation in the TOR1A gene. It is not clear, however, why individuals with the same genetic mutation can develop different severities of symptoms.
- [Research: Current Projects - News Accordion](https://dystonia-foundation.org/?elementor_library=research-current-projects-news-accordion) - New in 2022 GABA Abnormalities and Stability in Cervical Dystonia Brian Berman, MD, MSVirginia Commonwealth University This research proposal will lead to an increased understanding of the neurobiology of cervical dystonia and the role that altered inhibition plays in the disorder. This study will further help establish whether GABA (an amino acid that works as
- [Types of Dystonia – Blepharospasm 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-blepharospasm-3) - What are the Symptoms of Blepharospasm? Blepharospasm causes involuntary muscle contractions in the eyelid and brow muscles. The repetitive muscle contractions may be subtle and result in mild blinking, or more robust and cause sustained, forced closure of the eyes. Blepharospasm may occur in association with dystonia of the face or jaw (oromandibular dystonia) in
- [Types of Dystonia - Blepharospasm 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-blepharospasm-2) - Blepharospasm is a focal dystonia. Individuals with blepharospasm have normal vision, but forced closure of the eyelids may interfere with sight.
- [Research: Current Projects - News Header](https://dystonia-foundation.org/?elementor_library=research-current-projects-news-header) - New in 2022
- [Types of Dystonia - Blepharospasm 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-blepharospasm-1) - Blepharospasm Dystonia of the Eyelids & Brow
- [Research: Current Projects Content](https://dystonia-foundation.org/?elementor_library=research-current-projects-content) - The ultimate goal of the Science Program is to support the discovery of improved therapies and a cure. The DMRF is dedicated to stimulating the field of dystonia research and supporting the collaborations and projects necessary to accelerate progress. Each funded project addresses one or more of the core directions necessary to advance the dystonia
- [Research: Current Projects Header](https://dystonia-foundation.org/?elementor_library=research-current-projects-header) - Current Projects Funding Dystonia Investigators
- [What is Dystonia – Types of Dystonia 9](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-types-of-dystonia-9) - X-LINKED DYSTONIA-PARKINSONISM An inherited dystonia disorder that includes symptoms of parkinsonism.
- [What is Dystonia – Types of Dystonia 8](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-types-of-dystonia-8) - OROMANDIBULAR DYSTONIA Symptoms include forceful contractions of the face, jaw, and/or tongue. PAROXYSMAL DYSKINESIAS Episodic movement disorders in which abnormal movements occur only during attacks. PEDIATRIC DYSTONIA Dystonia can occur in children of all ages.
- [Research: Conversations - Video 5](https://dystonia-foundation.org/?elementor_library=research-conversations-video-5)
- [Research: Conversations - Video 5 Header](https://dystonia-foundation.org/?elementor_library=research-conversations-video-5-header) - Engaging Young Investigators in Dystonia
- [Research: Conversations - Video 4](https://dystonia-foundation.org/?elementor_library=research-conversations-video-4)
- [What is Dystonia – Types of Dystonia 7](https://dystonia-foundation.org/?elementor_library=what-is-dystonia-types-of-dystonia-7) - OROMANDIBULAR DYSTONIA Symptoms include forceful contractions of the face, jaw, and/or tongue. PAROXYSMAL DYSKINESIAS Episodic movement disorders in which abnormal movements occur only during attacks. PEDIATRIC DYSTONIA Dystonia can occur in children of all ages.
- [Research: Conversations - Video 4 Header](https://dystonia-foundation.org/?elementor_library=research-conversations-video-4-header) - Breakthroughs in Dystonia Biochemistry
- [Types of Dystonia – Functional Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-functional-dystonia-1) - Functional Dystonia
- [Research: Dystonia Journal > Learn More Button](https://dystonia-foundation.org/?elementor_library=research-dystonia-journal-learn-more-button) - LEARN MORE
- [Research: Dystonia Journal Content](https://dystonia-foundation.org/?elementor_library=research-dystonia-journal-content) - The DMRF has partnered with Frontiers to launch Dystonia, a Gold Open Access journal. Dystonia aims to be the leading journal in the field by publishing open access premier research on all basic, clinical and translational aspects of the dystonias. Contributions that open new research avenues and address longstanding questions are particularly encouraged. The journal considers studies
- [Research: Dystonia Journal Header](https://dystonia-foundation.org/?elementor_library=research-dystonia-journal-header) - Dystonia Official Journal of the Dystonia Medical Research Foundation
- [Types of Dystonia – Drug-Induced Dyskinesias & Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-drug-induced-dyskinesias-dystonia-3) - Tardive Dyskinesias Tardive dyskinesias are involuntary twitching or writhing movements, often affecting the face, mouth, and tongue. The symptoms can include lip-smacking, chewing movements, and tongue movements. This can cause problems with chewing, speaking, swallowing, and dental care. Breathing is sometimes affected depending on the nature of the movements. The limbs and trunk are less
- [Types of Dystonia – Drug-Induced Dyskinesias & Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-drug-induced-dyskinesias-dystonia-2) - Drug-induced movement disorders come in different forms and can be caused by a number of medications that alter brain chemistry. The types of drugs most commonly associated with causing movement disorders are dopamine blocking medications (i.e. dopamine antagonist or antidopaminergic medications), which block a chemical in the brain called dopamine. This category of drugs includes
- [Types of Dystonia – Drug-Induced Dyskinesias & Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-drug-induced-dyskinesias-dystonia-1) - Drug Induced Dyskinesias & Dystonia Tardive Syndrones
- [Research: Dystonia Coalition - Video](https://dystonia-foundation.org/?elementor_library=research-dystonia-coalition-video)
- [Research: Dystonia Coalition - Video Header](https://dystonia-foundation.org/?elementor_library=research-dystonia-coalition-video-header) - Update on Dystonia Coalition
- [Types of Dystonia – Dopa-Responsive Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-dopa-responsive-dystonia-3) - What are the Symptoms of Dopa-Responsive Dystonia? (Dopa-Responsive Dystonia) typically presents as a dystonic gait disorder beginning in early childhood. The symptoms of DRD may be similar to those of other inherited childhood onset dystonias, and begin in the legs. Symptoms may appear minor (such as muscle cramps after exercise) or present later in life
- [Research: Dystonia Coalition Button](https://dystonia-foundation.org/?elementor_library=research-dystonia-coalition-button) - DYSTONIA COALITION WEBSITE
- [Types of Dystonia – Dopa-Responsive Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-dopa-responsive-dystonia-2) - Dopa-responsive dystonia (DRD) is an umbrella term used to describe specific dystonia disorders that respond to a medication called levodopa, which is a synthetic form of a brain chemical called dopamine. This group includes inherited forms that are characterized by progressive difficulty walking. Its symptoms may be similar to those of early onset generalized dystonia.
- [Research: Dystonia Coalition Content](https://dystonia-foundation.org/?elementor_library=research-dystonia-coalition-content) - The Dystonia Coalition is a collaboration of clinical researchers and patient advocacy groups. The Dystonia Coalition is cultivating a better understanding of primary dystonia’s for the purpose of developing better therapies. The DMRF plays an integral role by providing logistical and planning support for the Coalition as an administrative center.
- [Types of Dystonia – Dopa-Responsive Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-dopa-responsive-dystonia-1) - Dopa-responsive Dystonia A group of movement disorders that respond to levodopa
- [Research: Dystonia Coalition Header](https://dystonia-foundation.org/?elementor_library=research-dystonia-coalition-header) - Dystonia Coalition Dystonia is a Movement Disorder
- [Research: Current Projects - Continuing Awards Accordion](https://dystonia-foundation.org/?elementor_library=research-current-projects-continuing-awards-accordion) - Continuing Awards Investigating Abnormal Neurodevelopment in a Novel in vivo Model of Inherited Dystonia Simon Lowe, PhDUniversity College London Institute of Neurology While researchers have uncovered a number of genetic mutations that cause dystonia, and it is well-known that dystonia affects certain areas of the brain, not enough is known about the mechanisms that ultimately cause
- [Types of Dystonia – Cervical Dystonia 5](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-cervical-dystonia-5)
- [Types of Dystonia – Cervical Dystonia 4](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-cervical-dystonia-4) - Cervical Dystonia Webinar
- [Research: Current Projects - New in 2022 Accordion](https://dystonia-foundation.org/?elementor_library=research-current-projects-new-in-2022-accordion) - New in 2022 Beyond Theta: Analyzing Oscillations Across the Frequency Spectrum in Patients with Dystonia Implanted with Sensing-enabled Pulse Generators Stephanie Cernera, PhDThe Regents of the University of California, San Francisco In this study, Dr. Stephanie Cernera will be exploring individual dystonia patients’ brain signals while they are performing various movements in the comfort of
- [Types of Dystonia – Lower Limb Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-lower-limb-dystonia-1) - Lower Limb Dystonia Dystonia of the Leg or Foot
- [Research: Research Funding Programs - Accordion](https://dystonia-foundation.org/?elementor_library=research-research-funding-programs-accordion) - Current Funding Opportunities Noninvasive Brain Modulation for Dystonia The Dystonia Medical Research Foundation (DMRF) is seeking scientific proposals on noninvasive brain modulation for dystonia that will address the most significant and immediate needs in this field with special emphasis on innovative, collaborative and cross-disciplinary research. BackgroundDystonia is a movement disorder characterized by muscle contractions causing abnormal movements
- [Research: Research Funding Programs Content](https://dystonia-foundation.org/?elementor_library=research-research-funding-programs-content) - Since the first year of operations, the DMRF has supported research investigations related to the causes, mechanisms, prevention, and treatment of all forms of dystonia. DMRF’s major grant funding mechanism is based on requests for applications focusing on specific research areas informed by the Medical & Scientific Advisory Council and scientific meetings and workshops. The
- [Types of Dystonia – Hand Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-hand-dystonia-3) - What are the Symptoms of Hand Dystonia? Focal hand dystonia is characterized by excessive, involuntary muscle contractions in the fingers, hand, forearm, and sometimes shoulder. Common manifestations include excessive gripping of a pen, flexion or extension of the wrist, elevation of the elbow, and occasional extension of a finger or fingers causing the pen to
- [Research: Research Funding Programs Header](https://dystonia-foundation.org/?elementor_library=research-research-funding-programs-header) - Funding Programs Dystonia is a Movement Disorder
- [Types of Dystonia – Hand Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-hand-dystonia-2) - Hand dystonia is a focal dystonia characterized by excessive, involuntary muscle contractions in the fingers, hand, forearm, and sometimes shoulder. Symptoms usually appear when a person is doing a task that requires fine motor coordination of hand and arm muscles. Hand dystonia includes a group of disorders called occupational hand dystonias that affect musicians, golfers,
- [Research: Global Dystonia Registry Button](https://dystonia-foundation.org/?elementor_library=research-global-dystonia-registry-button) - THE GLOBAL DYSTONIA REGISTRY
- [Research: Global Dystonia Registry Content](https://dystonia-foundation.org/?elementor_library=research-global-dystonia-registry-content) - The Global Dystonia Registry compliments the work of the Dystonia Coalition, a clinical research effort supported by the National Institutes of Health. The goal of the Global Dystonia Registry is to support future dystonia studies, including clinical and research trials. Although the focal dystonia’s have many different manifestations, most experts believe they share a common
- [Types of Dystonia – Hand Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-hand-dystonia-1) - Hand Dystonia Dystonia of the Hand, Ginger & Arm
- [Research: Global Dystonia Registry Graphic](https://dystonia-foundation.org/?elementor_library=research-global-dystonia-registry-graphic)
- [Research: Global Dystonia Registry Header](https://dystonia-foundation.org/?elementor_library=research-global-dystonia-registry-header) - Global Dystonia Registry Dystonia is a Movement Disorder
- [Types of Dystonia – Generalized Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-generalized-dystonia-3) - What are the Symptoms of Generalized Dystonia? Generalized dystonia often begins in an arm or foot and progresses over months or years to affect additional areas of the body. If untreated, dystonia symptoms can cause orthopedic issues in the muscles and joints. Dystonia can cause pain, but not always. Early treatment can often slow or
- [Types of Dystonia – Generalized Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-generalized-dystonia-2) - Generalized dystonia refers to dystonia that is not limited to a single part of the body but affects multiple muscle groups throughout the body. Generalized dystonia typically affects muscles in the torso and limbs, and sometimes the neck and face. Patients have difficulty moving their bodies freely and controlling their body movements. It is important
- [Research: Dystonia Study Group Button](https://dystonia-foundation.org/?elementor_library=research-dystonia-study-group-button) - DYSTONIA STUDY GROUP
- [Types of Dystonia – Generalized Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-generalized-dystonia-1) - Generalized Dystonia
- [Research: Dystonia Study Group Content](https://dystonia-foundation.org/?elementor_library=research-dystonia-study-group-content) - The Dystonia Study Group is led by Cynthia Comella, MD. The Dystonia Study Group organizes and conducts clinical trials to test treatments for dystonia. The studies organized by the DSG have been integral to achieving conclusive information on the effectiveness of dystonia treatments and diagnostic tools. For more information, visit:
- [Research: Dystonia Study Group Header](https://dystonia-foundation.org/?elementor_library=research-dystonia-study-group-header) - Dystonia Study Group Dystonia is a Movement Disorder
- [Types of Dystonia – Functional Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-functional-dystonia-3) - What are the Symptoms of Functional Dystonia? Functional dystonia can affect different areas of the body. Functional dystonia may share some characteristics with dystonia due to other causes, but also has distinguishing features. Common expressions of functional dystonia include: Dystonia of the Face: This may include intermittent facial spasms, fixed postures, or downward pulling of one
