fragilex.org

# NFXF: Empowering Families, Advancing Research

> The NFXF serves all those living with Fragile X, focusing on Advocacy, Education, Research, and Treatment with Community at the heart of everything we do\.

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## Pages
- [About NFXF](https://fragilex.org/about/)
- [Contact Us](https://fragilex.org/contact/)
- [National Fragile X Foundation Privacy Policy](https://fragilex.org/privacy-policy/)
- [Shop](https://fragilex.org/shop/)
- [31 Shareable Fragile X Facts](http://fragilex.org/fx/shareable-facts-fx/)
- [Adulthood](https://fragilex.org/fxs/topics/adulthood/)
- [Advisory Committee](https://fragilex.org/about/advisors/)
- [AGG Interruptions and Fragile X Inheritance](https://fragilex.org/fx/genetics-inheritance/agg-interruptions/)
- [Autism](https://fragilex.org/fxs/topics/autism/)
- [Best Practices in Fragile X Syndrome Treatment Development](https://fragilex.org/research/articles/best-practices-fxs-treatment-development/)
- [Blog](https://fragilex.org/blog/)
- [Caregiving \& Self Care](http://fragilex.org/fxs/topics/caregiving/)
- [Daily Living](http://fragilex.org/fxs/topics/daily-life/)
- [Early Intervention for Infants and Toddlers with Fragile X Syndrome](https://fragilex.org/fxs/topics/learning-school/early-intervention-infants-toddlers-fragile-x-syndrome/)
- [Females](https://fragilex.org/fxs/topics/females)
- [Financials and Impact Reports](https://fragilex.org/about/financials/)
- [FMR1 Gray Zone Allele: What Do We Know About It?](https://fragilex.org/fx/genetics-inheritance/gray-zone-alleles/)
- [FORWARD\-MARCH Database \& Registry](http://fragilex.org/research/forward/)
- [Fragile X 101](https://fragilex.org/fx/about/)
- [Fragile X Advocacy Programs](https://fragilex.org/get-involved/advocacy)
- [Fragile X Awareness Month](https://fragilex.org/get-involved/events/awareness/)
- [Fragile X Clinic Finder](https://fragilex.org/resources/clinics/)
- [Fragile X Syndrome](https://fragilex.org/fxs/about/)
- [Fragile X\-Associated Primary Ovarian Insufficiency \(FXPOI\)](https://fragilex.org/premutation/fx-conditions/fxpoi/)
- [Fragile X\-Associated Tremor/Ataxia Syndrome \(FXTAS\)](https://fragilex.org/premutation/fx-conditions/fxtas/)
- [Fragile X\-Related Proteins](https://fragilex.org/fx/genetics-inheritance/proteins/)
- [Fragile X\-Associated Conditions](https://fragilex.org/premutation/fx-conditions/)
- [Genetic Counseling: Who, What \& How](https://fragilex.org/fx/testing-diagnosis/genetic-counseling/)
- [Genetics \& Inheritance](https://fragilex.org/fx/genetics-inheritance/)
- [Información en Español](https://fragilex.org/resources/espanol/)
- [International Family Support Networks and Clinics](https://fragilex.org/resources/intl-clinics/)
- [Learning, School, and Education](https://fragilex.org/fxs/topics/learning-school/)
- [Making Sense of Multiple Diagnoses](https://fragilex.org/fx/testing-diagnosis/multiple/)
- [Medication](https://fragilex.org/fxs/topics/medication/)
- [Managing Behavior](https://fragilex.org/fxs/topics/behavior/)