- [Types of Dystonia – Functional Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-functional-dystonia-2) - In functional dystonia, there is abnormal, unintended movement or positioning of the body due to the nervous system not working properly. Functional dystonia can cause movement symptoms in the face, neck, shoulder, torso, and/or limbs. The onset of symptoms is often preceded by an injury, illness, or emotionally stressful event. Functional dystonia may occur in
- [Start A Fundraiser Header](https://dystonia-foundation.org/?elementor_library=start-a-fundraiser-header) - Start a Fundraiser
- [Types of Dystonia – Neurological & Metabolic Disorders 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-neurological-metabolic-disorders-3) - NATIONAL INSTITUTES OF HEALTH CONTACT US
- [Types of Dystonia – Neurological & Metabolic Disorders 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-neurological-metabolic-disorders-2) - Dystonia can occur as a part of many disorders and conditions.Research is ongoing and this list is not be considered comprehensive. Cerebrovascular or ischemic injury (stroke)Arteriovenous malformationPerinatal cerebral injuryViral encephalitisSubacute sclerosing panencephalitisAIDSCreutzfeldt-Jakob diseaseKernicterusHuntington’s diseaseParkinson’s diseaseSpinocerebellar ataxiasHARP syndrome (Hypobetalipoproteinemia, acanthocytosis, retinitis pigmentosa, pallidal degeneration)Familial frontotemporal dementiasFamilial basal ganglia calcificationsWilson’s diseaseJuvenile parkinsonismNeurodegeneration with brain iron accumulation type
- [Types of Dystonia – Neurological & Metabolic Disorders 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-neurological-metabolic-disorders-1) - Neurological & Metabolic Disorders Dystonia Can Occur with Numerous Disorders
- [Research: Untangling - Video](https://dystonia-foundation.org/?elementor_library=research-untangling-video) - DMRF hosted an accompanying webinar with Scientific Director Joel S. Perlmutter, MD. https://youtu.be/qGtAMkU2tx0
- [Research: Untangling - Video Header](https://dystonia-foundation.org/?elementor_library=research-untangling-video-header) - Untangling the Complexity of Dystonia
- [Types of Dystonia – Myoclonus-Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-myoclonus-dystonia-3) - What are the Symptoms of Myoclonus-Dystonia? Myoclonus-Dystonia (M-D) is a movement disorder characterized by a combination of rapid, brief muscle contractions (myoclonus) and/or sustained twisting and repetitive movements that result in abnormal postures (dystonia). The myoclonus jerks typical of M-D most often affect the neck, trunk, and upper limbs. Approximately 50% of affected individuals have
- [Types of Dystonia – Myoclonus-Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-myoclonus-dystonia-2) - Myoclonus-dystonia (M-D) is a rare and complex neurological movement disorder that affects individuals and families around the world. Treatments are available and researchers are actively pursuing improved therapies and ultimately a cure. Resources are available to help support affected individuals and families.
- [Research: Untangling - Read Report Button](https://dystonia-foundation.org/?elementor_library=research-untangling-read-report-button) - READ REPORT
- [Types of Dystonia – Myoclonus-Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-myoclonus-dystonia-1) - Myoclonus Dystonia A disorder characterized by dystonia and myonlonus symptoms
- [Research: Untangling Graphic](https://dystonia-foundation.org/?elementor_library=research-untangling-graphic)
- [Research: Untangling Content](https://dystonia-foundation.org/?elementor_library=research-untangling-content) - The DMRF research efforts have amassed a wealth of data, across multiple scientific disciplines, which together are creating a layered and sophisticated understanding of dystonia. DMRF has prepared a special report on 40+ years of research achievements.
- [Research: Untangling Header](https://dystonia-foundation.org/?elementor_library=research-untangling-header) - Research Report Untangling the Complexity of Dystonia
- [Types of Dystonia – Musician's Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-musicians-dystonia-3) - What are the Symptoms of Dystonia in Musicians? The first signs of musician’s dystonia are lapses in the usually instinctive ability to perform on the instrument. Musicians may perceive the early symptoms of dystonia as a result of faulty technique or insufficient preparation. Musician’s dystonia is triggered by playing the instrument and does not typically
- [Types of Dystonia – Musician's Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-musicians-dystonia-2) - Professional musicians are susceptible to a number of occupational conditions, including task-specific focal dystonia. Experts estimate about 1% of professional musicians are affected by dystonia, but there are likely large numbers of musicians living with symptoms who remain unidentified. Almost all individuals with musician’s dystonia are classically trained, and most are male. Up to 25%
- [Types of Dystonia – Musician's Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-musicians-dystonia-1) - Musician’s Dystonia Task Specific Focal Dystonia
- [Research: Resources for Investigators Accordion](https://dystonia-foundation.org/?elementor_library=research-resources-for-investigators-accordion) - Dystonia Brain Tissue The Dystonia Brain Bank Collective promotes brain donation for dystonia research, and facilitates brain collection, storage, and distribution of samples for research. A private collection of donated brain tissue from the dystonia community was established at the Harvard Brain Resource Center at McLean Hospital in Belmont, Massachusetts. Dystonia Coalition The Dystonia Coalition is a collaboration of medical researchers
- [Research: Resources for Investigators Content](https://dystonia-foundation.org/?elementor_library=research-resources-for-investigators-content) - There are a number of resources available for dystonia investigators, including animal models, cell lines, and DNA. Below is a summary of different resources with links for more information.
- [Research: Resources for Investigators Header](https://dystonia-foundation.org/?elementor_library=research-resources-for-investigators-header) - Resources for Investigators
- [Types of Dystonia – Lower Limb Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-lower-limb-dystonia-3) - What are the Symptoms of Lower Limb Dystonia? Common symptoms of lower limb dystonia include:• Foot rolls outward so that the sole faces inward• Foot or leg turns inward• Foot points downward• Extension of big toe• Toe curling• A sense of tightness or stiffness in the limb• Changes in walking or running gait Dystonia affects
- [Types of Dystonia – Lower Limb Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-lower-limb-dystonia-2) - Lower limb dystonia refers to dystonic movements and postures in the leg, foot, and/or toes. It may also be referred to as focal dystonia of the foot or leg. Individuals often have to adapt their gait while walking or running to compensate for the dystonic symptoms, and/or may require the assistance of mobility devices such
- [Types: Toxins Header](https://dystonia-foundation.org/?elementor_library=types-toxins-header) - Toxins Dystonia is a Movement Disorder
- [Types: Traumatic Injury Content](https://dystonia-foundation.org/?elementor_library=types-traumatic-injury-content) - Dystonia symptoms may follow trauma to the head, and/or trauma to a specific body area. Dystonia symptoms following head trauma often affect the side of the body which is opposite to the side of the brain injured by the trauma. Examples of peripheral injury include oromandibular ystonia following dental procedures, blepharospasm following surgery or injury
- [Types of Dystonia – Pediatric Dystonia 5](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-pediatric-dystonia-5)
- [Types of Dystonia – Pediatric Dystonia 4](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-pediatric-dystonia-4) - Dystonia in Children & Adolescents Webinar
- [Types: Traumatic Injury Header](https://dystonia-foundation.org/?elementor_library=types-traumatic-injury-header) - Traumatic Injury Dystonia is a Movement Disorder
- [Types of Dystonia – Pediatric Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-pediatric-dystonia-3) - What are the Symptoms? Signs of dystonia in children can include: A body part is flexed or twisted into an abnormal position. Repetitive and patterned body movements, which may resemble tremor. Movement symptoms worsen with voluntary action. (This can cause the incorrect perception that the child is ‘faking’ the symptoms.) Symptoms may be present with
- [Types: X-Linked Accordion](https://dystonia-foundation.org/?elementor_library=types-x-linked-accordion) - Symptoms XDP is a recessive disorder affecting males almost exclusively. It is characterized by both dystonia and parkinsonism including signs and symptoms such as slow movement (bradykinesia), tremor, rigidity, and a loss of postural reflexes. With disease progression, the dystonia usually becomes generalized. In some patients, signs of parkinsonism may accompany, precede, or “replace” symptoms
- [Types of Dystonia – Pediatric Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-pediatric-dystonia-2) - Dystonia in childhood is a movement disorder that causes involuntary muscle contractions. These muscle contractions result in twisting, repetitive movements and abnormal postures. The movements and postures may be chronic or occur in episodes. Symptoms can vary with body position, specific tasks, emotions, and state of consciousness.
- [Types of Dystonia – Pediatric Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-pediatric-dystonia-1) - Pediatric Dystonia Types of Dystonia that Begin in Childhood
- [Types: X-Linked Content](https://dystonia-foundation.org/?elementor_library=types-x-linked-content) - Quick Facts X-linked dystonia-parkinsonism (XDP) is a genetic form of dystonia that includes symptoms of both dystonia and parkinsonism. XDP affects males of Filipino descent almost exclusively. It is one of the very few degenerative dystonia syndromes Treatment may include physical therapy, oral medications, and botulinum toxin injections. X-linked dystonia-parkinsonism (XDP) is a genetic form
- [Types: X-Linked Header](https://dystonia-foundation.org/?elementor_library=types-x-linked-header) - X-Linked Dystonia-Parkinsonism Dystonia is a Movement Disorder
- [Types of Dystonia – Paroxysmal Dystonia & Dyskinesias 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-paroxysmal-dystonia-dyskinesias-3) - What are the Symptoms of Paroxysmal Dyskinesias? Identifying the types of movements associated with PD is complicated. These movements may be dystonic, choreic, ballistic, or a combination. An individual may show one specific type of movement or a combination of movements. Dystonic movements are typically patterned and repetitive, causing twisting movements and abnormal postures. Dystonia occurs
- [Types of Dystonia – Paroxysmal Dystonia & Dyskinesias 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-paroxysmal-dystonia-dyskinesias-2) - Paroxysmal Dyskinesias (PD) are episodic movement disorders in which abnormal movements are present only during attacks. The term paroxysmal indicates that symptoms are noticeable only at certain times. The term dyskinesia broadly refers to movements of the body that are involuntary. Between attacks most people are generally neurologically normal, and there is no loss of
- [Types of Dystonia – Paroxysmal Dystonia & Dyskinesias 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-paroxysmal-dystonia-dyskinesias-1) - Paroxysmal Dystonia & Dyskinesias Episodic Movement Disorders
- [Types of Dystonia – Oromandibular Dystonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-oromandibular-dystonia-3) - What are the Symptoms of Oromandibular Dystonia? Oromandibular dystonia may cause: Mouth to open involuntarily Jaw to clench shut Bottom jaw to shift toward one side or to the back Involuntary movements in the face and lips Involuntary movements in the tongue Oromandibular dystonia should not be mistaken for temporomandibular joint disease (TMJ), which is
- [Types of Dystonia – Oromandibular Dystonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-oromandibular-dystonia-2) - Oromandibular dystonia, sometimes referred to as cranial dystonia, is characterized by forceful muscle contractions of the face, jaw, and/or tongue. The muscle contractions cause involuntary movements that interfere with opening and closing the mouth and may affect chewing and speech. Another term used to describe oromandibular dystonia is cranial dystonia. (Cranial dystonia is a broad description
- [Start A Fundraiser - Form](https://dystonia-foundation.org/?elementor_library=start-a-fundraiser-form) - First Name (required) Last Name (required) Address Line 1(required) Address Line 2 City (required) State (required) Province (Canada) ZIP Code (required) Country Email (required) Phone (required) Are you a? RelativeParentPerson with DystoniaOther How would you like to fundraise for DMRF? (required)
- [Start A Fundraiser - Content](https://dystonia-foundation.org/?elementor_library=start-a-fundraiser-content) - Thank you for your interest in fundraising to support the DMRF mission to cure dystonia! Please tell us a little about yourself by completing the form below. A member of the DMRF staff will contact you shortly.
- [Types of Dystonia – Oromandibular Dystonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-oromandibular-dystonia-1) - Oromandibular Dystonia Dystonia of the Jaw & Facial Muscles
- [Types of Dystonia – Spasmodic Dysphonia 3](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-spasmodic-dysphonia-3) - Spasmodic Dysphonia The voice may sound raspy and strangled, or breathy and whispery, depending on which laryngeal muscles are involved. It may take added effort to speak, but the voice may improve when whispering, laughing, or singing. Symptoms may vary during the day, become aggravated by certain speaking tasks—such as talking on the phone—or increase
- [Types of Dystonia – Spasmodic Dysphonia 2](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-spasmodic-dysphonia-2) - Spasmodic Dysphonia (also known as laryngeal dystonia) is a movement disorder featuring involuntary contractions of the vocal cord muscles. These contractions may result in patterned “breaks” or interruptions in speech, or may give a breathy quality to the voice. Most cases of spasmodic dysphonia develop in adults.
- [Types: Toxins Content](https://dystonia-foundation.org/?elementor_library=types-toxins-content) - A number of uncommon toxins are capable of causing brain damage centered in the motor control region known as the basal ganglia. Dystonia may be one prominent feature experienced by people with these exposures, but it is extremely uncommon for “pure” dystonia to be seen in such patients. The vast majority of people exposed to
- [Types of Dystonia – Spasmodic Dysphonia 1](https://dystonia-foundation.org/?elementor_library=types-of-dystonia-spasmodic-dysphonia-1) - Spasmodic Dystonia Dystonia of the Vocal Cord Muscles
- [Coming Soon](https://dystonia-foundation.org/?elementor_library=coming-soon) - Please pardon our appearance. Our website is undergoing a scheduled upgrade. Please check back soon! Dystonia Medical Research Foundation One East Wacker Drive, Suite 1730Chicago, Illinois 60601-1980Phone: 312-755-0198Toll free: 800-377-DYST (3978)Fax: 312-803-0138Email: dy******@*****************on.org
- [Default Kit](https://dystonia-foundation.org/?elementor_library=default-kit)

## Products

- [DMRF Striped Beanie Hat with Pom Pom](https://dystonia-foundation.org/product/dmrf-striped-beanie-hat-with-pom-pom/) - This acrylic knit beanie is one-size-fits-most, with a decorative stripe and pom pom. Stay warm and show your support for the DMRF!
- [DMRF Sunglasses](https://dystonia-foundation.org/product/dmrf-sunglasses/) - Make a fashion statement at the next Dystonia Zoo Day and demonstrate your support for the Dystonia Medical Research Foundation. Year-round, these DMRF Sunglasses are the perfect eyewear to show you care!
- [DMRF Blue Beanie Hat](https://dystonia-foundation.org/product/dmrf-blue-beanie-hat/) - This knit beanie will keep you warm all winter and show your support for the DMRF. Made of 100% acrylic fabric, this beanie is one-size-fits-most.
- [Dogs for Dystonia Dog Tag](https://dystonia-foundation.org/product/dogs-for-dystonia-dog-tag/) - Raise awareness of dystonia and celebrate the special dog in your life with this dog tag featuring the Dogs for Dystonia logo. Comes with key ring.
- [Pet Palooza Baseball Cap](https://dystonia-foundation.org/product/hat/) - Everyone who registers for Dystonia Pet Palooza receives a hat. Customer testimonial: Thank you for the great hat! I was a wee bit nervous because sometimes hats rub on the DBS horns; but this is super soft and great quality! Of course, DMRF knows best. Thanks so much!
- [Movers & Shakers T-Shirt](https://dystonia-foundation.org/product/movers-shakers-t-shirt/) - In Partnership with X-Treme Apparel Thank you for giving. Your support funds dystonia research toward a cure, awareness and education activities, and support programs. Please click the product to select your T-Shirt size and place an order for the Movers & Shakers T-Shirt only. This T-Shirt order will be processed and shipped separately by X-Treme Apparel, so the turnaround time for shipping may be longer than other items on the DMRF online store.
- [Dystonia Strong Magnet](https://dystonia-foundation.org/product/strong-magnet/) - Help raise awareness of dystonia while following public health recommendations.
- [Dystonia Moves Me Awareness Packs](https://dystonia-foundation.org/product/dmm-pack/) - Help raise awareness of dystonia when you order a 5-pack of wristbands, stickers, and wallet cards from the DMRF.
- [Dogs for Dystonia Bag Dispenser](https://dystonia-foundation.org/product/dogs-for-dystonia-bag-dispenser/) - Your pet will be ready for walks when you purchase this bag dispenser with the Dogs for Dystonia logo. Compact with a handy clip. (One dispenser, one roll of bags.)
- [License Plate Frame](https://dystonia-foundation.org/product/license-frame/) - Help raise awareness of dystonia with this Dystonia Moves Me license plate frame.
- [Dystonia Strong Yard Flag](https://dystonia-foundation.org/product/yard-flag/) - Show your support for the dystonia community with this double-sided Dystonia Strong yard flag. Polyester blackout fabric, includes: 2" wide rod pocket. Size: 18" H x 12-1/2" W.
- [Pet Palooza Sticker](https://dystonia-foundation.org/product/pet-palooza-sticker/) - Life IS better with pets. Help raise awareness of dystonia and celebrate your pet with DMRF's pet sticker.
- [Ask Me About Dystonia Button](https://dystonia-foundation.org/product/ask-me-about-dystonia-button/) - It's the ultimate conversation starter—the "Ask Me About Dystonia" button. Wear one on your clothing or backpack—and share them with family and friends—to initiate dialogue about dystonia. Each 2-1/4” round button features a steel back and paper front, glossy laminated finish and safety pin attachment. 10 buttons: $15.00 5 buttons: $10.00 1 button: $3.00
- [Dystonia Pet Palooza Fleece Blanket](https://dystonia-foundation.org/product/pet-palooza-blanket/) - Help raise awreness and celebrate the important role pets play in your life when you order this cozy, blue plaid fleece Dystonia Pet Palooza blanket today!
- [Dogs for Dystonia Treat Pouch](https://dystonia-foundation.org/product/dogs-for-dystonia-treat-pouch/) - Treat your pet and support the DMRF when you order this treat pouch with the Dogs for Dystonia logo. Compact with a handy clip.
- [DMRF Water Bottle](https://dystonia-foundation.org/product/dmrf-water-bottle/) - Help raise awareness of dystonia and support the DMRF when you purchase items from the DMRF store including our new reusable BPA free water bottle. The 32 ounce blue bottle includes a push-button, flip-top lid with a locking mechanism and a wrist strap for easier transport.
- [Non-Motor Symptoms of Dystonia Brochure](https://dystonia-foundation.org/product/non-motor-symptoms-of-dystonia-brochure/) - This FREE brochure describes the non-motor symptoms of dystonia, including psychiatric and cognitive effects. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Dystonia Strong Banner](https://dystonia-foundation.org/product/strong-banner/) - Show your support for the dystonia community with this vinyl Dystonia Strong banner. Size: 1' H x 2' W.
- [Good Dog Mini Tote Bag](https://dystonia-foundation.org/product/good-dog-mini-tote-bag/) - Every once in a while a dog enters your life and changes everything. Raise awareness and celebrate your dog with DMRF's mini-tote.
- [DMRF Luggage Tag](https://dystonia-foundation.org/product/dmrf-luggage-tag/) - These sturdy DMRF vinyl luggage tags will not only help keep your luggage safe and labeled—they’ll also raise awareness for dystonia as you travel. Dimensions are 2” H x 3-1/2” W x 3/16” D.
- [Truncal Dystonia Brochure](https://dystonia-foundation.org/product/truncal-dystonia-brochure/) - This FREE brochure describes symptoms and treatments for truncal dystonia (axial dystonia) of the chest, back and abdomen. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Botulinum Neurotoxin Therapy Brochure](https://dystonia-foundation.org/product/botulinum-neurotoxin-therapy-brochure/) - This FREE brochure from DMRF provides a basic overview of botulinum neurotoxin therapy for dystonia. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Valentine Dog Bone Food Mat](https://dystonia-foundation.org/product/dog-bone-food-mat/) - My dog, a heartbeat at my feet. Raise awareness when you treat your favorite four-legged friend to a new Valentine food mat.
- [Finding Support](https://dystonia-foundation.org/product/finding-support/) - You don't have to face dystonia alone. This FREE brochure provides information and resources to help individuals and families find support and get involved in the dystonia community. Click here for free download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Functional/Psychogenic Dystonia Brochure](https://dystonia-foundation.org/product/functional-dystonia-brochure/) - This FREE brochure provides an overview of symptoms and treatment for functional dystonia, sometimes referred to as psychogenic dystonia. Click Here to Download. For more in-depth information on functional dystonia, click here to visit the website. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Sample Newsletter](https://dystonia-foundation.org/product/sample-newsletter/) - News, research updates, and tips for living well with dystonia.
- [Hand Dystonia Brochure](https://dystonia-foundation.org/product/hand-dystonia-brochure/) - Free brochure describes focal dystonia of the hands and fingers.
- [Cervical Dystonia Info Kit](https://dystonia-foundation.org/product/cd-kit/) - This kit provides basic information about cervical dystonia and an introduction to the programs and resources available from the DMRF. Please limit your order to fewer than 5 of this item. If you need more than 5, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Never Look Down - Children’s Book](https://dystonia-foundation.org/product/never-look-down-childrens-book/) - It takes a pretty special kid to view being diagnosed with a neurological disorder as an opportunity to contribute something positive to the world. But that’s how Zachary Weinstein responded to developing dystonia. Zachary and his mother Alyssa Dver wrote a book entitled Never Look Down in partnership with the Dystonia Medical Research Foundation (DMRF) so that other children like Zachary feel empowered, not diminished, by this illness. The title is taken from Zachary’s personal motto for overcoming obstacles. Never Look Down provides newly diagnosed children and their families a simple way to understand dystonia – what the symptoms may be and how it can affect everyday life. The book also provides a variety of resources that can help people with dystonia, their friends, and family members to be better informed and cope with this chronic disorder.
- [Awareness Wallet Cards & Stickers](https://dystonia-foundation.org/product/awareness-wallet-cards-stickers/) - Use these handy Dystonia Moves Me wallet cards and stickers to promote dystonia awareness wherever you go. Includes 10 cards and 10 stickers. Limit 3. If you need large quantities of these items for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [DMRF Moving Toward a Cure Brochure](https://dystonia-foundation.org/product/dmrf-moving-toward-a-cure-brochure/) - This FREE brochure describes the mission and programs of the Dystonia Medical Research Foundation. It can be a helpful tool when asking friends and family to donate. Click here to download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Understanding Dystonia Fact Sheet](https://dystonia-foundation.org/product/understanding-dystonia-fact-sheet/) - This FREE fact sheet from the Dystonia Medical Research Foundation clearly illustrates various forms of dystonia. This fact sheet is also available as a free download. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Blepharospasm Brochure](https://dystonia-foundation.org/product/blepharospasm-brochure/) - This free brochure from DMRF describes symptoms and treatments for dystonia affecting the muscles of the eyes. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Cervical Dystonia/Spasmodic Torticollis Brochure](https://dystonia-foundation.org/product/cervical-dystonia-spasmodic-torticollis-brochure/) - This FREE brochure from DMRF describes symptoms and treatments for dystonia affecting the neck muscles. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Lower Limb Dystonia Brochure](https://dystonia-foundation.org/product/lower-limb-dystonia-brochure/) - This FREE brochure describes symptoms and treatments for focal dystonia of the legs, feet, and toes. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Oromandibular Dystonia Brochure](https://dystonia-foundation.org/product/oromandibular-dystonia-brochure/) - This FREE brochure describes symptoms and treatments for focal dystonia affecting the face, jaw, and/or tongue. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Generalized Dystonia Brochure](https://dystonia-foundation.org/product/generalized-dystonia-brochure/) - This FREE brochure describes symptoms and treatments for generalized dystonia, which affects muscles throughout the body. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Spasmodic Dysphonia Brochure](https://dystonia-foundation.org/product/spasmodic-dysphonia-brochure/) - This FREE brochure describes symptoms and treatments for dystonia affecting the vocal cords. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [DMRF Wallet Info Cards (Pack of 5)](https://dystonia-foundation.org/product/dmrf-wallet-info-cards-pack-of-5/) - Handy wallet-size cards providing information about dystonia and the DMRF. Provided in packs of 5 cards. Please limit your order to 2 or fewer of this item. If you need more that 10 cards total for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Genetics of Dystonia Fact Sheet](https://dystonia-foundation.org/product/genetics-of-dystonia-fact-sheet/) - This FREE fact sheet from the Dystonia Medical Research Foundation explains genetic forms of dystonia. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [DMRF 3-Fold Card](https://dystonia-foundation.org/product/dmrf-3-fold-card/) - A handy wallet-size card providing information about dystonia and the DMRF. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Legacy Society Brochure](https://dystonia-foundation.org/product/legacy-society-brochure/) - While the DMRF cannot operate without the generous cash donations received every day, there are some gifts for which we are happy to patiently wait. You can make a commitment of support to the DMRF today that is fulfilled in the future.The DMRF Legacy Society was created to recognize those who have made a lifetime commitment in the battle against dystonia. Please contact Director of Development, Debbie Durrer at ddurrer@dystonia-foundation.org or 312-755-0198 if you are considering making a bequest to the DMRF in your will or would like to discuss planned giving. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Red Light Green Light](https://dystonia-foundation.org/product/red-light-green-light/) - Dystonia is a complex disorder, but the fact sheet uses the red light/green light game as an analogy to explain dystonia in a way children can understand: Your brain is the traffic light that tells your muscles when and how to move. Dystonia makes it hard for the brain to give muscles the right signals at the right time. Download a copy or order one for free below. Please limit your order to fewer than 10 of this item. If you need more than 10, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Deep Brain Stimulation for Dystonia Brochure](https://dystonia-foundation.org/product/dbs-brochure/) - This free brochure from DMRF provides an overview of deep brain stimulation ("DBS"), a neurosurgical procedure used to treat dystonia. Click Here to Download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US. At this time, we are shipping merchandise and educational material orders to US addresses only. Apologies to our international community for this change.
- [Dystonia Information Kit](https://dystonia-foundation.org/product/dmrf-info-kit/) - Free information about dystonia and DMRF programs.
- [Dystonia A Movement Disorder Brochure](https://dystonia-foundation.org/product/dystonia-a-movement-disorder-brochure/) - This FREE brochure provides an overview of dystonia, including what the symptoms are and how it is treated. Click here to download. Please limit your order to fewer than 10 of this item. If you need more than 10 for an upcoming event, contact the DMRF at 800-377-3978. Shipping charges may be applied to large orders within the US and Canada. International orders are subject to shipping charges, calculated at check out.