- [Newly Diagnosed](https://fragilex.org/fx/new-diagnosis/)
- [NFXF Advocacy Day](https://fragilex.org/get-involved/advocacy/advocacy-day)
- [NFXF Board of Directors](https://fragilex.org/about/bod/)
- [NFXF Data Repository](https://fragilex.org/research/researchers/data-repository/)
- [NFXF International Fragile X Conference](https://fragilex.org/get-involved/events/nfxf-conference/)
- [Methylation](https://fragilex.org/fx/genetics-inheritance/methylation/)
- [NFXF Junior Investigator Awards: Helping Secure the Future of Fragile X Scientific Research](https://fragilex.org/research/researchers/jr-investigators/)
- [Observable Symptoms of Anxiety in Individuals with Fragile X Syndrome: Parent and Caregiver Perspectives](https://fragilex.org/research/articles/observable-symptoms-anxiety/)
- [Puberty \& Sexuality](https://fragilex.org/fxs/topics/puberty/)
- [Strategies for Addressing Aggressive Behavioral Outbursts in Adolescents and Adults with Fragile X Syndrome](https://fragilex.org/fxs/topics/behavior/addressing-aggression/)
- [NFXF Community Support Network](https://fragilex.org/get-involved/community/csn/)
- [NFXF Research Readiness Program](https://fragilex.org/research/researchers/readiness-program/)
- [Meet Our Donors](https://fragilex.org/get-involved/community/meet-donors/)
- [Our Mission and Vision](http://fragilex.org/about/mission/)
- [Randi J\. Hagerman Summer Scholars Research Awards](https://fragilex.org/research/researchers/summer-scholars/)
- [Reproductive Health and Fragile X](https://fragilex.org/premutation/reproductive/)
- [The Fragile X Premutation](https://fragilex.org/premutation/about/)
- [Signs \& Symptoms](http://fragilex.org/fx/signs-symptoms/)
- [Testing \& Diagnosis](https://fragilex.org/fx/testing-diagnosis/)
- [The Congressional Fragile X Caucus](http://fragilex.org/get-involved/advocacy/congressional-fx-caucus/)
- [The International Fragile X Premutation Registry](https://fragilex.org/research/premutation-registry/)
- [Voice of People with Fragile X Syndrome and Their Families: Reports from a Survey on Treatment Priorities](https://fragilex.org/research/articles/survey-treatment-priorities/)
- [Voice of the Patient Report: A Patient\-Focused Drug Development Meeting for Fragile X Syndrome](https://fragilex.org/research/articles/nfxf-led-pfdd/)
- [Understanding a Fragile X Intermediate Result](https://fragilex.org/fx/testing-diagnosis/intermediate-result/)
- [What is Fragile X](https://fragilex.org/fx/)
- [Ways to Give](https://fragilex.org/donate/ways-to-give/)
- [Physical \& Mental Health](https://fragilex.org/fxs/topics/medical/)
- [Research 101: What is Research?](https://fragilex.org/research/guide/)
- [Research Opportunities](http://fragilex.org/research/opportunities/)
- [School \& Education](http://fragilex.org/fxs/topics/school/)
- [Prevalence](http://fragilex.org/fx/prevalence/)
- [NFXF E\-Books \& PDFs](https://fragilex.org/resources/ebooks/)
- [What Defines a “Carrier”?](https://fragilex.org/fx/testing-diagnosis/carrier-definition/)
- [NFXF Staff](http://fragilex.org/about/staff/)