## Events

- [CANCELLED:  East Central Iowa Corridor Dystonia Support Group Meeting](https://dystonia-foundation.org/event/east-central-corridor-dystonia-support-group/) - ** CANCELLED ** The East Central Iowa Corridor dystonia support group meeting scheduled for Saturday, July 15, 2023 is cancelled due to unforeseen circumstances. We apologize for any inconvenience. If you have any questions, please contact Sheila Killham. Text to 319-521-5055 or email dystonia4u@yahoo.com.
- [Central Indiana Dystonia Support Group Meeting](https://dystonia-foundation.org/event/central-indiana-dystonia-support-group-meeting/) - Join us for our next support group meeting. Learn about dystonia and meet others in the community. Individuals with all forms of dystonia as well as family and friends are welcome. Saturday, July 22, 2023 10:00 am - 12:00 pm Clark Pleasant Branch Library 350 Clearwater Blvd Whiteland, IN 46184 We look forward to seeing
- [Central Ohio Dystonia Support Group Meeting](https://dystonia-foundation.org/event/central-ohio-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. June 13, 2026 1:00 pm ET - 2:30 pm ET Grove City Public Library Meeting Room B 3959 Broadway Grove City, OH 43123 Guest Speaker: Charles Starr, PT, DPT Doctor of Physical Therapy and Myofascial
- [NEW DATE: Houston Dystonia Support Group Meeting](https://dystonia-foundation.org/event/houston-dystonia-support-group/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. ** Note New Date ** May 23, 2026 10:00 am CT – 11:00 am CT We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leader
- [Rochester, NY Dystonia Support Group Meeting](https://dystonia-foundation.org/event/rochester-ny-dystonia-support-group-meeting-5/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. October 21, 2026 6:00 pm ET – 7:00 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Lauren Jackson at 585-341-7515 or lauren_jackson@urmc.rochester.edu
- [Central Oregon Dystonia Support Group Meeting](https://dystonia-foundation.org/event/central-oregon-dystonia-support-group-meeting-4/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. October 20, 2026 1:00 pm PT – 3:00 pm PT Trinity Episcopal Church 469 NW Wall St. Bend, OR 97701 We look forward to seeing you. If you are interested in attending, please reach out
- [Atlanta Dystonia Support Group Meeting](https://dystonia-foundation.org/event/atlanta-dystonia-support-group-meeting-3/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. October 17, 2026 10:00 am ET - 11:00 am ET If you are interested in attending, please reach out to DMRF support group leader Kathy Ray at 404-274-5934or kathyray47@gmail.com for meeting details. Our group meets the third
- [NYC Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nyc-dystonia-support-group-meeting-3/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. October 16, 2026 6:00 pm ET - 7:30 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Margaux Galli at margauxadvocacy@gmail.com or
- [St. Louis Dystonia Support Group Meeting](https://dystonia-foundation.org/event/st-louis-dystonia-support-group-meeting-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. October 11, 2026 2:00 pm St. Louis County Library Grant's View Branch 9700 Musick Road St. Louis, MO 63123 For more information or to RSVP, please contact DMRF support group leaders Wes Boshart at 314-560-4313
- [NYC Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nyc-dystonia-support-group-meeting-7/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. September 18, 2026 6:00 pm ET - 7:30 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Margaux Galli at margauxadvocacy@gmail.com or
- [Houston Dystonia Support Group Meeting](https://dystonia-foundation.org/event/houston-dystonia-support-group-meeting-4/) - Co Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. September 19, 2026 10:00 am CT – 11:00 am CT We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leader Fabio Salazar at 832-646-9101
- [Atlanta Dystonia Support Group Meeting](https://dystonia-foundation.org/event/atlanta-dystonia-support-group/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. September 19, 2026 10:00 am ET - 11:00 am ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leader Kathy Ray at 404-274-5934 or
- [Rochester, NY Dystonia Support Group Meeting](https://dystonia-foundation.org/event/rochester-ny-dystonia-support-group-meeting-4/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. September 16, 2026 6:00 pm ET – 7:00 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Lauren Jackson at 585-341-7515 or lauren_jackson@urmc.rochester.edu
- [Central Oregon Dystonia Support Group Meeting](https://dystonia-foundation.org/event/central-oregon-dystonia-support-group-meeting-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. September 15, 2026 1:00 pm PT – 3:00 pm PT We look forward to seeing you. For more information or to RSPV, please reach out to DMRF support group leader Pat Croll at 541-325-2106 or pnjcroll@bendcable.com for meeting details.
- [North Carolina Dystonia Support Group Meeting](https://dystonia-foundation.org/event/north-carolina-dystonia-support-group-meeting-3/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. September 10, 2026 3:00 pm ET - 4:30 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Crystal Edmonds at 910-728-6142 or
- [Dystonia Support & Advocacy Group of San Diego County Meeting](https://dystonia-foundation.org/event/dystonia-support-advocacy-group-of-san-diego-county-meeting-2/) - Individuals with all forms of dystonia as well as their family members, friends and others are invited to join us for our next virtual support group meeting. September 12, 2026 1:00 pm PT – 3:00 pm PT Guest Speaker: Zoltan Mari, MD Ruvo Family Chair & Director of the Parkinson’s Disease & Movement Disorders Program
- [Dystonia Support & Advocacy Group of San Diego County Meeting](https://dystonia-foundation.org/event/dystonia-support-san-diego/) - Individuals with all forms of dystonia as well as their family members, friends and others are invited to join us for our next virtual support group meeting. Our goal is to create a comfortable and safe setting for our attendees where we can learn, exchange information and support one another. July 11, 2026 1:00 pm
- [Rochester, NY Dystonia Support Group Meeting](https://dystonia-foundation.org/event/rochester-ny-dystonia-support-group-meeting-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. August 19, 2026 6:00 pm ET – 7:00 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Lauren Jackson at 585-341-7515 or lauren_jackson@urmc.rochester.edu
- [Rochester, NY Dystonia Support Group Meeting](https://dystonia-foundation.org/event/rochester-ny-dystonia-support-group-meeting-3/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. July 15, 2026 6:00 pm ET – 7:00 pm ET We look forward to seeing you. IIf you are interested in attending, please reach out to DMRF support group leaders Lauren Jackson at 585-341-7515 or lauren_jackson@urmc.rochester.edu
- [Rochester, NY Dystonia Support Group Meeting](https://dystonia-foundation.org/event/rochester-ny-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. June 17, 2026 6:00 pm ET – 7:00 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Lauren Jackson at 585-341-7515 or lauren_jackson@urmc.rochester.edu
- [Rochester, NY Dystonia Support Group Meeting](https://dystonia-foundation.org/event/rochester-ny-dystonia-support-group-meeting-6/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. May 20, 2026 6:00 pm ET – 7:00 pm ET Guest Speakers: Michael Oldham, MD, MPH Vice President Clinical Development, Vima Therapeutics & Luke Kramer Director of Patient and Community Partnerships, Vima Therapeutics We look
- [Central Oregon Dystonia Support Group Meeting](https://dystonia-foundation.org/event/central-oregon-dystonia-support-group-meeting-7/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. August 18, 2026 1:00 pm PT – 3:00 pm PT Trinity Episcopal Church 469 NW Wall St. Bend, OR 97701 We look forward to seeing you. If you are interested in attending, please reach out
- [Atlanta Dystonia Support Group Meeting](https://dystonia-foundation.org/event/atlanta-dystonia-support-group-meeting-5/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. August 15, 2026 10:00 am ET - 11:00 am ET If you are interested in attending, please reach out to DMRF support group leader Kathy Ray at 404-274-5934or kathyray47@gmail.com for meeting details. Our group meets the third
- [NYC Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nyc-adult-dystonia-support-group/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. August 14, 2026 6:00 pm ET - 7:30 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Margaux Galli at margauxadvocacy@gmail.com or
- [St. Louis Dystonia Support Group Meeting](https://dystonia-foundation.org/event/st-louis-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. August 9, 2026 2:00 pm St. Louis County Library Grant's View Branch 9700 Musick Road St. Louis, MO 63123 For more information or to RSVP, please contact DMRF support group leaders Wes Boshart at 314-560-4313
- [Los Angeles Dystonia Support Group Meeting](https://dystonia-foundation.org/event/los-angeles-dystonia-support-group-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. May 16, 2026 10:00 am PT - 11:00 am PT Guest Speaker: Luke Kramer Director of Patient and Community Partnerships Vima Therapeutics We look forward to seeing you. If you are interested in attending, please
- [Michigan Dystonia Support Group Meeting](https://dystonia-foundation.org/event/michigan-dystonia-support-group-meeting-3/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, May 16, 2026 10:00 am ET – 11:30 am ET Guest Speaker: Debbie Booth Debbie Booth Fitness - specializing in overall wellness. Topic: Working on Balance with Movement Disorders Learn about the importance of
- [Southeast Pennsylvania Dystonia Support Group Meeting](https://dystonia-foundation.org/event/southeast-pa-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. May 21, 2026 5:00 pm ET - 6:30 pm ET Jefferson-Moss Magee Rehab-Riverfront 1500 S. Columbus Blvd. Philadelphia, PA 19147 Guest Speaker: Luke Kramer Director of Patient and Community Partnerships Vima Therapeutics We look forward
- [Central Oregon Dystonia Support Group Meeting](https://dystonia-foundation.org/event/central-oregon-dystonia-support-group-meeting-6/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Tuesday, June 16, 2026 1:00 pm PT – 3:00 pm PT Trinity Episcopal Church 469 NW Wall St. Bend, OR 97701 We look forward to seeing you. If you are interested in attending, please reach
- [Dystonia Support & Advocacy Group of San Diego County Meeting](https://dystonia-foundation.org/event/dystonia-support-advocacy-group-of-san-diego-county-meeting/) - Individuals with all forms of dystonia as well as their family members, friends and others are invited to join us for our next virtual support group meeting. May 16, 2026 1:00 pm PT – 3:00 pm PT Guest Speaker: Rose Thomas Licensed Acupuncturist, Herbalist and Nutritional Counselor Topic: Pain Management Rose Thomas has been in
- [Dyscoveries Dystonia Support Group of Spokane, WA Meeting](https://dystonia-foundation.org/event/dyscoveries-dystonia-support-group-of-spokane-wa/) - Join us for our dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. April 25, 2026 1:00 pm PDT - 2:00 pm PDT Spokane County Library District - Medical Lake Library 321 E Herb Street Medical Lake, WA 99022 Guest Speaker: Jason Aldred, MD Neurologist & Movement Disorder Specialist
- [Central Oregon Dystonia Support Group Meeting](https://dystonia-foundation.org/event/central-oregon-dystonia-support-group-meeting-5/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. July 21, 2026 1:00 pm PT – 3:00 pm PT We look forward to seeing you. For more information or to RSPV, please reach out to DMRF support group leader Pat Croll at 541-325-2106 or
- [Houston Dystonia Support Group Meeting](https://dystonia-foundation.org/event/houston-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. July 18, 2026 10:00 am CT – 11:00 am CT We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leader Fabio Salazar at 832-646-9101 or
- [Atlanta Dystonia Support Group Meeting](https://dystonia-foundation.org/event/atlanta-dystonia-support-group-meeting-4/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. July 18, 2026 10:00 am ET - 11:00 am ET If you are interested in attending, please reach out to DMRF support group leader Kathy Ray at 404-274-5934or kathyray47@gmail.com for meeting details. Our group meets the third
- [Michigan Dystonia Support Group Meeting](https://dystonia-foundation.org/event/michigan-dystonia-support-group-meeting-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. July 18, 2026 10:00 am ET – 11:00 am ET We look forward to seeing you! For more information or to RSVP, please reach out to DMRF support group leader Kim Robinson at 248-404-5035 or
- [Greater Boston Dystonia Support Group Meeting](https://dystonia-foundation.org/event/greater-boston-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. April 28, 2026 7:00 pm ET – 9:00 pm ET We look forward to seeing you! If you are interested in attending, please contact Linda Cline at 617-240-2735 or lindac5472@aol.com or Mary Letson at 617-281-6440 or
- [Connecticut 2026 Dystonia Zoo Day](https://dystonia-foundation.org/event/connecticut-2026-dystonia-zoo-day/)
- [Boston 2026 Dystonia Zoo Day](https://dystonia-foundation.org/event/boston-2026-dystonia-zoo-day/)
- [Rochester 2026 Dystonia Zoo Day](https://dystonia-foundation.org/event/rochester-2026-dystonia-zoo-day/)
- [Twin Cities 2026 Dystonia Zoo Days](https://dystonia-foundation.org/event/twin-cities-2026-dystonia-zoo-days/)
- [Indianapolis 2026 Dystonia Zoo Day](https://dystonia-foundation.org/event/indianapolis-2026-dystonia-zoo-day/)
- [Michigan 2026 Dystonia Zoo Day](https://dystonia-foundation.org/event/michigan-2026-dystonia-zoo-day/)
- [Pittsburgh 2026 Dystonia Zoo Day](https://dystonia-foundation.org/event/pittsburgh-2026-dystonia-zoo-day/)
- [Long Island 2026 Dystonia Zoo Day](https://dystonia-foundation.org/event/long-island-2026-dystonia-zoo-day/)
- [Portland 2026 Dystonia Zoo Day](https://dystonia-foundation.org/event/portland-2026-dystonia-zoo-day/)
- [Toledo 2026 Dystonia Zoo Day](https://dystonia-foundation.org/event/toledo-2026-dystonia-zoo-day/)
- [NYC Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nyc-dystonia-support-group-meeting-4/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Friday, July 17, 2026 6:00 pm ET - 7:30 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Margaux Galli at margauxadvocacy@gmail.com
- [North Carolina Dystonia Support Group Meeting](https://dystonia-foundation.org/event/north-carolina-dystonia-support-group-meeting-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Thursday, July 9, 2026 3:00 pm ET - 4:30 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Crystal Edmonds at 910-728-6142
- [Greater Richmond Area Dystonia Support Group Meeting](https://dystonia-foundation.org/event/greater-richmond-area-dystonia-support-group-meeting-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. This will be an in-person and virtual meeting. Thursday, April 2, 2026 5:00 pm ET - 6:30 pm ET at VCU Short Pump 2nd Floor 11958 W Broad Street Richmond, VA 23233 Or join us
- [Nebraska/Utah Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nebraska-dystonia-support-group-meeting-3/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. March 19, 2026 7:00 pm MST / 8:00 pm CST VIMA Therapeutics will be presenting on their current clinical trial. We will learn about VIM0423, a groundbreaking drug for all types of dystonia that is
- [Greater Boston Dystonia Support Group Meeting](https://dystonia-foundation.org/event/greater-boston-dystonia-support-group-meeting-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. March 31, 2026 7:00 pm ET – 9:00 pm ET Guest Speakers: Todd Herrington, MD, PhD Neurologist, Mass General & Ailsa Bentley, DBS Sr. Clinical Specialist and Cheryl Harrington, DBS Therapy Representative Medtronic Todd Herrington
- [North Carolina Dystonia Support Group Meeting](https://dystonia-foundation.org/event/north-carolina-dystonia-support-group-meeting-4/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Thursday, March 12, 2026 3:00 pm ET - 4:30 pm ET Guest Speakers: Representatives from the National Alliance on Mental Illness (NAMI) The NAMI representatives will address how to maintain mental health. We look forward
- [Dystonia Support Group of Greater Cleveland Meeting](https://dystonia-foundation.org/event/dystonia-support-group-of-greater-cleveland-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. This will be an in-person and virtual meeting. April 25, 2026 12:00 pm ET - 2:00 pm ET Independence Library Conference Room 8 6361 Selig Drive Independence, OH 44131 Or join via Zoom See DMRF
- [Roanoke, VA Dystonia Support Group Meeting](https://dystonia-foundation.org/event/roanoke-va-dystonia-support-group/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Tuesday, March 24, 2026 11:30 am ET Cheddar's Restaurant 4814 Valley View Boulevard NW Roanoke, VA 24012 Everyone is responsible for the cost of their own food. For more information or to RSVP, please reach
- [Dystonia Support Group of Greater Cleveland Meeting](https://dystonia-foundation.org/event/dystonia-support-group-of-greater-cleveland/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. This will be an in-person and virtual meeting. Saturday, February 28, 2026 12:00 pm ET - 2:00 pm ET Independence Library 6361 Selig Drive Independence, Oh 44131 Or join via Zoom See DMRF email or
- [Fairfield, CA Dystonia Support Group Meeting](https://dystonia-foundation.org/event/fairfield-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, March 21, 2026 1:00 pm PT - 4:00 pm PT Beverages and light snacks will be available. You are welcome to bring something to share with the group. If you are interested in attending,
- [Los Angeles Dystonia Support Group Meeting](https://dystonia-foundation.org/event/los-angeles-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. April 25, 2026 11:00 am PT - 12:00 pm PT We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leader Von Cashman at 562-335-3422 or
- [Los Angeles Dystonia Support Group Meeting](https://dystonia-foundation.org/event/los-angeles-dystonia-support-group-meeting-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. March 19, 2026 6:30 pm PT - 7:30 pm PT We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leader Von Cashman at 562-335-3422 or
- [Los Angeles Dystonia Support Group Meeting](https://dystonia-foundation.org/event/los-angeles-dystonia-support-group-3/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. February 21, 2026 11:00 am PT - 12:00 pm PT We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leader Von Cashman at 562-335-3422 or
- [Atlanta Dystonia Support Group Meeting](https://dystonia-foundation.org/event/atlanta-dystonia-support-group-meeting-6/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, June 20, 2026 10:00 am ET - 11:00 am ET If you are interested in attending, please reach out to DMRF support group leader Kathy Ray at 404-274-5934or kathyray47@gmail.com for meeting details. Our group meets the
- [St. Louis Dystonia Support Group Meeting](https://dystonia-foundation.org/event/st-louis-dystonia-support-group/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Sunday, June 14, 2026 2:00 pm St. Louis County Library Grant's View Branch 9700 Musick Road St. Louis, MO 63123 For more information or to RSVP, please contact DMRF support group leaders Wes Boshart at
- [NYC Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nyc-dystonia-support-group-meeting-5/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Friday, June 12, 2026 6:00 pm ET - 7:30 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Margaux Galli at margauxadvocacy@gmail.com
- [Hudson Valley, NY Dystonia Support Group Meeting](https://dystonia-foundation.org/event/hudson-valley-ny-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, June 6, 2026 1:30 pm ET - 3:00 pm ET Albany Medical Center Choices Café Cafeteria, 1st Floor Upper Level Mezzanine 43 New Scotland Avenue Albany, NY 12208 For more information or to RSVP,
- [Greater Richmond Area Dystonia Support Group Meeting](https://dystonia-foundation.org/event/greater-richmond-area-dystonia-support-group-meeting-4/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. This will be an in-person and virtual meeting. Thursday, May 28, 2026 5:00 pm ET - 6:30 pm ET at VCU Short Pump 2nd Floor 11958 W Broad Street Richmond, VA 23233 Or join us
- [Central Oregon Dystonia Support Group Meeting](https://dystonia-foundation.org/event/central-oregon-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Tuesday, May 19, 2026 1:00 pm PT – 3:00 pm PT We look forward to seeing you. For more information or to RSPV, please reach out to DMRF support group leader Pat Croll at 541-325-2106 or pnjcroll@bendcable.com for meeting
- [Atlanta Dystonia Support Group Meeting](https://dystonia-foundation.org/event/atlanta-dystonia-support-group-meeting-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, May 16, 2026 10:00 am ET - 11:00 am ET If you are interested in attending, please reach out to DMRF support group leader Kathy Ray at 404-274-5934or kathyray47@gmail.com for meeting details. Our group meets the
- [NYC Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nyc-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Friday, May 15, 2026 6:00 pm ET - 7:30 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Margaux Galli at margauxadvocacy@gmail.com
- [North Carolina Dystonia Support Group Meeting](https://dystonia-foundation.org/event/north-carolina-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Thursday, May 14, 2026 3:00 pm ET - 4:30 pm ET We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leaders Crystal Edmonds at 910-728-6142
- [Atlanta Dystonia Support Group Meeting](https://dystonia-foundation.org/event/atlanta-dystonia-support-group-meeting/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, April 18, 2026 10:00 am ET - 11:00 am ET If you are interested in attending, please reach out to DMRF support group leader Kathy Ray at 404-274-5934or kathyray47@gmail.com for meeting details. Our group meets the
- [Houston Dystonia Support Group Meeting](https://dystonia-foundation.org/event/houston-dystonia-support-group-meeting-3/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, March 21, 2026 10:00 am CT – 11:00 am CT We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leader Fabio Salazar at 832-646-9101
- [Hudson Valley, NY Dystonia Support Group Meeting](https://dystonia-foundation.org/event/hudsonvalley/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, October 3, 2026 1:30 pm ET - 3:00 pm ET Albany Medical Center Choices Café Cafeteria, 1st Floor Upper Level Mezzanine 43 New Scotland Avenue Albany, NY 12208 For more information or to RSVP,
- [Hudson Valley, NY Dystonia Support Group Meeting](https://dystonia-foundation.org/event/hudson-valley-ny-dystonia-support-group/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, March 7, 2026 1:30 pm ET - 3:00 pm ET Albany Medical Center Choices Café Cafeteria, 1st Floor 43 New Scotland Avenue Albany, NY 12208 For more information or to RSVP, please reach out
- [Metro Detroit Dystonia Support Group Meeting](https://dystonia-foundation.org/event/metro-detroit-dystonia-support-group-meeting-2/) - Join us at our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. This will be an in-person and virtual meeting. January 26, 2026 7:00 pm ET - 8:00 pm ET Romeo District Library 65821 Van Dyke Ave Washington, MI 48095 or Or join us via Google Meet
- [Greater Richmond Area Dystonia Support Group Meeting](https://dystonia-foundation.org/event/greater-richmond-area-dystonia-support-group-meeting-3/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. This will be an in-person and virtual meeting. Friday, January 30, 2026 5:00 pm ET - 6:30 pm ET at VCU Short Pump 2nd Floor 11958 W Broad Street Richmond, VA 23233 Or join us
- [Houston Dystonia Support Group Meeting](https://dystonia-foundation.org/event/houston-dystonia-support-group-meeting-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, January 17, 2026 10:00 am CT – 11:00 am CT We look forward to seeing you. If you are interested in attending, please reach out to DMRF support group leader Fabio Salazar at 832-646-9101
- [CANCELLED:  Nevada Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nevada-dystonia-support-group-meeting/) - The Nevada Dystonia Support Group meeting scheduled for Tuesday, December 9, 2025 from 12:00 pm - 2:00 pm PT is cancelled. We apologize for any inconvenience. If you have any questions, reach out to DMRF support group leader Diana Wright. For more information, please contact Diana Wright at 530-570-9608 or NVDystonia@yahoo.com. Our group meets of every
- [Central Oregon Dystonia Support Group Holiday Luncheon](https://dystonia-foundation.org/event/central-oregon-dystonia-support-group-holiday-luncheon/) - Join us for our annual Holiday Luncheon and connect with others in the community. Individuals with all forms of dystonia, family and friends are welcome. Tuesday, December 9, 2025 1:00 pm PT If you are interested in attending, please contact DMRF support group leader Pat Croll for location details. We look forward to seeing you.
- [Rochester, NY Dystonia Holiday Party](https://dystonia-foundation.org/event/rochester-ny-dystonia-support-group-meeting-7/) - Connect with others at our Dystonia Holiday Party. Individuals with all forms of dystonia, family and friends are welcome. Wednesday, December 17, 2025 6:00 pm ET – 7:00 pm ET University of Rochester Medical Center/Neurology - Movement Disorders 4901 Lac De Ville Blvd Building D, Suite 120 Rochester, NY 14618 There will be raffles, activities
- [Greater Richmond Area Dystonia Support Group Holiday Party](https://dystonia-foundation.org/event/greater-richmond-area-dystonia-support-group-meeting/) - Connect with others at our Holiday Party. Individuals with all forms of dystonia, family and friends are welcome. This will be an in-person and virtual meeting. Thursday, December 4, 2025 5:00 pm ET - 6:30 pm ET VCU Short Pump 2nd Floor 11958 W Broad Street Richmond, VA 23233 We look forward to seeing you.
- [Fairfield, CA Dystonia Support Group Holiday Luncheon](https://dystonia-foundation.org/event/fairfield/) - Join us for annual Holiday Luncheon and connect with others in the community. Individuals with all forms of dystonia, family and friends are welcome. Saturday, December 6, 2025 1:00 pm at The Ole Spaghetti Factory Restaurant 1955 Mt Diablo Street Concord, CA 94520 Parking is available in front of the restaurant if you are lucky
- [Greater Washington, DC Dystonia Support Group](https://dystonia-foundation.org/event/greater-washington-dc-dystonia-support-group-meeting/) - Connect with others at our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Sunday, November 16, 2025 1:00 pm ET Guest Speaker: Vicki McQuin Certified Yoga Instructor Vicki will lead the group in a 15 to 20 minute meditation journey that will concentrate on breathing and relaxation
- [Portland, OR & SW Washington Dystonia Support Group Meeting](https://dystonia-foundation.org/event/portland-or-sw-washington-dystonia-support-group-meeting/) - Connect with others at our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Sunday, December 71, 2025 1:00 pm PT – 3:00 pm PT Parkinson's Resources of Oregon (PRO) 8880 SW Nimbus Ave Beaverton, OR 97008 Guest Speaker: Hilda Rodgers Medtronic Rep Light refreshments will be provided.
- [Nevada Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nv-dystonia-support-group-3/) - Connect with others at our next in-person dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Tuesday, November 18, 2025 12:00 pm PT - 2:00 pm PT Spanish Springs Library Washoe Room 7100-A Pyramid Highway Sparks, NV 89436 We look forward to seeing you. For more information or to
- [Connecticut Dystonia Support Group Meeting](https://dystonia-foundation.org/event/central-ct-january/) - Connect with others at our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, November 1, 2025 11:00 am ET- 1:00 pm ET Guest Speaker: J. Antonelle de Marcaida, MD Medical Director Hartford HealthCare We look forward to seeing you. If you are interested in attending, please
- [Los Angeles Dystonia Support Group Meeting](https://dystonia-foundation.org/event/los-angeles/) - Connect with others at our next virtual dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Thursday, November 6, 2025 6:30 pm PT – 7:30 pm PT We look forward to seeing you. If you are interested in attending, please contact Von Cashman at 562-335-3422 or voncashman@verizon.net for login details.
- [Colorado Dystonia Support Group Meeting](https://dystonia-foundation.org/event/denver-co-dystonia-support-group/) - Connect with others at our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, September 20, 2025 1:00 pm - 3:00 pm Englewood Public Library 1000 Englewood Pkwy Englewood, CO 80110 Guest Speakers: Ashley Roberts Revance Pharmaceuticals and Kailey Osborn UCHealth Ashley Roberts will present on DAXXIFY,
- [Angels Walk for Dystonia](https://dystonia-foundation.org/event/angels-walk-for-dystonia/) - Charity event to support dystonia awareness and research.
- [Dystonia Support Group of Greater Cleveland Meeting](https://dystonia-foundation.org/event/dystonia-support-group-of-greater-cleveland-meeting-2/) - Connect with others at our next support group meeting. Individuals with all forms of dystonia, family and friends are welcome. This will be an in-person and virtual meeting. Saturday, December 13, 2025 12:00 pm ET - 2:00 pm ET Independence Library Conference (8) 6361 Selig Drive Independence, OH 44131 Or join via Zoom See DMRF