## Posts
- [Fragile X Included in FY26 PRMRP](https://fragilex.org/advocacy/fragile-x-included-fy26-prmrp-topic-list/)
- [RECONNECT Q\&A](https://fragilex.org/research-fx/research-studies/reconnect-question-and-answer/)
- [University of Minnesota’s Masonic Institute for the Developing Brain \(MIDB\)](https://fragilex.org/nfxf-programs/university-minn-clinic-highlight)
- [Meet Jill and Learn About her Multi\-Generational Fragile X Family](https://fragilex.org/nfxf-programs/meet-jill-fxtas-research/)
- [Meet the Haugens, Whose Son Was Diagnosed with FXS at 10](https://fragilex.org/nfxf-programs/meet-haugens-son-diagnosed-age-ten/)

## Research Opportunities
- [Study: Identifying Translational Sleep Biomarkers in Autism](https://fragilex.org/research/opportunities/identifying-translational-sleep-biomarkers/)
- [Longitudinal Study of Brain and Cognition in Fragile X Premutation Carriers \(TRAX\)](https://fragilex.org/research/opportunities/longitudinal-study-brain-cognition-premutation-carriers/)
- [Study: Join FORWARD\-MARCH\!](https://fragilex.org/research/opportunities/forward-march-myfxresearch/)
- [PIXI Study: Parent\-Infant Fragile X Intervention](https://fragilex.org/research/opportunities/pixi-study/)
- [Study: iBehavior — A Novel Behavior Tracking App Study for individuals with Fragile X Syndrome](https://fragilex.org/research/opportunities/study-ibehavior-app-fxs/)

## Treatment Recommendations
- [Transition to Adult Services for Individuals with Fragile X Syndrome](https://fragilex.org/resources/treatment/adult-services/)
- [Elementary School Educational Recommendations for Children with Fragile X Syndrome](https://fragilex.org/resources/treatment/edu-elementary/)
- [Sleep in Children With Fragile X Syndrome](https://fragilex.org/resources/treatment/sleep-children/)
- [Sleep in Children with Fragile X Syndrome — For Your Care Team](https://fragilex.org/resources/treatment/sleep-children-fxs-care-team/)
- [Fragile X\-Associated Tremor/Ataxia Syndrome \(FXTAS\)](https://fragilex.org/resources/treatment/fxtas/)

## Webinars
- [Fragile X\-Associated Tremor/Ataxia Syndrome 101](https://fragilex.org/resources/webinars/fxtas-101/)
- [Announcing the Females with Fragile X Syndrome Webinar Series](https://fragilex.org/resources/webinars/females-fxs-webinar-series)
- [From Preschool to College: Developing College Readiness Skills](https://fragilex.org/resources/webinars/developing-college-readiness-skills)
- [Promoting Inclusive Early Childhood Environments — 2022](https://fragilex.org/resources/webinars/inclusive-early-childhood-environments-2024)
- [Promoting Inclusive Early Childhood Environments](https://fragilex.org/resources/webinars/inclusive-early-childhood-environments-2024)

## Products
- [X Embroidered Distressed Cap](https://fragilex.org/product/x-embroidered-distressed-cap/)
- [NFXF Embroidered Logo\- Adidas Performance Polo](https://fragilex.org/product/nfxf-embroidered-logo-adidas-performance-polo/)
- [Xtraordinary Hooded Long Sleeve Tee](https://fragilex.org/product/xtraordinary-hooded-long-sleeve-tee/)
- [NFXF Crossbody Bag](https://fragilex.org/product/nfxf-crossbody-bag/)
- [Xtraordinary Water Bottle \| CamelBak Eddy 20oz/25oz](https://fragilex.org/product/xtraordinary-water-bottle-camelbak-eddy-20oz-25oz/)

## Events
- [FX Dadʼs Chat](https://fragilex.org/event/fx-dadʼs-chat/)
- [SSAN April Zoom \- Chit Chat with Dillon and Kelley](https://fragilex.org/event/ssan-april-zoom-chit-chat-with-dillon-and-kelley/)
- [Females with FXS Webinar Series: Tools \& Tactics for Anxiety](https://fragilex.org/event/females-with-fragile-x-syndrome-tools-tactics-for-anxiety/)
- [Females with FXS Webinar Series: Health, Wellness \& Fertility](https://fragilex.org/event/females-fxs-webinar-puberty-sexuality/)
- [10th Annual Hadley Corn Hole Championship](https://fragilex.org/event/10th-annual-hadley-corn-hole-championship/)

## Groups
- [Fragile X Syndrome Issues \& Topics](http://fragilex.org/group/fragile-x-syndrome-issues-topics/)
- [Educational Recommendations](http://fragilex.org/group/educational-recommendations/)
- [Associated Conditions](http://fragilex.org/group/associated-conditions/)
- [Assessment of Fragile X Syndrome](http://fragilex.org/group/assessment-of-fragile-x-syndrome/)
- [Other](http://fragilex.org/group/other/)

## Optional
- [Sitemap index](http://fragilex.org/sitemap_index.xml)