- [Dystonia Support Group of Kentuckiana Meeting](https://dystonia-foundation.org/event/dystonia-support-group-of-kentuckiana/) - Connect with others at our next support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. This will be an in-person and virtual meeting. Tuesday, August 12, 2025 5:30 pm ET – 6:30 pm ET UofL Medical Center First Floor Conference Room 3920 Dutchmans Lane Louisville, KY 40207
- [Dystonia Support Group of Kentuckiana Meeting](https://dystonia-foundation.org/event/dystonia-support-group-of-kentuckiana-2/) - Connect with others at our next support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. This will be an in-person and virtual meeting. Tuesday, November 11, 2025 5:30 pm ET – 6:30 pm ET UofL Medical Center First Floor Conference Room 3920 Dutchmans Lane Louisville, KY 40207
- [Nevada Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nevada-dystonia-support-group-meeting-2/) - Connect with others at our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Tuesday, October 14, 2025 12:30 pm PT - 2:30 pm PT Spanish Springs Library Washoe Room 7100-A Pyramid Highway Sparks, NV 89436 We look forward to seeing you. For more information or to RSVP,
- [Nevada Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nv-dystonia-support-group-2/) - Connect with others at our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Wednesday, September 10, 2025 12:30 pm PT - 2:30 pm PT Spanish Springs Library Washoe Room 7100-A Pyramid Highway Sparks, NV 89436 We look forward to seeing you. For more information or to RSVP,
- [Dallas Dystonia Support Group Meeting](https://dystonia-foundation.org/event/dystonia-association-of-dallas-support-group-meeting/) - Connect with others at our next virtual dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, June 21, 2025 2:00 pm Villa De Leon 501 Samuels Ave Fort Worth, TX 76102 We look forward to seeing you. For more information or to RSVP, please contact Rick Jones at
- [Twin Cities Dystonia Zoo Day](https://dystonia-foundation.org/event/twin-cities-zoo-day/) - Twin Cities Dystonia Zoo Day October 5, 2025 Join friends of the DMRF for the 2025 Twin Cities Dystonia Zoo Day. This is a family-friendly event to raise awareness of dystonia, a little-known brain disorder, and to support the work of the DMRF to find a CURE. Como Midway Picnic Pavilion 1199 Midway Parkway St.
- [Ft. Wayne Dystonia Zoo Day](https://dystonia-foundation.org/event/ft-wayne-zoo-day/) - Ft. Wayne Dystonia Zoo Day September 27, 2025 Join friends of the DMRF for the 2025 Ft. Wayne Dystonia Zoo Day. This is a family-friendly event to raise awareness of dystonia, a little-known brain disorder, and to support the work of the DMRF to find a CURE. Ft. Wayne Children’s Zoo 3411 Sherman Ft. Wayne,
- [Indianapolis Dystonia Zoo Day](https://dystonia-foundation.org/event/indianapolis-zoo-day/) - Indianapolis Dystonia Zoo Day September 20, 2025 Join friends of the DMRF for the 2025 Indianapolis Dystonia Zoo Day. This is a family-friendly event to raise awareness of dystonia, a little-known brain disorder, and to support the work of the DMRF to find a CURE. Indianapolis Zoo 1200 W Washington St Indianapolis, IN 46222 10:00
- [Lansing Dystonia Zoo Day](https://dystonia-foundation.org/event/lansing-zoo-day/) - Lansing Dystonia Zoo Day September 20, 2025 Join friends of the DMRF for the 2025 Lansing Dystonia Zoo Day. This is a family-friendly event to raise awareness of dystonia, a little-known brain disorder, and to support the work of the DMRF to find a CURE. Potter Park Zoo 1301 S Pennsylvania Ave Lansing, MI 48912
- [Pittsburgh Dystonia Zoo Day](https://dystonia-foundation.org/event/pittsburgh-zoo-day/) - Pittsburgh Dystonia Zoo Day September 14, 2025 Join friends of the DMRF for the 2025 Pittsburgh Dystonia Zoo Day. This is a family-friendly event to raise awareness of dystonia, a little-known brain disorder, and to support the work of the DMRF to find a CURE. Pittsburgh Zoo & Aquarium 7370 Baker Street Pittsburgh, PA
- [Long Island Dystonia Zoo Day](https://dystonia-foundation.org/event/long-island-zoo-day/) - Long Island Dystonia Zoo Day September 13, 2025 Join friends of the DMRF for the 2025 Long Island Dystonia Zoo Day. This is a family-friendly event to raise awareness of dystonia, a little-known brain disorder, and to support the work of the DMRF to find a CURE. Suffolk County Farm & Education Center 350 Yaphank
- [Toledo Dystonia Zoo Day](https://dystonia-foundation.org/event/toledo-zoo-day/) - Toledo Dystonia Zoo Day August 23, 2025 Join friends of the DMRF for the 2025 Toledo Dystonia Zoo Day. This is a family-friendly event to raise awareness of dystonia, a little-known brain disorder, and to support the work of the DMRF to find a CURE. Toledo Zoo & Aquarium 2 Hippo Way Toledo, OH 43609
- [Portland Dystonia Zoo Day](https://dystonia-foundation.org/event/portland-zoo-day/) - Portland Dystonia Zoo Day July 26, 2025 Join friends of the DMRF for the 2025 Portland Dystonia Zoo Day. This is a family-friendly event to raise awareness of dystonia, a little-known brain disorder, and to support the work of the DMRF to find a CURE. Oregon Zoo Polar Plaza 4001 SW Canyon Rd Portland, OR
- [Providence/New England Dystonia Zoo Day](https://dystonia-foundation.org/event/new-england-zoo-day/) - A charity event at the Zoo to raise awareness about dystonia.
- [Nevada Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nv-dystonia-support-group/) - Connect with others at our next dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Tuesday, August 12, 2025 12:00 pm PT - 2:00 pm PT Spanish Springs Library Washoe Room 7100-A Pyramid Highway Sparks, NV 89436 We look forward to seeing you. For more information or to RSVP,
- [Minnesota Dystonia Support Group Meeting](https://dystonia-foundation.org/event/minnesota-dystonia-support-group-meeting/) - Connect with others at our next virtual dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. This will be an in-person and virtual meeting. Monday, May 12, 2025 6:00 pm CT – 7:30 pm CT Glen Large Meeting Room Inver Glen Library 8098 Blaine Ave Inver Grove Heights, MN
- [Dystonia Support Group of Kentuckiana Meeting](https://dystonia-foundation.org/event/dystonia-support-group-of-kentuckiana-3/) - Connect with others at our next support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. This will be an in-person and virtual meeting. Tuesday, May 13, 2025 5:30 pm ET – 6:30 pm ET UofL Medical Center First Floor Conference Room 3920 Dutchmans Lane Louisville, KY 40207
- [Northern New Jersey Dystonia Support Group Meeting](https://dystonia-foundation.org/event/northern-new-jersey-dystonia-support-group-meeting/) - Connect with others at our next virtual dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Thursday, April 17, 2025 7:00 pm ET – 8:00 pm ET We look forward to seeing you. For more information or to RSVP, please contact Jocelynn Gonzalez at 973-955-9244 or Carlos Gonzalez at 862-251-8775 or email NorthernNewJersey.dmrf@gmail.com for
- [The Power of Laughter Webinar](https://dystonia-foundation.org/event/the-power-of-laughter-webinar/) - Please join us on Wednesday, April 30th at 6:00 pm CT to learn how laughter can improve our health. Certified Yoga and Laughter Yoga instructor, Rachel Frank will help us understand the power of a good laugh on our health. We will learn why laughing is good for us and how to add more laughter
- [Metro Detroit Dystonia Support Group Meeting](https://dystonia-foundation.org/event/se-michigan-support-group/) - Connect with others at our next virtual dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Wednesday, March 26, 2025 7:00 pm ET - 8:00 pm ET We look forward to seeing you. If you are interested in attending, please contact Bill Aemisegger at 586-232-5028 or admin@metrodetroitdystonia.com for meeting
- [Metro Detroit Dystonia Support Group Meeting](https://dystonia-foundation.org/event/metro-detroit-dystonia-support-group-meeting/) - Join us for our next virtual dystonia support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Wednesday, December 11, 2024 7:00 pm ET – 8:00 pm ET We look forward to seeing you. If you are interested in attending, please contact Bill Aemisegger at 586-232-5028 or admin@metrodetroitdystonia.com for meeting details. Group Webpage: https://www.metrodetroitdystonia.com/ Group Facebook Page: https://www.facebook.com/groups/563614013751215
- [Hunt for a Dystonia Cure Chicago](https://dystonia-foundation.org/event/hunt-for-a-dystonia-cure-chicago/) - Join DMRF Supporters in the Chicago area for a family-friendly fun scavenger hunt at Oakbrook Center. Raffles for everyone & cash prizes for the winning teams.
- [Minnesota Dystonia Support Group Picnic/Meeting](https://dystonia-foundation.org/event/minnesota-dystonia-support-group-meeting-2/) - Join us for our support group picnic/meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, August 3, 2024 2:00 pm CT Minnehaha Park - Wabun G 46th Ave S Minneapolis, MN 55417 The park is located at the intersection of Hiawatha Avenue and Minnehaha Parkway. We are meeting at the Wabun
- [Bid It Up for Dystonia - Auction Preview Dates](https://dystonia-foundation.org/event/bid-it-up-for-dystonia-auction-preview-dates/) - DMRF's Nationwide Online Auction October 19 - 21: Auction Preview Dates
- [Bid It Up for Dystonia - Auction is Live](https://dystonia-foundation.org/event/bid-it-up-for-dystonia-auction-is-live/) - DMRF's Nationwide Online Auction October 22 - 24: Auction is Live
- [Botulinum Neurotoxin Injections for the Treatment of Dystonia Webinar](https://dystonia-foundation.org/event/botulinum-neurotoxin-injections-for-the-treatment-of-dystonia-webinar/) - REGISTER to join us for this educational webinar. Botulinum neurotoxin injections are a mainstay of treatment for many forms of dystonia. Learn more about this treatment: how it works, what factors can influence the outcome of treatment, and the chances of side effects. The speaker for this program is H. A. “Buz” Jinnah, MD, PhD,
- [Seattle Dystonia Support Group Meeting](https://dystonia-foundation.org/event/seattle-dystonia-support-group-meeting/) - Join us for our next virtual dystonia support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. Thursday, May 23, 2024 12:00 pm PDT Guest Speaker: Dr. Jennie Davis Movement Disorder Neurologist Topic: Botulinum Neurotoxin Intervention Click here to RSVP for the event. We look forward to seeing
- [Arizona Dystonia Support Group Meeting](https://dystonia-foundation.org/event/phoenix-az-dystonia-support-group-meeting/) - Join us for our next support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, May 18, 2024 11:00 am MST - 12:00 pm MST We look forward to seeing you. If you are interested in attending, please contact Carrie and Greg Fehlberg at phoenixdystonia@gmail.com for meeting details.
- [Dystonia Warrior Ride](https://dystonia-foundation.org/event/dystonia-warrior-ride/) - Charity event to support dystonia awareness and research.
- [Virtual Dystonia Zoo Day](https://dystonia-foundation.org/event/virtual-dystonia-zoo-day-closing-ceremony/) - An online event to raise dystonia awareness and funds for medical research.
- [Boston Dystonia Zoo Day](https://dystonia-foundation.org/event/boston-dystonia-zoo-day/) - Boston Dystonia Zoo Day August 25, 2024 Join families in the Boston area on this important day to promote dystonia awareness and raise funds to support the DMRF. Click here to register for the event.
- [Dystonia Awareness Month](https://dystonia-foundation.org/event/dystonia-awareness-month/) - Dystonia awareness campaign.
- [Dystonia Caregivers Webinar](https://dystonia-foundation.org/event/44778/) - REGISTER to join us for this educational webinar focusing on dystonia caregivers and the steps they should consider in taking care of their needs. The speaker for this program is Natalie Hellmers, PhD, RN, ACNP-BC, Nurse Practitioner of Weill Cornell Medicine, Department of Neurology.
- [Dothan, AL Dystonia Support Group Meeting](https://dystonia-foundation.org/event/dothan-al/) - Join us for our next support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Saturday, June 22, 2024 10:00 am CT - 12:00 pm CT Covenant United Methodist Church McKay Christian Life Center Room 116 3610 West Main Street Dothan, AL 36303 For more information or to RSVP, please contact
- [Dystonia Support Group of Keene, NH Meeting](https://dystonia-foundation.org/event/dystonia-support-group-of-keene-nh-meeting/) - Join us for our next virtual dystonia support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. Wednesday, March 13, 2024 7:00 pm ET – 8:00 pm ET We look forward to seeing you. If you are interested in attending, please contact Gail Parsons at 603-357-3770 for meeting
- [Dothan, AL Dystonia Support Group Meeting](https://dystonia-foundation.org/event/dothan-al-dystonia-support-group-meeting/) - Join us for our next support group meeting. Individuals with all forms of dystonia, as well as family and friends are welcome to attend. Saturday, March 9, 2024 10:00 am CT – 12:00 pm CT Covenant United Methodist Church CLC Room 116 3610 West Main Street Dothan, AL 36303 For more information or to RSVP,
- [Florida Dystonia Support Group Meeting](https://dystonia-foundation.org/event/miami-fl-dystonia-support-group-meeting/) - Join us for our next virtual support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. Thursday, January 25, 2024 7:00 pm ET – 8:00 pm ET We look forward to seeing you. If you are interested in attending, please contact Richard Warren at dmrfmiami@gmail.com for meeting details.
- [Maine Dystonia Support Group Meeting](https://dystonia-foundation.org/event/maine-dystonia-support-group-meeting/) - Join us for our next virtual support group meeting. Individuals with all forms of dystonia, family and friends are welcome. Wednesday, January 17, 2024 7:00 pm ET – 8:00 pm ET We look forward to seeing you. If you are interested in attending, please contact Laura Fleming at 603-696-4408 or dystoniagroupme@gmail.com for meeting details.
- [Central Oregon Dystonia Support Group Gathering](https://dystonia-foundation.org/event/central-oregon-dystonia-support-group-meeting-3/) - Join us for our annual dystonia support group luncheon. Individuals with all forms of dystonia as well as family and friends are welcome. Tuesday, December 19, 2023 1:00 pm The Phoenix Restaurant 594 NE Bellevue Drive Bend, OR 97701 We look forward to seeing you. If you plan on attending, please RSVP to Pat Croll
- [Chicago Dystonia Zoo Day](https://dystonia-foundation.org/event/save-the-date-chicago-dystonia-zoo-day/) - Chicago Dystonia Zoo Day October 7, 2023 Join families in the Chicago area on this important day to promote dystonia awareness and raise funds to support the DMRF. Click here to register.
- [Dystonia Support Group of Keene, NH Meeting](https://dystonia-foundation.org/event/dystonia-support-group-of-keene-nh/) - Join us for our next virtual dystonia support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. Thursday, August 24, 2023 7:00 pm ET – 8:00 pm ET We look forward to seeing you. If you are interested in attending, please contact Gail Parsons at 603-357-3770 for meeting
- [St. Louis Dystonia Zoo Day](https://dystonia-foundation.org/event/save-the-date-st-louis-dystonia-zoo-day/) - St. Louis Dystonia Zoo Day August 27, 2023 Join families in the St. Louis area on this important day to promote dystonia awareness and raise funds to support the DMRF. Click here to register for the event.
- [East Central Iowa Corridor Dystonia Support Group Meeting](https://dystonia-foundation.org/event/east-central-iowa-corridor-dystonia-support-group-meeting/) - Join us for our next support group meeting and connect with others in the community. Saturday, October 14, 2023 12:00 pm CT - 2:00 pm CT St. Paul's Lutheran Church 915 27th Street Marion, IA 52302 For more information or to RSVP, please contact Sheila Killham. Text to 319-521-5055 or email dystonia4u@yahoo.com.
- [Nashua Dystance4Dystonia 5k Walk Run for Dystonia](https://dystonia-foundation.org/event/nashua-dystance4dystonia-walk/) - Charity event to support dystonia awareness and research.
- [Newly Diagnosed Virtual Support Group Meeting](https://dystonia-foundation.org/event/newly-diagnosed-support-group-meeting/) - A meeting for the latest information about dystonia, a neurological movement disorder.
- [Dystonia Education & Support Group of the Mid-South Meeting (Memphis, TN)](https://dystonia-foundation.org/event/mid-south-march-2/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. This will be an in-person and virtual meeting. Saturday, February 25, 2023 1:00 pm CT Guest Speaker: Dr. Helen Ly Neurologist Integrative Health Associates Topic: Improving brain health with transcranial magnetic stimulation
- [Dystonia Pet Palooza - 10th Anniversary](https://dystonia-foundation.org/event/dystonia-pet-palooza-10th-anniversary/) - Help DMRF celebrate the 10th anniversary of Dystonia Pet Palooza this February. Anyone who loves pets can participate. Once you register and send in a photo, your favorite pet will be added to our Dystonia Pet Palooza Team page. Then, your friends and family can show their support by making a donation, sending comments, and taking
- [Nebraska Dystonia Support Group Meeting](https://dystonia-foundation.org/event/nebraska-dystonia-support-group-meeting/) - Join us for our next virtual dystonia support group meeting. Learn about dystonia and meet others in the community. Individuals with all forms of dystonia as well as family and friends are welcome. Wednesday, December 21, 2022 7:00 pm CT – 8:00 pm CT We will be doing a check-in and will discuss how to
- [Weill Cornell Dystonia Support Group](https://dystonia-foundation.org/event/weill-cornell-dystonia-support-group/) - Join us for our first virtual dystonia support group meeting. Learn about dystonia and meet others in the community. Individuals with all forms of dystonia as well as family and friends are welcome. Wednesday, October 19, 2022 12:00 pm ET - 1:00 pm ET Guest Speaker/ Live Q&A: Dr. Hwai Ooi Neurologist Weill Cornell Medicine
- [Legacy of the DYT1/TOR1A Dystonia Gene Discovery](https://dystonia-foundation.org/event/dyt1-25-2022/) - 2022 marks the 25th anniversary of the identification of the DYT1/TOR1A gene responsible for early onset torsion dystonia. Join us for a webinar about the impact on dystonia research and clinical care with our panel of experts, including two investigators responsible for this major research milestone. Xandra O. Breakefield, PhD Professor, Neurology, Harvard Medical School
- [Dystonia & Physical Therapy Webinar](https://dystonia-foundation.org/event/pt-2022-2/) - Join us for a conversation about the role of physical therapy in the dystonia treatment plan. Guest speakers are Mary Hudson-McKinney, PT, MS, DPT, NCS, Western University of Health Sciences, and Amy Morse, PT, DPT, Synapse NeuroRehab & Wellness. There will be time for Q&A with speakers. The webinar will be recorded and made available
- [2nd Annual Fight for a Cure - Dystonia Awareness](https://dystonia-foundation.org/event/fight-cure-2022/) - Help raise funds for dystonia awareness and research toward a cure! Join local resident Linda Davis for 50/50, raffles, food, soda, water. T-shirts for sale. Donation: $20 per person All proceeds benefit the Dystonia Medical Research Foundation. For more information, please contact Linda Davis: (631) 897-9567 For tickets, please call Niel Marturiello: (631) 289-3441 Sponsored
- [Los Angeles Dystonia Zoo Day](https://dystonia-foundation.org/event/los-angeles-dystonia-zoo-day/) - Please join friends of the DMRF and families from the LA region for the Los Angeles Dystonia Zoo Day to promote awareness and raise funds for the DMRF. Click Here to Register.
- [Indy Hunt for a Cure](https://dystonia-foundation.org/event/indy-hunt-for-a-cure-2/) - Charity scavenger hunt to benefit dystonia research.
- [DMRF Pamela Sloate Bronx Dystonia Zoo Day](https://dystonia-foundation.org/event/dmrf-pamela-sloate-bronx-dystonia-zoo-day/) - Please join friends of the DMRF and families from the NY region for the Pamela Sloate Bronx Dystonia Zoo Day to promote awareness and raise funds for the DMRF.
- [Virtual Dystonia Zoo Day Kick-Off](https://dystonia-foundation.org/event/virtual-dystonia-zoo-day/) - Join us! Virtual Dystonia Zoo Day Kick-Off August 18, 2022 Help DMRF Raise Awareness and Find a Dystonia Cure.
- [Botulinum Neurotoxin Injections for Dystonia Webinar](https://dystonia-foundation.org/event/botulinum-neurotoxin-injections-for-dystonia-webinar/) - Botulinum neurotoxin injections are a common dystonia treatment. This is a highly specialized, ongoing therapy that must be customized to each patient. There are several factors than can influence outcome from treatment, degree of benefit, and chance of side effects. Join us for a conversation about achieving optimal results from botulinum neurotoxin injections with movement
- [Rockin for a Dystonia Cure](https://dystonia-foundation.org/event/rockin-for-a-dystonia-cure/) - Join friends of the DMRF in-person for an evening filled with entertainment, good food and drink. Proceeds benefit the Cure Dystonia Now Fund of the DMRF. Click Here to reserve tickets.
- [**CANCELLED** Tucson, AZ Dystonia Support Group Meeting](https://dystonia-foundation.org/event/tucson-az-dystonia-support-group-meeting-2/) - The Tucson, AZ virtual support group meeting scheduled for Sunday, May 15, 2022 from 3:00 pm MST to 5:00 pm MST is cancelled. We apologize for any inconvenience.
- [Tucson, AZ Dystonia Support Group Meeting](https://dystonia-foundation.org/event/tucson-az-dystonia-support-group-meeting/) - Join us for our first virtual dystonia support group meeting Individuals with all forms of dystonia as well as family and friends are welcome. Sunday, March 20, 2022 3:00 pm MST - 5:00 pm MST This will be an information sharing meeting. We look forward to seeing you. If you are interested in attending, please
- [Minnesota Dystonia Support Group Meeting](https://dystonia-foundation.org/event/minnesota-support/) - Join us for our next dystonia support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. Saturday, March 26 2022 11:00 am CT - 1:00 pm CT Southdale Library Ethel Berry Room 7001 York Ave S Edina, MN 55435 Free parking: https://www.hclib.org/southdale or join via Zoom. Guest Speaker:
- [Puget Sound Dystonia Symposium](https://dystonia-foundation.org/event/puget-sound-2021/) - This is a not a DMRF event, but may be of interest to members of the dystonia community in the Seattle/Tacoma/Puget Sound area. Topics to be addressed include overview of dystonia, migraine and dystonia, nutrition, body alignment, managing daily challenges, and sensory tricks. Speakers include Dr. Patrick Hogan and So Hee Kim, ARNP of Puget
- [Virtual Dystonia Educational Symposium](https://dystonia-foundation.org/event/virtual-symposium-2021-2/) - Join us virtually for a free half-day program to provide an overview of dystonia, discussion of non-motor symptoms associated with dystonia, treatment options, research update, and ways to get involved in promoting dystonia awareness and advocating for research. Presentations will feature expert speakers including past DMRF Clinical Fellows. There will be time for Q&A with
- [Dystonia & Cerebral Palsy Webinar](https://dystonia-foundation.org/event/dystonia-cp-2021/) - Join us for a webinar to discuss the relationship between dystonia and cerebral palsy, treatment approaches, and special management considerations for children and adults. Guest Speakers: Bhooma Aravamuthan, MD, DPhil, Pediatric Neurologist Washington University John R. McGuire, MD, Froedtert & Medical College of Wisconsin Physical Medicine & Rehabilitation Specialist There will be time for Q&A
- [Xeomin® Savings Webinar](https://dystonia-foundation.org/event/xeomin-2021/) - Join Us for a Webinar: Xeomin® Savings Webinar Tuesday, October 5 - 6PM Central/7PM Eastern Time The DMRF is hosting a series of webinars on the copay programs sponsored by botulinum neurotoxin companies. These programs provide financial assistance for treatment out-of-pocket costs for those who qualify. The latest of these programs will feature Merz, maker
- [Botox® Savings Program](https://dystonia-foundation.org/event/webinar-botox-2021/) - Join Us for a Webinar: Botox® Savings Program Wednesday, September 8 - 6PM Central/7PM Eastern Time The DMRF is hosting a series of webinars on the copay programs sponsored by the botulinum neurotoxin companies. These programs provide financial assistance for treatment out-of-pocket costs for those who qualify. The second of these programs will feature Allergan,
- [Dysport® Copay Program](https://dystonia-foundation.org/event/webinar-dysport-2021-2/) - Join Us for a Webinar: Dysport® Copay Program Tuesday, June 1 - 6PM Central/7PM Eastern Time The DMRF is hosting a series of webinars on the copay programs sponsored by the botulinum neurotoxin companies. These programs provide financial assistance for treatment out-of-pocket costs for those who qualify. The first of these programs in 2021 will
- [North Bay, CA Dystonia Support Group Meeting](https://dystonia-foundation.org/event/north-bay-feb-2/) - Join us for our next virtual dystonia support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. Saturday, August 14, 2021 1:30 PM PST – 3:30 PM PST We look forward to seeing you. If you are interested in attending, please contact Peggy Knapp at 707-539-6621 or mknapp@knapp-frazer.com
- [Marion IA Virtual Dog Walk](https://dystonia-foundation.org/event/marion-ia-dog-walk-virtual/) - Hope on a Leash - Register here. Join us to promote dystonia awareness and raise funds in support of research for a cure. $20/person (includes T-shirt) To receive a T-shirt, you must be registered by August 9. You will need to pick up your shirt on August 28 in Thomas Park. Children 3 and under
- [Dystonia Research Extra Access](https://dystonia-foundation.org/event/research-access-2021/) - Webinar for DMRF Members and Donors: Dystonia Research Extra Access Tuesday, May 18, 2021 - 6:00PM Central/7:00PM Eastern Time DMRF is offering a research webinar as a special thank you for DMRF supporters. This virtual program provides the opportunity to learn about the exciting launch of Dystonia, the first-ever medical journal dedicated to dystonia, plus
- [Webinar: The Dystonia Coalition](https://dystonia-foundation.org/event/dc-2021/) - Join Us for a Webinar: The Dystonia Coalition Tuesday, June 8, 2021 - 6:30PM Central/7:30PM Eastern Time The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups that is working to advance the pace of clinical and translational research in dystonia to find better treatments. The Coalition is supported by the National
- [South Carolina Dystonia Support Group Meeting](https://dystonia-foundation.org/event/south-carolina-dystonia-support-group-meeting/) - Join us for our next virtual dystonia support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. Saturday, June 12, 2021 12:00 PM EST – 2:30 PM EST If you are interested in attending, please contact Gail Boblitz at 864-520-1641 or gaboblitz@msn.com for meeting details. We look forward
- [Deep Brain Stimulation from the Patient Perspective](https://dystonia-foundation.org/event/webinar-dbs-2021/) - Join Us for a Webinar: Deep Brain Stimulation from the Patient Perspective Tuesday, April 20 - 6PM Central/7PM Eastern Time Join us for a panel discussion about deep brain stimulation (DBS) for dystonia. The conversation will focus on the experiences and insights of those who undergo this treatment. The program is suitable for individuals at
- [Dystonia is More Than a Movement Disorder](https://dystonia-foundation.org/event/webinar-depression-anxiety-2/) - Join Us for a Webinar: Dystonia is More than a Movement Disorder: Depression & Anxiety Thursday, January 21 - 6PM Central Time Join us for an informative conversation about dystonia and mental health. Depression and anxiety are common in individuals with dystonia, and frequently go unrecognized and/or untreated. Acknowledging and addressing these non-motor symptoms can
- [Western PA Dystonia Support Group Meeting](https://dystonia-foundation.org/event/western-pa-dystonia-support-group-meeting/) - Join us for our first virtual dystonia support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. Saturday, February 27, 2021 11:00 PM EST – 1:00 PM EST Guest Speakers: Taylor J. Abel, MD Pediatric Neurosurgeon UPMC Children’s Hospital of Pittsburgh and Robert Kellogg, MD, FAANS Pediatric Neurosurgeon
- [Minnesota Dystonia Support Group Gathering](https://dystonia-foundation.org/event/dmrf-minnesota-support-group-meeting/) - Join us for an informal lunch on Zoom! We can't meet at a restaurant yet, but please join us for an informal gathering. Make your food, have food delivered or heat up some leftovers, whatever works for you! Saturday, March 20, 2021 11:00 AM CST – 1:00 PM CST We look forward to seeing you.
- [South Carolina Dystonia Support Group Meeting](https://dystonia-foundation.org/event/south-carolina-dystonia-support-group-february-2/) - Join us for our next virtual dystonia support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. Saturday, April 10, 2021 12:00 PM EST – 2:30 PM EST We look forward to seeing you. If you are interested in attending, please contact Gail Boblitz at 864-520-1641 or gaboblitz@msn.com
- [Central IN Dystonia Support Group Meeting](https://dystonia-foundation.org/event/indiana-support-group/) - Join us for our next virtual dystonia support group meeting. Individuals with all forms of dystonia as well as family and friends are welcome. Sunday, February 21, 2021 3:00 PM EST – 4:00 PM EST If you are interested in attending, please contact Sunshine Fox at 317-435-7713 or sunshinefox22@gmail.com or Sarah Ernstberger at sarahernstberger@yahoo.com for
- [Dystonia Advocacy Day](https://dystonia-foundation.org/event/dystonia-advocacy-day-2/) - Give Dystonia a Voice to Congress! You can help educate Congress on dystonia and the needs of the dystonia community. Your voice matters, your story matters. Join Dystonia Advocacy Network volunteers from across the country for legislative training and meetings in Congressional offices to advocate on behalf of the dystonia community. Day 1: Legislative training

## Tags

- [dystonia](https://dystonia-foundation.org/tag/dystonia/)
- [drug discovery](https://dystonia-foundation.org/tag/drug-discovery/)
- [cervical dystonia](https://dystonia-foundation.org/tag/cervical-dystonia/)
- [botulinum toxin](https://dystonia-foundation.org/tag/botulinum-toxin/)
- [botox](https://dystonia-foundation.org/tag/botox/)
- [DYT1](https://dystonia-foundation.org/tag/dyt1/)
- [writer cramp](https://dystonia-foundation.org/tag/writer-cramp/)
- [Noreen Bukhari-Parlakturk](https://dystonia-foundation.org/tag/noreen-bukhari-parlakturk/)
- [transcranial magnetic stimulation](https://dystonia-foundation.org/tag/transcranial-magnetic-stimulation/)
- [hand dystonia](https://dystonia-foundation.org/tag/hand-dystonia/)
- [oral medication](https://dystonia-foundation.org/tag/oral-medication/)
- [anticholinergic](https://dystonia-foundation.org/tag/anticholinergic/)
- [advocacy](https://dystonia-foundation.org/tag/advocacy/)
- [anxiety](https://dystonia-foundation.org/tag/anxiety/)
- [depression](https://dystonia-foundation.org/tag/depression/)
- [sleep](https://dystonia-foundation.org/tag/sleep/)
- [insomnia](https://dystonia-foundation.org/tag/insomnia/)
- [pain](https://dystonia-foundation.org/tag/pain/)
- [alternative therapies](https://dystonia-foundation.org/tag/alternative-therapies/)
- [holistic](https://dystonia-foundation.org/tag/holistic/)
- [integrative](https://dystonia-foundation.org/tag/integrative/)
- [complementary](https://dystonia-foundation.org/tag/complementary/)
- [natural treatment](https://dystonia-foundation.org/tag/natural-treatment/)
- [research](https://dystonia-foundation.org/tag/research/)
- [neuromodulation](https://dystonia-foundation.org/tag/neuromodulation/)
- [stress reduction](https://dystonia-foundation.org/tag/stress-reduction/)
- [mindfulness](https://dystonia-foundation.org/tag/mindfulness/)
- [meditation](https://dystonia-foundation.org/tag/meditation/)
- [neurophysiology](https://dystonia-foundation.org/tag/neurophysiology/)
- [genetics](https://dystonia-foundation.org/tag/genetics/)
- [basic research](https://dystonia-foundation.org/tag/basic-research/)
- [molecular biology](https://dystonia-foundation.org/tag/molecular-biology/)
- [exercise](https://dystonia-foundation.org/tag/exercise/)
- [fitness](https://dystonia-foundation.org/tag/fitness/)
- [Botulinum neurotoxin](https://dystonia-foundation.org/tag/botulinum-neurotoxin/)
- [dystonia treatment](https://dystonia-foundation.org/tag/dystonia-treatment/)
- [grants](https://dystonia-foundation.org/tag/grants/)
- [focal dystonia](https://dystonia-foundation.org/tag/focal-dystonia/)
- [generalized dystonia](https://dystonia-foundation.org/tag/generalized-dystonia/)
- [deep brain stimulation](https://dystonia-foundation.org/tag/deep-brain-stimulation/)
- [musician](https://dystonia-foundation.org/tag/musician/)
- [diagnosis](https://dystonia-foundation.org/tag/diagnosis/)
- [food](https://dystonia-foundation.org/tag/food/)
- [diet](https://dystonia-foundation.org/tag/diet/)
- [tremor](https://dystonia-foundation.org/tag/tremor/)
- [parent](https://dystonia-foundation.org/tag/parent/)
- [in vitro](https://dystonia-foundation.org/tag/in-vitro/)
- [pre implantation testing](https://dystonia-foundation.org/tag/pre-implantation-testing/)
- [pre implantation diagnosis](https://dystonia-foundation.org/tag/pre-implantation-diagnosis/)
- [ivf](https://dystonia-foundation.org/tag/ivf/)
- [pgt](https://dystonia-foundation.org/tag/pgt/)
- [pgd](https://dystonia-foundation.org/tag/pgd/)
- [family planning](https://dystonia-foundation.org/tag/family-planning/)
- [cognitive behavioral therapy](https://dystonia-foundation.org/tag/cognitive-behavioral-therapy/)
- [rehab](https://dystonia-foundation.org/tag/rehab/)
- [physical medicine](https://dystonia-foundation.org/tag/physical-medicine/)
- [physiatry](https://dystonia-foundation.org/tag/physiatry/)
- [physiatrist](https://dystonia-foundation.org/tag/physiatrist/)
- [motor control](https://dystonia-foundation.org/tag/motor-control/)
- [torsin](https://dystonia-foundation.org/tag/torsin/)
- [sensory trick](https://dystonia-foundation.org/tag/sensory-trick/)
- [geste antagoniste](https://dystonia-foundation.org/tag/geste-antagoniste/)
- [coping](https://dystonia-foundation.org/tag/coping/)
- [life hack](https://dystonia-foundation.org/tag/life-hack/)
- [ritonavir](https://dystonia-foundation.org/tag/ritonavir/)
- [duke](https://dystonia-foundation.org/tag/duke/)
- [vanderbilt](https://dystonia-foundation.org/tag/vanderbilt/)
- [suicide](https://dystonia-foundation.org/tag/suicide/)
- [mental health](https://dystonia-foundation.org/tag/mental-health/)
- [dystonia awareness month](https://dystonia-foundation.org/tag/dystonia-awareness-month/)
- [aging](https://dystonia-foundation.org/tag/aging/)
- [arthritis](https://dystonia-foundation.org/tag/arthritis/)
- [osteoporosis](https://dystonia-foundation.org/tag/osteoporosis/)
- [family](https://dystonia-foundation.org/tag/family/)
- [siblings](https://dystonia-foundation.org/tag/siblings/)
- [spouses](https://dystonia-foundation.org/tag/spouses/)
- [therapy](https://dystonia-foundation.org/tag/therapy/)
- [counseling](https://dystonia-foundation.org/tag/counseling/)
- [healing](https://dystonia-foundation.org/tag/healing/)
- [trauma](https://dystonia-foundation.org/tag/trauma/)
- [psychology](https://dystonia-foundation.org/tag/psychology/)
- [Yips](https://dystonia-foundation.org/tag/yips/)
- [Athlete](https://dystonia-foundation.org/tag/athlete/)
- [Sports](https://dystonia-foundation.org/tag/sports/)
- [task specific](https://dystonia-foundation.org/tag/task-specific/)
- [Dystonia awareness](https://dystonia-foundation.org/tag/dystonia-awareness/)
- [Canine](https://dystonia-foundation.org/tag/canine/)
- [Service Dog](https://dystonia-foundation.org/tag/service-dog/)
- [Comfort Dog](https://dystonia-foundation.org/tag/comfort-dog/)
- [Living with Dystonia](https://dystonia-foundation.org/tag/living-with-dystonia/)
- [Social Work](https://dystonia-foundation.org/tag/social-work/)
- [Dystonia Dialogue](https://dystonia-foundation.org/tag/dystonia-dialogue/)
- [fellowships](https://dystonia-foundation.org/tag/fellowships/)
- [Dystonia Zoo Days](https://dystonia-foundation.org/tag/dystonia-zoo-days/)
- [webinar](https://dystonia-foundation.org/tag/webinar/)
- [clinical trials](https://dystonia-foundation.org/tag/clinical-trials/)
- [Dystonia Advocacy Network](https://dystonia-foundation.org/tag/dystonia-advocacy-network/)
- [samuel belzberg symposium](https://dystonia-foundation.org/tag/samuel-belzberg-symposium/)
- [CMS](https://dystonia-foundation.org/tag/cms/)

## Directory Categories

- [Support Groups](https://dystonia-foundation.org/living-dystonia/support-groups/wpbdp_category/support-groups/)

## Tags

- [global](https://dystonia-foundation.org/wc_export_is_user_exported/global/)

## Product categories

- [Brochures](https://dystonia-foundation.org/product-category/brochures/)
- [Merchandise](https://dystonia-foundation.org/product-category/merchandise/)
- [Sale](https://dystonia-foundation.org/product-category/merchandise/sale/)
- [Pet Palooza](https://dystonia-foundation.org/product-category/pets/)

## Product tags

- [dog](https://dystonia-foundation.org/product-tag/dog/)
- [dystonia](https://dystonia-foundation.org/product-tag/dystonia/)
- [dystonia news](https://dystonia-foundation.org/product-tag/dystonia-news/)
- [flag](https://dystonia-foundation.org/product-tag/flag/)
- [garden](https://dystonia-foundation.org/product-tag/garden/)
- [yard](https://dystonia-foundation.org/product-tag/yard/)
- [sign](https://dystonia-foundation.org/product-tag/sign/)
- [banner](https://dystonia-foundation.org/product-tag/banner/)
- [vinyl](https://dystonia-foundation.org/product-tag/vinyl/)
- [card](https://dystonia-foundation.org/product-tag/card/)
- [magnet](https://dystonia-foundation.org/product-tag/magnet/)
- [auto](https://dystonia-foundation.org/product-tag/auto/)
- [bottle](https://dystonia-foundation.org/product-tag/bottle/)
- [bracelet](https://dystonia-foundation.org/product-tag/bracelet/)
- [wristband](https://dystonia-foundation.org/product-tag/wristband/)
- [sticker](https://dystonia-foundation.org/product-tag/sticker/)
- [pet](https://dystonia-foundation.org/product-tag/pet/)
- [Dystonia Awareness](https://dystonia-foundation.org/product-tag/dystonia-awareness/)
- [Hat](https://dystonia-foundation.org/product-tag/hat/)
- [Beanie](https://dystonia-foundation.org/product-tag/beanie/)
- [Knit Hat](https://dystonia-foundation.org/product-tag/knit-hat/)
- [Sunglasses](https://dystonia-foundation.org/product-tag/sunglasses/)
- [Winter Hat](https://dystonia-foundation.org/product-tag/winter-hat/)
- [Luggage Tag](https://dystonia-foundation.org/product-tag/luggage-tag/)
- [Travel Items](https://dystonia-foundation.org/product-tag/travel-items/)

## Tags

- [dystonia](https://dystonia-foundation.org/events_tags/dystonia/)
- [genetics](https://dystonia-foundation.org/events_tags/genetics/)
- [research](https://dystonia-foundation.org/events_tags/research/)
- [depression](https://dystonia-foundation.org/events_tags/depression/)
- [anxiety](https://dystonia-foundation.org/events_tags/anxiety/)
- [mental health](https://dystonia-foundation.org/events_tags/mental-health/)
- [deep brain stimulation](https://dystonia-foundation.org/events_tags/deep-brain-stimulation/)
- [neuromodulation](https://dystonia-foundation.org/events_tags/neuromodulation/)
- [surgery](https://dystonia-foundation.org/events_tags/surgery/)
- [botulinum](https://dystonia-foundation.org/events_tags/botulinum/)
- [dysport](https://dystonia-foundation.org/events_tags/dysport/)
- [dog](https://dystonia-foundation.org/events_tags/dog/)
- [dogs4dystonia](https://dystonia-foundation.org/events_tags/dogs4dystonia/)
- [dogsfordystonia](https://dystonia-foundation.org/events_tags/dogsfordystonia/)
- [botox](https://dystonia-foundation.org/events_tags/botox/)
- [xeomin](https://dystonia-foundation.org/events_tags/xeomin/)
- [cerebral palsy](https://dystonia-foundation.org/events_tags/cerebral-palsy/)
- [spasticity](https://dystonia-foundation.org/events_tags/spasticity/)
- [medford](https://dystonia-foundation.org/events_tags/medford/)
- [vfw](https://dystonia-foundation.org/events_tags/vfw/)
- [raffle](https://dystonia-foundation.org/events_tags/raffle/)
- [fundraiser](https://dystonia-foundation.org/events_tags/fundraiser/)
- [occupational therapy](https://dystonia-foundation.org/events_tags/occupational-therapy/)
- [physical therapy](https://dystonia-foundation.org/events_tags/physical-therapy/)
- [rehab](https://dystonia-foundation.org/events_tags/rehab/)
- [dyt1](https://dystonia-foundation.org/events_tags/dyt1/)
- [tor1a](https://dystonia-foundation.org/events_tags/tor1a/)
- [torsion](https://dystonia-foundation.org/events_tags/torsion/)
- [early onset](https://dystonia-foundation.org/events_tags/early-onset/)